johnnysmom
Drama Llama
Posts: 5,684
Jun 25, 2014 21:16:33 GMT
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Post by johnnysmom on Aug 4, 2014 16:38:42 GMT
It was mentioned by DS's pediatrician at one of his baby well checks, just as an offhanded comment. We were told it's nothing to worry about and there's nothing to be done at that point, we'd reevaluate once he was older. Well he's now 13, it's becoming more prominent (though his chest more seems to sink in rather than stick out) and he's starting to get self-conscious about it (he also has pretty bad acne on his chest/back so it's part that as well). He has a pediatrician appt next week where I'll ask them, but I wonder if anyone has any experience as far as treatment/surgery.
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johnnysmom
Drama Llama
Posts: 5,684
Jun 25, 2014 21:16:33 GMT
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Post by johnnysmom on Aug 4, 2014 22:40:27 GMT
Shamelessly bumping
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Cheesy
Full Member
Posts: 135
Location: The cornfields of Illinois
Jun 26, 2014 16:49:38 GMT
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Post by Cheesy on Aug 4, 2014 22:50:04 GMT
My 18 year old nephew has a slight "sunken chest". It showed up in puberty. According to his doctor, it's merely cosmetic at this point and nothing needs to be done. It does bother him a little, mostly when people point it out to him without realizing that it embarrasses him.
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Post by elaine on Aug 4, 2014 22:50:42 GMT
If his chest is sunken in, that is pectus excavatum, NOT pigeon chest. Sunken chest can be a sign of Marfan's - is your son also very tall? Even if it isn't related to Marfan's for him, it can lead to heart and lung problems. My friend whose son had this (and had to have a couple surgeries to correct it) also had a heart attack at 21 due to the damage his sternum and ribs caused his heart.
I would strongly request that the pediatrician refer you to a specialist at this appointment. It really is nothing to dink around with.
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johnnysmom
Drama Llama
Posts: 5,684
Jun 25, 2014 21:16:33 GMT
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Post by johnnysmom on Aug 4, 2014 23:02:17 GMT
If his chest is sunken in, that is pectus excavatum, NOT pigeon chest. Sunken chest can be a sign of Marfan's - is your son also very tall? Even if it isn't related to Marfan's for him, it can lead to heart and lung problems. My friend whose son had this (and had to have a couple surgeries to correct it) also had a heart attack at 21 due to the damage his sternum and ribs caused his heart. I would strongly request that the pediatrician refer you to a specialist at this appointment. It really is nothing to dink around with. Holy hell, that's not what I was hoping to hear He is rather tall, 5'6" and has huge feet (size 12) at barely 13yo, last I checked his estimated adult height is 6'5"-ish. He also plays lots of sports (primarily basketball) which I'm sure puts extra stress on his heart
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blueviolet
Shy Member
Posts: 31
Jun 30, 2014 1:49:40 GMT
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Post by blueviolet on Aug 4, 2014 23:12:41 GMT
Yes, sunken chest is called pectus excavatum. DH, DS, and DD all have it. None of them have Marfan's, though they have had cardiac echos to confirm that there is no extra pressure on their hearts. My children are very young, so it hasn't affected them yet. But it can become more severe as the hit puberty, when the rib cage expands, the dip in the sternum can get deeper. There are cosmetic treatments, such a Nuss bar placement but they are fairly painful and involved, the Nuss bar in particular is known as one of the most challenging recovery processes for children, so I'm hoping they won't be interested in that option as they hit puberty when it becomes a cosmetic option. DH has lived with his for his whole life and it rarely comes to mind now.
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Post by Basket1lady on Aug 4, 2014 23:15:57 GMT
Marfan's is not just being tall. I know the proportion of the hands is off, as well as other physical features. Think of Abe Lincoln, who likely had Marfan's.
You certainly can ask your pediatrician about it. It sounds like that's what you plan to do. You can tell the ped that you are uncomfortable with the way things are, but I wouldn't demand it.
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marianne
Pearl Clutcher
Not my circus, not my monkeys. . . My monkeys fly!
Posts: 4,176
Location: right smack dab in the middle of SC
Site Supporter
Jun 25, 2014 21:08:26 GMT
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Post by marianne on Aug 4, 2014 23:23:35 GMT
My brother had a sunken chest as a child and well into adulthood. It's not as pronounced now, but as a child, he was very thin and his poor little ribs showed because of the sunken look. Nothing was ever done in terms of diagnosis or corrective treatment, and he's had a perfectly normal life in terms of health. He was a burly truck driver until he retired, never had lung or heart issues, and is now a relatively healthy 65 year old man. The only real health problem he's had is back issues due to years of bouncing around in a truck, loading and unloading merchandise, etc. So, not necessarily pectus excavatum.
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psiluvu
Pearl Clutcher
Posts: 3,217
Location: Canada's Capital
Jun 25, 2014 22:52:26 GMT
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Post by psiluvu on Aug 4, 2014 23:26:19 GMT
My son is pigeon chested and has been since birth. He was seen by a specialist at 8 who said it will not affect him in any way, but as he gets older he may want to get it fixed for purely cosmetic reasons. He is now 11 and is not bothered by it yet.
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Post by elaine on Aug 4, 2014 23:26:26 GMT
Marfan's is not just being tall. I know the proportion of the hands is off, as well as other physical features. Think of Abe Lincoln, who likely had Marfan's. You certainly can ask your pediatrician about it. It sounds like that's what you plan to do. You can tell the ped that you are uncomfortable with the way things are, but I wouldn't demand it. Yes, Marfan's is not just being tall, AND pectus excavatum is common in people with Marfan's. If the OPs son had a sunken chest but wasn't tall, then Marfan's wouldn't be a concern, but since he is tall, he will most likely go through other testing to rule it out. Honestly, after being with my friend as her seemingly healthy, normal weight, young son had a heart attack due to the damage a sunken chest did to his heart, I don't want the OP to worry too much, but I certainly don't want her to brush it off, or allow a general pediatrician to treat it too lightly either. Being evaluated by a specialist won't hurt anyone.
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