My brain tumor 2.0 Out of surgery!
Oct 31, 2015 16:36:52 GMT
**GypsyGirl**, scraphappy0501, and 68 more like this
Post by jumperhop on Oct 31, 2015 16:36:52 GMT
12/3
I'm out of surgery, and everything's going great, night and day difference from last time.They got the entire tumor out and I'm feeling good, thankful for amazing doctors, prayers, and the Lords tender mercies.i am going to take a nap!!!
I love my pea family!
12/2
At hospital, had embilization (spelling) done today that went well. Surgery tomorrow. Feeling fabulous, not nervous at all. Not much to say, very blessed to be going into surgery tomorrow with the best case scenario.
Please keep me in your prayers! I remember last time feeling them.
Thank you,
Jen
Update:
I went over to Seattle for a second opinion. I honestly thought the Dr in Seattle was going to reintegrate what my Dr here said. But it was a completely different opinion. Long story short Dr in Seattle does 70 of these tumors a year vs the 2 my Dr does. Dr in Seattle plans to kill the veins around my tumor so I won't start bleeding during surgery. He says that he can get the entire tumor out!!!!! The Dr here just wanted to get enough out so that I can have radiation to get the rest out. Dr in Seattle says he won't pump me up with drugs that will make me hulicinate after surgery like the Dr here did. Dr in Seattle only shaves a bandaid size of hair off vs 1/4 my head that they saved off last time.
Surgery is set for the first week of Dec! I am very hopefully, and excited to be in the hands of such talented and trained Drs & staff.
Thank you all for the kind words, thoughts and prayers.
OP
I need more pea prayers!
I had an MRI last week and found out I have to have surgery again. Dr says I have a rapid growing brain tumor as it grew 1 cm in three months. At this point we are just waiting for insurance approval which won't take long. The goal is to get the tumor small enough so that we can kill the rest with radiation. I have learned that tumors are measured in foods that are similar sizes. According to my Dr this tumor is the size of chorizo. My last tumor was the size of an apple.
I had surgery back in April. The Dr was able to get 80% of the tumor out then. He wasn't able to get out the part of the tumor that is growing down the middle of my head because it's to close to a vein. He tried but I started bleeding so they just sewed me up. I really don't know why he thinks he can get it now but we don't have any other options.
This is a completely different experience than last time I had surgery. Last time I went from not knowing I had a tumor to having emergency surgery in a few days. There wasn't any time to process what was going on or prepare. And I was given drugs that made me sleep.
This time around I am coping by being in Mom mode. You know the my family couldn't possibly function without me, I need to have every perfect for them mode. I am getting the house ready, prepping freezer meals, getting school lunches ready (Uncrustables.) Organizing everything, responsibilities set, thinking ahead to Thanksgiving and Christmas. Anything to make life easier when I am not functional.
I feel really good. I have numbness on the left side of my body that is annoying but doesn't slow me down. But I am starting to feel symptoms of dizziness, my blood pressure is creeping up and I can feel my tumor in my head reminding me it's there. Nothing like back in April when I had migraines daily and was in bed half the day.
Needless to say in the back of my mind I know what I have to go through soon. I know the risks involved. I know the pain, worry, stress and fear this will cause my family. I know what to expect from surgery. I will be delusional and hulicinate for three days after surgery again. I will have my head shaved again. The dizziness! Every inch of my body will feel like it just got hit by a freight train. I will walk like a drunk elderly man with a broken leg for months! Etc.........
I feel like such an ungreatful brat for saying those things. I have so much to be greatfull for. I am incredibly blessed. Thankful for an amazing family and fabulous friends. And that I don't have to do this alone.
Jen
I'm out of surgery, and everything's going great, night and day difference from last time.They got the entire tumor out and I'm feeling good, thankful for amazing doctors, prayers, and the Lords tender mercies.i am going to take a nap!!!
I love my pea family!
12/2
At hospital, had embilization (spelling) done today that went well. Surgery tomorrow. Feeling fabulous, not nervous at all. Not much to say, very blessed to be going into surgery tomorrow with the best case scenario.
Please keep me in your prayers! I remember last time feeling them.
Thank you,
Jen
Update:
I went over to Seattle for a second opinion. I honestly thought the Dr in Seattle was going to reintegrate what my Dr here said. But it was a completely different opinion. Long story short Dr in Seattle does 70 of these tumors a year vs the 2 my Dr does. Dr in Seattle plans to kill the veins around my tumor so I won't start bleeding during surgery. He says that he can get the entire tumor out!!!!! The Dr here just wanted to get enough out so that I can have radiation to get the rest out. Dr in Seattle says he won't pump me up with drugs that will make me hulicinate after surgery like the Dr here did. Dr in Seattle only shaves a bandaid size of hair off vs 1/4 my head that they saved off last time.
Surgery is set for the first week of Dec! I am very hopefully, and excited to be in the hands of such talented and trained Drs & staff.
Thank you all for the kind words, thoughts and prayers.
OP
I need more pea prayers!
I had an MRI last week and found out I have to have surgery again. Dr says I have a rapid growing brain tumor as it grew 1 cm in three months. At this point we are just waiting for insurance approval which won't take long. The goal is to get the tumor small enough so that we can kill the rest with radiation. I have learned that tumors are measured in foods that are similar sizes. According to my Dr this tumor is the size of chorizo. My last tumor was the size of an apple.
I had surgery back in April. The Dr was able to get 80% of the tumor out then. He wasn't able to get out the part of the tumor that is growing down the middle of my head because it's to close to a vein. He tried but I started bleeding so they just sewed me up. I really don't know why he thinks he can get it now but we don't have any other options.
This is a completely different experience than last time I had surgery. Last time I went from not knowing I had a tumor to having emergency surgery in a few days. There wasn't any time to process what was going on or prepare. And I was given drugs that made me sleep.
This time around I am coping by being in Mom mode. You know the my family couldn't possibly function without me, I need to have every perfect for them mode. I am getting the house ready, prepping freezer meals, getting school lunches ready (Uncrustables.) Organizing everything, responsibilities set, thinking ahead to Thanksgiving and Christmas. Anything to make life easier when I am not functional.
I feel really good. I have numbness on the left side of my body that is annoying but doesn't slow me down. But I am starting to feel symptoms of dizziness, my blood pressure is creeping up and I can feel my tumor in my head reminding me it's there. Nothing like back in April when I had migraines daily and was in bed half the day.
Needless to say in the back of my mind I know what I have to go through soon. I know the risks involved. I know the pain, worry, stress and fear this will cause my family. I know what to expect from surgery. I will be delusional and hulicinate for three days after surgery again. I will have my head shaved again. The dizziness! Every inch of my body will feel like it just got hit by a freight train. I will walk like a drunk elderly man with a broken leg for months! Etc.........
I feel like such an ungreatful brat for saying those things. I have so much to be greatfull for. I am incredibly blessed. Thankful for an amazing family and fabulous friends. And that I don't have to do this alone.
Jen