Deleted
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Jun 2, 2024 2:07:37 GMT
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Post by Deleted on Sept 18, 2021 3:45:51 GMT
DH is on day 39 of Covid recovery. The virus is long since gone and his lungs are finally free of pneumonia as of this week.
However he still has horrible headache. We sort of thought it was related to low oxygen but now that his O2 is pretty stable (95-96) and his lungs are clear, that doesn’t seem to be it. Advil and Tylenol aren’t cutting it. He can’t take Exedrin because he has to be on Aspirin for clotting.
Has anything else brought you relief? We’ll try just about anything-supplements, vitamins, stretches, oils...I don’t think I can talk him into acupuncture but I think he’ll try anything else. If something worked for you, can you share?
Thanks!
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used2scrap
Drama Llama
Posts: 6,036
Jan 29, 2016 3:02:55 GMT
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Post by used2scrap on Sept 18, 2021 4:02:16 GMT
I’m Sorry to say nothing so far with long Covid. As much hydration and rest as possible but still relentless headaches. I’m all for vitamin D,C snd zinc.
I hope he finds something.
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Post by dewryce on Sept 18, 2021 4:05:19 GMT
Not for COVID headache, but headaches in general the reason Exedrin is so affective is the caffeine. I hope he feels better soon!
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Post by Eddie-n-Harley on Sept 18, 2021 4:12:19 GMT
At the risk of asking the obvious-- have you chatted with the doctor about it at all? One of the reasons I ask is because I usually take my migraine meds for pretty much all headaches these days, whether they seem like typical migraines or not. (50mg of sumatriptan plus 600 mg of ibuprofen chaser.) It nearly always works for me within an hour. So since covid is new territory for everything, I wonder if your doctor would consider trying some migraine meds for it.
The only other thing that ever remotely worked for me was a lavender bubble bath from Bath and Body Works that has long since been discontinued, so... maybe lavender aromatherapy?
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Deleted
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Jun 2, 2024 2:07:37 GMT
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Post by Deleted on Sept 18, 2021 4:14:35 GMT
At the risk of asking the obvious-- have you chatted with the doctor about it at all? One of the reasons I ask is because I usually take my migraine meds for pretty much all headaches these days, whether they seem like typical migraines or not. (50mg of sumatriptan plus 600 mg of ibuprofen chaser.) It nearly always works for me within an hour. So since covid is new territory for everything, I wonder if your doctor would consider trying some migraine meds for it. The only other thing that ever remotely worked for me was a lavender bubble bath from Bath and Body Works that has long since been discontinued, so... maybe lavender aromatherapy? Thanks. She just gave him a few samples of Ubrelvy yesterday that I’m hoping he will try tomorrow. I’ll read him your post. I think he’s hesitant to accept the “migraine” label.
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Deleted
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Jun 2, 2024 2:07:37 GMT
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Post by Deleted on Sept 18, 2021 4:15:29 GMT
I’m Sorry to say nothing so far with long Covid. As much hydration and rest as possible but still relentless headaches. I’m all for vitamin D,C snd zinc. I hope he finds something. Gosh it sounds like you’re in there too. I’m sorry. I do appreciate you sharing though because I think he’s a little freaked out-I think it will help him to know others are having the same effects.
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Post by silverlining on Sept 18, 2021 4:29:21 GMT
Our relative who is having various symptoms months after COVID went to some type of "boot camp" for long COVID patients offered at a hospital. It included visits with a couple different specialists, one of whom was a neurologist. They're really the experts on diagnosing and treating many different types of headaches and would probably know if there's a particular headache type linked to COVID.
I'm sorry. 39 days is a long time to be sick and I know that it's not easy for him or for you and your sons.
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Post by revirdsuba99 on Sept 18, 2021 4:42:51 GMT
@missjen They are not necessarily migraines. They are Covid headaches, but he needs relief in some form. Call the doctor... Push for more and better treatment, now, whether he needs to see a specialist or not!!
