Daughter has bizarre seizure-like symptoms UPDATE 10.13, OP

See update below, on page one.

First let me say that dd has an appointment with a neurologist on Tuesday. We have no dr available today (Sunday). Our only option is the ER, which involves an hour and a half journey, which we will do if necessary. Neither DD not I are eager to go to ER and would rather wait for appointment if possible, but that's not looking good right now.

DD has lots of health issues, particularly migraines and fibromyalgia. She recently developed a significant hand tremor which subsides when her hands are resting. 

Starting about a week ago, she has had episodes where her entire body shakes and jerks. It looks a lot like the violent chills you can get if extremely cold or feverish. They lasted a few minutes. She was scheduled to have her tonsils removed Friday, but an episode occurred in pre-op, was witnessed by a doctor, and the surgeon said she couldn't have surgery. DD wasn't sent to the ER, but was encouraged to move up her neurology appointment (originally scheduled for the 15th).

Yesterday these spells were longer and more frequent, but she slept most of the time. She came into our room around 3 a.m. having had these full-body convulsions (not seizures, but I don't know how else to describe them) for an hour already. She took a xanax which gave only minimal relief. Her episode went on for four hours, and then she fell asleep.

During the episodes she is fully conscious, has no pain except for eventual muscle pain from the spasms. She has no other symptoms. 

I have tried to figure out anything at all that might explain these episodes, with no luck whatsoever. Has anyone seen or experienced anything like this? Anyone have any ideas, no matter how unlikely or strange, that might explain what's happening?

DD is asleep right now; I'm going to shower and get ready to head to ER just in case.

Thanks.

UPDATE 10.13.14

I apologize for taking so long to post this; had a hard week last week for various reasons.

Tia saw her neurologist last Tuesday. The neuro strongly feels these episodes are somatic. Lesley, it looks as though we're dealing with the same thing as you and your daughter. She said Tia could have tests if she wanted, but that she was confident everything would come back negative. Tia was very upset at this, she feels as though this is neither a diagnosis or help. But she's only had minor episodes of the full body convulsions since then. She does still have a significant tremor in her hands, which is considered an essential tremor. This may go away eventually; I do hope so. But it's neither serious nor dangerous, just very annoying. 

Tia is seeing her surgeon on the 22nd, and surgery is scheduled shortly after that. Her neuro suggested she have valium prior to the IV insertion (this is what triggered the episode in pre-op), and that this should help a lot. I'll tell the surgeon, too, that an episode won't happen under anesthesia, as they never happen when she's sleeping, nor do they wake her. 

Tia does see a counselor every two weeks, but I think it's time to find someone more used to dealing with chronic pain and anxiety, and to go once a week. This is just one of the plans for the coming weeks.

A huge thank you to everyone who commented, prayed, sent positive thoughts, cared. Although we've mostly come through this latest issue, Tia continues to be a very sad young lady, and her road remains hard. I just wish I could walk it for her.