Chronic illness/Chronic Pain patients, can I vent?

I am so sorry, after completing 5 years worth of PT, I wouldn't want to start again, that is for sure. I am so sorry you have to deal with this.

On my. I'm so sorry. As another chronic pain sufferer, I completely understand your reluctance to "get back on the hamster wheel." Dr visits, get hopes up, then have them plummet to the ground again. It's incredibly difficult and I get it thoroughly. Lots of warm and kind thoughts coming at you.....

The appointments take so much energy away from other more enjoyable things. Yet we have to keep working twd the best quality of life possible, despite our illness or injury. I hate it, too, but hope springs eternal.

OMG yes. They aren't even all for me, but between me and my 2 kids, there is always someone having to go to a doctor, or me having to talk someone out of the freakout zone to go see some specialist, or something. I'm so effing sick of it.

I completely understand. I hate having my life revolve around appointments, medications, and my plans for the day having to change because I’m having a flare up. Right now, I need to see the OBGYN and have another mammogram and I know it is important, but I keep putting it off because I don’t want to spend another minute in a medical facility. I hate that I can’t really make plans too far ahead because I might be in horrible pain when the day arrives. I tend to say that I will do my best to make it and then hope for the best.

I'm sorry you are going through this. Surely there has to be another solution then a lifetime of going to PT 2x a week?

We have a very good friend that has horrible TMJ. He finally resorted to medical marijuana and it has been life changing. Not sure if that is an option where you are. But he was able to severely cut back on the pain medications, to almost zero.

Maybe your doctor's office made a mistake with your prescription. Please call and check about that. At the very least they should give you a reason.

I really am so sorry for this pain you're in.

     I was going to suggest medical marijuana as well. I'm not sure what state you are in (or if you are even in the USA-it's legal in Canada for instance) but medical marijuana has helped me enormously with the pain from my chronic migraines. My neurologist suggested I apply for my MM card last year so I applied for my card here in Maryland last summer and I was approved for it within about a month-I got it last August. By the time this happened my medical insurance company (Cigna) who I pay $1,500 to a month for two people had reduced my coverage of the medication I take when I get a migraine to stop the pain down to two doses for a month for Zomig tablets. 2 doses! And it was a generic. They completely refused to cover the Zomig nasal spray that works much better. Last week I had a migraine that last 6 days. This week it's been 3 days. Those 2 doses would have been gone in 2 days. 

I thank God every day for my wonderful neurologist and that my state has approved medical marijuana. Once approved I was able to go into any medical marijuana dispensary in the state and the people working there will help me find something that works for my particular pain. Actually I've found the best way to find a strain (a strain is a type of MM) that helps with my particular pain is to first pick a dispensary, see what they have in stock by looking up their menu online and then plugging in the strain names that are in stock into a website called leafly.com  where it will show you each strain's characteristics and what it does. Some fight inflammation, some are best for pain, some are best for depression and stress, some are great for hunger (if you don't eat). They are each different. 

There are different methods of delivery into your body too. The most popular form is vaping which is kinda like smoking but you are inhaling a vapor instead of smoke which is better for your lungs. What I like about this method is the pain relief is very quick (usually within 1-2 minutes). Edibles are another form but since you eat it you have to wait for it to hit your digestive system (15-20 minutes before pain relief). Tinctures are another method and with this one you put drops of the THC/CBD mixture under your tongue-again it has to hit your system so it takes a little longer. There are more methods and there are various forms of MM to vape-oil cartridges, flower (the weed itself) and concentrates. 

If your state has legalized medical marijuana you might want to consider this as a way to deal with your chronic pain especially with the current opiod crisis and the way the doctors are now cutting chronic pain patients pain medications. My sister has been a chronic pain patient for over 20 years with absolutely no problems taking her opiod mediation that she desperately needs. Still her doctor cut her medication and she now has to exist on only 1/3 of the amount she was taking for the past 20 years. She is afraid to try MM because they make her take a pee test in order to get the pain meds she needs every month. It's a messed up system for sure because if she was able to use the MM in conjunction with her pain meds she might be able to eventually reduce them and she wouldn't be in excruciating pain every day after 4pm until the next morning when her last pain pill wears off (since they lowered the dose so much). 

I wish you the very best and am sending you big hugs because I know how chronic pain is-it's so difficult to live with. I truly hope you are able to find a way to get some relief soon and feel better. 

shevy
I can understand.  I would want to cry also.   It just gets to be too much.