Deleted
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Oct 7, 2024 15:21:37 GMT
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Post by Deleted on Jun 7, 2016 2:01:19 GMT
Or know anyone that has had it or has it?
Would appreciate anything you know of it
Thank You
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TankTop
Pearl Clutcher
Refupea #1,871
Posts: 4,831
Location: On the couch...
Jun 28, 2014 1:52:46 GMT
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Post by TankTop on Jun 7, 2016 2:14:30 GMT
Dh's BFF had it. It was horrid. He spent a months hospitalized. The meds to treat it were very expensive. It took him a good year to be fully healed.
Good thoughts coming your way.
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grammanisi
Pearl Clutcher
Posts: 3,741 
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Post by grammanisi on Jun 7, 2016 2:15:53 GMT
My dad had it many years ago. He was a young firefighter and they were cleaning up an old hotel that had layers and layers of pigeon droppings. I remember him being really, really sick. Since then he has always been prone to bronchitis and other respiratory problems. There were a couple other guys that also had the same respiratory problems after working in the hotel.
I don't really remember much else, but if you want more info I can call him Tuesday and see what he remembers about it.
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Deleted
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Oct 7, 2024 15:21:37 GMT
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Post by Deleted on Jun 7, 2016 2:38:25 GMT
I was just diagnosed with it - Funny thing 9 weeks ago I went to the doctor for Shortness of Breathe - felt fine in every other way - doc sends me for an xray - shows a spot on my lung - sends me for a CT Scan it shows a spot on my liver and lung - sends me for a PET scan - it shows activity on my lung (MIND you all this time I am freaking out and they are hinting toward cancer. My doc sends me to a pulmonalogist (Sp** lung doc) he says does not look like cancer but have you been tested for histoplasmosis? I said no never heard of it. But I had already been scheduled the next day for a lung biopsy (let me tell you that wasn't fun at all) Doc says lets do some blood work on you to test for histo. so they did that before my biopsy. BINGO I have histoplasmosis. Googling all the symptoms and difficulties people have from histo I have nothing except the SOB tht lasted less than 2 weeks. Then referred to a Infectious disease doctor (I'm not infectious or contagious tho) he said blood work shows histo (Not even sure the lung biopsy was necessary he never answered if the histo was found on biopsy or blood work but he hinted it was the blood work. He has prescribed a medicine that I will be on for 1 year and was told it could be upwards to $500.00 a month for my Out of pocket. (one of the girls at work her FIL pays $600.00 a month for his. I did find out today my OOP will be $150.00 a month
Let me tell you what a nightmare the past 9 weeks have been. I feel fine and do not have any symptoms and wonder how bad my case was.
Prior to 4 weeks ago I'd never heard of Histoplasmosis and never really cared to
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Post by Really Red on Jun 7, 2016 2:44:20 GMT
 I'm so sorry you have this and I hope you have it not as severely as some people seem to have had. Out of pocket sucks, but if you are less tired, and this cures it, it will be great. Much luck! |
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Post by ~KellyAnn~ on Jun 7, 2016 2:49:50 GMT
I almost lost both an aunt and uncle to histoplasmosis two years ago. They live in the woods in northern Wisconsin and the doctors feel they picked it up in the soil there.
Both were hospitalized in critical condition for more than a week, just months apart. They are doing better, but because of their advanced age and other health issues, it really took a lot out of them.
I hope you make a quick and complete recovery.
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Deleted
Posts: 0
Oct 7, 2024 15:21:37 GMT
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Post by Deleted on Jun 7, 2016 3:49:30 GMT
Thank you Red
Wow KellyAnn that is scary but so glad they both are doing well
I really had no symptoms and that is what really scares me - (well the Shortness of breath) but that went away and had I not gone to the doc I wonder what would have happened. Especially being asymptomatic
I've read where it can be really fatal if not taken care of
Thank you for the input - I should have my medicine by the end of the week and I will be on it for 12 months
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katybee
Drama Llama
Posts: 5,448
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Post by katybee on Jun 7, 2016 4:14:49 GMT
I might have had it. Maybe. I have several (more than 10) nodules in my lungs. They might be cancer, or they might be something else-- including histoplasmosis. I had a PET scan that was inconclusive. I had a follow up CT scan and the nodules had not grown. Later this week, I'll have my next CT scan (prayers and good thoughts appreciated!) so basically, if they do not grow, they will not biopsy them. In that case – we may never know what they are or were. But for some reason, my doctor is leaning towards histoplasmosis. Even though I have never lived in the part of the country where it is common… I don't care, as long as it's not cancer!
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Post by Legacy Girl on Jun 8, 2016 4:21:35 GMT
Yes,I had it. I was in my 30s, and it appeared on a chest x-ray. Nothing would show up on blood tests, so they did a needle biopsy and ended up puncturing my lung because of where the mass was located. I was hospitalized for several days while the lung reinflated. There was still nothing conclusive with the needle biopsy, so they did an excruciating and risky surgical biopsy. Once they finally had a piece of it, they were able to determine that it was histo, and also that my body had basically walled-off the infection (or encapsulated it) so that it couldn't do any further damage. After meeting with an infectious disease doctor, it was determined that no further treatment was necessary. But for the nine weeks that it took to get to that point, when I thought I had lung cancer, it was terrifying. Praying for good results for you! Please keep us posted!
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Post by iteach3rdgrade on Jun 8, 2016 5:00:56 GMT
A co-worker has it. Her dh used to hunt a type of bird and one year it flared up and she was diagnosed with it. I don't recall her first issue, but she hasn't had any problems since then.
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Deleted
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Oct 7, 2024 15:21:37 GMT
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Post by Deleted on Jun 9, 2016 23:14:48 GMT
Katybee - Prayers that it is NOT cancer - boy do I know that feeling - 9 weeks of hell for me - Please keep us posted
Legacy Girl wow sounds like the hell I went through too - you are so lucky you didn't have to take the pills - if my insurance ever ok's the pills and my online RX sends them to me I can start taking them and hopefully rid my body of this fungi (or bird shit on my lungs like I so lovingly refer to it as)
So amazing this is something I'd never heard of 3 months ago but since learned this is very common in the area I live. YAY
Thanks for sharing your stories
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I'm so sorry you have this and I hope you have it not as severely as some people seem to have had. Out of pocket sucks, but if you are less tired, and this cures it, it will be great. Much luck!
