sharlag
Drama Llama
I like my artsy with a little bit of fartsy.
Posts: 6,578
Location: Kansas
Jun 26, 2014 12:57:48 GMT
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Post by sharlag on Dec 12, 2014 18:06:15 GMT
Like, you'd just lose time but not know why? Think you lost time because you hit your head when you fell, then later found out you were having a seizure?
(it's not me--it's someone that I know.)
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Post by bianca42 on Dec 12, 2014 18:08:40 GMT
Yup. I have a friend who fell running a few times...turns out she was having seizures. I think she was having a few other odd moments too...but she runs marathons, so falling was out of the norm for her.
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Deleted
Posts: 0
Sept 21, 2024 0:47:42 GMT
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Post by Deleted on Dec 12, 2014 18:14:12 GMT
Yes, I think they are called inattentive seizures. My son had an EEG when he was younger to rule out the possibility of seizures because he frequently stares off into space. Some kids with Autism do have issues with seizures.
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Post by cindyupnorth on Dec 12, 2014 18:18:53 GMT
Yes, Often peoople having the seizure are unaware of it. The people around them notice 1st.
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sharlag
Drama Llama
I like my artsy with a little bit of fartsy.
Posts: 6,578
Location: Kansas
Jun 26, 2014 12:57:48 GMT
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Post by sharlag on Dec 12, 2014 18:19:12 GMT
I wondered what kind of test would catch it. Thanks, @iscrapcrap !
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Deleted
Posts: 0
Sept 21, 2024 0:47:42 GMT
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Post by Deleted on Dec 12, 2014 18:30:37 GMT
My son has epilepsy and seizes 1 to 2 times per week. He's lucky in that he always experiences an aura just before and is able to alert someone. He used to have "absence" seizures where he would just zone out. An EEG can detect seizure activity. He's had several ambulatory EEGs where he wears sensors for a few days while at home and going about normal days. This may be an option for your friend.
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theshyone
Pearl Clutcher
Posts: 3,422
Jun 26, 2014 12:50:12 GMT
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Post by theshyone on Dec 12, 2014 18:53:03 GMT
I was misdiagnosed with a seizure disorder decades ago, it's now thought I was having cardiac events. If it had been caught then, my life would have been so different.
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Post by scrapmaven on Dec 12, 2014 19:07:19 GMT
Absence seizures last a few seconds as you stare into space w/o shaking or movement. You won't even notice that it happened and if someone calls to you then you won't even know that you were spacing out. That's how mine occurred. I was told that after a seizure you won't have any memory of having seized. I never remembered.
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sharlag
Drama Llama
I like my artsy with a little bit of fartsy.
Posts: 6,578
Location: Kansas
Jun 26, 2014 12:57:48 GMT
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Post by sharlag on Dec 12, 2014 19:09:13 GMT
What's the criteria for if a person with seizure issues can drive?
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Post by scrapmaven on Dec 12, 2014 19:12:08 GMT
It varies. My understanding is that in the UK you have to go 1 year w/o having had a seizure. In some states it's only 6 months. However, it's irresponsible to drive until your seizures are diagnosed and have been under control for a long time. Sometimes you have auras which tell you that a seizure is coming, but not always.
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sharlag
Drama Llama
I like my artsy with a little bit of fartsy.
Posts: 6,578
Location: Kansas
Jun 26, 2014 12:57:48 GMT
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Post by sharlag on Dec 12, 2014 19:14:28 GMT
It varies. My understanding is that in the UK you have to go 1 year w/o having had a seizure. In some states it's only 6 months. However, it's irresponsible to drive until your seizures are diagnosed and have been under control for a long time. Sometimes you have auras which tell you that a seizure is coming, but not always. Yeah, that's scary, huh?
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M in Carolina
Pearl Clutcher
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Jun 29, 2014 12:11:41 GMT
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Post by M in Carolina on Dec 12, 2014 20:20:24 GMT
This is the type of epilepsy that my dh has. The doctors say that his epilepsy is a result of concussions.
When dh was first diagnosed, he took short term disability while starting the meds and didn't drive. Now that he's medicated, he's fine to drive.
His absent seizures can last much longer than a few seconds. He is unaware that he is having a seizure and doesn't remember afterwards.
The part of the brain used for driving is not the part that is affected by the seizures. Dh can drive perfectly the day after the seizure. Since he loses time and isn't completely aware of his surroundings, I won't let him drive, and he has a few coworkers who are aware of his condition and won't let him drive. They call me if they're having a hard time getting dh to listen. Dh can work from home, and he usually gets a bad headache before his seizure, so he takes his headache med and sleeps until the headache goes away.
The seizures occur when dh is so stressed about work or something that he ignores his headaches, etc. and tries to push himself too far.
Dh's seizures are now under control. He rarely has a seizure anymore--maybe once or twice a year, and those are usually brought on by extreme stress or illness.