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Post by Eddie-n-Harley on Sept 18, 2021 4:46:54 GMT
At the risk of asking the obvious-- have you chatted with the doctor about it at all? One of the reasons I ask is because I usually take my migraine meds for pretty much all headaches these days, whether they seem like typical migraines or not. (50mg of sumatriptan plus 600 mg of ibuprofen chaser.) It nearly always works for me within an hour. So since covid is new territory for everything, I wonder if your doctor would consider trying some migraine meds for it. The only other thing that ever remotely worked for me was a lavender bubble bath from Bath and Body Works that has long since been discontinued, so... maybe lavender aromatherapy? Thanks. She just gave him a few samples of Ubrelvy yesterday that I’m hoping he will try tomorrow. I’ll read him your post. I think he’s hesitant to accept the “migraine” label. If it helps convince him any, one of the meds I take as a preventative is "labeled" as an antidepressant. (And Viagra started off as a blood pressure medication.) Doesn't really matter what the label is if the med helps the symptom you're taking it for. Also, if the Ubrelvy doesn't help, don't be afraid to ask the doctor to try something else. Ubrelvy is a new class of medication (I had to google it), but there are a lot of other migraine medications out there. Many migraine patients have to try more than one med to find what works for them. Some of my headaches make it hurt to sleep, so I really feel for him, and I hope he can find relief.
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Deleted
Posts: 0
Jun 2, 2024 2:07:37 GMT
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Post by Deleted on Sept 18, 2021 5:03:03 GMT
Our relative who is having various symptoms months after COVID went to some type of "boot camp" for long COVID patients offered at a hospital. It included visits with a couple different specialists, one of whom was a neurologist. They're really the experts on diagnosing and treating many different types of headaches and would probably know if there's a particular headache type linked to COVID. I'm sorry. 39 days is a long time to be sick and I know that it's not easy for him or for you and your sons. Thanks. The hardest part at this point aside from him not feeling good is his short temper with the kids. They’re not quiet and he wants silence. The three of them have a lot of conflict over the noise, which is hard.
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used2scrap
Drama Llama
Posts: 6,036
Jan 29, 2016 3:02:55 GMT
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Post by used2scrap on Sept 18, 2021 5:09:08 GMT
Our relative who is having various symptoms months after COVID went to some type of "boot camp" for long COVID patients offered at a hospital. It included visits with a couple different specialists, one of whom was a neurologist. They're really the experts on diagnosing and treating many different types of headaches and would probably know if there's a particular headache type linked to COVID. I'm sorry. 39 days is a long time to be sick and I know that it's not easy for him or for you and your sons. Thanks. The hardest part at this point aside from him not feeling good is his short temper with the kids. They’re not quiet and he wants silence. The three of them have a lot of conflict over the noise, which is hard. Ugh I’m sorry. Not the same as Covid but I’m a caregiver to one with a TBI and noise is a problem. It’s a long road but we’ve worked out a best case scenario with blinds down, lights off and minimal noise during daytime hours. It’s not ideal but it keeps the peace. Sadly the kids have adjusted to the reality. It’s a real struggle. I truly hope there are Covid long answers soon because it’s a shit way to live before it just becomes the new normal.
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Post by revirdsuba99 on Sept 18, 2021 5:09:14 GMT
More then a few days of a headache I'd be short tempered with noise. I cannot imagine 39 days. I'd be a raging lunitic.
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Deleted
Posts: 0
Jun 2, 2024 2:07:37 GMT
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Post by Deleted on Sept 18, 2021 5:16:33 GMT
More then a few days of a headache I'd be short tempered with noise. I cannot imagine 39 days. I'd be a raging lunitic. This is a good reminder to me when I get frustrated with his short temper. Thanks.
