Thyroid - medication quesiton for those with experience

I've had mine dropped, not much though! .112 to .100. It was before parathyroid surgery Jan 2013. It had been .112 for a long time.. It has been dropped in the past also. Somewhere along the line I was at .125. Be advised the changes are minimal.

I have no recollections of problems with the changes.

This is me too! 

I also have depth perception issues when my levels are off. 

I take Armour thyroid and just recently had my dosage decreased from 60mg to 30 mg. I had pituitary surgery in 2010 and several of my hormones needed adjusting including thyroid. I found right after the surgery I would wake up exhausted, walk downstairs right after waking up and then immediately lie down on the couch and fall back asleep.

Over the past year or so I've had increased anxiety and irritability and some issues with sleep so my endo decreased my dose. Voila! My anxiety and irritability have diminished.

     100% agree with the above. Go to this website and read a bit. You will learn so much. The thing that strikes me first hand is that you are taking a synthetic thyroid medication (Syntroid) which only targets one of the thyroid areas. I've forgotten which one, but it's much better if you go with a medication that targets all of them. That is called a natural desiccated like Armour Thyroid or the newer Nature-Throid which is what I'm taking now. 

I was first given Syntroid years ago. I did absolutely nothing for me. I found a different doctor and was switched to Armour Thyroid and the difference was like night and day. That website saved me. I read it and the book that came before it. The website is amazing and has grown so much. It's logically laid out and easy to read. Wishing you the best. 

I won't be of too much help.  I've only been on synthyroid for about a year.  I DO try to take it exactly as is prescribed on the bottle (4 hours before any calcium).  I noticed that my weight has been maintained and I'm not nearly as hungry (but that could be menopause).  My dosage amount hasn't been adjusted in a year.  My primary goes by my bloodwork and my #'s.  I have noticed that I'm not as sleepy, and my weight was better maintained after I began my Levothyroxine.

Are you going to an endocronologist for your care??  (I think I'm the only one in my family NOT going to a specialist--my primary seems to think she could handle it).  Is it Hashimoto's?  (Most thyroid cases are, as far as what I've gathered in this short time).  Maybe you should see a specialist.  Hope you figure it out and get on the right dosage.

Another vote for Stop the Thyroid Madness. I was on Synthroid for years and still had symptoms. I'm on naturally desiccated thyroid now. All the years of poorly regulated thyroid also burned out my adrenals and I had no adrenal function so I got that sorted as well. I feel much better. I have no faith in doctors who insist on Synthroid.

Another issue that we have the "fun" of dealing with is that many women need less thyroid after menopause, so it isn't uncommon to have your meds lowered after menopause finally shows up.

As my thyroid makes no hormone whatsoever, it is very apparent by afternoon if I somehow missed a dose. I feel so awful that in the 6 years I've been on Synthroid, I've only missed one dose per year at most.

I have Hashimoto's, have been on synthroid forever. I had no idea that the not being able to find the words was a thyroid thing. It's been getting worse for me recently. One thing I did do was get tested for sleep apnea. Now that I have my CPAP, I have more energy and feel so much better. I urge everyone I know to get tested for sleep apnea if they are exhausted all the time. Turns out that I have had apnea for years and it just got so bad the past two, the doc finally attributed those symptoms to apnea, not my thyroid.

Good luck!

I do the exact same thing, searching for words or talking around them! If I did start getting early-onset dementia, I don't know how anyone would know.

I'm on (edited for accuracy: synthroid/levothyroxine and liothyronine), I have hashimoto's. my levels had been pretty stable for about 3 years, now they are in flux again. in Feb TSH was 6.5, we upped my levo. in April it was down to 1.5, the lowest it's been in 5 years and I felt great. but recently I started shedding a lot of hair again. I thought maybe a delayed loss from when my numbers were so high, but they thought maybe overmedicated. at my blood test on Monday, I was 3.8. I hate how we're always playing catch-up.

Anyway OP, besides the hair shedding and word-fumbling, I have never noticed much of any other differences as my meds change. i'm always tired. i'm always gaining weight if I walk by a baked good. so I wouldn't be too worried about it in that respect. 

ah you're right, oops! LIOthyronine is my second one. and yeah.. was so happy not to be dealing with hair loss for a couple years. now it's getting so bad that I had to go back to blonde and limit my rainbow colors to the bottom half of my hair. my scalp shows thru too much with darker colors.

ah thanks! me too. but i'm still varying shades of rainbow, I just have to do an ombre style that blends into the blonde about mid-temple. i'm trying to be ok with it because then I don't have to do my roots as often, or deal with hiding thin spots as much!

I've seen lots of doctors to deal with my thyroid problems (it's a complicated one for me). My sister has a complicated case too, but my father has a very easy time with his. What I mainly wanted to say was that some of those doctors included endocrinologists. They aren't the "best thing since sliced bread". I think I went to 3 to 4 of them and never did find one that didn't treat me like an imbecile or only looked at my test numbers and refused to take into any account my symptoms. The worst one I can remember is a female endo who said when I was explaining how my hands are cold all of the time, "Well are they turning blue? No? Then you are fine!"  Can you believe it?

There are good doctors and bad doctors everywhere including the specialties. I knew I was right to keep searching for a good doctor because of what I'd learned from "Stop The Thyroid Madness" the book. So I kept looking. I finally found what is called an Integrative Medicine doctor. He's a board certified internist (sp?) who also practices alternative approaches and alternative strategies. For this doctor what it means is he first has a consultation with his patients then orders a full blood panel. Then you meet again with him (and each consult is at least 30 minutes or longer sometimes 45 minutes) and the both of you talk together while he goes over the blood work, you tell him what's going on that's bothering you and you work out a treatment plan. For me I first saw him for my thyroid problems. He was excellent for that and has gotten me to the point where I almost have no symptoms-I still get cold before anyone else does. 

That's the kind of doctor I was looking for. The kind that would take me seriously and listen to my input too. Because let's face it-we know our bodies better than anyone else. This doctor I have now is so popular he doesn't take insurance. He doesn't need to. So I pay him out of pocket. I think he's worth it. He's also treating me for adrenal fatigue which like another Pea mentioned sometimes goes hand in hand with thyroid problems. 

My advise is educate yourself (obviously you don't need to read the whole book, the website is amazing and has really grown) and look for a great doctor. Don't give up because you are worth it. 

Really? I have major depth perception issues related to my eyes. I wonder if this has to do with my thyroid?