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Post by meridon on Aug 22, 2014 23:27:54 GMT
I've had severe endometriosis for years, which is considered by many to be an autoimmune disease. I've read about people controlling symptoms through diet by seeking to avoid foods that cause inflammation, but a lot of what I see online seems like pseudoscience or totally anecdotal to me.
Does anybody have personal experience with this, especially for endo? Any advice or resources to learn more you can recommend?
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Post by jenn on Aug 22, 2014 23:38:50 GMT
My mom has been on this diet for a number of months and aside from the weight she effortlessly lost, she is full of energy. The only draw back to this way of eating is that she has to tell everyone about it and we have to make sure that she can eat something on the menu when we eat out.
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Post by cadoodlebug on Aug 22, 2014 23:40:47 GMT
This is just my experience which probably won't help you. For years I had serious off and on inflammation in my finger joints. I figured I had inherited my mother's arthritis. Then about 4-5 years ago I read an article that something in shrimp gets into the joints and can cause inflammation. We used to eat a lot of shrimp. Since cutting it out of my diet I no longer have problems with my finger joints.
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Pearl Clutcher
Not my circus, not my monkeys ~refugee pea #59
Posts: 3,149
Jun 25, 2014 19:51:11 GMT
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Post by back to *pea*ality on Aug 22, 2014 23:41:39 GMT
I've had several autoimmune disorders asthma, endometriosis, Hashimoto's thyroiditus. As soon as one thing seemed to be under control another would surface.
For me the protocol for keeping inflammation in check is to eat a clean diet of organic, or local grown fruits and vegetables with small amounts of high quality protein. Avoid simple white sugar and flour - simple carbs. I also avoid grains and am gluten free. My diet is low carb Paleo.
My endometriosis was diagnosed in my 20's. I had surgery and took the birth control pill to manage it. My pregnancy also helped and later I had an endometrial ablation. I am post menopause now so it's no longer an issue.
I think it is worth a try - it certainly can't hurt to eat a diet that reduces inflammation is so damaging to the body wherever it manifests.
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mallie
Pearl Clutcher
Posts: 3,253
Jul 3, 2014 18:13:13 GMT
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Post by mallie on Aug 22, 2014 23:49:28 GMT
I had inflammation in my knees for years that caused increasing pain.
A few months ago, my doctor suggested I up my intake of cranberry supplements to try to decrease the number of UTIs I get since hit with menopause. It did nothing for the UTIs.
However, about a month ago, I realized that the chronic pain in my knees was all but gone. When I tracked it back, I discovered that the pain cessation began when I started a larger dose of the cranberry supplements. As an experiment, I cut back on the cranberry and it came back. My doctor said that cramberry can act as an anti-inflammatory in some people. I lucked out!
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Post by tuva42 on Aug 23, 2014 0:02:49 GMT
I have been eating an Atkins/low carb diet for about 9 months and the change in the pain in my arthritic knees is unbelievable. I went from getting shot in my knees every few month and taking 2 Aleve every day to having no shots at all and Aleve maybe once a month. Sugar and simple carbs are very inflammatory for me. It made a real difference. And I lost weight.
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Deleted
Posts: 0
Oct 10, 2024 10:22:32 GMT
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Post by Deleted on Aug 23, 2014 0:38:45 GMT
I have undifferentiated spodylarthropathy and have noticed a marked difference in my inflammation since I started eating Paleo about a year ago. Though I have been in remission for a few years and haven't had the high levels of inflammation I used to, I did still have constant low-level inflammation. I feel much better now and my blood test results also reflect that my baseline inflammation has dropped considerably since I started eating this way.
So, n=1, but it's worked extremely well for me.
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J u l e e
Drama Llama
Posts: 6,531
Location: Cincinnati
Jun 28, 2014 2:50:47 GMT
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Post by J u l e e on Aug 23, 2014 0:53:27 GMT
I have an autoimmune disease that has yet to be officially diagnosed other than a blood marker - so it's unofficially diagnosed as undifferentiated connective tissue disease. I suffer from constant joint pain and severe exhaustion. I tried an elimination diet to determine what foods may be causing inflammation in my body. That's the thing - some foods cause inflammation and some don't - depending on the person. I eliminated gluten, nightshades, sugar, soy, corn, dairy, processed foods - and am a vegetarian. I did this for five months or so (and it should not be done for more than two) and could not eliminate the pain to even begin to add foods back in to test them. I ended up pretty sick and feeling worse than when I started.
I ended up doing a blood test for food intolerances - MRT Food Sensitivity Test - with a dietitian I started working with after all that above (I was attempting to figure all that out alone with lots of conflicting information on different websites, articles, etc.). I received a list of foods with a numerical rating that showed the amount of reactivity each food had with my blood type. I hope I'm explaining this well. Strangely, many of the foods I eliminated - tomatoes, potatoes, wheat... showed to be very low reactive. Some of the foods I was surviving on during the elimination diet - oatmeal, garbanzo beans, raspberries, others I can't remember...were HIGHLY reactive. So it is very hard to know exactly which foods are causing reactions (inflammation, etc.) in your system. I know some people who have eliminated just one thing on a whim (gluten or shrimp or dairy) and felt better immediately. But just know that it doesn't always happen that way. If you are finding no success, try a blood test for food intolerances.
Good luck!
