mvavw
Full Member
Posts: 344
Jun 25, 2014 20:21:43 GMT
|
Post by mvavw on Nov 2, 2019 22:21:14 GMT
Does anyone know anything about Hemoglobin Raleigh? Its a hemoglobin variant. When dd went to the hemotologist for this (referred by her gastroenterologist), he said he was more concerned with addressing her anemia. Then when that was in a normal range just said that "it's just something she has, nothing to be concerned with."
That's fine, except that when I looked it up, one thing I found was that it affects the a1c test results and he never told me about that. I noted it in my planner and didn't think about it bcs it hasn't been an issue.
Yesterday, her pediatrician gave me her blood test results and said that her a1c was low. When I told him about the Hemoglobin Raleigh, he said that I was right and he flagged her chart to do glucose spot checks instead (he had already done that too and hers was fine).
I want to make sure that there isn't anything else I should know about this that the hemotologist didn't tell me. All I was able to find online were a couple articles about the a1c issue and one mention of it as a hemoglobin variant.
My dd has a bunch of medical issues, so I'm just trying to keep on top of everything. I'd like to be able to know it's a note in her chart and not be concerned any further, but haven't been able to find any more information about it.
Are there good places to search for medical information online? Google has limited information.
Thanks!
|
|
AmandaA
Pearl Clutcher
Posts: 3,502 
|
Post by AmandaA on Nov 2, 2019 22:25:24 GMT
Not online, but if your health system is a teaching facility there may be a library you can access. Our hospital had a library in the basement, with a full time librarian, with a pretty comprehensive collection of books and journals. And if it wasn’t there the librarian could help track it down. It might be worth a look for good, reliable information.
|
|
mvavw
Full Member
Posts: 344
Jun 25, 2014 20:21:43 GMT
|
Post by mvavw on Nov 2, 2019 22:37:42 GMT
Not online, but if your health system is a teaching facility there may be a library you can access. Our hospital had a library in the basement, with a full time librarian, with a pretty comprehensive collection of books and journals. And if it wasn’t there the librarian could help track it down. It might be worth a look for good, reliable information. Thank you, how would I find this out- who would I ask, the doctor themself? Some of her doctors are independent, others are through Boston Women and children, and another is through the local hospital, a regional medical center. |
|
AmandaA
Pearl Clutcher
Posts: 3,502
|
Post by AmandaA on Nov 2, 2019 22:49:03 GMT
The easiest thing might be to call the hospital switchboard and ask if there is a library. Ours was within the hospital for any physician and our residents to easily access (but was open to anyone).
|
|
mvavw
Full Member
Posts: 344
Jun 25, 2014 20:21:43 GMT
|
Post by mvavw on Nov 2, 2019 22:53:36 GMT
The easiest thing might be to call the hospital switchboard and ask if there is a library. Ours was within the hospital for any physician and our residents to easily access (but was open to anyone). Thanks! I'll give them a call  |
|
|
|
Post by maryboys on Nov 2, 2019 23:01:06 GMT
Hi, mvavw - I'm not aware of any worrisome implications of the HR. The effect it has on giving false readings on Hgb A1C is just important to be aware of so that medical providers know to do actual blood glucose checks and not rely on the A1C. I hope this helps. (I've never treated a patient with HR, but I have worked in Family Medicine as a Midlevel Provider for 20 years.) |
|
mvavw
Full Member
Posts: 344
Jun 25, 2014 20:21:43 GMT
|
Post by mvavw on Nov 2, 2019 23:10:47 GMT
Hi, mvavw - I'm not aware of any worrisome implications of the HR. The effect it has on giving false readings on Hgb A1C is just important to be aware of so that medical providers know to do actual blood glucose checks and not rely on the A1C. I hope this helps. (I've never treated a patient with HR, but I have worked in Family Medicine as a Midlevel Provider for 20 years.) Thank you, this helps a lot! She has a lot of issues going on and this was one I had put aside because the hemotologist didn't seem concerned, but then it just came up again bcs of her bloodwork. I just wanted to be sure that it doesn't have anything to do with her headaches and other issues. I feel like no one doctor has the big picture (even though I try to keep them all in the loop). Her allergist/immunologist is probably the best at putting it all together. Thanks again |
|
|
|
Post by maryboys on Nov 2, 2019 23:22:12 GMT
Hi, mvavw - I'm not aware of any worrisome implications of the HR. The effect it has on giving false readings on Hgb A1C is just important to be aware of so that medical providers know to do actual blood glucose checks and not rely on the A1C. I hope this helps. (I've never treated a patient with HR, but I have worked in Family Medicine as a Midlevel Provider for 20 years.) Thank you, this helps a lot! She has a lot of issues going on and this was one I had put aside because the hemotologist didn't seem concerned, but then it just came up again bcs of her bloodwork. I just wanted to be sure that it doesn't have anything to do with her headaches and other issues. I feel like no one doctor has the big picture (even though I try to keep them all in the loop). Her allergist/immunologist is probably the best at putting it all together. Thanks again She’s lucky to have you for an advocate. Because it is unfortunately common for healthcare providers to educate people inadequately on the big picture. It would have taken the hematologist approximately 1-2 minutes to explain the answer to your question. And to have asked you if you have other questions related to the HR. After all, hematologists treat blood disorders - he should know the most about this condition of anyone involved. I’m sorry he was evasive/dismissive. |
|
