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Post by pjaye on Jul 1, 2022 1:08:50 GMT
I'm sorry that happened to you, that's made it more difficult than it needed to be.
Can you ask your current doctor to get in touch with the lab that looked at your first specimen and try to work out what happened? Maybe there's someone there who isn't as good at their job as they should be and it needs to be looked into further. It's possible that the biopsy could have missed all the cancer and just got healthy tissue...but unlikely. It's also possible that the first doctor didn't biopsy the correct area (which is a problem), and I'd be upset that when you when contacted the first doctor she didn't see you again and check out what was going on.
Negative lymph nodes is the best possible sign along with the other tests that show no spread, a person always has the best chance before the cancer spreads anywhere else. So that part is very good news.
Remember they have to tell you all the possible complications & side effects of chemo & radiotherapy, but not every person gets most/all of the them...fingers crossed that you are one of the lucky ones.
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Post by cadoodlebug on Jul 1, 2022 1:21:52 GMT
So thankful you got a second opinion. A good PSA for all of us. Blessings to you.
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Post by elaine on Jul 1, 2022 1:35:30 GMT
Oh no, my friend! I literally cried while reading your post. (((Hugs)))
You, amazing woman, who has been such a support to others, do not deserve this.
If there is anything I can do for you, don’t hesitate to ask.
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pilcas
Pearl Clutcher
Posts: 3,147 
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Post by pilcas on Jul 1, 2022 1:40:34 GMT
I am so very sorry. Stay strong, you seem like a positive person and that will help you in your recovery.
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Post by Lexica on Jul 1, 2022 1:51:01 GMT
First, I am so very sorry you are dealing with this. But I cannot express how very proud I am that you didn’t just let it go. You listened to you gut and your gut wanted answers. It sounds like you have the right doctors on it now and have the best possible chance to kick cancer’s butt. We are here for you. Please keep us updated if you feel up to it. You will be in my thoughts.
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Post by mom on Jul 1, 2022 1:56:33 GMT
I am so sorry you are going through this! I have to say though --- I am incredibly proud of you advocating for yourself and getting a second opinion! Your perseverance probably saved your life and that's pretty incredible! I will be praying for you and keeping you tucked into my thoughts!
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Post by peano on Jul 1, 2022 2:01:05 GMT
What a horrific experience. I think you've done us all a valuable service to remind us that we should listen to our instincts. I'm hoping for you chemo with the least amount of symptoms and the best possible outcome.
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peasquared
Drama Llama
Posts: 5,681
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Post by peasquared on Jul 1, 2022 2:04:49 GMT
I am so sorry, but I am so thankful you went for a second opinion. I'm sending you strength and love!
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Post by LavenderLayoutLady on Jul 1, 2022 2:04:49 GMT
I am so sorry you are walking this road.
And proud of you for pursuing further treatment when you knew things just weren't right.
Big (((Hugs))) and thoughts for a strong recovery.
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Post by scrapmaven on Jul 1, 2022 2:09:07 GMT
I'm so very sorry. I pray that you'll have complete, lifelong remission.
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kate
Drama Llama
Posts: 5,583
Location: The city that doesn't sleep
Site Supporter
Jun 26, 2014 3:30:05 GMT
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Post by kate on Jul 1, 2022 2:10:17 GMT
You are smart and brave to trust your instincts. God bless you on your journey. I hope your path is smooth.
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Post by piebaker on Jul 1, 2022 2:16:31 GMT
I am so sorry the first doctor ignored your suspicions. I'm glad they second doctor acted quickly.
Sending thoughts of strength and healing for the treatment ahead.
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Post by quinlove on Jul 1, 2022 2:22:03 GMT
I truly hope that you can feel all the love we are sending to you. ❤️
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J u l e e
Drama Llama
Posts: 6,531
Location: Cincinnati
Jun 28, 2014 2:50:47 GMT
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Post by J u l e e on Jul 1, 2022 2:24:50 GMT
I’m so sorry to read this. What a terrible story. I’m so mad for you, but also so impressed with how you’ve responded. You show much bravery and grace.
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gsquaredmom
Pearl Clutcher
Posts: 4,091
Jun 26, 2014 17:43:22 GMT
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Post by gsquaredmom on Jul 1, 2022 2:26:49 GMT
You all are amazing! I debated whether to post, but wanted others to learn from my experience. I appreciate your kind words. In real life, very few people know. Just one sister, my husband and sons, and my husband’s family. My mother is 88 and medically fragile, so I hope to wait to be able to say “oh, that scar is nothing to worry about-a little cancer and radiation. All cured.”
