Rainbow
Pearl Clutcher
Where salt is in the air and sand is at my feet...
Posts: 4,103
Jun 26, 2014 5:57:41 GMT
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Post by Rainbow on Mar 28, 2015 4:25:13 GMT
So last weekend she went to a cheerleading competition in Myrtle Beach. They did well, and got the silver. This week one of the coaches approached me and said that she doesn't think kidlet will be able to cheer next year. I ask why, and am concerned. She says that kidlet's vision is just getting so bad that she can't see them up at the front and when they give directions. I'm just so sad for her. She has been cheering for years. 
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Post by freecharlie on Mar 28, 2015 4:31:26 GMT
Aw, that does suck. Is there a way she could get directions through sound instead of sight?
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Rainbow
Pearl Clutcher
Where salt is in the air and sand is at my feet...
Posts: 4,103
Jun 26, 2014 5:57:41 GMT
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Post by Rainbow on Mar 28, 2015 4:34:35 GMT
Aw, that does suck. Is there a way she could get directions through sound instead of sight? At practices probably, but I'm not sure what limitations they have at competition. That is a good idea.
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Peamac
Pearl Clutcher
Refupea # 418
Posts: 4,240
Jun 26, 2014 0:09:18 GMT
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Post by Peamac on Mar 28, 2015 4:36:45 GMT
Glasses or contacts?
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Post by anxiousmom on Mar 28, 2015 4:38:13 GMT
Gah. There is nothing worse than watching your child's disappointment. I am sorry-but I sure that there is some kind of accommodation that can be made.
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Rainbow
Pearl Clutcher
Where salt is in the air and sand is at my feet...
Posts: 4,103
Jun 26, 2014 5:57:41 GMT
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Post by Rainbow on Mar 28, 2015 4:48:16 GMT
Unfortunately she has an eye disease that is causing her to lose sight. She has glasses but they only sharpen what she can see already. I really need to find out if some kind of accommodation can be made. I don't want to break her heart by telling her she can't cheer anymore. She loves it so much. 
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tanya2
Pearl Clutcher
Refupea #1604
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Jun 27, 2014 2:27:09 GMT
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Post by tanya2 on Mar 28, 2015 4:51:20 GMT
that is so sad! I hope you're able to work something out for her
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Deleted
Posts: 0
Aug 18, 2025 19:35:32 GMT
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Post by Deleted on Mar 28, 2015 5:01:02 GMT
Ok so cheer isn't going to work and honestly my ass was way too big to do cheer, too. I don't have a vision problem but I see things in the reverse from everyone else. Someone jumps to the right? I think left. Yeah a real talent there, trust me. Plus I wasn't nearly cool enough to cheer and I was musically talented. Can the kidlet do something like piano? She can learn Suzuki where you learn by ear. Or violin? That is a good method to start with and she can progress and be visually impaired all the way to blind and still amazingly talented! (Ray Charles, Stevie Wonder...need I say more?) Remember, me and my big butt couldn't clap my hands and skip at the same time yet I perfected the Swan by Sans Saens in my first year and won an award for that.  My Tarentella by J. S. Squire was also very, very good! My Bach in G major sucked rocks, though. Just food for thought! 
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Post by lucyg on Mar 28, 2015 5:33:45 GMT
I'm sorry to hear about that. I hope you can get them to make some sort of accommodation for her under ADA so she can continue. Remember, they are required to make reasonable accommodations for her.
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Deleted
Posts: 0
Aug 18, 2025 19:35:32 GMT
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Post by Deleted on Mar 28, 2015 5:48:32 GMT
I'm sorry to hear about that. I hope you can get them to make some sort of accommodation for her under ADA so she can continue. Remember, they are required to make reasonable accommodations for her. ^^^ That, too. I just remember doing gymnastics in grade 10. Not since age 3 with Bela Karoly but age 16 and being completely TALENT FREE. That means no talent. Kidlet might have real talent. They may have to accommodate her further. I only suggested music because I was the least likely to enter the Olympics. Physical activity is very good for her and especially her mental health as well as physical as she may start to develop issues with losing her sight. (I know I would  ) so additional coaching for cheer might make sense. We are just an uber musical family. My sister played piano beautifully. My mother played very well. I played cello. My son did RCM to grade 8 to get a high school credit and then did jazz piano for 2 years. My father played a calculator like a pro (he is an accountant and not musically inclined!)
