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Post by aljack on Sept 2, 2017 0:52:49 GMT
My 21 daughter told me she hasn't had her period in a year. I was shocked and upset because I noticed some change in her sleep habits and appearance,weight gain and acne which she never had in teen years.She doesn't eat much so I worried it was her thyroid, like me. I took her to my doctor for a check up and she said PCOS is most likely the cause and ordered an ultrasound and blood work. Ultrasound of ovaries came back normal but doctor said they don't usually diagnosis the problem and tech also confirmed this.We are still waiting for blood results which is frustrating.
I walked out of the appointment with tears because I had a friend that was diagnosised with uterine cancer and infertility. She always wanted children.My daughter has talked about having 3 children since a young child and those conversations flooded my mind. I kept it together for her but then came home and played Dr. Google. I don't see much for treatment beyond birth control pills to regulate her. Is it that simple if she is treated right away?
Any peas that have experience and want to share would be appreciated. Thank you!
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Post by mom on Sept 2, 2017 0:57:15 GMT
I am so sorry - you must be so afraid. BUT I say this with all the kindness in the world: DO NOT GOOGLE. You have no firm facts and Dr. Google will make you crazy. Try and wait patiently for the test results and then go from there. Hugs.
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gsquaredmom
Pearl Clutcher
Posts: 4,080
Jun 26, 2014 17:43:22 GMT
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Post by gsquaredmom on Sept 2, 2017 1:02:58 GMT
I am almost certain my mom had undiagnosed PCOS. They called it a hormone imbalance when she was young. I suppose tbey did not what it was, but she had many symptoms. She is 83 now but had 5 kids.
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Post by Zee on Sept 2, 2017 1:05:28 GMT
My DD has this, she is 23 and I first noticed it when she was 13. She takes metformin and BCP. Sometimes spirinolactone is given as well. DD's pediatric endocrinologist termed it a "metabolic syndrome" which means that her hormones are responsible for the weight gain, acne, abnormal hair growth, insulin resistance/type II diabetes, etc. Like your DD, mine did not actually have any cysts on her ovaries. After she started her metformin and made diet changes she quickly lost 50 lbs ad her blood sugars went back to normal. She eventually stopped taking the metformin, though she recently started again because she re-gained weight (mostly through poor diet and little exercise, but she's already lost 30 lbs and only has about 15-20 to go). Not everyone with PCOS will have infertility issues, so don't worry about that right now. Just focus on her getting healthy  There are online support groups and if they find she has insulin resistance/diabetes, she should see a dietitian to help her manage this. |
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Post by izzyscraps on Sept 2, 2017 1:31:11 GMT
I had PCOS. I also had infertility, but the PCOS was not the primary factor. Please find a doctor that can tell you all about and help you navigate. I have 3 kids now. The right doc can help you and your daughter work through this.
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Post by aljack on Sept 2, 2017 2:37:16 GMT
Thank you everyone! I definitely am trying to sit on my hands from googling. Lots of promising stories shared and I am hopeful we will experience the same if this is indeed what she has.
Again, thank you for sharing your stories and kind words. I am grateful!
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Post by papersilly on Sept 2, 2017 2:43:01 GMT
I had PCOS. I don't have children. It used to get bad ovarian cysts and even had surgery to remove a couple of big ones. The periods were awful. Suffered with anemia for years until I finally had a hysterectomy at 44. After that, all the other issues I had as a result of the PCOS disappeared.
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inkedup
Pearl Clutcher
Posts: 4,837
Jun 26, 2014 5:00:26 GMT
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Post by inkedup on Sept 2, 2017 2:48:22 GMT
I have PCOS. I got pregnant with my son at 35, after a few years of trying. I had several miscarriages after my first pregnancy, but am 22 weeks pregnant at 40 years old!
There are so many variables here. I don't want to offer false hope, but I do want to remind you and your daughter that many women with PCOS are able to conceive and carry pregnancies to term.
Hugs to you both. ❤❤
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Post by tracyarts on Sept 2, 2017 2:49:09 GMT
I was diagnosed initially with PCOS in 1989.
My treatment since 1998 has been Metformin to manage the insulin resistance angle of the syndrome, and Spironolactone to manage the elevated androgen angle of the syndrome.
