edie3
Drama Llama
Posts: 5,686 
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Post by edie3 on Jul 7, 2024 18:27:51 GMT
I'm 99% positive I have it, and starting the diagnosis part of it now. But the tinnitus is driving me crazy.
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keithurbanlovinpea
Pearl Clutcher
Flowing with the go...
Posts: 4,306
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Post by keithurbanlovinpea on Jul 8, 2024 0:18:04 GMT
My dad had it. He was able to get some relief with daily antihistamine/decongestant use
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Post by cindyupnorth on Jul 8, 2024 14:47:57 GMT
My co-worker has it. She really struggled with it in the beginning, now she has it pretty much under control. Her biggest thing is a low soduim diet. This has helped greatly.
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Post by Susie_Homemaker on Jul 8, 2024 15:32:30 GMT
I have it. I was diagnosed about 7-8 years ago. My ENT prescribes a diuretic for me so that fluid doesn't build up and cause vertigo. I also take a combination of supplements that I believe help me with the vertigo and tinnitus. I found it online and thought it was worth trying. It's called John of Ohio regimen and you can find it here.
In my case I still have some bouts of vertigo. They're less than they use to be but they will usually happen "out of nowhere" and don't last for very long (thankfully). My tinnitus isn't usually very bad, the vertigo is what bothers me the most. I believe it's different for every Meniere's patient though.
I have to drink enough water daily. This is my most important thing. I don't have to drink gallons, but I do have to make sure that I stay well hydrated. If I don't then I will get vertigo.
I don't follow a real low sodium diet. I do avoid super high sodium foods though. I also try not to take ibuprofen unless nothing else helps (usually for a headache). I've found that it will sometimes bring on vertigo.
If I'm going to be in a super loud environment I wear earplugs. It protects my hearing and also helps with the tinnitus that will happen after.
My ENT tests my hearing annually and this year I scored about a 75% for spoken words in my affected ear. Meaning I've lost 25%. She said that Meniere's is the only disease where hearing ability can/will vary. Some days it could be terrible at 55% hearing loss and other days it's only 25% hearing loss.
Overall I feel like I'm blessed to be able to live and work and function like normal. Many with this disease can't, and I'm very thankful that it's not worse.
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