TankTop
Pearl Clutcher
Refupea #1,871
Posts: 4,876
Location: On the couch...
Jun 28, 2014 1:52:46 GMT
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Post by TankTop on Oct 6, 2019 1:28:43 GMT
How do you know when it is time for a recheck?
For me I can always tell when something is wrong because I have word finding issues. When I speak I know what I want to say, but can’t get the words to come out correctly.
How about you?
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Post by mom on Oct 6, 2019 1:31:29 GMT
I can tell because of a couple of symptoms - I get cold all the time and my hair falls out.
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Post by PolarGreen12 on Oct 6, 2019 2:20:53 GMT
My endocrinologist has me do bloodwork every 6 months. My biggest indicator on my own if it is low is my hair starts falling out and I just want to sleep 24/7. Only once in the last 2 years has it gone randomly low for no apparent reason. Small med adjustment and was back to good 6 weeks later.
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Deleted
Posts: 0
Aug 18, 2025 19:29:38 GMT
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Post by Deleted on Oct 6, 2019 2:39:06 GMT
My thyroid is pretty stable now but i used to get heart flutters.
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Post by revirdsuba99 on Oct 6, 2019 2:41:20 GMT
My next blood work will be closer to 9 months, but I have been stable for years... Last adjustment was with a parathyroid removal surgery in 2013. 35 years and counting.
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Post by freecharlie on Oct 6, 2019 3:10:21 GMT
I am an odd one in that I don't get many symptoms for anything I have. My endo had had me checking my blood every 6 weeks. 6 months ago, she had me wait for 6 months. I'll go in next week. I always feel cold, so that isn't an indicator, but I will watch for the word-finding issues
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Deleted
Posts: 0
Aug 18, 2025 19:29:38 GMT
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Post by Deleted on Oct 6, 2019 3:21:48 GMT
I find m symptoms get worse when I eat a lot of sugar. I've been cutting it down and my symptoms are stabilizing. My hair is no longer falling out and I am having to shave my legs more often.
Sometimes I think the desiccated thyroid meds have some levels of in consistences but that is my suspicion based on my symptoms when my meds are in short supply.
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Post by callmenutz on Oct 6, 2019 4:22:07 GMT
I find m symptoms get worse when I eat a lot of sugar. I've been cutting it down and my symptoms are stabilizing. My hair is no longer falling out and I am having to shave my legs more often. Sometimes I think the desiccated thyroid meds have some levels of in consistences but that is my suspicion based on my symptoms when my meds are in short supply. You would be correct in that suspicion, especially with NP Thyroid. For all things thyroid, this is a great site. stopthethyroidmadness.com
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Post by dewryce on Oct 6, 2019 7:00:08 GMT
The brain fog like you mentioned, but since I have fibromyalgia that isn’t the certain test. The outside 3rd of my eyebrows really thins out when my levels are very off.
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keithurbanlovinpea
Pearl Clutcher
Flowing with the go...
Posts: 4,313
Jun 29, 2014 3:29:30 GMT
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Post by keithurbanlovinpea on Oct 6, 2019 11:09:48 GMT
when I start falling asleep on the couch before 8 PM and have irritable, crabby episodes
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Post by jeremysgirl on Oct 6, 2019 11:35:54 GMT
I have bipolar. And I never know if it's my thyroid that's off or if it's my bipolar acting up. So I have blood work every six months. All the time. It seems like my meds constantly need adjusting. I'm up, I'm down. I'm all over the place. I read a statistic that 75% of women with bipolar also have hypothyroid. It doesn't surprise me in the least.
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TankTop
Pearl Clutcher
Refupea #1,871
Posts: 4,876
Location: On the couch...
Jun 28, 2014 1:52:46 GMT
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Post by TankTop on Oct 6, 2019 12:24:00 GMT
Now I am starting to wonder if my word finding issues are not thyroid related since nobody else has mentioned it.
Probably time to have a more in depth talk with my doctor.
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keithurbanlovinpea
Pearl Clutcher
Flowing with the go...
Posts: 4,313
Jun 29, 2014 3:29:30 GMT
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Post by keithurbanlovinpea on Oct 6, 2019 12:30:15 GMT
Now I am starting to wonder if my word finding issues are not thyroid related since nobody else has mentioned it. Probably time to have a more in depth talk with my doctor. Any kind of forgetfulness can be thyroid related stopthethyroidmadness.com/symptoms/
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Post by mom on Oct 6, 2019 14:58:33 GMT
The brain fog like you mentioned, but since I have fibromyalgia that isn’t the certain test. The outside 3rd of my eyebrows really thins out when my levels are very off. That’s funny you mention your eyebrows. Ive gone through spells where my sections of my eyebrows fall out and hadn’t thought about it being related to my thyroid.