We had no idea that the staring off into space and not listening/remembering was part of epilepsy. Dh went undiagnosed for years. His high school teachers thought that dh was being a jerk or had a learning disorder. His brother has had the same symptoms, and his sister had a regular seizure as a small child but hasn't had any other problems.
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Deleted
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Sept 21, 2024 0:47:42 GMT
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Post by Deleted on Dec 12, 2014 21:05:45 GMT
This is the type of epilepsy that my dh has. The doctors say that his epilepsy is a result of concussions. When dh was first diagnosed, he took short term disability while starting the meds and didn't drive. Now that he's medicated, he's fine to drive. His absent seizures can last much longer than a few seconds. He is unaware that he is having a seizure and doesn't remember afterwards. The part of the brain used for driving is not the part that is affected by the seizures. Dh can drive perfectly the day after the seizure. Since he loses time and isn't completely aware of his surroundings, I won't let him drive, and he has a few coworkers who are aware of his condition and won't let him drive. They call me if they're having a hard time getting dh to listen. Dh can work from home, and he usually gets a bad headache before his seizure, so he takes his headache med and sleeps until the headache goes away. The seizures occur when dh is so stressed about work or something that he ignores his headaches, etc. and tries to push himself too far. Dh's seizures are now under control. He rarely has a seizure anymore--maybe once or twice a year, and those are usually brought on by extreme stress or illness. We had no idea that the staring off into space and not listening/remembering was part of epilepsy. Dh went undiagnosed for years. His high school teachers thought that dh was being a jerk or had a learning disorder. His brother has had the same symptoms, and his sister had a regular seizure as a small child but hasn't had any other problems. Your bolded statement is not true. Someone may have 'triggers' that precede a seizure. It sounds like your husband's primary trigger is stress. Stressful conditions while driving may initiate a seizure. His brain isn't selective about when a seizure hits - it won't stay at bay just because he's driving - that's preposterous. A quick google search revealed that to hold a valid drivers license in North Carolina, the driver must be seizure-free for 6-12 months. In South Carolina, it's 6 months. This doesn't mean seizure-free while driving - they have to be seizure-free, period. Your husband has active epilepsy, is on anti-seizure meds, and seizing within this time frame. Your husband continuing to drive is illegal and irresponsible.
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Post by moosedogtoo on Dec 12, 2014 22:05:11 GMT
My late DH never knew he was having seizures until we moved in together. He had one in the middle of the night and I immediately got him in to a neurologist. The only symptom he had the next day was that he had bitten the sides of his tongue. He finally connected the dots and realized this had been happening for years and he never knew because it was always while he was sleeping.
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valleyview
Pearl Clutcher
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Jun 27, 2014 18:41:26 GMT
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Post by valleyview on Dec 12, 2014 22:22:13 GMT
It's not uncommon to have seizures without realizing it, particularly if they are not what was commonly referred to as "grand mal." Driving laws vary by state and by type of license. Your frien needs to be seen by a doctor..
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Deleted
Posts: 0
Sept 21, 2024 0:47:42 GMT
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Post by Deleted on Dec 12, 2014 22:25:13 GMT
There are many types of seizures...many.
DS is 18 and has had a seizure disorder related to Autism since he was 3. He can not communicate that one is about to happen and doesn't know it happened afterward. His body locks up, many muscles contract, he loses the ability to communicate, his eyes glaze over, and he drools.
It lasts from 1 to 2 minutes.
Afterwards, he is so exhausted he *must* take a 2-hour nap.
They are mostly controlled by meds...but no med has ever controlled it 100 percent. He has breakthrough episodes about 5 times a year. Without meds, he has 3-5 a day!.
It breaks his heart that he will probably never be allowed to drive...but legally and morally, that's just not a risk we can take. It sucks.
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Post by maryboys on Dec 12, 2014 22:25:29 GMT
as others have already shared = the answer is yes. this person should be seen by his/her physician who can refer to neurology, if indicated.
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Deleted
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Sept 21, 2024 0:47:42 GMT
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Post by Deleted on Dec 12, 2014 22:35:22 GMT
There are many types of seizures...many. DS is 18 and has had a seizure disorder related to Autism since he was 3. He can not communicate that one is about to happen and doesn't know it happened afterward. His body locks up, many muscles contract, he loses the ability to communicate, his eyes glaze over, and he drools. It lasts from 1 to 2 minutes. Afterwards, he is so exhausted he *must* take a 2-hour nap. They are mostly controlled by meds...but no med has ever controlled it 100 percent. He has breakthrough episodes about 5 times a year. Without meds, he has 3-5 a day!. It breaks his heart that he will probably never be allowed to drive...but legally and morally, that's just not a risk we can take. It sucks. Are you familiar with a Vagus Nerve Stimulator? My son received one two years ago and it's made a huge difference in lessening the frequency and intensity of his seizures. It doesn't work for all epileptics but this thing has been a godsend for him.
