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Oct 8, 2024 16:49:21 GMT
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Post by Deleted on Aug 4, 2014 17:18:18 GMT
Well, I've worked on the other side of things, so I guess I have a different opinion.
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Deleted
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Post by Deleted on Aug 4, 2014 17:21:08 GMT
Well, I've worked on the other side of things, so I guess I have a different opinion. Well when you have to choose between eating and your medicine your mind might change. Luckily I am in a better place now but it was rough and I am middle class so just imagine how others are. And again I am NOT saying that no one should get paid. Non profit does not mean working for free.
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Deleted
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Post by Deleted on Aug 4, 2014 17:25:36 GMT
I don't think things are perfect but I don't think drug companies are all bad. I have had to deal with very expensive medications and so have people in my family. It's not easy.
But I also know how much work and time and sheer brilliance goes into developing drugs. It costs over 1 billion dollars, on average, and over 10 years to develop one drug. There needs to be motivation to do that.
I do think, in general, companies and heads of companies (ALL companies, not just pharma) do make way too much money, but I don't think the answer is limiting profits or placing other restrictions on drug companies.
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Post by Darcy Collins on Aug 4, 2014 17:42:40 GMT
I have zero issue with this. There is an extremely high level of suspicion regarding Western Medicine in Africa. Medical personnel are constantly fighting against fear and suspicion. Myths and poor information can take decades to correct.
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Post by anonrefugee on Aug 4, 2014 18:31:27 GMT
I'm not sure why it's ridiculous when it appears that's exactly what happened. Maybe there are legalities and ethical issues or logistical issues and I'm sure we'll be made aware of those in coming days but the NIH did choose to give these doses to two American healthcare workers rather than any of the other healthcare workers who got sick over the last few weeks. FWIW, when the initial report of the serum came out (the one where Dr. Brantly asked for it to be given to Writebol), the spokesperson for the CDC said they didn't know about it. American doctor foregoes treatmentSorry for linking extra verbiage... The CDC spokesperson didn't say they didn't know about it. They said no proven treatments. That's something else entirely. This serum had never before been given to a human. They did not know if it would work, it was not a finalized experiment, rather a last chance effort to help. BTW I totally agree with previous statements about nefarious acts and poor decsions (especially during 1980s) with HIV/ Aids. Unfortunately many sources are to blame, not just one company, government, or society.
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Post by katieanna on Aug 4, 2014 18:44:23 GMT
And honestly a lot of the issues lie with the drug companies. You would not believe what they sit on and don't put out there. Big pharma is disgusting. That is where the blame lies. They can't make money by curing people. Is it any wonder that many people over the age of 60 have numerous prescriptions? It's ridiculous!
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Sarah*H
Pearl Clutcher
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Jun 25, 2014 20:07:06 GMT
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Post by Sarah*H on Aug 4, 2014 18:46:34 GMT
I researched it a little bit more and I'm sure the details will change again. But right now the story is that Samaritan's Purse, desperate to save their workers, approached the CDC and the CDC referred them to an NIH employee who was in Africa with the CDC & Defense Threat Reduction Agency contingent but not in her capacity as an NIH employee (?) who knew about the research and put Samaritan's Purse in touch with the company working on the vaccine.
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Post by anonrefugee on Aug 4, 2014 18:57:21 GMT
Thanks Sarah, this is going to be interesting as it plays out. Of course someone will complain they got special consideration because they "knew somebody" and strings were pulled.
Hope it's a lasting treatment and many lives will be saved.
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Post by iamkristinl16 on Aug 4, 2014 20:52:30 GMT
I think there are several reasons that so many people over the age of 60 are on many meds. It is a complicated issue for sure. Not saying that drug companies don't have something to do with it, but diet, longer life spans, lifestyle factors, etc all play a part.
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Post by anxiousmom on Aug 4, 2014 20:57:14 GMT
Gosh y'all, I should know better than to have any kind of knee jerk reaction to a developing news story. I should have waited for more information in order to make a more informed decision. I can see where it may be way more complicated than I initially thought, and I think I am going to spend a little more time researching before I make any more comments. I am such a dork.
