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Post by librarylady on Apr 15, 2022 1:56:24 GMT
Learned my sister has it, and ha since 2018. Her SIL was diagnosed with it today.
Monoclonal gammopathy of undetermined significance (MGUS)
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tincin
Drama Llama
Posts: 5,378
Jul 25, 2014 4:55:32 GMT
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Post by tincin on Apr 15, 2022 3:37:12 GMT
I’ve never heard of it before.
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Post by tuva42 on Apr 15, 2022 16:06:51 GMT
It doesn't usually cause any problems, though I believe in some cases it can lead to cancer later in life.
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Post by librarylady on Apr 15, 2022 16:24:18 GMT
This must be a first--no pea says that she knows someone with the condition.
What I found said it was rare--and I was thinking, "2 people have it that I know, so how rare is it?"
With my sister and her son in law having it --that is most unique.
My sister gets a blood test concerning it every 6 months.
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Gem Girl
Pearl Clutcher
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Posts: 2,683
Jun 29, 2014 19:29:52 GMT
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Post by Gem Girl on Apr 15, 2022 17:13:52 GMT
This must be a first--no pea says that she knows someone with the condition. Give it time. Your post has been up for less than an hour on a holiday weekend.  |
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littlebear
New Member
Posts: 7
Dec 22, 2020 15:06:08 GMT
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Post by littlebear on Apr 15, 2022 17:22:39 GMT
My mother has it. So far it has not caused any problems. They monitor her blood and she see the doctor every six months. They did do a bone marrow biopsy when she was first diagnosed to see if she had cancerous cells present. She did not but MGUS does give her an increased risk for myeloma. The doctor did say as the proteins start to build up in her bones she will eventually experience joint pain.
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Post by krcrafts on Apr 15, 2022 17:34:47 GMT
My dad had it. He had lots of medical issues, but not any related to it.
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Post by gar on Apr 15, 2022 17:38:01 GMT
What is it?
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Post by krcrafts on Apr 15, 2022 18:01:19 GMT
My understanding is that it’s an elevated M protein that has the potential to cause multiple myeloma and other cancers. That’s my non-medical explanation. |
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Post by littlemama on Apr 15, 2022 18:04:31 GMT
You might have more luck if you tell is the name of the condition rather than using an acronym that we have to look up
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maryannscraps
Pearl Clutcher
Posts: 4,791
Aug 28, 2017 12:51:28 GMT
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Post by maryannscraps on Apr 15, 2022 21:14:11 GMT
My husband had that. It wasn’t a diagnosis in itself, but the presence of the m-protein was part of the confirmation of his blood cancer.
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Post by librarylady on Apr 15, 2022 22:32:46 GMT
You might have more luck if you tell is the name of the condition rather than using an acronym that we have to look up Sure, but since this is how doctors refer to it and the name is long...........
Monoclonal gammopathy of undetermined significance (MGUS)
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Post by hookedonpeas on Apr 16, 2022 3:21:19 GMT
I have it, was diagnosed when my liver enzymes were stupid high. No significance at this point, but they check my levels every 6mo. I was diagnosed at age 37
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Post by malibou on Apr 16, 2022 6:24:07 GMT
My mil is getting tested for it as we speak. She has 2 of the cancers associated with it.
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Post by peasapie on Apr 16, 2022 11:06:43 GMT
You might have more luck if you tell is the name of the condition rather than using an acronym that we have to look up It’s most often referred to by the acronym rather than the lengthy scientific name. (Similar to something like ALS where we don’t usually use the long name.) |
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Post by littlemama on Apr 16, 2022 12:33:53 GMT
You might have more luck if you tell is the name of the condition rather than using an acronym that we have to look up It’s most often referred to by the acronym rather than the lengthy scientific name. (Similar to something like ALS where we don’t usually use the long name.) After seeing the full name of it, I get that; however, (and unrelated to this instance) it seems like people are using acronyms for EVERYTHING from TV show names to business jargon (business jargon is annoying on its own, but turning everything into an acronym that most people would have NO idea what it stands for makes it that much worse) |
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Post by librarylady on Apr 16, 2022 13:41:11 GMT
It’s most often referred to by the acronym rather than the lengthy scientific name. (Similar to something like ALS where we don’t usually use the long name.) After seeing the full name of it, I get that; however, (and unrelated to this instance) it seems like people are using acronyms for EVERYTHING from TV show names to business jargon (business jargon is annoying on its own, but turning everything into an acronym that most people would have NO idea what it stands for makes it that much worse)
I also used the acronym because that is how people refer to it, and those who had it/knew someone with it would recognize it.
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