*Update 9/28* Prayers for my son, surgery went great.

Sending many prayers to your son and you. I wish I could be there to hold your hand while you go through this ordeal w/your son. 

Sending hugs and prayers your way. May your son have excellent medical care, and may he live a long and happy life!

I can only imagine what you're going through happymomma. Just prayed for you & Daniel. Rom 8:26-27 comes to mind - God knows what's in your heart. Sending hugs .....

I just said a prayer for you and your son.  I'm so sorry you are going through this and I would be asking for prayer as well.  Do you know about the prayer line?  The number is 1-800-669-7729, it is called Silent Unity and it's available 24 hours and I've called many times at 3am for my mom.  They are wonderful and very comforting, please call them.  It's also free of course.  They will keep the name of the person you need prayer for in their chapel for 30 days.  So what happens is, a person will answer and say, "Silent Unity, how may we pray with you?" and you tell them what you need prayer for.  I have cried so many times to these people about my mom who battled breast cancer for 4 years. I pretty much called daily and sometimes more then once.  They will say a beautiful prayer with you and then ask if you would like a letter sent about the prayer that was just said or they can email you.  I've done both.  I can't tell you how often you get just the right person when you need it.  You never know who you will get because it is nationwide.  Please please please call it, it will bring you so much peace, I promise.  (((hugs)))

Aww... Sweetie! Absolutely! prayers for Daniel, you , his girlfriend & his doctors. ((Hugs))

Hugs and prayers for you and Daniel!

{{Hugs}}

I can imagine how scary this is, and how worried you are, and how difficult it must be for you to be living elsewhere while your ds is going through this. He, and all who love him, are in my thoughts and prayers.

Our ds was born with a congenital heart defect of the aorta, a coarctation, as well as a bicuspid valve. We did not learn of this until he was 16, and it came as quite a shock. Open heart surgery was a possibility, but there were able to widen the aorta with a stent that went in through the groin. Follow up visits have shown it to be successful though he will continue to be monitored.

I learned that they have made some wonderful advances in heart procedures in even the last several years. There has been much research done, these surgeries are not uncommon, and these kinds of procedures for repairs and replacements of the aorta have an excellent success rate. Not to minimize potential dangers of the condition itself or any repairs or surgeries, and anything involving the heart is scary, but knowing what is going on and having access to medical puts him in a good position.

I have since learned that heart conditions are not uncommon on my dad's side of the family, and I have two cousins who have also had heart procedures. I am not sure what their issues were, but the one was experiencing symptoms similar to what your ds is. Post surgery, he feels like a new person, and has regained his health and energy.

It is natural to be worried. And I know nothing anyone can say can truly set your mind at rest. But these kinds of conditions can be and are being successfully treated. It really is amazing what they can do, how much less invasive many procedures are, how quickly people recover and how positive the prognosis is.

I hope that your fears lessen with time and more information, and will keep you in my thoughts and prayers towards that end. And I wish your ds all of the best for a successful outcome. {{Hugs}}

ETA: Our ds is a very private person as well, and beyond close family, and only a couple of his very best friends, he did not want his condition publicly known and discussed. I think it is important that you are respecting your ds's wishes. I know how important it can be for 'you' to get that support from others, and to know that others are praying for him, and how difficult it can be to not disclose what is going on. But it seems that you understand how important it is not to add additional stress for him if he does not want people knowing what he is dealing with.

We are here for you though, and there are lots of us praying for your ds. So please consider us your support system, if you find your real life support system somewhat limited by your need to respect ds's wishes. I lost the link when the old board went, but there are on line support groups as well, for people who have gone through or are going through the same thing with someone they love. 

Praying for you and your son

Hugs to you and your son. We have a much smaller medical issue going on with our ds22 and he wants to handle everything himself. It's making me batty!

Prayers and positive thoughts for you and your family. In times of stress I have to remind myself that God brought me to this, he will bring me through it. Not an easy thing to do

Hugs

Sounds like a very scary situation to be in. I'm so sorry he's currently not well....hopefully this incident will bring into focus why he needs to go to regular appointments. He sounds a lot like my dad in terms of being stubborn! My dad got a valve replaced last fall, but he was insistent everything was fine until he blacked out shaving and my sister found him. Ugh!

Prayers for you, your son, and your family. 

Praying for Daniel . ((Hugs)) to you

Saying prayers!

Prayers for you and your son!