Thank you! My first "diagnosis me" thread!

I am so very sorry that you are having to deal with this.  I'm sure it is quite scary for you.  I have no answers or suggestions as to what it could be, but know that I am pulling for you!  I hope your doctor is able to give you comforting advice and that the remedy for this is much less of an ordeal that you are fearing. 

I myself am dealing with an odd nerve issue right now.  Dr. Google says it is Meralgia paresthetica based on my symptoms of burning, numbness, and pain in my left thigh area in the front only.  It is so bad that it has been preventing me from sleeping.  I finally discovered a single position where the pain and burning is diminished enough to allow me to sleep and that is by laying on the opposite side with a pillow between my knees.  I cannot lay on my back or opposite side and sitting up in a recliner doesn't help either.  

I have a phone appointment with my doctor today with a backup in-person appointment made for later this month just in case I need to be seen by him in person.  According to Dr. Google, it is a pinched femoral nerve.  I don't wear tight clothing, which is one possible cause.  I am over weight, which is another, and then it lists several other causes, a tumor being one of them.  I refuse to believe it is a tumor though.  I'm extremely focused on losing weight now and I'm currently down 19 pounds with many more to go.  I just need to know if this is for sure what my issue is and how do I mitigate it until I lose enough weight to eliminate it.

I had severe numbness and tingling in my arm down to my fingers several years ago.  I thought it was a wrist issue because I typed so much.  It turned out to be a neck issue.  I ended up needing surgery, which fixed the numbness and tingling right away.  Unfortunately I waited too long to get in to see the surgeon and tried physical therapy first.  By the time I saw the surgeon, he scolded me for waiting and said no amount of PT would fix my issue and that the physical therapist should have told me that.  By then, my nerve was so damaged that I was left with permanent pain.  The good news is that I was finally put on a time-released pain medication that has basically given me my life back to almost normal.  I only have severe pain twice a day which I can lessen by taking a Vicodin an hour before the time released pill is due to wear off.  I have to watch the clock closely, but other than that, I feel I got off pretty easily.

I hope that whatever nerve you have that is pinched is easily repaired.  And don't put it off like I did!

Sounds like a pinched nerve--but then you said you have a nerve disease, so it may be related to that.
Hope you can make it go away.

I'm the same way! But I have noticed that if I wear shorts that kind of bind at that area, it definitely gets aggravated. (Think like cuffed denim shorts.) I actually think I hurt mine exercising, go figure. And yeah, I've been everywhere from about 130 to, ahem, a whole lot more and while I think it helps when I weigh less, it doesn't help a whole lot. I'll bear that sleep advice in mind, thank you!

I'm in the pinched nerve camp. The pain and numbness sounds like what my sister had with her pinched nerve.

With your PTSD I understand how much harder this appt will be. I've got you tucked up safely in my warmest thoughts while you get this issue resolved.

another vote for pinched nerve.

I agree that it is probably a pinched nerve but I have Thoracic Outlet Syndrome and have similar sensations when I do specific things like driving, riding a bike, holding my arm straight up. The blood doesn't flow properly and if you were to feel my pulse, it actually skips a beat on the affected hand. It also does it depending on the position of my hand when I am not doing anything but standing there. Unfortunately there isn't any real treatment other than taking out a rib which I am NOT interested in doing. It's more of an annoyance.

I hope you get some answers soon.

By looking at the dermatome diagram, looks like maybe T1 for the area you are describing. Hugs, and praying you get relief soon. Nerve pain sucks. I am a sufferer.

I've had similar problems when I had a bulging disc in my neck. I did exercises and physical therapy which helped it calm down eventually. I hope you feel better soon!

I have also had myofascial release (highly recommend PT rather than massage therapist) and it made a world of difference for me, also for a joint issue. @kkren if that is suggested for you I highly recommend it. 

Hope your appointment goes well and you get relief soon. And if you need to post to vent/get encouragement before you go in we are here for you!

We switched mattresses last week and my husband's numb hand suddenly has stopped being numb. Crazy solution to something he thought was much worse.