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Post by merry27 on Jul 22, 2015 21:31:23 GMT
My daughter is on Focalin and it seems to working pretty good. She has been on it for 2 months but has lost quite a bit of weight. She was really thin to begin with so this is not good. They decreased her meds by 30% for this month and we will meet back with the doctor and go from there. I try to offer her food all the time but she just isn't hungry. Anyone here with experience?
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Olan
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Post by Olan on Jul 22, 2015 21:35:21 GMT
I babysat for a little boy who went off his meds every summer to gain weight. Is that an option for you?
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TankTop
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Post by TankTop on Jul 22, 2015 21:41:45 GMT
Yes. This is very common. Many of my students have this issue.
Focus on nutrition and eating nutrient dense foods. Also, shakes and smoothies seem to help. I have allowed students to have them at school.
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TankTop
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Post by TankTop on Jul 22, 2015 21:42:30 GMT
I would introduce a daily vitamin as extra insurance.
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Post by bc2ca on Jul 22, 2015 21:44:00 GMT
DD is on Focalin XR, so I don't know if there is a difference in the side effects for extended release capsules. She has never had it interfer with her appettite.
She started with a very low dosage (5mg IIRC) and worked up to her current dosage. We also let her go med free in the summer until she started driving.
Good luck figuring it all out.
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gsquaredmom
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Post by gsquaredmom on Jul 22, 2015 21:49:33 GMT
My son's doctor compared it to a car that had a broken fuel gauge. You still had to put gas in to keep going. He said my son should eat when everyone else ate because his own fuel gauge did not work correctly when on meds. It worked.
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TankTop
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Post by TankTop on Jul 22, 2015 21:51:12 GMT
My son's doctor compared it to a car that had a broken fuel gauge. You still had to put gas in to keep going. He said my son should eat when everyone else ate because his own fuel gauge did not work correctly when on meds. It worked. Love this!
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Post by cmpeter on Jul 22, 2015 22:03:48 GMT
My dad takes a different adhd med (Concerta). She definitely has no appetite in the middle of the day. She wakes up hungry and is hungry at dinner. But, when the med is full strength, she doesn't have much of an appetite. We deal by making sure she had a good sized breakfast and healthy dinner.
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Post by beanbuddymom on Jul 22, 2015 22:18:01 GMT
Yes, DD is on Concerta (generic version) and what helped us is this - Blender smoothies - in the morning she JUST wasn't hungry, even if I decided she wasn't getting her pill until after she ate breakfast, it was too much of a struggle to get her fed and remember for her to take her pill. Then I did smoothies and oh my that was the key. So yogurt - I buy the Stoneyfield Farms big quart containers of vanilla and then add bananas and berrries - yum and we were able to get her fed every day this way. Smoothie plus her pill and she was ready to go for the day. Lunch - she was never a lunch eater to begin with, so adding her pill just made this all worse. I decided to work around this and pack her many little snack items for her to pick on throughout the day - not sure how your child's school is set up but she is allowed to eat in various times through the day - so this worked for us. Picking the right type of snacks was key as well. PROTEIN was important - we buy Luna protein bars and Kind bars and she eats those, bags of cashews, and then would pack bags of cheerios or other cereal as well to snack on as well as grapes or other things she could grab and eat during study hall, etc. Yogurt another thing to pack, the small ones she could eat in few bites either at lunch or later in the day. Small snacks throughout the day helped IMMENSELY. She is allergic to eggs but I know other friends of hers that pack hard boiled eggs for lunch as a quick protein as well. Then by the time dinner rolled around, since she took her morning dose at 6:30 am, and had sports practice after school, picking her up at 5 and eating dinner at 6 = by then she was hungry. Again keeping protein in mind, more protein less starch/carbs (although honestly every once in a while she binges on/craves pasta or waffles so I let her given that she doesn't do it often). Oh yeah, frozen waffles - not sure what to tell you but it's a key snack to have on hand, apparently a lot of the other girls on her team think they're the best thing to grab after a game as well, so we follow suit, keeps her happy and fed! Hope these ideas helped as to what we do - oh we also buy every once in a while the premade yogurt smoothies from the grocery store but not that often - Odwalla juice as well, the ones with juice and veggies in them, though the protein powder ones she said were disgusting as she could taste the protein flakes in it so you may need to avoid those ones, ha ha. I find a lot of other ADHD kids also have food issues with texture so you may find that an issue as well as the getting your child to eat - makes it so much more challenging but once you find what they like, just go with it - I find it easier than fighting with her!
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Post by beanbuddymom on Jul 22, 2015 22:18:48 GMT
I would introduce a daily vitamin as extra insurance. Oh yes, forgot about this, yes, this, definitely this!!