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Deleted
Posts: 0
Jun 2, 2024 2:07:37 GMT
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Post by Deleted on Sept 18, 2021 5:17:31 GMT
Thanks. The hardest part at this point aside from him not feeling good is his short temper with the kids. They’re not quiet and he wants silence. The three of them have a lot of conflict over the noise, which is hard. Ugh I’m sorry. Not the same as Covid but I’m a caregiver to one with a TBI and noise is a problem. It’s a long road but we’ve worked out a best case scenario with blinds down, lights off and minimal noise during daytime hours. It’s not ideal but it keeps the peace. Sadly the kids have adjusted to the reality. It’s a real struggle. I truly hope there are Covid long answers soon because it’s a shit way to live before it just becomes the new normal. I’m sorry this is your reality too (hug)
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smcast
Drama Llama
Posts: 5,333
Location: MN
Mar 18, 2016 14:06:38 GMT
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Post by smcast on Sept 18, 2021 5:27:00 GMT
The only thing that helped mine last year was afrin nasal spray. I do get headaches so had tried es tylenol, ibuprofen, excedrin migraine and pseudoephedrine. None of those touched the burning, inflammatory pain I had. It's awful. I hope he feels some relief soon. Ice packs helped a tad.
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Post by Basket1lady on Sept 18, 2021 8:18:28 GMT
I don’t have experience with Covid, but I do with headaches and pseudo brain injuries. I had a sphenoid sinus infection that caused a lot of headaches and vertigo. It went undiagnosed for months before they found the source of the infection. Head injuries are notorious for short tempers. It’s actually what made me seek help to begin with. I was just so unreasonably angry at everyone. They are also incredibly fatiguing because you are mentally trying to compensate for the deficit.
It may not help the headaches, but for the crabbiness, sleep may be of some help. Maybe sleeping with an ear bud or a noise machine will block out some of the noise. I was the worst when I was woken up abruptly. It’s been almost 10 years and DH still wakes me very gently from a nap or in the mornings. I can’t say that I mind that though.
Reassure the boys that it isn’t them or their fault. That it’s the illness. Dad doesn’t hate them and they aren’t bad kids because they play. My kids were 12 & 14 when I was sick and it wasn’t until years later that I learned how rough I was on them. DH was deployed and I was just so angry all of the time. I was so busy trying to hold it all together that I wasn’t thinking about the impact it was all having on them.
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Post by Patter on Sept 18, 2021 10:28:45 GMT
Migraine household here for 40+ years (kiddos too). One of my daughter's has been on Botox and now Aimovig (which is working for her now) but our immediate go to is simple--a migraine wearable ice pack. LOVE our ice packs. When hubby sees me with it on, he knows what is going on. I may look funny but man is it wonderful, wonderful relief. Amazon sells many different kinds. Hugs to him! I have been having daily headaches for several weeks now. Hate them!
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keithurbanlovinpea
Pearl Clutcher
Flowing with the go...
Posts: 4,277
Jun 29, 2014 3:29:30 GMT
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Post by keithurbanlovinpea on Sept 18, 2021 10:56:53 GMT
There are some very helpful long Covid groups on Facebook where folks share their experiences and treatments. You might find some good info in those groups. Good luck and fingers crossed that this symptom resolves itself soon.
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peaname
Pearl Clutcher
Posts: 3,389
Aug 16, 2014 23:15:53 GMT
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Post by peaname on Sept 18, 2021 11:50:32 GMT
I’ve heard from several people that getting the vaccine relieved long covid symptoms. If he’s already vaccinated maybe his doctor would approve the booster?
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Post by mrsshampoo on Sept 18, 2021 12:17:41 GMT
Headache was my main Covid symptom. I took Sumatriptan daily for a while (after talking to my doctor). I do think in my case it was a secondary sinus infection causing the headache (which is common for me after any virus), because once I started antibiotics for something else, my headache vanished. 2 ibuprofen and 2 Benedryl also work as a migraine/headache cocktail, as well - they sometimes add a 3rd medication (anti-nausea prescription) to this cocktail.
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Post by ameslou on Sept 18, 2021 12:24:39 GMT
How is his hydration? A coworker had breakthrough COVID - her sister is a nurse who did a stint on a covid ward and said that the virus causes dehydration like nothing she’s seen before. She felt that An electrolyte drink really helped her - eithe Gatorade or Nuun tablets dissolved in water. Dehydration really can cause headaches,
Hope he gets some relief soon - that’s a painful way to live.
