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Post by houston249 on Apr 1, 2015 1:56:16 GMT
Even though I have not posted, i have been following your thread since the beginning. You have been and still are in my prayers.
I am very glad you made it home safely. Keep your chin up, we are here for you.
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Post by pepper59 on Apr 1, 2015 2:36:11 GMT
Thank you all so much. It has truly been a blessing to vent and have such support. I am very grateful for all of you!!!
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mochi
Full Member
Posts: 449
Jun 26, 2014 1:45:16 GMT
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Post by mochi on Apr 1, 2015 2:40:18 GMT
Thinking of you! Hope you get some sleep tonight and answers tomorrow!
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Post by newfcathy on Apr 1, 2015 3:06:48 GMT
I am also glad to hear that you made it home okay. I am a type 2 diabetic and once had a massive cramping episode after a low blood sugar reaction. It was the most intense pain ever, and have had a child & had my gall bladder out, so I know pain. I can't imagine having it last as long as you have. I hope you get some answers and some relief soon.
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Nanner
Drama Llama
Posts: 5,975
Jun 25, 2014 23:13:23 GMT
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Post by Nanner on Apr 1, 2015 11:59:51 GMT
Good luck. I hope you get some answers and some relief.
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Post by lily on Apr 1, 2015 12:44:46 GMT
This will sound like a REALLY stupid question but since the cramps seem to be in your feet, are you wearing good supportive shoes? Things like flip flops or ballet slipper type flats will make it worse. Also have you tried some support type hosiery?
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Post by pepper59 on Apr 1, 2015 15:09:27 GMT
Lily, I was wearing flip flops over there at first but switched to my walking shoes. The cramps started in my shin and eventually involved the whole leg so not sure what that might mean.
Last night though, I stumbled across some really interesting info. I had not considered the cortisone shot I had a week before the trip as a possible cause since it was a week before this started. But I came across a ton of websites and forums where people were saying they had a cortisone injection- then a week or two LATER started having severe muscle cramps in feet, ankles, shins and calves! I found so many I was stunned. Many said their docs poo-pooed the connection but others said their doc admitted it caused cramps!!! Most said it lasted a few weeks or even months before stopping! Anyway, I'm seeing the specialist who gave me the cortisone this morning and plan to ask him about it. It definitely makes sense because of the intensity and abrupt way they started.
I'll be back to update after seeing both docs today.
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Post by mymindseyedpea on Apr 1, 2015 15:36:06 GMT
I think lower back pain is caused by financial stress. Emotionally speaking that is ... Could be the middle back ... Where is your bursitis at?
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craftykitten
Pearl Clutcher
Posts: 4,304
Jun 26, 2014 7:39:32 GMT
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Post by craftykitten on Apr 1, 2015 17:46:46 GMT
I think lower back pain is caused by financial stress. Emotionally speaking that is ... Could be the middle back ... Where is your bursitis at? Are you medically qualified? That is the strangest theory I've ever heard. OP, I'm glad you got home safely and might be finding some answers. I'll keep my fingers crossed for you.
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Post by christine58 on Apr 1, 2015 17:47:45 GMT
I think lower back pain is caused by financial stress. Emotionally speaking that is ... Could be the middle back ... Where is your bursitis at? OH.DEAR.GOD
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flute4peace
Drama Llama
Posts: 6,757
Jul 3, 2014 14:38:35 GMT
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Post by flute4peace on Apr 1, 2015 19:22:07 GMT
Lily, I was wearing flip flops over there at first but switched to my walking shoes. The cramps started in my shin and eventually involved the whole leg so not sure what that might mean. Last night though, I stumbled across some really interesting info. I had not considered the cortisone shot I had a week before the trip as a possible cause since it was a week before this started. But I came across a ton of websites and forums where people were saying they had a cortisone injection- then a week or two LATER started having severe muscle cramps in feet, ankles, shins and calves! I found so many I was stunned. Many said their docs poo-pooed the connection but others said their doc admitted it caused cramps!!! Most said it lasted a few weeks or even months before stopping! Anyway, I'm seeing the specialist who gave me the cortisone this morning and plan to ask him about it. It definitely makes sense because of the intensity and abrupt way they started. I'll be back to update after seeing both docs today. YES! I'm so sorry that I didn't make the connection before for you, but my DH gets terrible leg cramps after receiving allergy shots, which contain cortisone. I'm really hoping that is the cause for you, as well!
