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Post by Blind Squirrel on Sept 14, 2015 23:37:39 GMT
I am so sorry to read your news. Phoebe and your family will be in my prayers.
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brandy327
Drama Llama
Posts: 6,353
Jun 26, 2014 16:09:34 GMT
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Post by brandy327 on Sept 14, 2015 23:39:00 GMT
I'm so sorry to hear of Phoebe's diagnosis. I pray that she beats the odds. Thoughts and prayers to you and your family.
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Post by mrsscrapdiva on Sept 14, 2015 23:40:03 GMT
I am so sorry to hear that this is what daughter's diagnosis is. Phoebe and your family are in my continued prayers.
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Jili
Pearl Clutcher
SLPea
Posts: 4,363
Jun 26, 2014 1:26:48 GMT
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Post by Jili on Sept 14, 2015 23:40:05 GMT
In so sorry. This is not what I had hoped to read about little Phoebe. My cousin's son was diagnosed with histiocytosis several years ago and I believe this is related? I pray they find a treatment that works for her.
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The Birdhouse Lady
Drama Llama
Moose. It's what's for dinner.
Posts: 7,154
Location: Alaska -The Last Frontier
Jun 30, 2014 17:15:19 GMT
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Post by The Birdhouse Lady on Sept 14, 2015 23:40:13 GMT
I don't even know what to say. I am so, so sorry. Sending you prayers and hugs.
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azredhead
Drama Llama
Posts: 5,755
Jun 25, 2014 22:49:18 GMT
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Post by azredhead on Sept 14, 2015 23:41:11 GMT
Hugs and prayers for your little girl and that she will get the very best are and dr will be able to figure it out it.Bless you and your family!
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ModChick
Drama Llama
True North Strong and Free
Posts: 5,060
Jun 26, 2014 23:57:06 GMT
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Post by ModChick on Sept 14, 2015 23:42:30 GMT
Oh no, I'm so sorry. Hugs and prayers for you and your daughter and family.
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Post by jenb72 on Sept 14, 2015 23:43:44 GMT
I'm so very sorry to hear this. You're all in my thoughts.
Jen
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Post by impearia on Sept 14, 2015 23:43:52 GMT
So sorry to hear this. Wishing for the easiest and most successful treatment for sweet Phoebe. Hugs to you and your family.
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Post by MommyofTriplets on Sept 14, 2015 23:44:16 GMT
I'm keeping you, Phoebe, and your family in my thoughts. Sending strength your way.
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marianne
Pearl Clutcher
Not my circus, not my monkeys. . . My monkeys fly!
Posts: 4,176
Location: right smack dab in the middle of SC
Site Supporter
Jun 25, 2014 21:08:26 GMT
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Post by marianne on Sept 14, 2015 23:44:13 GMT
I'm so, so sorry your Phoebe has gotten this diagnosis. I've been keeping her and your family in my prayers and will continue to pray for her return to good health. Hugs and positive thoughts for successful treatment are with you.
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Post by moretimeplease on Sept 14, 2015 23:45:07 GMT
I'm so sorry this is happening to your dear Phoebe! I don't know where you are located or if this would even be possible for you, but look into Cincinnati Children's Hospital. Or at least have Phoebe's doctors consult with CCH. You may ultimately be heading towards bone marrow transplant, and this link is saying that prognosis can go from the 50-70% up to 90+% with the BMT. (((Hugs))) www.matthewandandrew.org/what-is-hlh.html
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Post by Darcy Collins on Sept 14, 2015 23:46:28 GMT
My thoughts and prayers are with you and your sweet baby.
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Post by CarolT on Sept 14, 2015 23:46:36 GMT
I am so sorry, you and your precious baby will be in my thoughts and prayers.
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Post by kelbel827 on Sept 14, 2015 23:47:44 GMT
I'm so sorry to hear the diagnosis. I'll keep you in my thoughts.
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Post by tommygirl on Sept 14, 2015 23:48:32 GMT
I am just one of many refupeas that is sending you and Phoebe hugs. Please know that I will continue to keep Phoebe and the rest of your family in my prayers. I pray that she will have strength and respond well to treatment.
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Post by jenjie on Sept 14, 2015 23:49:42 GMT
Awwwww cr@p!!! I am so so sorry. Praying for you all.
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Post by Zee on Sept 14, 2015 23:50:36 GMT
Oh, hugs and love to you and Phoebe. Sending prayers and good thoughts for healing.
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Post by mirabelleswalker on Sept 14, 2015 23:50:44 GMT
I'm sorry you did not receive the good news we all hoped for. I work with a good number of kids with histiocytosis--both HLH and LCH. They generally do very well.
It is Histiocytosis Awareness Month and histiocure.org is a great resource.
I am very optimistic about your Phoebe. Sending healing thoughts.
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valleyview
Pearl Clutcher
Posts: 2,816
Jun 27, 2014 18:41:26 GMT
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Post by valleyview on Sept 14, 2015 23:53:54 GMT
I'm so sorry to see this diagnosis. Hugs to you all.
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mamakim
New Member
Posts: 6
Dec 13, 2014 3:47:56 GMT
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Post by mamakim on Sept 14, 2015 23:55:37 GMT
So sad to read this. I will be praying for Phoebe and your family. Also for the Drs and nurses caring for her. kim
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Post by utmr on Sept 14, 2015 23:56:56 GMT
I'm so sorry to hear that. Sending good wishes for the best possible outcome.
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Post by kiwigirl on Sept 14, 2015 23:57:37 GMT
I'm so terribly sorry and i will be keeping you, Phoebe and your family in my thoughts. I've got everything crossed for you all.
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Post by moveablefeast on Sept 14, 2015 23:57:58 GMT
Oh mama, bless your heart, you must be terrified. And your precious child.
I join with the many who are wishing you well in this challenge, and pray for healing, peace, and many many many happy years for you to all enjoy together. I am believing in faith that you are in good hands.
I recall that you are at Children's DC - I am 20 or so miles west of you and will hold you in my prayers. If there's an address where my DD (7yo) could send your Phoebe a card, I think she'd be thrilled to do that.
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Post by winniegirl on Sept 14, 2015 23:58:12 GMT
So very sorry - y'all are in my thoughts. Wishing and hoping for the best.
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Post by lucyg on Sept 14, 2015 23:58:59 GMT
You and Phoebe have all my very best wishes. I am very hopeful for a full recovery for her.
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Post by Dixie Lou on Sept 15, 2015 0:00:28 GMT
Prayers for Phoebe and you and your family!
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MDscrapaholic
Drama Llama
Refupea #146
Posts: 6,343
Location: Down by the bay....
Jun 25, 2014 20:49:07 GMT
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Post by MDscrapaholic on Sept 15, 2015 0:00:48 GMT
Prayers for Phoebe. I hope the doctors will help her.
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iluvpink
Pearl Clutcher
Posts: 4,279
Location: Michigan
Jul 13, 2014 12:40:31 GMT
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Post by iluvpink on Sept 15, 2015 0:04:26 GMT
Sending (((HUGS))) and positive thoughts. So sorry to hear this.
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Post by shanni on Sept 15, 2015 0:06:47 GMT
I'm so sorry. Continued prayers for you and sweet phoebe.
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