Muscle Cramps in leg.Still here New Update in OP

New Update 10/15 

I am still experiencing the cramping though not constant.. Sometimes severe.  The cold laser treatments have really seemed to be helping the sciatica pain and I am still much better than over the summer.  Able to grocery shop, do my housework, cook dinner, etc  but the last week or 2 my pain has been worse again.  It really concerns me because I don't want to go backwards.  I am still having several days in a row with no cramps then they'll start up and I'll have 4-5 days of cramps waking me up every morning then they'll just stop.  So bizarre and leaves me in a constant state of worry of when they'll strike again!  I had my Vitamin D rechecked and it had come up from 4.5 to 30.  Bottom end of normal so I'll continue to take it.  I've been taking magnesium for months but started a new type GUARANTEED to stop muscle cramps.  Umm, no.  Still here.  Also added Vitamin B complex this week, so we'll see.  Docs have no clue why they continue.  I am now having pain behind one knee and having an ultrasound tomorrow to see if it is Baker's cyst which would need to be drained with a needle.   

We're headed to Mexico for a cruise in 2 weeks then in a month DH is taking me to NYC and Washington DC for my birthday.  I was doing so well I thought we could do it with lots of rest stops and mostly bus tours but now I seem to be going backwards so I'm scared.  We were supposed to be going to Europe for my birthday but decided to wait for spring and hopes I'm much better by then.

Anyway, thanks again for praying and your support.  I keep reminding myself of all the horrible things it could be and know many are suffering so much worse.  But sometimes I just feel really depressed because I am still so far from the girl doing Zumba a year ago. 

New Update 9/16

I have continued the cold laser treatments and Praise the Lord I am getting better!  The last few weeks I have had mostly good days, some cramps at times but the sciatica pain has greatly diminished.  I am able to grocery shop without using a motorized cart and do most of my normal housework.  If I'm up all day with a lot of activity I will usually pay for it that night and the next day but I have only taken 3 Percocet in the last 3 weeks!  I take the occasional valium when I get real crampy but all in all I'm so much better!  The PT has me doing the recumbent stair master, leg presses, balancing on a gel pad and bouncing on the big ball and I have tolerated it well.  He believes the stronger my core gets the more it will pull my pelvis into alignment. 

I am almost finished with my 3 month course of Vitamin D and will be checked to see if that has improved.  The cramps are still the most discouraging part.  I will go 5-6 days with none then be hit with a storm again.  It has me pretty unnerved and I am still afraid of getting in the water again.  We're going on a cruise to the Mexican Riviera in 6 weeks and I'm terrified of getting in the ocean and having a cramp episode like the last one.  Snorkeling and water sports are my most fave thing in the world and I am so sad to think I might never again get to enjoy it.  Cold seems to make them worse and cool water scares me!  But I keep reminding myself of how far I've come and I am very grateful.  Working hard to lose weight as well because I know that can only help. 

Thank you all once again for being there when I was so desperate and discouraged.  It meant the world!

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New Update 8/16

I had a few people ask on another thread how I was doing so thought I'd update here as well:

It has been 5 months since the onset of the extreme muscle cramping.  When I lasted posted in June I had finally seen a neurologist and found my vitamin D was severely low.  She said it was a possible cause of the cramping and started me on mega dose therapy which she said could take 6 months to see results.  I'm just finishing month 2.  She also sent me back to PT for the 3rd time.  The neurologist believes my pain stems from my pelvis being out of alignment, due to a dislocation of my hip at age 11. Over the years my body has tried to compensate and I am now very crooked. It isn't something a chiro can put back in place but I am doing specific exercises for my core muscles to bring it back into place and create muscle memory of where it should stay.. I have tried a TENS unit with no relief. I am having Strain/Counter Strain massage therapy, myofacial release massage which seem to help some and most recently laser treatments.

I have to say that in all the time I have been treated, the Laser is the ONLY thing that has brought any relief. I am now having an occasional good day, where as for the last 2 months good days were almost non existent. I originally though my piriformis was the problem but those stretches bring no relief. My PT also suspects an annular tear in my L4-L5 disc. Hard to see on an MRI but can leak caustic fluid that irritates the nerve and causes a lot of pain. My MRI was closed with contrast and showed mild bulging and fluid and inflammation but apparently not enough for surgery.  The sciatic pain begins low in my back and shoots down my left buttock all the way to my toes.  My calves and shins ache and 3 of my toes feel hot and/or numb.

The cramps have continued, mostly in a mild form but are still horrible at times and I have taken every muscle relaxer in the book. Then they just go away completely for a few days then BAM this morning at 4:40 I was woken with severe cramps in both feet, left calf, toes curling. Tried to walk off, no luck. Used heat and a Valium and finally after an hour drifted off to be woken again at 8:00 with more cramps which have continued to threaten now at 10:45 am. Despite taking a zanaflex muscle relaxer and being wrapped in heating pads.

Overall I am able to walk a bit more, maybe like 15 minutes.  Stairs and ramps or inclines are extremely difficult.  My sciatica pain has me wanting to gnaw off my leg more days than not.  I use percocet as carefully as possible and zanaflex.  I can do light housework and cooking but have to use a motorized cart for any shopping other than a 10 minute milk run.  Thank God, DH retired in December or I don't know how I would survive.  I've had to give up so many things I love: working in the hospitality center at church, regular babysitting of the grands unless DH is also here to help, a lot of my crafting,  retail therapy at my fave stores since they don't have a scooter.  It has taken over our life. We went on a cruise to Alaska 2 weeks ago and we took a wheelchair. I felt so miserable in it but had to do it. We cancelled our trip to Europe in November, my life long dream, because I probably will still be too debilitated to enjoy it. It's so hard to believe in this day and age they can't just fix it or even diagnose it with any certainty.  I am clinging to hope in The Great Physician and pray for healing and/or the grace to accept and have peace.

Thanks for reading this long update.  I so appreciate your continued prayer.  
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I've been suffering with sciatica /bursitis for a while now and got a cortisone 2 weeks ago.  It did help some.  We arrived in Hawaii on vacation Thursday. While snorkeling yesterday I got a bad cramp in my ankle/shin area on the bad leg.  While trying to stretch it put my other leg went- WHOLE leg!  Started in shin then went to groin, hamstring, the worst pain I've ever had.  My DH was trying to get me on the beach because I was panicing and hyperventilating.  It took 30 minutes of trying to get it to let go enough that I could walk out.  I was sore all over all night and I am terrified because it feels like it's threatening to return.  I am hydrating like crazy, eating bananas, powerade, pickle juice.  Trying to walk and stretch and even took some of DH's flexeril muscle relaxant.  It helps some but I can still barely walk.  And I am 1 cramp away from hysteria if comes back.  And I have a 6 hour plane ride home.     I left a message for my doc.  PLEASE does anyone have some advice or help?   Thank you so much in advance!!!