That combination of drugs was the "magic bullet" for me. My acne cleared, my pores shrank, my scalp hair thickened back in, my facial hair and unibrow disappeared, my breasts normalized in size/shape, my body hair turned mostly to peach fuzz, my facial shape feminized, ovarian cysts disappeared,my menstrual cycle completely normalized, my voice feminized, and my mood swings stabilized.
I'm in my late 40s and entering perimenopause now, but exactly as expected with no hormonal abnormalities.
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Post by pondrunner on Sept 2, 2017 3:06:40 GMT
I have it. Metformin helped for a while but BCPs work better. I have children who were conceived naturally.
One thing to investigate is the link between PCOS and diet. It led me to a lower carb, lower sugar way of eating which has been a game changer for me. I now take no meds except the BCPs which I didn't want to give up my practically nonexistent menstrual periods so I kept those.
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Post by birdy on Sept 2, 2017 3:11:02 GMT
I have PCOS diagnosed in my early 20's. Weight gain, very irregular periods, etc. OBGYN said that it would be very difficult for me to get pregnant without medical intervention. When DH and I finally decided we were ready to start a family, we decided to try on our own. We didn't want to chance multiple babies (twins and triplets run in my family naturally). With DS, I got pregnant within 6 weeks of "trying." I was 30. We waited 6 years to try again. We "tried" for only 2 months and I was pregnant with DD. It doesn't always end up as badly as you read online!!! Keep hope!
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Post by seikashaven on Sept 2, 2017 3:47:29 GMT
Hugs! The internet makes everything sound terrible. PCOS is treatable and incredibly common. I was diagnosed in my early 20s. I manage most of my symptoms without birth control (through diet/exercise). I did have infertility and it took me almost 10 years to have two children. I sometimes do have cysts that require intervention (aspiration) but mostly my only symptom is I'm heavier than I'd like to be and I have an irregular cycle.
Honestly, knowing I had PCOS was a lot easier than not knowing what what wrong with me. I'm grateful for a fantastic reproductive endocrinologist and a plan to keep me pain free!
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Post by iteach3rdgrade on Sept 2, 2017 4:34:18 GMT
I have PCOS and until one is considering having a child, it doesn't seem like doctors worry too much. It may require a bit of intervention to have a child. I have one child.
My main concern is to have a cycle at least every 3 months.
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stittsygirl
Pearl Clutcher
Posts: 3,581 
Location: In the leaves and rain.
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Post by stittsygirl on Sept 2, 2017 6:52:11 GMT
I have PCOS, diagnosed in 2001. I have had four children. I call my last two my "Atkins" babies, because I have been able to manage my symptoms through diet alone and it helped me conceive my last two kids. I still stick to a fairly low carb/low glycemic diet and it works really well for me all around. Many women have to use medication as well. It's just figuring out what works for the individual and what they can live with. My own daughter also has PCOS, but fortunately we know so much more about it than I did 20 years ago . |
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Deleted
Posts: 0
Jun 2, 2024 18:02:03 GMT
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Post by Deleted on Sept 2, 2017 8:19:28 GMT
Honestly, knowing I had PCOS was a lot easier than not knowing what what wrong with me. 1,000 times THIS!!!!!! I had SOOOOO many problems with my periods in my early twenties. I had to have TWO D & C procedures within a couple of years of each other from severe periods. I went through three doctors, the first two telling me that some women are just this way. I KNEW something was not right with my body. Enter the last doctor, on the young side, within the first ten minutes of my consultation (he had my file to review) he said I know EXACTLY what is wrong with you....you have PCOS. I literally broke down in my paper gown and had an ugly cry! It had a name and a path to dealing with it. Now twenty years later, I have two healthy children conceived naturally. I took much the same medication as others have listed. BCP worked wonders for me, kind of like a reboot to my system. I have apparently entered peri menopause, but I am ok with that. Definitely don't google. Find a good medical team for her and take your cues from them. Good luck!!!!! |
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Post by Merge on Sept 2, 2017 11:29:32 GMT
I was diagnosed with PCOS in my mid-20s. I was told I'd never have kids without medical help, so DH and I didn't worry much about birth control. Had two "surprise" babies, both right after I had lost a bit of weight. Losing even 5% of your body weight can make a huge difference and start ovulation again.
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