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Post by supersoda on Sept 18, 2021 13:01:39 GMT
My neurologist put me on Nurtec, although my symptoms aren't really headaches and it hasn't done much for me. (I get pressure behind my eye, and I can feel tingling and pain on eye movement and when rubbing my face and scalp.)
Dehydration, stress, and fatigue all trigger my symptoms. I'll drink a Gatorade when they're bad and it seems to help a little. Mostly I just need calm and quiet and use my meditation app a lot.
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katybee
Drama Llama
Posts: 5,378
Jun 25, 2014 23:25:39 GMT
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Post by katybee on Sept 18, 2021 13:03:53 GMT
I am vaccinated and had a breakthrough case of Covid. It was mild, relatively speaking. Headache, though, was one of my main symptoms. And it lasted for weeks after I had recovered. It was just always there… No matter what I tried to take for it. I was going to see the doctor about it, but then one day, it went away. I wish I could tell you what worked, but honestly, I think it was just time. Who really knows, though. 🤷🏼♀️
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Post by natscraps on Sept 19, 2021 2:23:52 GMT
My covid headaches lasted 6 months. I also suffer from migraines and cluster headaches and take medication for those but nothing seemed to touch the covid headache. It dulled some over time and I found extra hydration took the edge off.
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Post by jenjie on Sept 19, 2021 3:01:51 GMT
Post Covid headache was horrible. Is it constant pressure or does it fluctuate? I had a variety of head symptoms but MRI showed nothing. It later developed into chronic fatigue.
I’m mostly back to normal now. I did change my diet to anti inflammatory - I started seeing a homeopath put me on paleo with the addition of no red meat. She also has me drinking water with electrolytes, she had me drink 80 oz per day and I weighed 175 when we started. She also has me doing a half hour (in a row) daily of foot pounding exercise for lymphatic drainage. If that’s too much he could rock in a rocking chair for a half hour and let the soles of his feet hit the floor.
I hope he sees the light at the end of the tunnel soon!
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luckyjune
Pearl Clutcher
Posts: 2,685
Location: In the rainy, rainy WA
Jul 22, 2017 4:59:41 GMT
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Post by luckyjune on Sept 19, 2021 3:19:24 GMT
No advice, just super sorry you and your family are dealing with this. 39 days is a long time! (((hugs)))
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rayshow
Shy Member
Posts: 30
Sept 11, 2019 11:31:56 GMT
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Post by rayshow on Nov 30, 2021 8:28:07 GMT
Yes! I took benedryl and extra strength Tylenol from online pharmacy at the same time and it was the only thing that helped at all
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Post by Bridget in MD on Nov 30, 2021 12:42:56 GMT
Yes! I took benedryl and extra strength Tylenol at the same time and it was the only thing that helped at all my friend gets terrible headaches and I used to when I went into the office. Her aunt told her to take a dose of dramamine and a dose of advil together, and that has really helped me when advil just doesn't touch it. Sometimes I just take half a dose of dramamine bc if I am working I don't want to be drowsy, but if I am going to bed I take the whole dose. HTH. Headaches are just the worst.
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Deleted
Posts: 0
Jun 2, 2024 2:07:37 GMT
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Post by Deleted on Nov 30, 2021 13:28:02 GMT
@missjen if the headaches don't improve, ask about getting in with Cardiology.
There is bow what they call Post Covid Dysautonomia.
Dd and I both have Dysautonomia and headaches are part of it.
I have 2 friends dealing with Post Covid Dysautonomia and they are getting all kinds of work up.
Look up Dysautonomia and see if he has any other symptoms.
When our headaches are bad, we do Tylenol (500mg), Benadryl 25mg, and drink a coke from Mexico (no corn). Similar effects as Excedrin.
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peppermintpatty
Pearl Clutcher
Refupea #1345
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Jun 26, 2014 17:47:08 GMT
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Post by peppermintpatty on Nov 30, 2021 15:30:00 GMT
Have you tried Sudafed? The red pills. The other ones are crap. When I am out of migraine meds, I take Sudafed with Tylenol and keep on it (every 4 hours) and it always knocks it down when nothing else will. You also need caffeine. It makes the Tylenol work better (if you can't take Excedrin).
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