moodyblue
Drama Llama
Posts: 6,246
Location: Western Illinois
Site Supporter
Jun 26, 2014 21:07:23 GMT
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Post by moodyblue on Mar 3, 2022 16:59:06 GMT
I take immune suppressing drugs for RA. Some of those in the RA community on the same drugs have had three full doses and one booster. I have had three full doses. I see my rheumatologist in five weeks and will ask if he believes I need another dose. My daughter and I take the same treatment and we’ve both been able to avoid Covid so far. We’re both careful but between her being college and working as a grocery checker, I have been surprised. I am in the same boat as you. I have RA and take rutixan. I got covid at my infusion. It was the only place I had been. Thankfully it was mild - cough, congestion, massive headache, chills, more fatigue than normal but no fever. I have had 3 vaccines and I see my dr next month and will be asking about a 4 as well. My brother gets Rituxan infusions; he has multiple autoimmune diseases including RA. At his infusion a few weeks ago the doctor talked to him about getting Evusheld, which is a combo of two monoclonal antibodies. It is being used with transplant patients and other people getting immuno-suppressing drugs. They know the vaccines aren’t as effective for many people in this situation, but it’s believed that this MAB combo can provide more protection. From the quick research I did when he told me about it, it has been in short supply some places and they were using systems to prioritize who gets it. His doctors have all agreed with him having it. My brother is just waiting to find out when.
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Post by FrozenPea on Mar 3, 2022 17:59:30 GMT
I am in the same boat as you. I have RA and take rutixan. I got covid at my infusion. It was the only place I had been. Thankfully it was mild - cough, congestion, massive headache, chills, more fatigue than normal but no fever. I have had 3 vaccines and I see my dr next month and will be asking about a 4 as well. My brother gets Rituxan infusions; he has multiple autoimmune diseases including RA. At his infusion a few weeks ago the doctor talked to him about getting Evusheld, which is a combo of two monoclonal antibodies. It is being used with transplant patients and other people getting immuno-suppressing drugs. They know the vaccines aren’t as effective for many people in this situation, but it’s believed that this MAB combo can provide more protection. From the quick research I did when he told me about it, it has been in short supply some places and they were using systems to prioritize who gets it. His doctors have all agreed with him having it. My brother is just waiting to find out when. Thank you for this information. I will be looking into it and asking my doctor about it.
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Post by dewryce on Mar 3, 2022 18:14:38 GMT
My brother gets Rituxan infusions; he has multiple autoimmune diseases including RA. At his infusion a few weeks ago the doctor talked to him about getting Evusheld, which is a combo of two monoclonal antibodies. It is being used with transplant patients and other people getting immuno-suppressing drugs. They know the vaccines aren’t as effective for many people in this situation, but it’s believed that this MAB combo can provide more protection. From the quick research I did when he told me about it, it has been in short supply some places and they were using systems to prioritize who gets it. His doctors have all agreed with him having it. My brother is just waiting to find out when. Thank you for this information. I will be looking into it and asking my doctor about it. I would do so ASAP, maybe don’t wait until your appointment. Last I read, at this point we don’t have enough for even 10% of those who needed it.
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Post by dewryce on Mar 3, 2022 18:24:45 GMT
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Post by FrozenPea on Mar 3, 2022 18:53:26 GMT
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Post by christine58 on Mar 3, 2022 20:52:35 GMT
pridemom moodyblue FrozenPea christine58 Are y’all familiar with the GHLF organization? I found it through creaky joints and they have sent out a lot of helpful info that is usually not widely spread. Please feel free to link other peas that you know could benefit from this. Thanks!! I will pass it on!!
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pridemom
Pearl Clutcher
Posts: 2,843
Jul 12, 2014 21:58:10 GMT
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Post by pridemom on Mar 5, 2022 3:48:05 GMT
That looks like a great resource. Thank you.
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