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ingrid
Full Member
 
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Jun 26, 2014 0:52:41 GMT
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Post by ingrid on Mar 28, 2015 7:02:31 GMT
I remember when her vision issue first came up. It seems like forever ago! I recall researching her disease and even talking to my eye doctor about it and prism lenses were recommended. Did you ever give those a shot? I just don't remember reading any updates.
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Post by miominmio on Mar 28, 2015 7:43:47 GMT
Oh, how terrible for her! But maybe they will be able to come up with a solution? Blind people compete in both biathlon and dressage, so I'm keeping my fingers crossed.
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Deleted
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Aug 18, 2025 19:35:32 GMT
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Post by Deleted on Mar 28, 2015 11:06:46 GMT
I would think of using something like a bluetooth earpiece and her hearing the instructions.
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Post by Kymberlee on Mar 28, 2015 11:13:50 GMT
Rainbow, there ares one accommodations that could be made but it will require a commitment on her part as well as the coaches. I assume routines are done ahead of time? Routines can be filmed with an iPad and she can view them and practice at home until she knows the routine and the moves so when directions are given, she already has a good idea of what is expected. The coach will also need to use very specific instructions for example, move three feet to the right instead of "move over there". To a visually impaired person "over there" has no meaning whatsoever. It should be easy to mark where she is to stand by using bright tape (fluorescent yellow, pink). It will be hard, but it isn't unworkable.
Remind me again her eye condition? How much vision does she have right now? I know that I had sent you a lot of suggestions to use at her IEP a few moths ago. How did that work? Tell me a little about hr vision teacher. I assume she has one, right? I am a teacher for the visually impaired and have been for longer than I care to admit (ha!) so I have come across many situations that, with creativity, can be solved. Again, the key in to work together with the coach to do the best thing for your girl. Is this cheering done at school or is it a private gym?
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Post by ktdoesntscrap on Mar 28, 2015 11:32:29 GMT
I hope they can find a way to accommodate her needs. I can not imagine if my daughter had to give up what she loves doing. She would be devastated. ( I would be too, because I get so much joy watching her)
Don't accept no the first time.. fight to make it happen!! Helping her fight for what she wants to do will be a good life lesson, even if a hard one.
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marimoose
Pearl Clutcher
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Jul 22, 2014 2:10:14 GMT
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Post by marimoose on Mar 28, 2015 13:48:47 GMT
This so sad for your daughter and I hope that something can be worked out but if not, this may be simply pushing her in another direction as Elannah suggested. You want her to be happy but also safe. I give the coach a thumb's up for giving you a heads up because that isn't always an easy thing to do and often is not done well. Good luck to your daughter and a huge congrats on the silver win last weekend.
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scrappinmama
Drama Llama

Posts: 5,672
Jun 26, 2014 12:54:09 GMT
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Post by scrappinmama on Mar 28, 2015 14:53:10 GMT
I would also suggest that you look into what accommodations can be made for her. I'm so sorry. I can imagine the disappointment that both of you will feel if she has to stop cheering. If this cheer team is not able to make accommodations, then maybe another cheer team will.
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Rainbow
Pearl Clutcher
Where salt is in the air and sand is at my feet...
Posts: 4,103
Jun 26, 2014 5:57:41 GMT
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Post by Rainbow on Mar 28, 2015 15:26:45 GMT
Thank you so much for responding with such good ideas!
I'm not sure if her glasses are prism lenses. I don't recall her doctor mentioning that.
She cheers at a private gym. Her routines are done ahead of time. Tape on the floor sounds like a great idea, also the more specific directions.
Her eye disease is called retinitis pigmentosa, an her visual field is 10%. She still does quite well, I think, for 10%. The vision teacher is great, has a lot of great ideas to help her at school. She's had cane training and O&M too.
Kidlet loves music so I am giving that some serious thought.
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Deleted
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Aug 18, 2025 19:35:32 GMT
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Post by Deleted on Mar 28, 2015 15:28:07 GMT
Could she still do the high school team? I would be worried for her safety on a competitive team.
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Post by scrapmaven on Mar 28, 2015 15:57:42 GMT
Are you working w/a support agency for visually impaired teens? If not, I would suggest it. You are a mama, not an island and resources are vital. Get help for yourself, Rainbow. You need it, too. There is lots of compassionate care out there for you, as well.