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Post by merry27 on Jul 22, 2015 22:27:12 GMT
Thank you so much for the replies and suggestions! I like the analogy about the fuel tank too
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Post by myboysnme on Jul 22, 2015 22:35:24 GMT
Yes, my son lost weight and gained when he went off of it.
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Post by beanbuddymom on Jul 22, 2015 22:42:06 GMT
Sorry I forgot this as well - this summer we have taken days off - mind you she has been on it since January so I felt fine doing this, but I think our doctor wanted us to wait to do this until the pill routine was well established - last appt a month or so ago he said we could give her days off from the pill so we do. So this summer she works 3 or 5 days a week depending on her schedule. We give her days off her meds on the day she has off from work so she can sleep in and get a chance to eat normally and sometimes she wants something with caffeine which she CAN'T have on days she is on her meds so on her days off she can get a coffee coolada or something like that for fun. But we generally only give her 2 days in a week max, usually only one day a week off her medication. And we have done 2 days in a row but we didn't like how that worked out when she went back on them, she was pretty foul tempered so we don't do more than a day off. That may be different for others but that's what our experience has been.
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Post by gritzi on Jul 22, 2015 22:51:07 GMT
YES!! My DS is at least 20-30 lbs underweight due to his medication. It helps w/the inattentive-ADD but completely eliminates his appetite and desire for food. It is a constant battle for us. Try convincing a teenager that food is important since he doesn't feel hungry. He only feels hungry about 11pm-2am.
This affects his mood, sports progress (due to being small weight-wise), etc. We do have him drink 1-2 Ensure Plus type drinks daily. He conditions, practices & plays so much sports-wise that any & all calories consumed are burnt off.
It is very frustrating and overwhelming as a parent! Today is one of those days.
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Post by chichi on Jul 22, 2015 23:00:41 GMT
We had the same issue when we started J on concerta He's naturally thin but was losing weight on the med We had him drink the high calorie boost at least 2x per day in between meals He wasn't hungry for it, but he knew he couldn't continue to play sports if he didn't have enough calories I believe it was the first 6 months he was on the med that we insisted on the Boost 2 x per day We did give him weekends off of the concerta in the beginning to help him catch up on calories.
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Post by Deleted on Jul 22, 2015 23:14:32 GMT
My son's doctor compared it to a car that had a broken fuel gauge. You still had to put gas in to keep going. He said my son should eat when everyone else ate because his own fuel gauge did not work correctly when on meds. It worked. This is a great way to explain it to kids - I'm may use this!
DS only takes his ADHD meds Mon-Fri so he can have two days of good eating. We also take him off the meds during the summer for the same reason. When he is on it, it's not out of the norm for him to loose 1-2 every month. When he lost 7 lbs in one month we started taking him off the med on the weekend. That helps some but we still have to remind him constantly to eat.
It also doesn't help that he has braces on so he is limited as to what he can eat. A few more months and those babies are off!
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Post by pierkiss on Jul 22, 2015 23:36:59 GMT
Please please please do not do medication vacations with your child. I have had so many clients parents do so many "summer med vacations" and "weekend med vacations" and almost all of them wound up having to be on different mess because the original became ineffective. Not to mention the erratic behavior swings caused by the more frequent med vacations. It screws with the system and with the kids mentality. Not worth it in my opinion.
You just sort of need to force her to eat. Offer her her favorite foods and snacks multiple times a day. Let her know that even though she doesn't feel like eating she still needs to do it to stay healthy.
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Post by 2peaornot2pea on Jul 23, 2015 0:04:20 GMT
When my son was on Focalin SR, we had him not take it on weekends, school holidays, etc. That helped him maintain a normal weight.
Recently he reported feeling flat-lined emotionally while on it, and didn't want to take it any longer. Because he is now attending classes at the community college instead of the high school, his Dr. changed the prescription to 5mg tablets. He can take one when he needs it. This has been a great solution for my son. The smaller dose lasts long enough for him to get through a class or homework, but doesn't mess with his emotions and doesn't make him jittery.
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eleezybeth
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Post by eleezybeth on Jul 23, 2015 0:05:33 GMT
My DD too. She has actually maintained weight on vynase (sp). She lost a lot of weight on concerta. Our dr. gave the advice of 2 breakfasts or if she'd eat 2 dinners. So she gets a protein bar before breakfast and usually eats the protein bar and picks at breakfast. She is much more likely to eat a snack than a meal so she gets lots of high calorie/protein snacks. I think she gained a pound this year! But also grew like 2 inches.
