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Post by SabrinaM on Oct 20, 2015 0:41:16 GMT
Britta, I'm praying for sweet Phoebe and for your strength.
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Post by Sassy Sabrina SWZ on Oct 20, 2015 1:05:50 GMT
So sorry to read your latest update, and hoping to hear better news in your next report. Hugs to Phoebe and to you and your family!
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Deleted
Posts: 0
May 2, 2024 8:23:49 GMT
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Post by Deleted on Oct 20, 2015 1:26:17 GMT
Praying for you and your sweet daughter! May angels surround you all during this time.
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Post by Really Red on Oct 20, 2015 1:34:49 GMT
Phoebe is just the CUTEST. She is still in my heart and mind daily. I hope things are looking up for you.
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~Lauren~
Pearl Clutcher
Posts: 3,876
Jun 26, 2014 3:33:18 GMT
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Post by ~Lauren~ on Oct 20, 2015 1:36:06 GMT
Continuing to say prayers for your sweet little girl
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Post by anniefb on Oct 20, 2015 2:07:36 GMT
Sorry that things aren't looking better at the moment and continuing to pray for Phoebe.
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Post by anonrefugee on Oct 20, 2015 14:34:43 GMT
I'm sorry to read this, was thinking about you. Prayers for Phoebe, your family and her medical team.
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peppermintpatty
Pearl Clutcher
Refupea #1345
Posts: 3,838
Jun 26, 2014 17:47:08 GMT
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Post by peppermintpatty on Oct 23, 2015 12:33:13 GMT
Where in Maryland are you? I am in Rockville. We have a huge Asian population here. Is there somewhere to check to see where we can get tested. I can put the word out in our area.
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peppermintpatty
Pearl Clutcher
Refupea #1345
Posts: 3,838
Jun 26, 2014 17:47:08 GMT
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Post by peppermintpatty on Oct 23, 2015 12:34:36 GMT
Me email is dareyac @ gmail.com. Don't care that it's out there. Send me the flyer and I can help to get it out in my area.
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melissa
Pearl Clutcher
Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Oct 23, 2015 13:20:06 GMT
I was worried that the lack of an update was worse news.
I went and looked at the FB page mentioned in the first page, Fight for Phoebe, hoping to see some positive news somewhere. There is a post from less than 24 hours ago and a post on 10/20 with some good news.
This was the post from 10/20 We received some good news today--pathology from the spinal fluid they took yesterday showed no HLH-related cells; normal in other words. This is a big, positive change from last week and we're hoping this continues
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River
Pearl Clutcher
Posts: 3,507
Location: Alabama
Jun 26, 2014 15:26:04 GMT
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Post by River on Oct 23, 2015 13:28:23 GMT
Thank you for posting the update Melissa. Always praying for Phoebe.
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Post by tomocus on Oct 23, 2015 13:41:22 GMT
Still praying for your sweet Phoebe as well as you and her doctors.
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TXMary
Pearl Clutcher
And so many nights I just dream of the ocean. God, I wish I was sailin' again.
Posts: 2,798
Jun 26, 2014 17:25:06 GMT
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Post by TXMary on Oct 23, 2015 13:49:01 GMT
Thanks for the update. Still praying here.
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Post by twinks on Oct 23, 2015 16:13:00 GMT
Thanks for the update Melissa, you are wonderful! My thoughts and prayers continue for sweet Phoebe and family.
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Post by blarneygirl on Oct 23, 2015 17:08:44 GMT
Thank you for the update Melissa, keeping them in my prayers.
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Post by shescrafty on Oct 23, 2015 23:03:21 GMT
Thank you for checking in. Her spinal fluid was clear this week, but her ferritin levels continue to rise indicating that the HLH is not under control. We can't decrease her steroids unless we see a decrease. She can't do the chemo right now because her cell counts are so very low. Stuck in a scary limbo right now where she is thankfully stable, but not really improving the way we want.
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caro
Drama Llama
Refupea 1130
Posts: 5,222
Jun 26, 2014 14:10:36 GMT
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Post by caro on Oct 23, 2015 23:47:57 GMT
Continued prayers.
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Post by ktdoesntscrap on Oct 23, 2015 23:50:45 GMT
Thinking of you all!
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Post by DinCA on Oct 24, 2015 1:52:56 GMT
Thank you for the update shescrafty. Still praying for you all!
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valleyview
Pearl Clutcher
Posts: 2,816
Jun 27, 2014 18:41:26 GMT
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Post by valleyview on Oct 24, 2015 2:41:42 GMT
Thanks for keeping us updated. I'm sorry that youre still in limbo.
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Deleted
Posts: 0
May 2, 2024 8:23:49 GMT
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Post by Deleted on Nov 13, 2015 0:54:47 GMT
Checking in on Phoebe. I pray she is doing well and on the road to recovery. I also hope things are better with you and your dh, Britta. I think of you guys all the time.
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Post by pattipea on Nov 13, 2015 1:14:52 GMT
Checking in on Phoebe. I pray she is doing well and on the road to recovery. I also hope things are better with you and your dh, Britta. I think of you guys all the time. Here is another thread with some more recent updates.
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Deleted
Posts: 0
May 2, 2024 8:23:49 GMT
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Post by Deleted on Nov 13, 2015 1:27:41 GMT
Checking in on Phoebe. I pray she is doing well and on the road to recovery. I also hope things are better with you and your dh, Britta. I think of you guys all the time. Here is another thread with some more recent updates. Thank you.
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