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Post by callmenutz on Oct 6, 2019 15:44:45 GMT
I have bipolar. And I never know if it's my thyroid that's off or if it's my bipolar acting up. So I have blood work every six months. All the time. It seems like my meds constantly need adjusting. I'm up, I'm down. I'm all over the place. I read a statistic that 75% of women with bipolar also have hypothyroid. It doesn't surprise me in the least. Have you ever been tested for the MTHFR gene mutation? In searching for a reason for my daughter’s mysterious illness, I found a functional medicine doctor for her. It turns out that she has this mutation with the two variants. My other daughter has the mutation with one variant. I got tested since you get it from your parents and I have it with both variants. That sure explains a lot of the health issues in my family. In reading about it, it says if you have been diagnosed with bipolar and family members have the mutation then you should get tested. My niece was diagnosed with bipolar but my sister doesn’t see the mania part. My niece just got her results and she has the mutation with one variant. I’m anxious to hear what the doctor has to say. It would also explain why you are all over the place with your meds. It says they work for a short time and then quit working. In the case of my daughter, in five weeks of treatment, she is almost back to normal. Treatment consists of leveling out your vitamins, minerals and hormones. Her nervous system was shutting down and she had a year long migraine with aura. We all also have thyroid issues. stopthethyroidmadness.com/mthfr/
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Post by jeremysgirl on Oct 7, 2019 13:29:33 GMT
I have bipolar. And I never know if it's my thyroid that's off or if it's my bipolar acting up. So I have blood work every six months. All the time. It seems like my meds constantly need adjusting. I'm up, I'm down. I'm all over the place. I read a statistic that 75% of women with bipolar also have hypothyroid. It doesn't surprise me in the least. Have you ever been tested for the MTHFR gene mutation? In searching for a reason for my daughter’s mysterious illness, I found a functional medicine doctor for her. It turns out that she has this mutation with the two variants. My other daughter has the mutation with one variant. I got tested since you get it from your parents and I have it with both variants. That sure explains a lot of the health issues in my family. In reading about it, it says if you have been diagnosed with bipolar and family members have the mutation then you should get tested. My niece was diagnosed with bipolar but my sister doesn’t see the mania part. My niece just got her results and she has the mutation with one variant. I’m anxious to hear what the doctor has to say. It would also explain why you are all over the place with your meds. It says they work for a short time and then quit working. In the case of my daughter, in five weeks of treatment, she is almost back to normal. Treatment consists of leveling out your vitamins, minerals and hormones. Her nervous system was shutting down and she had a year long migraine with aura. We all also have thyroid issues. stopthethyroidmadness.com/mthfr/I am going to ask my doc about this at my next physical. My dad is hypothyroid and is also bipolar. My sister is hypothryroid. 3 out of 4 of my dad's sisters have been/are also hypothyroid. And I would guess that one also had bipolar, as well. I also have a number of cousins with hypothyroid and various mood disorders on that side of the family.
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Post by bianca42 on Oct 7, 2019 15:23:28 GMT
I also have word finding issues. My biggest indicator is hair falling out.
Of course, I have been having all the symptoms, including working out, eating well and gaining weight so I went in for a check two weeks ago and was told everything is fine.
This morning, after struggling for the word, I called a banana a donut. The kids think I'm weird and laugh at me...but I'm a bit worried about myself.
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snappydog
Full Member
 
Posts: 171
Sept 11, 2014 22:53:41 GMT
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Post by snappydog on Oct 7, 2019 22:45:49 GMT
I have a weird symptom and my doctor thinks I do not know what I’m talking about but my hands go numb, particularly at night, if my levels are not right. The problem has been fixed at least 3 times with med changes. The endo didn’t believe me either but I know my body and it’s my symptom.
I also can’t take the generic synthroid. It has to be the brand name or it doesn’t work.
Sandy
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Post by PolarGreen12 on Oct 7, 2019 22:57:53 GMT
I have a weird symptom and my doctor thinks I do not know what I’m talking about but my hands go numb, particularly at night, if my levels are not right. The problem has been fixed at least 3 times with med changes. The endo didn’t believe me either but I know my body and it’s my symptom. I also can’t take the generic synthroid. It has to be the brand name or it doesn’t work. Sandy I had that after my thyroid removal and one para-thyroid removed. It put my para-thyroid in shock and that is what processes your bodies calcium. Low calcium causes tingley fingers and toes, like they are asleep. It still happens every now and then. It can take a long time to recover normal levels. The treatment was Tums. Best way to absorb calcium. Chew a few two times a day and see if that helps.
