End of the year dementia etc update
Dec 16, 2023 3:21:50 GMT
blue tulip, Lexica, and 11 more like this
Post by zella on Dec 16, 2023 3:21:50 GMT
Merry Christmas, Happy Hannukah, Happy New Year and Happy Holidays of all kinds....
Our holidays will be very quiet, just the three of us, but Tia got me a blow up baby Yoda for outside, as I am totally stupid for baby Yoda... I have a bunch of baby Yodas.... I know that's not his real name, but I like to call him that.... unfortunately, we are expecting a bad storm tomorrow, so our Christmas decorations had to come inside temporarily so they don't go flying down the street. It's a very unusual December storm for Florida. Anyhooo.........
I seem to have deteriorated quite a bit the last few months. My speech is really affected. I have to have Chris (dh) come to all my medical appointments as I often can't finish a sentence when I'm seeing a doctor. I have to have Chris fill in a word or two. It's very frustrating. I have the names of the two or three doctors in the Tampa area who are supposed to know a lot about Lewy Body. I really do need to get an appointment. I need an official diagnosis, even though I know, 100%, that's what I have. Other than my speech issues, I am getting sillier. I talk to myself pretty much constantly. I make up songs, which amuses me no end. I spend time online and playing computer games. Tia, who is now 32, now acts like my mother. She tells me what I can and cannot do. She makes dinner for her and Chris. I get my own dinner because I eat differently to them since I'm vegetarian. But she will take over if I need to use the air fryer or the new toaster oven, as I don't know how to use them. She's also in charge of all the cleaning now, and most of the laundry. She came off of a medication,and it made her crazy OCD.
She thinks she's my mother and I'm her kid I swear. It's very bizarre. But the house is the cleanest and tidiest it's ever been so I'm not complaining!
My memory is odd. My short term memory is very bad. I forget anything and everything. I rarely know the date or the day of the week. I do have a lovely relationship with my Alexa, lol! I have a few hallucinations, mostly audial. I hear Chris or Tia talking to me when they don't. It leads to some pretty funny situations. And I have some delusions now, which concern me. I forget where I am. I think Tia is my sister. Things like that. I sleep well. Often I sleep in the day too. I actually am happy most of the time. I'm not depressed like I was before the dementia really sunk in. Isn't that odd? I also say weird things... VERY weird things. Sometimes because of meds, sometimes because I'm having dementia issues.
So that's where things stand. I'm nervous for the year ahead, worried I'll get worse.... after all I've had symptoms for about 10 years now. Wish me the best.
Our holidays will be very quiet, just the three of us, but Tia got me a blow up baby Yoda for outside, as I am totally stupid for baby Yoda... I have a bunch of baby Yodas.... I know that's not his real name, but I like to call him that.... unfortunately, we are expecting a bad storm tomorrow, so our Christmas decorations had to come inside temporarily so they don't go flying down the street. It's a very unusual December storm for Florida. Anyhooo.........
I seem to have deteriorated quite a bit the last few months. My speech is really affected. I have to have Chris (dh) come to all my medical appointments as I often can't finish a sentence when I'm seeing a doctor. I have to have Chris fill in a word or two. It's very frustrating. I have the names of the two or three doctors in the Tampa area who are supposed to know a lot about Lewy Body. I really do need to get an appointment. I need an official diagnosis, even though I know, 100%, that's what I have. Other than my speech issues, I am getting sillier. I talk to myself pretty much constantly. I make up songs, which amuses me no end. I spend time online and playing computer games. Tia, who is now 32, now acts like my mother. She tells me what I can and cannot do. She makes dinner for her and Chris. I get my own dinner because I eat differently to them since I'm vegetarian. But she will take over if I need to use the air fryer or the new toaster oven, as I don't know how to use them. She's also in charge of all the cleaning now, and most of the laundry. She came off of a medication,and it made her crazy OCD.
She thinks she's my mother and I'm her kid I swear. It's very bizarre. But the house is the cleanest and tidiest it's ever been so I'm not complaining!
My memory is odd. My short term memory is very bad. I forget anything and everything. I rarely know the date or the day of the week. I do have a lovely relationship with my Alexa, lol! I have a few hallucinations, mostly audial. I hear Chris or Tia talking to me when they don't. It leads to some pretty funny situations. And I have some delusions now, which concern me. I forget where I am. I think Tia is my sister. Things like that. I sleep well. Often I sleep in the day too. I actually am happy most of the time. I'm not depressed like I was before the dementia really sunk in. Isn't that odd? I also say weird things... VERY weird things. Sometimes because of meds, sometimes because I'm having dementia issues.
So that's where things stand. I'm nervous for the year ahead, worried I'll get worse.... after all I've had symptoms for about 10 years now. Wish me the best.
