anaterra
Pearl Clutcher
Posts: 4,114
Location: Texas
Jun 29, 2014 3:04:02 GMT
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Post by anaterra on May 5, 2022 1:33:29 GMT
I have a grandson who has petit mal epilepsy... i have a few pics of him hooked to the brain scan..
Is broken brain a bad title??? I could also say silent siezures...
I like broken brain because we tease about it... but im not sure if it sounds disrespectful... and i feel if im questioning it.. then i shouldn't use it...
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Post by mom on May 5, 2022 1:38:32 GMT
I probably wouldn't use it if I was questioning it. It could be one of those things that you have 'be there' and know the story or you are left wondering if you were being disrespectful. Does that make sense?
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Deleted
Posts: 0
Nov 8, 2024 13:05:49 GMT
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Post by Deleted on May 5, 2022 1:38:57 GMT
As a mom to two teens with Autism + and non epileptic seizures, that is a hard NO.
I have medical photos of both kids and just use a title like Brave or NG tube or EEG Test.
I hope this doesn't come off harsh but you may want to rethink joking about epilepsy. Kids dies from it. It changes one's path in life.
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camcas
Pearl Clutcher
Posts: 4,140
Jun 26, 2014 3:41:19 GMT
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Post by camcas on May 5, 2022 1:43:19 GMT
What about using something generic like-“ getting checked out “ or “all wired up”
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anaterra
Pearl Clutcher
Posts: 4,114
Location: Texas
Jun 29, 2014 3:04:02 GMT
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Post by anaterra on May 5, 2022 1:54:09 GMT
I like all wired up... thanks!!
@sunnycamom we dont really laugh at him about it... he is the weird kid in school because he zones out... so we try to make him feel better... maybe tease is the wrong word..
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Post by honeypea on May 5, 2022 14:12:47 GMT
Hard no from me as well. 3/4 of my kids have goofy stuff going on in their noggins and our focus is to always play to their strengths. Yeah, their brains are haywire in some aspects, but that’s not ever the part we point out.
I can’t even imagine scrapping about this tbh.
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JRock
Full Member
Posts: 115
Jan 2, 2019 13:53:33 GMT
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Post by JRock on May 5, 2022 17:33:58 GMT
I think the answer to that question depends on why you are making the page and what you plan to do with it. I've realized that at this point I look at my scrapbooks as being part journal. I put things in there I don't necessarily want to share with others. That means though that I then simply do not share my scrapbooks. I ran into this recently when my mother was visiting and she wanted to know more about this weird hobby I have and I got really uncomfortable when she was looking at pages lingering on the journaling.
If this is a page you are making for yourself, make the title something that resonates for you. If those things are common jokes embraced by the family then it makes sense as something you would use but if you plan to share that page with anyone else know that you probably would have to include a crap ton of explanation because it does sound crass to someone that isn't a part of the joke-as-coping. Dark humor is a common coping mechanism and there is no reason your scrapbooks can't reflect all aspects of your life. I would just think through if you want anyone else to be able to see it and how you would feel about sharing it.
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Post by don on May 5, 2022 18:54:10 GMT
I think if it is "inside humor" it should be OK to use in an "inside medium".
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Post by lanena on May 5, 2022 23:39:03 GMT
It's not something I would do. It's likely to hurt someone's feelings, if not your grandson, maybe the parents? I did take photos of my oldest son when he was in the hospital after having had two grand mal seizures. My thinking at the time was that I would feel less stressed out about it at some point, and that I might even be able to scrapbook about it. Eight years later, I can't bring myself to make a page about it that anyone else could see. I still remember the heaviness of that time. I may want to write about it for myself at some point and include one of the pictures. For now, the photos are filed away.
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scrapnnana
Drama Llama
Posts: 6,438
Jun 29, 2014 18:58:47 GMT
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Post by scrapnnana on May 6, 2022 18:32:17 GMT
Sometimes, even though it is said in teasing, the person who is being teased laughs along, but it may still hurt deep down inside.
Our oldest son was epileptic (he was one of the fortunate who outgrew it). I didn’t take any photos, but if I had, all wired up would be my choice for a title.
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paget
Drama Llama
Posts: 7,090
Jun 25, 2014 21:16:39 GMT
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Post by paget on May 7, 2022 1:50:36 GMT
I understand what you mean and that it’s not really “teasing” - I get that you were using that word as it one the one closest that fit to what you were trying to explain. I would proceed like someone else said and decide based on who sees the pages. If it’s something said in family and books are for family it’s fine. But based on responses here, some think it’s sound harsh, rude etc so you’d have to deal with that. I’d probably not title it that as it stands out and without context/family familiarity doesn’t sound the most sympathetic, but I’d probably include something about in the journaling in quotes maybe where it’s explained a bit more with context.
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anaterra
Pearl Clutcher
Posts: 4,114
Location: Texas
Jun 29, 2014 3:04:02 GMT
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Post by anaterra on May 7, 2022 11:39:20 GMT
I did go with all wired up... I think it's a cute layout... my dd n dgs will not be upset about the content... it is who he is.. so it goes in my album...
And he is ok with saying his brain is broken... it's how he explains his seizures to other kids who may ask.. He knows he has wires in his brain that don't connect or misfire sometimes.. it is an easy way of letting other children know what the deal is... so they don't get scared if he has an episode in front of them... which he has..
broken brain... it isn't meant to be offensive... it's just an easy term for small children to understand what is going on in his head..
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