leeny
Pearl Clutcher
Posts: 4,804
Location: Northern California
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Jun 27, 2014 1:55:53 GMT
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Post by leeny on Jun 18, 2024 21:11:02 GMT
Does this make you feel better if you have the same condition? Is it TMI? I recall a celebrity posting she had the same breast cancer I had in June 2022. She got to have fast-tracked tests, surgery and treatment compared to mine. I'm all good now, but I was pretty bitter then thinking how nice it must be to have access to top quality medical care and thanks for publicing it.
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Post by melanell on Jun 18, 2024 21:19:27 GMT
I think in your case, I think that I too would have felt annoyed.
However, in cases where the condition or disease are rare or are simply not ones the receive a lot of press, then I think a celebrity discussing that they have it can be helpful, both in bringing it further into public attention, and also in possibly making some other people who also have the same issues feel as though other people might understand their situation better now.
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Post by nightnurse on Jun 19, 2024 1:20:54 GMT
I am super bitter about the tiered medical system. I wish my patients could have fast tracked diagnosis and treatments, not have to work while convalescing and not worry about losing health insurance or not being able to pay the bills.
I am fine with celebrities keeping their medical info private or publicizing it as they choose. I think most of the time people’s intentions are good, and they are bringing awareness or trying to display solidarity. I think most celebs are out of touch and miss how they’re commiserating can seem to miss the boat. “Oh I was too nauseated to eat so my chef had to come up with lots of soup recipes” isn’t really helpful to those of us without chefs, kwim? I think a fair number of people don’t think about something until it affects them, so seeing their favorite celebrity can definitely raise awareness and help spread compassion.
I think whatever a person facing a major diagnosis like cancer feels is valid. Angry, bitter, grateful, hopeful, jealous…..I’m sure for as many people who feel like they were inspired by a celebrity’s cancer story, there are just as many angered by the special treatment, and that’s all understandable.
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Post by cakediva on Jun 19, 2024 1:25:39 GMT
I wasn’t affected by the same thing, but had several friends (and some pea people) who I knew struggled with infertility. And then Celine Dion went on and on about her struggles. And all I could think was how nice for her that she could afford to do IVF over and over until she got her kids while the eBay day person could barely afford to do it once, if at all.
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snyder
Pearl Clutcher
Posts: 4,350
Location: Colorado
Apr 26, 2017 6:14:47 GMT
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Post by snyder on Jun 19, 2024 2:21:37 GMT
I remember when Larry Hagman received a liver transplant just days after being diagnosed with the need for a transplant; meanwhile my brother struggled for 2 years to get on the transplant list for a kidney as they would not put him on the list until he signed that he would be responsible for 100% of the cost. Eventually, he was told to just sign the paper as they couldn't take blood from a turnip and could not take his home away. He signed and a year later received his kidney.
I really don't care whether a celeb talks about their medical if its going to help others, but when it is flat out known they got their treatment due to them having big bucks over those stuggling to get the basics, that just sours me.
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Post by workingclassdog on Jun 19, 2024 3:46:56 GMT
When my sister got cancer, it was almost the same timing as Princess Kate. She wanted NOTHING to do with anyone bringing her name up and her cancer. HATED it.
Personally I never had anything that I know if that a celebrity has (I have one thing and most people don't talk about it, cause it is gross) but if I heard a celebrity having it, I guess it would get my attention, but I don't know if I would really care or not what their plan/situation was. I don't know honestly.
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Post by alsomsknit on Jun 19, 2024 13:21:18 GMT
I do my best to live despite Fibromyalgia. 22 years since onset of symptoms, but 13 since Dx. The past 5 years have been hard. Had to drop out of school, which I loved and had decided my career path and CFS took hold. The Fibro was the first domino in compiling a number of conditions.
Morgan Freeman has it. But, it doesn’t stop him.
Lady Gaga also has it and has had to cancel shows.
Early on, I wasn’t stopped from doing things. At this point, I am having more bad days than good.
I wish they were more vocal about what they deal with. The awareness would be helpful. At the same time, I am aware how bizarre and unpredictable the symptoms are. If I weren’t experiencing it, I would have difficulty believing it, too.
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Post by jeremysgirl on Jun 19, 2024 14:12:26 GMT
It really depends for me on the portrayal. I think when we can talk about bipolar disorder it raises awareness. I like awareness. But I remember feeling like they portrayed Carrie Fisher as bat shit crazy. I hated that.
On the flip side, I think some of the things about mental health are so stigmatized that it takes really knowing a person to realize that this person has symptoms that are almost shocking but I know this person and they are not crazy. I'm pretty open here but some things I have kept private because I do carry some shame and I do think it would be judged. And maybe I shouldn't feel that way because you guys seem to have a pretty good handle on who I am as a person.
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Post by questioning on Jun 19, 2024 14:48:43 GMT
jeremysgirl I've appreciated your openess, you've educated me. I hope it's okay to say that, it's not your job. I worked with a younger women grappling with bi-polar and your posts gave me insight. Carrie Fisher did become an unfortunate poster girl for mental health and addiction. She did quite a bit to make people aware, while also being in the press. I'm not sure who or what had a bigger role in dramatizing it. Maybe because she was only a few years older than me, I remember how different things were. And her background wasn't typical. The guidance she received possibly leaned more towards sensational PR opps than looking out for her mental health, Her mother might not have known another way.
