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Post by anxiousmom on Sept 15, 2015 1:20:39 GMT
I am so very sorry y'all are going through this. My thoughts and prayers will be with you...
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Post by stampnscrap1128 on Sept 15, 2015 1:24:25 GMT
Surrounding Phoebe and you with all our love, prayers and healing thoughts!
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Post by hdoublej on Sept 15, 2015 1:33:25 GMT
I'm so sorry! Praying for you guys!
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Post by hosschick on Sept 15, 2015 1:33:48 GMT
I'm so sorry. Continued prayers for precious Phoebe, you, your family, and her medical caregivers.
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Post by Spongemom Scrappants on Sept 15, 2015 1:34:30 GMT
I hate hearing that she has received such a frightening diagnosis. I know it's all incredibly overwhelming. I hope you can think clearly as you look at all the options to choose the best treatment for her. I am wishing you all the best.
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Deleted
Posts: 0
May 2, 2024 10:36:43 GMT
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Post by Deleted on Sept 15, 2015 1:37:20 GMT
We are at children's hospital in DC. They said they have treated children with HLH but tomorrow we are asking if we need to look at moving her. So many things in the air right now. Just because they have treated children with histiocytosis doesn't mean they are the best place, and it doesn't mean that they will recommend moving her. Definitely do some research to find the top doctors for this condition so you are well informed. This is not the diagnosis anyone was hoping for, continued prayers for your baby. I will be praying. From my experience (cancer not HLH) the doctors will move quickly and get the ball rolling to get her where she needs to be. Cincinnati is a wonderful hospital IMO, but there may be a better place in NY, TX, or elsewhere for her.
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Post by Butterfly Momma on Sept 15, 2015 1:44:20 GMT
I am so terribly sorry for your sweet Phoebe, you and your family. I hope that the support of the peas will bring you some comfort. May you find the answers and cure that she needs. Huge hugs!!
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zella
Pearl Clutcher
Posts: 3,884
Jul 7, 2014 19:36:30 GMT
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Post by zella on Sept 15, 2015 1:46:49 GMT
There are no words that can possibly provide meaningful comfort right now as you face your worst nightmare. I'm just so very sorry; for you, for Phoebe, for all of your family. My heart aches for you.
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Post by danid on Sept 15, 2015 1:47:29 GMT
Oh my......so very sorry. Hugs and prayers to you and your family.....stay strong sweet Phoebe!
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Gravity
Pearl Clutcher
Posts: 3,229
Jun 27, 2014 0:29:55 GMT
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Post by Gravity on Sept 15, 2015 1:47:06 GMT
((HUGS)) I am so sorry.
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janeliz
Drama Llama
I'm the Wiz and nobody beats me.
Posts: 5,633
Jun 26, 2014 14:35:07 GMT
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Post by janeliz on Sept 15, 2015 1:49:10 GMT
You're in my prayers.
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Post by buckeyegirl on Sept 15, 2015 1:49:03 GMT
Lifting Phoebe and your family up in prayer. HUGS.
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Post by librarylady on Sept 15, 2015 1:53:00 GMT
I offer prayers for Phoebe and everyone who loves her. My heart breaks for you.
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sweetandsour
Full Member
Posts: 227
Jun 30, 2014 17:43:52 GMT
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Post by sweetandsour on Sept 15, 2015 1:54:24 GMT
Prayers lifted for Phoebe and that she responds well to treatment!
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fitzy
Full Member
Posts: 227
Jun 28, 2014 2:50:04 GMT
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Post by fitzy on Sept 15, 2015 1:55:44 GMT
Hugs and prayers for Phoebe and your family.
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Post by anothermom2two on Sept 15, 2015 2:06:28 GMT
I'm so sorry to hear Phoebe's diagnosis. Your family is in my prayers for a positive outcome.
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Post by maryland on Sept 15, 2015 2:11:55 GMT
So sorry to hear this about your daughter. Prayers for her and your family!
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Post by Ramona on Sept 15, 2015 2:15:12 GMT
Prayers for Phoebe and your family. (((hugs)))
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Post by krcrafts on Sept 15, 2015 2:17:07 GMT
I am so sorry to hear this. I hope sweet Phoebe will respond well to the treatment. Hugs to you.
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Post by freecharlie on Sept 15, 2015 2:22:45 GMT
I am so sorry
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Post by mrssmith on Sept 15, 2015 2:26:09 GMT
Sending healing thoughts your way.
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Post by scrapmaven on Sept 15, 2015 2:26:12 GMT
I am saying a prayer and will continue to do so. The peas are a mighty powerful bunch.
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Post by alexa11 on Sept 15, 2015 2:29:21 GMT
I will keep you and your family in my prayers. Try to stay strong.
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Post by angie3dpea on Sept 15, 2015 2:30:10 GMT
Prayers for Phoebe and your entire family. We are here for you!!!!!!!
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dontsitstill
Junior Member
New Pea #151
Posts: 81
Jun 25, 2014 20:50:51 GMT
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Post by dontsitstill on Sept 15, 2015 2:31:30 GMT
I will keep your family in my thoughts. <3
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~Susan~
Pearl Clutcher
You need to check your boobs, mine tried to kill me!!!
Posts: 3,258
Jul 6, 2014 17:25:32 GMT
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Post by ~Susan~ on Sept 15, 2015 2:37:04 GMT
I'm so sorry to hear this news about your daughter. I wish you strength in the days to come.
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raindancer
Pearl Clutcher
Posts: 3,095
Jun 26, 2014 20:10:29 GMT
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Post by raindancer on Sept 15, 2015 2:37:24 GMT
I'm so very sorry. That's just an awful diagnosis. My thoughts are with you all. ((Hugs))
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Post by mellyw on Sept 15, 2015 2:39:58 GMT
I am so sorry. All of you will be in my thought's.
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Post by nepean on Sept 15, 2015 2:41:22 GMT
I am so sorry. I can't imagine how scary this is for you all. Praying for quick answers and healing.
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Post by farmdpea on Sept 15, 2015 2:41:18 GMT
I'm so sorry that this was not the diagnosis that we had prayed for. Please lean on the peas during this difficult time!
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