Your words and kindness will help me through this. I truly appreciate your support!
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leeny
Pearl Clutcher
Posts: 4,760
Location: Northern California
Site Supporter
Jun 27, 2014 1:55:53 GMT
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Post by leeny on Jul 1, 2022 2:38:09 GMT
((Hugs)) to you. So sorry this is happening but hoping you are well on your way to recovery.
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Post by papersilly on Jul 1, 2022 2:53:35 GMT
I'm glad you were so persistent. It's a lesson for all of us. I wish you the best for a good recovery.
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Post by malibou on Jul 1, 2022 3:04:42 GMT
Oh my, what a shock that must have been for you. I've got you tucked up safely in my warmest thoughts while you navigate this new territory, and the change to your life path going forward. You may want to ask about getting any dental things fixed now, before radiation, because after radiation to the teeth, dental work is pretty tricky stuff, particularly dental cleanings. A toddler tooth brush with the extra soft bristles feels much much better than a regular soft toothbrush. Biotene makes a really great line of products to help with dry mouth. ETA What pjaye said. Excellent advice. |
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Post by destined2bmom on Jul 1, 2022 3:16:18 GMT
I am so sorry for your diagnosis. It was smart of you to get a second opinion. I am keeping you in my thoughts and prayers for 100% healing.
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hutchfan
Drama Llama
Posts: 6,482
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Post by hutchfan on Jul 1, 2022 3:29:28 GMT
I will be saying prayers, sending you hugs!
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Post by newfcathy on Jul 1, 2022 3:33:53 GMT
OMG!!! That is so scary, so lucky that you sought a second opinion.
Wishing you a smooth recovery!
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The Great Carpezio
Pearl Clutcher
Something profound goes here.
Posts: 2,983
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Post by The Great Carpezio on Jul 1, 2022 3:34:50 GMT
I am so sorry you are dealing with this. I am sending you healing and healthy thoughts.
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ellen
Pearl Clutcher
Posts: 4,748
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Post by ellen on Jul 1, 2022 3:59:08 GMT
Oh no. This sounds so uncomfortable. I hope from here on out everything ends up bringing you the best possible outcome. I'm so sorry you are dealing with this.
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scrappinghappy
Pearl Clutcher
“I’m late, I’m late for a very important date. No time to say “Hello.” Goodbye. I’m late...."
Posts: 4,307
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Post by scrappinghappy on Jul 1, 2022 4:39:47 GMT
Thank goodness you didn't give up. Sending positive thoughts for strength and prayers that treatment is successful and you beat all odds. I’m in the Chicago suburbs. If there is anything I can do to help, please PM me
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ddly
Pearl Clutcher
Posts: 4,019
Jul 10, 2014 19:36:28 GMT
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Post by ddly on Jul 1, 2022 5:02:47 GMT
How scary! Thank goodness you were persistent and followed up with a second doctor!
Sending healing vibes your way!
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Post by gar on Jul 1, 2022 7:56:16 GMT
Oh goodness! That's a rough journey you've been on and obviously not quite over but I really hope you're given an all clear soon and can recover well from your treatment.
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Post by gillyp on Jul 1, 2022 8:30:10 GMT
I am so sorry you have been going through such a rough time and that it's not over yet. Lots of cyber thoughts for the best treatment and easy recovery for you.
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sueg
Prolific Pea
Posts: 8,417
Location: Munich
Apr 12, 2016 12:51:01 GMT
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Post by sueg on Jul 1, 2022 9:06:30 GMT
I am so sorry to hear of your diagnosis. Just as well you listened to your gut feel and kept pushing for an answer. I hope the radiation treatment goes well, and you don't have too many side effects. For me, the worst thing was the tiredness - about a week in, it was all I could do to get to and from my sessions. Everything else went out the window.
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Deleted
Posts: 0
Oct 6, 2024 8:30:49 GMT
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Post by Deleted on Jul 1, 2022 9:54:17 GMT
I'm so sorry that you are going through this but I'm glad you had the presence of mind to get a second opinion. I would let your previous Doctor know though, if only to stop it happening to others in the future. Hope your treatment will go well.
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Post by mikklynn on Jul 1, 2022 11:06:06 GMT
I'm sending you prayers and wishes for a full recovery!
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