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Post by questioning on Jun 19, 2024 15:00:26 GMT
leeny I've been listening to Jamie Lynn Siegler and Christina Applegate's podcast. Theyre good at teaching, while being themselves. It's not just about MS, I can apply their thoughts to living and coping in other situations. I roll my eyes at announcements of celebrity CANCER BATTLE and then learn they had a pre-cancerous skin cancer removed. It's extremely common in our families, thank you outdoor loving lives. I apologize if it sounds like I'm minimizing it, but it's a given it should be monitored. The word cancer is scary, but it's not like immediate doomsday in 2024 and there has been a lot of education about what to do to minimize it. I apologize if I sound like a jerk.
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Post by jill8909 on Jun 19, 2024 17:31:04 GMT
It depends. Sometimes I see a hysterical post and it turns out they have basel cell skin cancer. Seriously? It's fine if you need to explain the bandaid on your nose, but don't talk about being grateful to be alive etc.
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artbabe
Pearl Clutcher
Posts: 3,409
Jun 26, 2014 1:59:10 GMT
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Post by artbabe on Jun 19, 2024 18:06:59 GMT
I'm bipolar- you all know that by now- I don't know why I keep thinking that new people are reading this.
I absolutely loved, loved, loved Carrie Fisher. She was amazing. So honest, and funny, and a real advocate for those of us who have it. And it eventually killed her (indirectly) and I miss her a lot. I was always so glad she brought a stigmatized illness out in the open.
Patty Duke was also good for that. There are a good number of celebrities that are/were bipolar: Mariah Carey, Demi Lovato, Charlie Sheen, Russell Brand, Brian Wilson, Kurt Cobain, Catherine Zeta-Jones, Vivien Leigh, Sinead O'Connor, John Daly, Darryl Strawberry, David Feherty, Kanye West... The list goes on and on.
And you can tell by that list that some people were luckier in managing it than others. All of their lives have been screwed up in one way or another from it. The thing about bipolar- it doesn't matter how much money you have, it still gets you. People tell me all of the time "Why don't they just take meds?" Well, it took me 15 years of trying things to find the right med combination and every one of the meds had different side effects. And because of the side effects and the stigma, a lot of people quit the meds. Not taking the meds is really common with bipolar- "I'm feeling great, I don't need the meds anymore." And then they crash and burn. And then the cycle repeats.
I do think it is much easier to get in the mental health system if you are a celebrity. It is so hard to get into the first psychiatrist. When I hit rock bottom I was desperate to get help and I'd call doctor after doctor and no one could get me in for months. Some of the time I could never get to talk to a live person. They just tell you that if it is an emergency, go to the ER. Except my nephew went to the ER and he came home with an appointment for a psych in 3 months. So not so helpful, unless they commit you, and then you are stuck with the stigma of inpatient treatment. I've never been inpatient, thank god.
If you are a celebrity I'm sure you get right in. Or you can pay for some treatment house that is better than the hospital psych ward.
But I don't begrudge celebrities that have it. Their life is a mess, too. They just have more money. But they also have more eyes watching them- I'd hate for my struggles to be so public. Every time Kanye West does or says something stupid, I think "oh, honey..."
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Post by LavenderLayoutLady on Jun 21, 2024 12:22:11 GMT
She got to have fast-tracked tests, surgery and treatment compared to mine. I am super bitter about the tiered medical system. This is pretty much how I feel.
There have been numerous occasions in my entire family's history where money would have made the difference between fighting with insurance to get approved for a medication or treatment, and just getting what the patient needed for better health.
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RosieKat
Drama Llama
PeaJect #12
Posts: 5,579
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Jun 25, 2014 19:28:04 GMT
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Post by RosieKat on Jun 22, 2024 2:14:51 GMT
One thing I don't like when a celebrity has a mild case of a serious health condition but "keeps living their best life." It can make the average person assume that the disease or condition is not really all that bad, when for many - perhaps most - people, it really is.
It would be like me being some poster child for trigeminal neuralgia (if I were famous, lol). I have it, and it sucks, but as cases of it go, mine is not bad at all. Medication treats mine pretty well most of the time, unlike the vast majority of people who have it. But if you see me as the textbook case of this uncommon disease, you think that people complaining about the pain are weenies. Trust me, they are not - before I got treatment and was diagnosed, I had a real taste of it and I understand why some people feel they can't continue their lives with that pain. And I feel like that point often gets missed with some celebrity illnesses where that is the case - people feel like that particular person's experience is the norm or the definition of that disease, and that's not often the case.
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Post by scrapmaven on Jun 22, 2024 3:36:08 GMT
I only want to hear about it if the celebrity is doing something to create awareness for the disease and raising money for their cause. I don't want anyone to be ill, but the media exploits celebrity illness. When you can afford to pay cash for VIP treatment you're going to get diagnosed and fixed tmw. What about the larger part of the population who have to deal w/waiting and semi-private hospital rooms? When it comes to medicine the rest of us are nobodies in this town.
I respect Michael J. Fox, because he's very active in the cause and research for Parkinson's disease. When it's just for attention I am not a fan. Just because you're on the A list your illness is not more important than mine. I have 2 very rare diseases and if People magazine put me on their cover you'd all fall asleep reading the article. I hope that Christina Applegate has therapy in order to come to terms w/her disease and accept it. Accepting it doesn't mean that she's fine w/it. It just means that she can find a way to be happy despite having a nasty disease. Perhaps she'll be able to help other MS patients in the future.
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