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Post by pepper59 on Apr 1, 2015 22:00:53 GMT
I think lower back pain is caused by financial stress. Emotionally speaking that is ... Could be the middle back ... Where is your bursitis at? Ummm, I'm not sure what you mean by financial stress?? We are actually doing quite well in that regard, Praise The Lord! Okay, so the specialist who gave me the cortisone shot said he had never heard of them causing muscle spasms so I'm told him he really ought to google it. There are so many accounts of it I'm thinking there must be a connection. He said I do NOT have ALS or MS, my strength and reflexes are good and that would not spike my CPK. He said he wouldn't think a cramp could cause the CPK to spike like that but when I told him it was so severe I couldn't walk on it for 4 days after he said maybe it was. But he definitely was concerned about the numbers and wanted to recheck the blood. He has me scheduled for an MRI on my lumbar spine to try and figure out the ongoing sciatica which brought on the bursitis! Second visit was with my primary. She said the cramp must have injured the leg, either a slight tear or pull that caused the spike but of course wants to recheck the blood work. She said she doesn't know about cramps being caused by the cortisone but whatever it was it seems to be slowly resolving so she said continue with the flexeril and we'll see what the blood work shows. So I feel a bit more calm with their reassurances about the big concerns and am now hoping and praying the CPK is back to normal or headed down. Last night was better and actually slept fairly well. Just a few spasms here and there. Thanks again SO MUCH for the support and I will hopefully have some good news on the blood work in a few days.
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Post by katiekaty on Apr 2, 2015 2:32:33 GMT
The steroid injections that cause these injuries are not from cortisone injections but from methylprednisolone/prednisone or dexamethasone and most times taken orally usually with a antibiotic the quinolone family or with some statins. I suffered an Achilles tendon rupture after taking Levaquin and prednisone for an extremely nasty strain of strep A and reinfection 3 weeks later. Ankles and wrist joints are where these occur. I am did not know about happened to me. This is why your doctors probably do not believe the cortisone shot idea. It doesn't fit.
Sounds more like "claudication" in your legs which is more heart/circulation related. Ask for a cardiology consult. Spend a bit of time looking that up to see how it fits. Not every symptom that appears to muscular or drug related/treatment related is. An be sure to go to a reputable site! Just googling crap and reading what people say happened to them is crap. Read intelligently-American Heart Association, etc.
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Post by pepper59 on Apr 2, 2015 2:51:12 GMT
I'm not saying the cortisone injection caused a muscle injury but there are too many reports of muscle cramps after the injections to ignore. I found case after case exactly like mine: onset of severe, intense cramps in shins and feet 10-14 days AFTER the injection. Relentless cramps that did not respond well to the usual treatments. Coincidence? Possibly, but I find it very interesting and not crap. . They did run some tests at the ER related to my heart and I had an episode 3 years ago with severe GERD that mimicked a heart attack. I had a stress test and complete workup and was given a clean cardiac bill of health. I did not go looking to blame the cortisone for the cramps, nor am I certain it's the problem. It had never occurred to me it was related until stumbled across case after case of the same scenario. I appreciate your input and will do some reading on claudification.
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lovelabs
Junior Member
Posts: 55
Jul 2, 2014 0:38:54 GMT
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Post by lovelabs on Apr 2, 2015 3:29:24 GMT
Where did you have the shot? I had a horrible reaction to a cortisone shot in my foot--not cramps, but by the time I left the dr's office, I could barely walk; my husband actually had to drive the car up on the sidewalk outside the dr's office to get me in the car. Over the next two weeks, it got worse and every time I tried to step on it, my foot felt like it was going to rip open. I ended up on crutches. The doctor thought I was nuts. I don't know if it was the location of the injection or what; I've since had multiple cortisone shots (in both shoulders) with no problems--in fact, those helped immensely.
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Post by lindywholoveskids on Apr 2, 2015 3:40:38 GMT
I'm sorry- what is CPK?
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Post by pepper59 on Apr 2, 2015 5:01:02 GMT
According to the web.: The CPK isoenzymes test measures the different forms of creatine phosphokinase (CPK) in the blood. CPK is an enzyme found mainly in the heart, brain, and skeletal muscle.
So normal is 1-250 and mine was 3400. A certain type signals heart attack and damage, another type stroke and the type I had shows muscle injury or disease. My docs think it is because of the severe cramp that possibly tore or pulled the muscle. It can show up if you have MS, Lupus and other auto immune diseases but I don't apparently have symptoms of those. Hopefully the test they did today will show normal or at least a decreasing rate. Lovelabs, I had the cortisone in my hip for trochanteric bursitis. It does seem to have helped with the bursitis pain and I guess there's no real way to know it is the cause of the cramping. But it is suspicious due to so many similar reactions.
