sweetpeasmom
Pearl Clutcher
Posts: 2,704 
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Post by sweetpeasmom on Nov 20, 2024 0:33:13 GMT
In March 2017 it was discovered that I had endometriosis while having surgery to remove an ovarian cyst. Prior that, I had no clue. But it did explain some things (bowel issues mostly). I was 41 and had had 2 pregnancies in my mid-late 20s, no issues. Got pregnant easily and had great pregnancies. In the last year, I was fairly certain it was back. Went to the gyno today and she did an u/s. I do have some more growth as well as the same cyst is back. Just not as large as it was prior.
She offered 2 solutions. One was to change my IUD from the Skylar to the Mirena. She said that with the Mirena, I should eliminate periods. Thus the period pain. She also said there is a hormone medication called Myfembree. It's not a short term but not a life long option. She said for about 2 years. It will limit the growth of the endo and the cyst. It won't eliminate it all together.
Any peas have any experience with endo? The Mirena? Myfembree?
TIA!
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caangel
Drama Llama
Posts: 5,730
Location: So Cal
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Post by caangel on Nov 20, 2024 1:14:16 GMT
I'm on my second Mirena and plan to stay on it until I'm through menopause. I don't have a period beyond some very light spotting a few times a year.
I haven't not had this other issues you are dealing with so I can't comment about that.
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Post by Delta Dawn on Nov 20, 2024 1:37:13 GMT
My BFF has a Mirena she think and she and her husband are very happy.
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Post by nightnurse on Nov 20, 2024 18:54:50 GMT
I loved my mirena. No periods, no side effects. When it was due to be changed I had to go with the lyetta and I had break through spotting and periods and it was overall not as “set it and forget it” as the mirena
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Post by gar on Nov 20, 2024 23:19:42 GMT
I had a mirena for many years pre meno and was very happy with it.
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ModChick
Drama Llama
True North Strong and Free
Posts: 5,092
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Post by ModChick on Nov 21, 2024 1:42:03 GMT
I have the Mirena IUD and it took a long time (over a year) for my periods to stop so I’m glad I hung on because all the docs were saying your periods should lessen and even stop within 3-6 months and if doesn’t by then you may be one of the ones that it doesn’t stop for so be aware of that possibility in case you choose Mirena.
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Post by Merge on Nov 21, 2024 1:55:47 GMT
Mirena was a disaster for me. I had a continual light period (plus bonus ones just as heavy as they'd ever been) and my body decided to yeet the thing very painfully after 4-5 months.
Does hysterectomy fix endometriosis? That was the next step for me (my issue was fibroids, though) and it's one of the best things I've ever done for myself.
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sweetpeasmom
Pearl Clutcher
Posts: 2,704
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Post by sweetpeasmom on Nov 21, 2024 2:37:12 GMT
Mirena was a disaster for me. I had a continual light period (plus bonus ones just as heavy as they'd ever been) and my body decided to yeet the thing very painfully after 4-5 months. Does hysterectomy fix endometriosis? That was the next step for me (my issue was fibroids, though) and it's one of the best things I've ever done for myself. I'm sure it would. It's from the lining of the uterus growing on the outside of the uterus. So getting rid of it would take care of that. I'm just not sure I want to go there just yet. |
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Post by ladyinpink1969 on Nov 21, 2024 10:22:17 GMT
I had an ablation done instead of an IUD. You absolutely have to be finished having children in order to get it done. For a few years, it worked. It was a good decision until I had some other issues and I ended up having a hysterectomy.
As far as the question if a hysterectomy will fix endometriosis, it depends on if you keep your ovaries. I believe endometriosis feeds off of estrogen, so if you keep your ovaries, the endometriosis will continue to grow and cause problems. If you have your ovaries taken out, the endometriosis won’t continue grow, thus it will shrink and hopefully go away. But if you take HRT that contains estrogen, then you’re back to square one dealing with the endometriosis.
Other options that might tame it for a while are finding a surgeon to laparoscopically cut it out. Or to go on something like Lupron, which makes you go into a temporary menopause, allowing the endometriosis to shrink. I’ll admit, the Lupron was tough.
Good luck to you
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pantsonfire
Drama Llama
Take a step back, evaluate what is important, and enjoy your life with those who you love.
Posts: 6,231
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Post by pantsonfire on Nov 21, 2024 17:55:04 GMT
My OBGYN will not use Mirena for most patients. I have Liletta IUD. I am on my second one for fibroids and endometriosis.
I have been getting extra tests done and hope I am cleared to have a full hysterectomy. My EDS changes things as does my CHD.
My first one I was numbed and to me that caused more issues. I bled heavily and had bad cramping once it worse off.
This second one I asked for no numbing. Took a Motrin 30 min prior to my appointment.
Very light spotting and no cramping.
Didn't hurt to take out or put a new one in.
It took 4 months on my first to have light bleeding and another few months to have none.
It has helped with everything but the size of my fibroids.
It also caused weight gain.
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