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Deleted
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Aug 18, 2025 19:35:32 GMT
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Post by Deleted on Mar 28, 2015 16:17:33 GMT
Kidlet loves music so I am giving that some serious thought. Music uses a different part of the brain and causes all sorts of great things IN the brain. Exercise is good, too, though. My son still plays piano and he is awesome. He plays by ear and loves to sound out his video game songs. I have a wrecked hand right now so I can't play (fell flat on my face so effing stupid!!!) but I can still play very well. All my peers who took lessons are professionals making good livings being musicians. I see their moms come into my store all the time and it is so adorable. We were in about Grade 8-9 at the time and we are well into our 40s now.
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Post by cindyupnorth on Mar 28, 2015 16:18:22 GMT
Technically if she is visually handicapped, I think they HAVE to provide her resources to still participate. My dd's had 3 fellow students,all from the same family, with the same genetic disease, that the school worked around things for them, so they participated in any activity they wanted. Band, choir, wrestling, theater, speech, etc. There has be be a lot of resources out there, as there are my blind people.
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georgiapea
Drama Llama

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Jun 27, 2014 18:02:10 GMT
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Post by georgiapea on Mar 28, 2015 16:20:39 GMT
We have RP in our family too. My father had it and so do I, but not the same type as your DD. Mine has never progressed beyond being unable to see in low light. Does strong light help your child? There's a wide range of RP types, so I really know only how to cope with what I have.
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Rainbow
Pearl Clutcher
Where salt is in the air and sand is at my feet...
Posts: 4,103
Jun 26, 2014 5:57:41 GMT
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Post by Rainbow on Mar 28, 2015 16:24:18 GMT
I do worry about her safety, too. I don't want to hold her back if she can do it though. I'm not sure about the school team, I have no experience with them. We are involved with a community resource center that has activities for the visually impaired. Kidlet loves it. I do have support from a really good friend who also has a visually impaired daughter. We are each other's outlet for frustration and support when needed. My friend actually teaches some classes for the visually impaired so she knows a lot of resources too. I get a lot of good info from her.
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Post by shescrafty on Mar 28, 2015 18:57:17 GMT
I hope you find something that works for you and her!
I (myself) would be worried that without being able to see well she could get seriously hurt. Even with good vision, cheerleading on a competitive level is dangerous and fast moving. My DD is only 8 and competes on a club level team, not a totally competitive team. The girls run and tumble and criss cross each other and have to be able to make quick decisions about where to be. I would feel comfortable with a daughter who was visually impaired actually cheering at games, but I would be nervous about her being hit by another girl even if she was in the right spot but somebody else wasn't. I know in our last competition one girl fell from a pyramid and her shoe bounced off, another girl was able to swoop it up and toss it off the floor and out of the way so nobody would trip on it.
good luck-I hope there is an option that works for her and keeps her safe and happy!
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Post by olbrwneyedgirl on Mar 28, 2015 19:52:41 GMT
My first thought was wondering if the trainers and coaches were really more concerned about her getting hurt...and were hoping to eliminate that possibility by having her quit due to the low vision.
What about solo dance? Surely there are some visually-impaired dancers out there.
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Post by Kymberlee on Mar 28, 2015 19:54:51 GMT
A little off topic, but is she bring taught braille? I'm just curious. :-)
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sandym
Shy Member
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Jan 19, 2015 3:43:18 GMT
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Post by sandym on Mar 28, 2015 21:46:29 GMT
Talk to the vision teacher. See if you could hire her privately for a one time consult. She could work with the coaches and offer strategies that would make it doable. That is her area of expertise. If she doesn't feel she is knowledgeable she likely knows who you need to talk to.
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sweetpeasmom
Pearl Clutcher
Posts: 2,832
Jun 27, 2014 14:04:01 GMT
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Post by sweetpeasmom on Mar 28, 2015 21:51:47 GMT
Funny enough, we are in Myrtle Beach right now for a cheer competition! I can only imagine if I had to tell my daughter she had to stop cheering for any reason.
I can also understand the coach's concern of her getting hurt by not being able to see where to go, who to catch, where to jump, etc.
I hope you can get it figured out.
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scrapaddie
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Jul 8, 2014 20:17:31 GMT
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Post by scrapaddie on Mar 28, 2015 21:59:47 GMT
Technically if she is visually handicapped, I think they HAVE to provide her resources to still participate. My dd's had 3 fellow students,all from the same family, with the same genetic disease, that the school worked around things for them, so they participated in any activity they wanted. Band, choir, wrestling, theater, speech, etc. There has be be a lot of resources out there, as there are my blind people. I don't think this is a school squad. She said it is through a private gym. Not sure the same rules apply when tryouts are required, etc.
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