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Post by bluepoprocks on Apr 2, 2015 12:05:52 GMT
I'm glad to hear that the doctors ruled out some of the more severe possibilities of what could be wrong. I hope things keep improving for you.
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Post by christine58 on Apr 2, 2015 22:48:40 GMT
Anything new???
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Post by pepper59 on Apr 2, 2015 23:22:57 GMT
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Deleted
Posts: 0
Jun 2, 2024 0:41:00 GMT
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Post by Deleted on Apr 2, 2015 23:36:13 GMT
Alhamadulillah. That is great news that you are on the mend! Yeah! Now to get your strength *slowly* back up and start feeling good about things again. I can't wait to hear about your recovery! Squishy hugs from afar!
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Deleted
Posts: 0
Jun 2, 2024 0:41:00 GMT
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Post by Deleted on Apr 2, 2015 23:38:17 GMT
So happy to see you are feeling better finally. I have been following this thread. Just dont over do it right now.
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Post by lily on Apr 13, 2015 15:37:12 GMT
So glad to see you feeling better and that your CPK is at a good level! Best wishes for continued recovery!!
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Post by pepper59 on Apr 14, 2015 15:33:08 GMT
Me again. After a week of the cramps almost completely disappearing, I was woken out of a sound sleep this morning by a severe cramp in my calf which proceeded to involve my shins in both legs and both hamstrings, arches of both feet. What in the world?!?! My sciatica pain has also returned. I had not been able to have my MRI because of the cramps and had rescheduled for today. Now here I sit in the recliner with heating pads, rice packs and muscle relaxers. What is going on with me?
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Post by christine58 on Apr 14, 2015 16:59:05 GMT
You really need to find a way to get that MRI done. I feel so bad for you. Did you call the dr. ? You deserve some relief.
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Post by pepper59 on Apr 14, 2015 17:08:55 GMT
These cramps are so severe I broke out in sweat all over and you know that light headed feeling? Probably anxiety related because when every muscle starts getting involved I panic. DH says he is going to my next appt and will pound on the doc until he does something. They just keep saying I've got to the MRI done but what am I supposed to do if I cannot lie still for 45 minutes?? The muscle relaxers are just not working!
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Post by hennybutton on Apr 14, 2015 17:22:38 GMT
I'm wondering why the cramps would make it impossible to get the MRI. Wouldn't it be best to do the test while you're having symptoms? Also, getting blood tests to check your CPK levels and to check for inflammatory factors are best done while you're symptomatic. I hope your docs get to the bottom of this soon.
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craftykitten
Pearl Clutcher
Posts: 4,304
Jun 26, 2014 7:39:32 GMT
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Post by craftykitten on Apr 14, 2015 17:39:21 GMT
When I was ill a little while ago, I was in hospital and had similar sounding pains in both arms and hands - completely stiff and spasming. I couldn't bend my fingers. It took this happening two or three times for someone to point out that it was a panic attack and the muscle spasms were caused by a build up of carbon dioxide in the blood, even though I was not experiencing problems with my breathing and wasn't having a 'typical' panic attack. I've been following this thread but hadn't thought of it until you mentioned the same pains in BOTH legs. I wonder if it could be worth investigating? Once I realised this, when the same thing started happening, I was given an oxygen mask and the symptoms were relieved
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Post by bearmom on Apr 14, 2015 18:18:11 GMT
These cramps are so severe I broke out in sweat all over and you know that light headed feeling? Probably anxiety related because when every muscle starts getting involved I panic. DH says he is going to my next appt and will pound on the doc until he does something. They just keep saying I've got to the MRI done but what am I supposed to do if I cannot lie still for 45 minutes?? The muscle relaxers are just not working! I think you are in a catch 22, the doctor needs the MRI to diagnose and you can't lay still for the MRI. can you get something stronger to get you through the MRI?
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Deleted
Posts: 0
Jun 2, 2024 0:41:00 GMT
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Post by Deleted on Apr 14, 2015 18:20:41 GMT
Is there any possibility all of the muscle relaxers you have been taking are causing the cramps to continue? I know the muscle relaxers aren't the cause, but can prolonged/heavy use cause cramps to continue? Just thinking about how I have to be careful with how much medication I take for migraines because if I take too much, too frequently I get rebound headaches -- caused by taking lots of medication frequently, and then not taking it.
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