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Post by mikklynn on Oct 13, 2023 11:27:12 GMT
I know relaying medical information from one person to another can be like playing that old-fashioned game of "telephone," so maybe that explains it. But it really sounds like your sister could use someone there to help her keep track of what she's being told and make sense of it. Recent experiences with family members have led me to the conclusion that none of us should ever navigate the medical system on our own. Meantime, I hope they get answers for your sister and that your mom's husband's surgery goes well. I agree, every patient should have someone else there to listen and ask questions. As for it taking a long time, that is really not that unusual. It's frustrating as heck. When DH was diagnosed with metastatic renal cancer, we knew what it was immediately. But, it took many more tests before he was ready for surgery. Every doctor wanted a different scan or a different angle on the scan. What I can add is that by the time they had a plan and he went into surgery, we were much more confident he'd come out of it alive. I'm adding my prayers for your sister!
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Post by malibou on Oct 13, 2023 11:40:46 GMT
Damn, that is a lot for your sister to be dealing with. I hope it all gets sorted soon. I'll keep her tucked up in my safest thoughts while she navigates her illness.
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Post by workingclassdog on Oct 13, 2023 13:31:21 GMT
I'm sending positive thoughts. Quick question, has she given permission for Dr to talk to you if she wants. That may make it easier for you to get information I was hoping the bowel movement cleared the mass Her boyfriend is with her most of the time so he is there to help navigate things plus she also has her three mostly grown kids nearby. I'm across the country and I am at best trying to keep it straight. I'm terrible at any medical things. Everything I wrote here is really a snapshot of what I understand. I don't even keep up with myself half the time. Makes sense that the bowel movement was the mass but apparently not.
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oh yvonne
Prolific Pea
Posts: 8,040
Jun 26, 2014 0:45:23 GMT
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Post by oh yvonne on Oct 13, 2023 16:42:21 GMT
Oh no! Suz I'm so sorry for your poor sister!
Oh I hope and pray they can get a correct diagnosis and get her on the road back to recovery. The part you said she woke up with a panic attack made me tear up for her, how utterly devastating and scary for her, I can't imagine.
<hugs> to you my sweet friend, I am sending all the love and prayers I can to you all.
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Post by grammadee on Oct 14, 2023 3:40:24 GMT
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Post by scrapmaven on Oct 14, 2023 3:50:18 GMT
Your sister can have her chart updated to red flag that bad doctor from ever coming near her. It's perfectly fine to fire a doctor and it's her right as a patient. She has others on her team who are able to manage her care. Sounds like they're being very thorough and really looking at the bigger picture.
I pray that she gets clarity and that whatever it is treatable and fixable. It must be so hard to hear this from afar, but she knows that you're on her side.
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Post by workingclassdog on Oct 14, 2023 19:50:08 GMT
Haven’t talk to her much except text… she is actually feeling a little normal and said she actually was able to get up and wash her hair and go out with her girls for a little spa day (just nails)
Surgery is scheduled for 10/23! Yeah!
Moms hubby is home. Was in pain this morning but there was a home health care nurse that was there. He just needed to take his pain meds and get ice on the knee.
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Post by revirdsuba99 on Oct 15, 2023 6:59:43 GMT
Little steps for all ..
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Post by femalebusiness on Oct 15, 2023 20:35:03 GMT
Waiting for answers is the absolute worst. Sending good thoughts that they figure it out for your sister.
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