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Post by meriannj on Jul 12, 2014 2:11:06 GMT
I have a dear friend who was just dx with this and they have given her 6-12 months to live. This is very heartbreaking for all her friends and family and I just don't know what to expect. I have read a TON online but thought maybe someone would have first hand experience.
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marianne
Pearl Clutcher
Not my circus, not my monkeys. . . My monkeys fly!
Posts: 4,176 
Location: right smack dab in the middle of SC
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Jun 25, 2014 21:08:26 GMT
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Post by marianne on Jul 12, 2014 2:21:28 GMT
I'm so very sorry... may God be merciful to your friend . Hugs to you.
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Post by MorellisCupcake on Jul 12, 2014 2:24:29 GMT
That's so scary. My mom died from ALS but had dementia along with it, and there was some question she had CJD. It was possible, but not likely as her decline took about 18 months. We could have found out, but how they do it was something I couldn't cope with at the time.
I'm so sorry for your friend. I hope it's as painless as it can possibly be.
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Post by AussieMeg on Jul 12, 2014 2:24:44 GMT
I don't have any first hand experience, but I just wanted to say how sorry I am about your friend. That is so heartbreaking.  |
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Gravity
Pearl Clutcher
Posts: 3,233
Jun 27, 2014 0:29:55 GMT
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Post by Gravity on Jul 12, 2014 2:26:05 GMT
I am so sorry.
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Post by gardengoddess on Jul 12, 2014 2:34:28 GMT
One of my mother's friends passed away from CJD. It was very sad because her time after diagnosis was about what you already mentioned. I'm sorry.
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Post by keknj on Jul 12, 2014 2:50:42 GMT
I am so sorry to hear about your friend. I have never heard of that disease, but I will keep you and your friend in my thoughts and prayers.
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Post by doxielady on Jul 12, 2014 3:45:42 GMT
I'm so very sorry for your friend. I will keep her in my thoughts. |
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rhubarb
New Member
Whew, finally found you guys!!
Posts: 9
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Post by rhubarb on Jul 12, 2014 4:00:47 GMT
I lost a close family friend to CJD last year. Bryon was 45. He was diagnosed two weeks after initial symptoms, and passed six weeks after diagnosis. My heart goes out to your friend's family as well as yourself. An extremely hard disease to watch. My friend had to be watched day and night because of the confusion. He declined rapidly and passed within the week when hospice was needed. There is an excellent message board for those dealing with CJD.
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Post by meriannj on Jul 12, 2014 11:15:59 GMT
Thanks Guys! This has been so surreal. She had multiple sinus infections and then started having dizzy spells. After that she has just gone down hill so fast. As of now she can't walk, talk or eat on her own. She is only 37 and has 2 sweet boys who are 14 and 12. Her poor husband is just lost. He is still convinced there will be a miracle and as much as I want that too, I just don't see that happening. It helps to let it all out somewhere and have others who know what it's like.
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iowgirl
Pearl Clutcher
Posts: 4,274
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Post by iowgirl on Jul 12, 2014 13:28:16 GMT
Oh wow. So heartbreaking. I am so sorry for your friend.
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Post by Really Red on Jul 12, 2014 13:40:07 GMT
I am so sorry about your friend. That is terrible. Keeping the post at the top in case someone has direct information.
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mimima
Drama Llama
Stay Gold, Ponyboy
Posts: 5,064
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Post by mimima on Jul 12, 2014 15:31:28 GMT
Oh sigh. Prayers.
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Post by GroovySteph on Jul 12, 2014 23:06:38 GMT
I have an aunt who passed away of this disease a few years ago. I know very little about the disease. Sending prayers to your family.
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