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Post by pmk on Aug 21, 2015 6:12:12 GMT
I'm looking for any experiences or knowledge people have of Rhabdomyolosis. You may have noticed on the vent thread that I talked about dh having hurt his legs the other day but if not, the condensed story is that he has had a lot of issues with his knees and feet culminating in the cartilidge having worn away in his knees. He is overweight and decided that before he hits 40 next year he will make an effort to get healthy. This led him to the gym the other day and they persuaded him to try a spin class. He lasted 10 minutes before his thighs and feet were agony so he left the class. Since then he has lost movement spectacularly and has been in horrific pain.
I got him to the doctor on Thursday morning who queried Rhabdomyolosis and sent him to the hospital where he was admitted after his blood levels showed major abnormalities and they confirmed the diagnosis. He's on a drip for fluids and pain relief (only morphine is helping at the moment) and could be there 'for a few days' to bring the levels in his blood down. The good bit of news is that his kidney function is ok.
I've used doctor google for some info about the condition but it's sketchy about what happens next other than the blood levels needing to come down. I'm wondering about his general mobility and how quickly he'll be able to move around more easily etc. He's staying upbeat but is bored (typical of him!)
Thanks for reading the essay!
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Post by JoP on Aug 21, 2015 6:19:09 GMT
pmk I've no experience of it but am sending you positive thoughts and hope hubby is on the mend really soon ((Hugs))
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Post by Jockscrap on Aug 21, 2015 7:02:21 GMT
Is he on statins?
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Deleted
Posts: 0
Apr 27, 2024 20:36:34 GMT
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Post by Deleted on Aug 21, 2015 10:39:20 GMT
Dd had it after playing volleyball. She did not have to be hospitalized but was sick for several days. After recovery, she had no more problems with pain and it has not recurred. Glad your dh's kidneys are ok. That's the main concern.
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Post by Kymberlee on Aug 21, 2015 10:49:34 GMT
My DH also had it and was miserable for several months before the docs finally figured out what was wrong. If I remember correctly, statins contributed to the problem. It was several years ago so I can't remember all the details but I will ask when he gets home. He was also training really hard (he is a cyclist) so it had something to do with that also. I hope DH feels better.
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Post by LavenderLayoutLady on Aug 21, 2015 11:16:40 GMT
I have no idea about it, but I hope your DH recovers quickly.
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Post by bearmom on Aug 21, 2015 11:42:16 GMT
As long as his kidney function is okay, there shouldn't be any long term effects.
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Post by anonrefugee on Aug 21, 2015 11:53:48 GMT
I'm sorry, that must be painful and scary. I feel for him wanting to make changes only to face this setback too. Best wishes on recovery.
(I looked it up out of curiosity, the web said it happens in disasters like earthquakes and bombings. Your poor DH, maybe he can joke in ten years he started out in extreme sports or something:( )
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Post by nurseypants on Aug 21, 2015 13:55:16 GMT
Is there a reason that you don't want to ask his doctors about this?
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Post by rst on Aug 21, 2015 14:22:45 GMT
My son almost died from it in May -- his ck levels were 94,000.
It's frightening, and painful, and in your husband's case, avoidable. Strenuous physical activity is something you build up to, and learning to listen to your own body and respect its limits is just as important as "going for the burn". It may not be the most positive way to start his path to fitness, but it shouldn't be a barrier.
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Post by pmk on Aug 21, 2015 21:30:13 GMT
Thanks for the insights.
He's not on statins (or any medication) and at the moment they don't actually think the 10mins of the class caused it. It wasn't strenuous exercise - he didn't even last the warm up because the pedals were affecting his feet. Unfortunately his levels aren't showing any sign of coming down so that's a concern. Kidney function is still good, so that's at least a positive.
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Post by pmk on Aug 21, 2015 21:35:34 GMT
My son almost died from it in May -- his ck levels were 94,000. It's frightening, and painful, and in your husband's case, avoidable. Strenuous physical activity is something you build up to, and learning to listen to your own body and respect its limits is just as important as "going for the burn". It may not be the most positive way to start his path to fitness, but it shouldn't be a barrier. It wasn't actually due to the exercise - the doctors believe it's been building up over time and just became apparent this week. Thanks for the advice but he's really not a "going for the burn" type of person; he was trying something out and sensibly stopped at the first sign of issues. |
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Post by pmk on Aug 21, 2015 21:37:27 GMT
Is there a reason that you don't want to ask his doctors about this? No - I have spoken to them and before I came on here too. Is there a reason I shouldn't ask for advice here? |
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Post by nurseypants on Aug 21, 2015 22:37:07 GMT
I think when you speak to his doctors and nurses, you get information that his specific to his situation. When you ask online, you get information that may or may not be true, or applicable to your situation. I'm a fan of open communication between doctor and patient/family. My experience has shown this to be more effective in communicating specific info.
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Post by rst on Aug 22, 2015 3:21:21 GMT
Does he drink? Take a lot of nsaid for the pain he's had chronically? Either of those would set him up for rhabdo.
Not sure what you're looking for here, but I'll validate that it's a scary situation, specially since his levels are not coming down as would be hoped. Have they had a frank conversation with you about possible root causes and the treatment plan?
Best wishes--
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Nicole in TX
Pearl Clutcher
Posts: 2,951 
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Post by Nicole in TX on Aug 22, 2015 3:30:53 GMT
I think when you speak to his doctors and nurses, you get information that his specific to his situation. When you ask online, you get information that may or may not be true, or applicable to your situation. I'm a fan of open communication between doctor and patient/family. My experience has shown this to be more effective in communicating specific info. Many times the Peas have shown themselves to think outside of the box in medical situations. As long as the OP understands we are not doctors (well, most of us), there is certainly a benefit to asking about our collective experiences. I remember in one Pea's daughters PANDAS case, it was priceless. |
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Time to get off the internet!