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Sue
Pearl Clutcher
Posts: 3,240
Location: SE of Portland, Oregon
Jun 26, 2014 18:42:33 GMT
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Post by Sue on Dec 12, 2014 23:00:24 GMT
As others have testified to, yes, very possible to have seizures and not be aware of what was happening. Many years ago now my youngest brother had a bad fall from a bicycle. Essentially he flew over his handlebars and landed face first into gravel while going down a steep hill; lots of stitches etc. Not too many years later he would be late walking home from school and when asked would say that he just got tired and decided to take a little nap before he got all the way home. My mother was perplexed until soon he began having grand mal seizures. His doctors found a lesion on his brain stemming from his old bicycle injury. Scar tissue was continuing to build which was causing seizures. In my brother's case his seizures continued to worsen and he was hospitalized several times trying to bring them under control which eventually happened when he took part in a medical study for an experimental new drug. I hope this person you know gets a medical diagnosis and doesn't ignore these lost time episodes. It could be serious.
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Post by freecharlie on Dec 12, 2014 23:54:15 GMT
What's the criteria for if a person with seizure issues can drive? it depends on the state. Some say 3 months, others 6, other 2 years, and I believe in Arizona if you have one in the state you are not allowed to drive again. Dh has epilepsy. When he had his episode that alerted us, it was about 4 months or so before he could drive. His neurologist had to clear him. He was 5a king meds and they had to reach a certain level. Colorado does not have a set time frame, but the doctor has to okay it.
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sharlag
Drama Llama
I like my artsy with a little bit of fartsy.
Posts: 6,578
Location: Kansas
Jun 26, 2014 12:57:48 GMT
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Post by sharlag on Dec 13, 2014 2:06:36 GMT
Thanks for all of your input.
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brandy327
Drama Llama
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Jun 26, 2014 16:09:34 GMT
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Post by brandy327 on Dec 13, 2014 3:00:54 GMT
My 11yo ds has epilepsy (diagnosed almost 2 years ago). He was having these episodes of staring off into space that lasted like 5 seconds. After seeing just 2 of them, we made an appt with a neurologist. He had an EEG and it was confirmed that he has left temporal lobe seizures. His seizures didn't last much longer than 10 seconds...but he could be walking or doing homework or playing basketball and he'd just kind of carry on. I remember one time he was carrying a plate and a cup to the sink when he had one...and there was no denying it was a seizure because he tends to lip smack afterwards and it takes him a second or two to be able to respond...but he continued to walk and carry the stuff without dropping anything. They started him on one med right away and it made the seizures more frequent and they lasted a little longer. They eventually switched his meds and he's been practically seizure free since. He had one seizure on Easter this year...but within a day we'd tied together that he was running a fever (and since his threshold for seizures is much lower than the average person, ANY fever can trigger seizures), plus it was really warm out that day AND add on that he was very excited because it was Easter. Thankfully he had an appt with the neurologist a few days later...and at that appt, we realized he'd gained 10+ lbs and since his meds are based on weight, he probably didn't have enough meds in him. Upped his meds a little and he hasn't had a seizure since.
He doesn't remember having seizures. When they were happening frequently, we'd tell him you had a seizure.
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moodyblue
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Location: Western Illinois
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Jun 26, 2014 21:07:23 GMT
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Post by moodyblue on Dec 13, 2014 5:16:10 GMT
I have a student who has seizures where she stares off into space while kind of rolling her head from side to side. Her eyes look unfocused and she's not aware that she has had the seizure when she comes out of it.
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Post by chaosisapony on Dec 13, 2014 5:47:14 GMT
One of my best friends has epilepsy and he is unaware when he has a seizure.
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Post by lurkingsince2001 on Dec 13, 2014 6:04:55 GMT
How does this look different than a person who really is just spacing off? I space off, especially when stressed. And my oldest seems to space off/daydream more lately. If asked we'll say we were spacing off or deep in thought.
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Deleted
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Sept 21, 2024 0:47:42 GMT
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Post by Deleted on Dec 13, 2014 6:12:00 GMT
I don't think so. My doctor wanted to test me to see if I was having seizures so she sent me for a seizure test at the hospital. They did it at 8 am (and I am not an 8 am person!!!) so the technician (who may have been a nurse, I am not sure) had me answer a bunch of questions and she decided I didn't have a seizure disorder. Then she had me lay on a bed and flashed a strobe like for about 30 minutes. I think I fell asleep about 5x. She kept telling me to wake up. According to her professional opinion she told me I do not have a seizure disorder. She would report the findings to my doctor.
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Post by hennybutton on Dec 13, 2014 6:28:42 GMT
How does this look different than a person who really is just spacing off? I space off, especially when stressed. And my oldest seems to space off/daydream more lately. If asked we'll say we were spacing off or deep in thought. I used to work with someone who had this. Her seizures definitely looked different than "spacing out". When you speak to someone who's spacing out/daydreaming, they respond. A person who's seizing doesn't.
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