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Post by nepean on Jul 7, 2014 16:10:01 GMT
Has anyone been on the medicine Lupron? I would love to hear your experiences, both good and bad. My Dr. has recommended a season on this medicine, and I am a little apprehensive.
Thanks.
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Post by newfcathy on Jul 7, 2014 21:38:19 GMT
Two of my cousins used it while trying to conceive. Both were successful
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Post by nnnsmom on Jul 8, 2014 1:14:11 GMT
I used it with both of my (successful) IVF cycles in 1999 & 2001. No problems other than a little moody!
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Post by nepean on Jul 8, 2014 1:25:49 GMT
Wait, I didn't know Lupron was used when trying to conceive! I think need to ask my doctor more questions. It has been recommended as I have endometriosis and am in pain every day  I am past ( and want to stay past) my childbearing years. I love my kids, but I am DONE with babies  I have been told about the moodiness, loss of desire, and some other side effects. I wanted to know how bad it might be, as I am afraid of the moody part even I already get moody sometimes. |
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samantha25
Pearl Clutcher
Posts: 3,077 
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Post by samantha25 on Jul 8, 2014 1:29:24 GMT
I used Lupron during ivf and conceived twins.
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MaryC
Full Member
Posts: 213
Jun 25, 2014 21:52:55 GMT
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Post by MaryC on Jul 8, 2014 1:55:06 GMT
I did two six month cycles of Lupron for endo and severe bleeding. The protocol used for endo treatment is not the same as the one used for IVF. Basically the lupron dramatically lowers your estrogen levels and "shuts down" your reproductive cycle. For endo treatment, you would probably have the depot injection monthly. The side effects, for me, were exactly like going into menopause overnight - terrible hot flashes and night sweats. It didn't affect my moods much, but did make me have trouble sleeping at night. It did help with the endo pain, and stopped my periods altogether while I was on the drug. That was the main benefit for me - I was having prolonged heavy bleeding to the point of needing blood transfusions for anemia.
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ratqueen
Shy Member
Posts: 32
Jul 2, 2014 23:54:21 GMT
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Post by ratqueen on Jul 8, 2014 3:52:11 GMT
Mary beat me to it. I was coming to say the Lupron used in IVF is for suppression, not conception. I hope the protocol gives you some relief. The injections themselves are not a big deal, tiny little needles.
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Post by worrywart on Jul 8, 2014 4:04:31 GMT
I took it for endo many years ago..after the initial shock of having my estrogen levels basically go to zero instantly, I was ok. I actually stayed on it for about a year and it totally alleviated my symptoms while I was on it. It helped me and I was glad I took it. My husband gave me shots...I would say more but I'm on the ipad, message me if you would like more info!
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Deleted
Posts: 0
Oct 5, 2024 18:29:58 GMT
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Post by Deleted on Jul 8, 2014 4:19:33 GMT
I did it many years ago and still suffer the side effects. I highly recommend researching it out well. I won't ever touch it again. It caused osteoporosis in me at 25. I don't think this drug should be on the market to be honest.
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Post by nepean on Jul 8, 2014 11:46:20 GMT
Thanks for all the responses, I really appreciate your real life experiences. "me" - I was worried about the bone loss, as my Mom has osteoporosis. As such I am genetically predisposed already. I do like the idea of no pain for a while, and proving once and for all that this pain is or is not related to the endo. I have had exploratory surgery, and there are a few lesions, but I don't follow the typical endo patient profile of symptoms and family history.
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Deleted
Posts: 0
Oct 5, 2024 18:29:58 GMT
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Post by Deleted on Jul 8, 2014 17:41:46 GMT
I can say that it didn't solve my pain either. I went on it twice, once with add back therapy and once without. If you do decide to go on it do the add back therapy. I try to treat my endometriosis naturally although I had excision surgery in March. I highly recommend excision surgery. It's still a lap and normally done by the Da Vinici robot. Instead of burning the endo in a typical surgery they actually cut it out. They also take sample in different places. They found endo in 3 or 4 different places. How long have you been diagnosed? There are other options than Lupron. Lupron was originally used to treat testiticular cancer. I would go to this link: www.youtube.com/watch?v=p-QiP_2VQYw . I still have pain from shots that I had years ago. I know it's hard with endo. The pain can be unbearable at times. If you want, please email me. I have learned a lot about endo and changed my diet. |
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betazed
Junior Member
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Post by betazed on Jul 8, 2014 18:10:20 GMT
I was on this for fibroids and heavy bleeding. I did not have pain to begin with, so that didn't change. However, it did decrease the bleeding significantly. They will not keep you on this medication longer than a year, due to side effects. Just like any meds, sometimes you have to see if the benefit outweighs the side effects.
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I am past ( and want to stay past) my childbearing years. I love my kids, but I am DONE with babies 
I have been told about the moodiness, loss of desire, and some other side effects. I wanted to know how bad it might be, as I am afraid of the moody part even I already get moody sometimes.