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Deleted
Posts: 0
Oct 10, 2024 10:22:32 GMT
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Post by Deleted on Aug 23, 2014 1:02:20 GMT
I don' t know if it works.. I can't stick to it long enough. But, I don't think it is hype. My doctor recommended I try it and is really cheering (read pushy lol) that I be able to do it.
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scrapaddie
Drama Llama
Posts: 5,090
Jul 8, 2014 20:17:31 GMT
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Post by scrapaddie on Aug 23, 2014 1:32:39 GMT
I can see how it might help with some things but don't understand how it could help with endo. The tissue responds to hormones and starts bleeding... And that cases the pain...
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Post by meridon on Aug 23, 2014 2:06:49 GMT
I guess the idea is that the scarring and adhesions caused by endo are further irritated by inflammation? And endo causes all sorts of chronic pain unrelated to actual menstruation. In other words, there are a ton of other symptoms other than just when you have a period.
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Post by gossamer on Aug 23, 2014 2:25:46 GMT
Never tried the diet before. What foods does it ban? Foods like wheat and sugar, or much more? I was muscle tested years ago for foods, and if I avoid those foods my joint pain is much less. I don't know if I've figured out all of my food triggers because I am thinking eggs may be one. I get neck and shoulder pains after eating eggs.
I keep wanting to try a food diet, but I do great for 3 days and then forget.
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Deleted
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Oct 10, 2024 10:22:32 GMT
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Post by Deleted on Aug 23, 2014 2:46:02 GMT
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Post by mztfied on Aug 23, 2014 3:28:22 GMT
I am very interested in this subject as I have a friend who is having the most awful pain in her joints which the doc says is osteoarthritis. It is painful just to watch her get from a sitting to standing position. Her doc is just giving her Vicodin for the pain but I wonder if a change in her basic diet might not help her.
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Post by Lindarina on Aug 23, 2014 8:56:19 GMT
Not at all an inflammatory illness, but my son had a severe chronic facial tic and was being evaluated for Tourettes. We tried an elimination diet, and discovered that gluten is one of his major triggers. He is now gluten free and (almost) tic free. The way I see it, what's the harm in trying an elimination diet? Worst case scenario, it doesn't help. Best case scenario, it helps
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Pearl Clutcher
Not my circus, not my monkeys ~refugee pea #59
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Jun 25, 2014 19:51:11 GMT
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Post by back to *pea*ality on Aug 23, 2014 12:46:10 GMT
mztfied google Dr. Allessio Fassano, he is a pediatric gastroenterologist at Mass General and is affiliated with Harvard University. There is a YouTube video of him speaking about his genetic research which was done for celiac disease. His research reveals other autoimmune conditions including RA and many others mentioned in the presentation. It takes an hour to watch.
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Post by Barbie on Aug 23, 2014 17:22:01 GMT
I have an autoimmune disease--Hashimoto's. I've been looking into the AIP--Autoimmune Protocol. It eliminates ALL grains, dairy, sugar, soy, legumes, nuts, and some fruits and veggies. Basically you're left with water and air, lol. It's so extreme! I just don't know if I can do it. I am going to try going gluten-free. I'm looking at my options on that, to replace the things I eat on a regular basis. It's frustrating how many things have gluten.
I do know that when I did the HCG diet a few years ago, I not only lost weight, but felt healthier than I had in years! No diary, no oils, no sugar, on two small breadsticks a day for grains, limited choice of fruits and vegetables, 200 grams a day of lean chicken or beef. But dang, I was hungry and craving stuff terribly!
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Pearl Clutcher
Not my circus, not my monkeys ~refugee pea #59
Posts: 3,149
Jun 25, 2014 19:51:11 GMT
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Post by back to *pea*ality on Aug 23, 2014 18:12:20 GMT
I have an autoimmune disease--Hashimoto's. I've been looking into the AIP--Autoimmune Protocol. It eliminates ALL grains, dairy, sugar, soy, legumes, nuts, and some fruits and veggies. Basically you're left with water and air, lol. It's so extreme! I just don't know if I can do it. I am going to try going gluten-free. I'm looking at my options on that, to replace the things I eat on a regular basis. It's frustrating how many things have gluten. I do know that when I did the HCG diet a few years ago, I not only lost weight, but felt healthier than I had in years! No diary, no oils, no sugar, on two small breadsticks a day for grains, limited choice of fruits and vegetables, 200 grams a day of lean chicken or beef. But dang, I was hungry and craving stuff terribly! Barbie I bought Mickey Trescott's AIP book. I have Hashi's too. I think if you are in a constant state of inflammation or flare as I call it then this helps to identify triggers. Her book and other AIP blogs talk about leaky gut (intestinal permeability) and they suggest fermented foods as probiotics. They also increase the goitrogenic properties of foods and I don't feel well at all and had to eliminate them. It's all trial and error. But going gluten free has made a significant difference. When I have my next thyroid panel done I am hoping to see a decrease in my antibodies.
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Post by zinnia on Aug 23, 2014 19:36:42 GMT
Nope did not work for my sons jia or cohns at all. Made no difference at all.
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Post by Barbie on Aug 23, 2014 19:37:41 GMT
yeah, since the HCG diet eliminated all the dairy and sugar and 99.9% of grains simultaneously, I have no idea if just one, or all, were triggers for me.
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