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irener
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Post by irener on Jul 23, 2015 0:30:03 GMT
My 9yo DD is on Focalin XR. Her pediatrician started her on Concerta but she had constant headaches and switched to Focalin XR. She has lost weight, but her pediatrician was not worried as she had extra weight to lose and now she has leveled out. Sometimes she does not want to eat but other times she does. I do not take her off her meds for weekends or vacations because I didn't want her to have the rebound effects. I have seen a great improvement in her focus and mood swings so I am really pleased with it so far. (DD has ADHD-Inattentive and GAD general anxiety disorder). Good luck to you!
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Post by mama2three on Jul 23, 2015 0:45:07 GMT
My dad takes a different adhd med (Concerta). She definitely has no appetite in the middle of the day. She wakes up hungry and is hungry at dinner. But, when the med is full strength, she doesn't have much of an appetite. We deal by making sure she had a good sized breakfast and healthy dinner. My son was the same. He was already underweight but almost never wanted to eat except for breakfast when on concerta. So we made sure he was up early enough before school that he could eat as much as he wanted of healthy foods. Usually it was 3 meals worth in one sitting, and not only what most would consider breakfast foods. Dinner for breakfast was pretty common for him when he was on the meds. Now he no longer needs the meds and eats constantly but still doesn't gain weight. Oh to have the metabolism of a teen boy!
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Post by SabrinaM on Jul 23, 2015 1:02:58 GMT
I recommend NOT taking med vacations instead focus on nutrient dense foods, a good solid breakfast and encouraging him/her to eat something for lunch even when they don't feel like eating.
ADD/ADHD isn't just an academic issue but a social and emotional one as well. Being on and off meds is not a good way to go.
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Post by bluepoprocks on Jul 23, 2015 1:21:48 GMT
My nephew takes Concerta. He never wants to eat. We make him eat at least 3/4ths of what we give him but it's a struggle. He keeps saying "I'm not hungry". He has always been small and thin even before the meds. Nothing we do makes him gain weight. He brother who is two years younger is taller and weighs more than him. The doctor tells us he is in the low range in weight for his height. All his friends weight about 20 lbs more and are about a foot taller than him but as long as he stays in the range for his height the doctor is ok with it. We take him off the meds for the summer. It makes him have a better appetite but he doesn't gain any weight.
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Post by gryroagain on Jul 23, 2015 2:43:25 GMT
Yes, and it one of many reasons DD no longer takes Meds for her ADD.
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Post by mrsscrapdiva on Jul 23, 2015 4:46:43 GMT
No experience with a child on this medication, but Vyvanse has been approved to treat adults with Binge Eating Disorder
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Post by SabrinaM on Jul 23, 2015 4:54:20 GMT
No experience with a child on this medication, but Vyvanse has been approved to treat adults with Binge Eating Disorder Yes. My daughter has taken Vyvanse for 4 years. The first 3 It curbed her appetite. Now, it has no effect whatsoever. (It's also not as effective in handling her issues (getting "stuck", lack of focus/hyperfocus etc) so most likely we'll be looking for a new med soon. Gping off of it wasn't an option because I know the end result of going unmedicated having seen this through my husband (who did not become medicated until 10 yrs ago.) I can't do that to her in good conscience, so she stays medicated and we handle the side effects.
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kate
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Post by kate on Jul 23, 2015 12:34:07 GMT
My kid is not hungry during the day, but after dinner, unlimited peanut butter sandwiches are allowed, as well as other foods in moderation (cookies, for example, do have a limit! LOL)
Breakfast is a protein-packed meal: milk, cheese, toast on bread that has at least 5g of protein per slice, and a snack bar that has 10-15g protein. My kids take regular vitamin supplements, as well.
I'm a big believer in milk for nutrition, but it can be an appetite suppressant. I encourage him to have a glass at lunch when he's at school, since he doesn't usually eat much more than a bagel.
"Med vacations" are something to be worked out with your child and the doctor on an *individualized* basis. They are an excellent tradeoff for some children and quite hazardous for others. Our doctor has been great about guiding us, and my kid is taking the reins more and more. He will be off to college in a few years, so he needs to learn how to manage his ADHD and the medication on his own.
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hannahruth
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Post by hannahruth on Jul 23, 2015 14:41:39 GMT
Our nearly 8 year old grandson who has autism eats very little and therefore is very underweight. He does have breakfast and not much else until at night when he is "starving" all the time and could eat for hours on end. Our DD is very frustrated but they have a paediatric appointment in the next couple of weeks and hopefully can implement some changes.
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artbabe
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Post by artbabe on Jul 23, 2015 22:24:34 GMT
When I started to take Adderall I lost two clothing sizes. As an adult woman, I was pleased. I can see it being a problem for a child, however.
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Post by luvmygirls on Jul 23, 2015 23:18:39 GMT
I with Adderral would help me lose weight. I've been on it since February and haven't lost anything. I do notice during the day I'm not as hungry. I guess I make up for it at night.
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