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hilsmom1
New Member
Posts: 4
Apr 7, 2019 2:38:20 GMT
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Post by hilsmom1 on Oct 7, 2019 23:03:02 GMT
I have a weird symptom and my doctor thinks I do not know what I’m talking about but my hands go numb, particularly at night, if my levels are not right. The problem has been fixed at least 3 times with med changes. The endo didn’t believe me either but I know my body and it’s my symptom. I also can’t take the generic synthroid. It has to be the brand name or it doesn’t work. Sandy Have your vitamin B6 and B12 checked also. My thyroid affects my digestive system and keeps me from absorbing vitamins. I take daily probiotics and prebiotics to assist with this. When my B vitamin levels dip too low, I experience tremors in my legs as well as numbness and tingling in my arms and hands.
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Post by lily on Oct 8, 2019 15:20:51 GMT
This thread has been very enlightening! I had half my thyroid removed due to a baseball sized growth on it in 2008. Since then I have been on Synthroid and am up to 175 mcg. Lately I have had tingly arms and hands and could not figure out why.
Sandy and hilsmom1 - what type of doctor do you go to for thyroid issues? Right now my regular internal medicine doctor has been handling my prescription.
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Post by PolarGreen12 on Oct 8, 2019 15:44:30 GMT
Endocrinologist's are who you see for thyroid issues.
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Post by shessoaverage on Oct 8, 2019 18:01:27 GMT
Depression. Properly medicated, I can take on most anything. If my levels are too low, I stop wanting to be alive. I’m glad I figured it out and know when to get to my doctor.
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Post by revirdsuba99 on Oct 8, 2019 18:09:19 GMT
Lately I have had tingly arms and hands and could not figure out why. Can also be low calcium. Just do NOT take too much.
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Deleted
Posts: 0
Aug 18, 2025 19:29:38 GMT
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Post by Deleted on Oct 8, 2019 18:13:18 GMT
I have never had ANY symptoms. I get my blood done every 6 months.
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Post by lily on Oct 9, 2019 12:15:59 GMT
Endocrinologist's are who you see for thyroid issues. Yeah, that's what I thought. I saw an endo one time after my thyroid surgery and they refused to give me copies of my TSH test result, and said I was fine on a 50 mcg dose, even though I could barely get off the couch. My primary Internal Med doctor ran the test and my TSH was almost 9! Crazy! So I don't have a lot of faith in Endo's.
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Post by bianca42 on Oct 9, 2019 12:48:23 GMT
Endocrinologist's are who you see for thyroid issues. There is a serious lack of endocrinologists in my area. I haven't been to an actual endocrinologist in probably 10 years...and that was when I lived somewhere else. I see my GP every 6-12 months.
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Post by tracyarts on Oct 9, 2019 14:02:24 GMT
Normally I feel it's time to check my thyroid when I'm having a lot of fatigue, feel cold all the time, and my skin is overly dry.
But this time when I had it checked, the lab values were fine.
The thyroid symptoms overlap with other medical issues I have, so it's hard to tell now.
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Post by dewryce on Oct 9, 2019 15:01:43 GMT
Normally I feel it's time to check my thyroid when I'm having a lot of fatigue, feel cold all the time, and my skin is overly dry. But this time when I had it checked, the lab values were fine. The thyroid symptoms overlap with other medical issues I have, so it's hard to tell now. I’m going to be a broken record here, but you might consider getting a copy of your lab results and make sure they check all of your thyroid levels, not just total/T4. Also, i have found that lab values are more a guideline with thyroid issues. One person may be fine with close to borderline (but still WNL) results while another can be very symptomatic.
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Post by krcrafts on Oct 9, 2019 19:49:39 GMT
Endocrinologist's are who you see for thyroid issues. Yeah, that's what I thought. I saw an endo one time after my thyroid surgery and they refused to give me copies of my TSH test result, and said I was fine on a 50 mcg dose, even though I could barely get off the couch. My primary Internal Med doctor ran the test and my TSH was almost 9! Crazy! So I don't have a lot of faith in Endo's. My dd was seeing an endo for a couple of years and her TSH got up to 34. Thankfully, there is another endo dr in town because she’s been seeing that dr’s PA for about 6 months or so and it’s come way down and she’s feeling more normal now. I don’t know how she was able to function.
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