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mely
Junior Member
Posts: 89
Jun 25, 2014 19:51:59 GMT
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Post by mely on Aug 4, 2014 21:01:54 GMT
It looks like our government is helping to fund the research. Which is probably a good thing.
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scrappinghappy
Pearl Clutcher
“I’m late, I’m late for a very important date. No time to say “Hello.” Goodbye. I’m late...."
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Jun 26, 2014 19:30:06 GMT
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Post by scrappinghappy on Aug 4, 2014 21:10:10 GMT
And Ebola doesn't have a close to 100% mortality rare like someone claimed. If I remember correctly it is 60%. Still horrific but not absolute. Ebola usually has a 90% mortality rate. In the current outbreak they are seeing 60%. But until this "drug"/"vaccine" whatever it is, there was absolutely no way to treat it. You could try and make the patient more comfortable but you couldn't even alleviate the symptoms.
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Post by donna on Aug 4, 2014 21:16:21 GMT
Drug development is a very expensive process. The intense screening process of the FDA contributes to the cost as well. My Mom is on a very expensive drug for Afib. It is a fairly new drug. I had to explain to her just why the new drugs are so expensive.
Hopefully, these two Americans will continue to improve and their treatment will help get this drug approved as a cure for Ebola.
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Post by stampinchick on Aug 4, 2014 21:42:48 GMT
I would think that anybody given an untested serum would need to be closely observed and meticulously documented. Are researchers going to travel to Africa and put themselves in close contact with the infected so they could observe in less than ideal conditions? Imagine if it was offered to an African doctor and they wanted to fly him to the US for observation. There was enough outrage/misinformation about US citizens being allowed to fly into this country could you imagine how much more it would have been with a non-citizen? There is not enough known yet about exactly why these two were given the serum for anybody to start implying that it was because the US is only concerned about its own citizens.
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Post by redrulz on Aug 4, 2014 21:49:35 GMT
I haven't read every post yet, but I think "secret" is a little over the top. I think whichever company is working on it wasn't sharing data because they wanted to test, market and profit. That is their business.
As for why the two Americans were offered the drug? I wondered if the drug company is American? I don't think that makes it right. I hope this company has a real treatment and can get it through testing and start helping people as soon as possible.
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Post by freecharlie on Aug 4, 2014 22:25:39 GMT
Maybe they needed to test/record the results in a controlled environment in order to validate their findingd
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Post by Darcy Collins on Aug 4, 2014 22:34:16 GMT
Pfizer actually did fly a team Africa to conduct a trial of a new drug for meningitis a decade or so ago. I believe it was in Nigeria and they gave it to a few hundred children during an outbreak that killed ten thousand. Despite the drug working relatively well - a handful of children died. It was a nightmare for health care workers in Africa as misinformation spread and people were sure all shots were a conspiracy to sterilize Muslims. They had to actually suspend the polio vaccination program for a time as several health care workers were killed for "continuing the conspiracy". Polio rates soared. Pfizer ended up settling, and I'm sure they did a lot wrong during that trial - but one thing is for sure, no drug company is going to inject a totally experimental drug into people in Africa. Even if saved lives of those suffering from Ebola, the ramifications are much much greater for the ability to effectively treat people in a whole host of medical issues.
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Post by donna on Aug 4, 2014 23:49:50 GMT
Wow Darcy! I had not hear of that meningitis situation. I learn something new here every day.
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Post by straggler on Aug 5, 2014 0:50:39 GMT
This is just a side post to the whole drug company thing. DH takes a biological. In the early Spring it went up $300/month...it just went up another $400/month...do I think the drug company's cost increased that much in a few short months? No, I don't. Can you say "rip-off"?
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Post by iamkristinl16 on Aug 5, 2014 0:55:56 GMT
straggler--What is a "biological"?
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Deleted
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Oct 8, 2024 16:49:21 GMT
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Post by Deleted on Aug 5, 2014 1:00:45 GMT
This is just a side post to the whole drug company thing. DH takes a biological. In the early Spring it went up $300/month...it just went up another $400/month...do I think the drug company's cost increased that much in a few short months? No, I don't. Can you say "rip-off"? Same here. It's BS.
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Post by anonrefugee on Aug 5, 2014 2:21:09 GMT
Straggler, we need a Dislike button for that! We've had the same thing happen to us on a med 3/4 if the family takes.
Such a pain and a reminder how expensive healthcare can be - and how quickly it can devastate a budget. Ours is a big pharm drug and our insurance is no longer giving discounts for a generic. Crazy stuff.
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Post by gryroagain on Aug 5, 2014 2:51:02 GMT
Darcy that is the situation I couldn't quite remember the details of, but is exactly why using an American victim of the disease was a possibility. Not because anyone (and I am no fan of big pharma) wants to see Africans die. It's a volatile situation.
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mely
Junior Member
Posts: 89
Jun 25, 2014 19:51:59 GMT
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Post by mely on Aug 5, 2014 6:20:00 GMT
The company that made the serum is from San Diego. The drug really isn't secret - they had announced it last year.
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Post by DinCA on Aug 5, 2014 9:50:05 GMT
From what I understand from reading other articles about the outbreak, there's been a great deal of resistance to western intervention, that extends to blaming western doctors for deliberately infecting patients or using them for experiments. Part of the reason the epidemic has gotten so out of control is family hiding their affected family members from authorities. I wonder if part of the thought process was that if they offered the experimental drug to non-Americans, and something went horribly wrong, there would be even more of a backlash, more accusations of experimenting on people, and the fallout would make treating / controlling the epidemic even more problematic. Much as I hate it on humanitarian grounds, there is a real possibility that if the drug had been offered to terrified people who are already suspicious of Americans, and it failed, it could have made an already horrific situation exponentially worse. My thoughts exactly.
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Post by DinCA on Aug 5, 2014 9:56:14 GMT
They gave one dose to the doctor and 2 doses to Nancy Writebol so at the least, the claim that there was only one dose isn't true. I'm also very sure they could have obtained informed consent from either of the other two doctors who died last week, administered it in secret so as not arouse public suspicion, etc. Because Nancy got two, it makes me think that they acquired another two doses, another for her and one for him, after that statement was made. He does appear to be improving which is cause for celebration because it worked and because his condition was so grave.
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Post by papercrafteradvocate on Aug 5, 2014 10:16:00 GMT
Maybe they needed to test/record the results in a controlled environment in order to validate their findingd I was coming here to post just this! Since the drug is new, untested, and never on a human, I am sure that they want to have the first ones in a controlled environment where they can monitor every single aspect. I had also read that the drug needs to be kept really cold too--so this could be a factor as well as it is not even FDA approved. I don't believe that this was a conspiracy, preferential treatment or a case if US only serving an American. I also believe in free enterprise--the pharm companies who invent these meds should be entitled to earn the money for them, considering what goes into their development. This is a first for the US--in having a person set foot on American soil with the Ebola disease, so I would hope that the research to be continued will be vital to the development of this drug.
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Post by ScrapsontheRocks on Aug 5, 2014 10:49:27 GMT
Tough situation for sure. I need to give this one much more thought.
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Deleted
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Post by Deleted on Aug 5, 2014 11:42:25 GMT
The company that made the serum is from San Diego. The drug really isn't secret - they had announced it last year. Sent from my SAMSUNG-SGH-I337 using Tapatalk If that was the case Ashley then I would have thought that Dr Sheik Humarr Khan who, by all reports, was a leading Dr in the fight against this in Sierra Leone would have know about it.He died last week without been given the option of taking this drug. That is why some people are asking questions! This sounds harsh, but if he was dying anyway he had nothing to lose by being given this untested drug. He might have had everything to gain though as things have turned out. But for him, sadly, it's too late. He was due to give a presentation at Harvard in June but had to cancel because he was too busy dealing with the outbreak. The Sierra Leone government has declared Kahn a national hero, crediting him with saving more than 100 lives.
The family says he cancelled a presentation at Harvard in June to stay in his country. LINK
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Post by straggler on Aug 10, 2014 20:20:31 GMT
iamkristinl16...a biological drug is one that is made from living organisms, human and/or animal. A couple examples are Remicade and Humira. Remicade is given intravenously and Humira is an injectable. Both are very expensive. Humira is about $2,500 to $3,000/month for two injections and Remicade is probably that much as well, depending on where the infusion is given. Hospital setting vs infusion center. Thank God for insurance.
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