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Post by teacherlisa on Oct 4, 2016 20:20:55 GMT
we had quite an ongoing thread on two peas supporting eachother...are any of us refugees? Also, any interest in starting a thread with people who are here?
Lisa
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Post by vspindler on Oct 4, 2016 21:59:21 GMT
There have been a few posts I recall about it here, or maybe it was only chronic pain. I blame fibro fog for my inability to recall for sure  |
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Post by Delta Dawn on Oct 4, 2016 22:28:25 GMT
Does chronic crazy count? I have treatment resistant depression that can make me normal to nuts in a matter of days. It sucks. I don't have chronic pain, unless you consider pain in your head that makes you behave in crazy ways. I am not trying to diminish what other people suffer when they have depression. I just know my kind of depression can leave me functional to dysfunctional in short periods of time.
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Post by baslp on Oct 4, 2016 23:05:08 GMT
I will chime in.. I have chronic lower back pain. My DH says surgery will not help my problem.
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Post by Lexica on Oct 4, 2016 23:48:21 GMT
I am a chronic pain pea. I also have fibromyalgia. I know I will be dealing with this for the rest of my life, but right now, my assorted medications are really kicking butt. My spinal pain is under control except for about an hour around dosing time. Even then, it is nowhere near as horrid as it used to be, and if I can remember about an hour ahead of time to get a Vicodin in, it really mitigates the pain that comes from one dose wearing off to the other kicking in. The fibromyalgia pain comes and goes wherever and whenever it wants to, but it is a hell of a lot more tolerable on my new medication. The fibro fatigue is still difficult to deal with, but all told, I feel really fortunate to have the majority of my symptoms managed. If I pay attention to my sleep schedule, eat decently, get a little bit of walking in, and keep on my medication schedule, I feel like I am no longer a chronic pain patient at all!! I am still adjusting to the menopause messing with my sleep, taking me from exhaustion to insomnia that keeps me up an entire night. I assume that will go away once my system regulates itself to this new old lady normal. I can't complain! Not that it ever did me any good to do so anyway.  |
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Post by zztop11 on Oct 5, 2016 0:06:41 GMT
I will chime in.. I have chronic lower back pain. My DH says surgery will not help my problem. I'm assuming he is a neurosurgeon. Is that correct? Otherwise how would he know. I had a spinal fusion for lower back pain (other procedures before the fusion) and it's the best thing that I ever did for myself. |
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Post by mom2rjcr on Oct 5, 2016 0:19:03 GMT
Me...I was diagnosed with Lupus 4 years ago, but have dealt with it for many years.
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Post by terri on Oct 5, 2016 1:03:05 GMT
I have Median Arcuate Ligament Syndrome which is compression around my celiac artery which causes a lot of pain and extreme exhaustion. I also have syncope (passing out) and terrible vertigo. Some other things but those are the things I really struggle with.
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Post by scrapsuzy on Oct 5, 2016 1:31:41 GMT
I have fibromyalgia, type 2 diabetes, and non-alcoholic steato hepatitis (NASH) which is a type of liver disease that is only cured with transplant, plus I have portal hypertension as a result of the bad liver, and hepatic encephalopathy from the treatment of that (and may have the effects even after the liver transplant.)
I have been on the liver transplant list since May 1. I have had to stop working and driving due to the symptoms from the HE. I have applied for SS disability.
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Post by beachbum on Oct 5, 2016 1:51:52 GMT
I have RA and Hashimoto's - oh boy, two auto immune diseases with joint pain and fatigue. I can't take NSAIDs anymore, my liver decided to go crazy a few years ago so no more for me. Lately my Hashi's has been out of control, one blood test my T3 is off, two months later my T4 is down... GRRRRR. Adjust meds, Adjust meds, Adjust meds... I wish it would get back under control.
The RA is another story - life is a roller coaster with that. It's so hard to make plans, I never know what I'll be able to do. I pretty much roll on the "mind over matter" train of thought and that gets me through most days. That a a good dose of Tramadol!
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MsKnit
Pearl Clutcher
RefuPea #1406
Posts: 2,648
Jun 26, 2014 19:06:42 GMT
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Post by MsKnit on Oct 5, 2016 2:47:02 GMT
Hello.
I have Endometriosis, Fibromyalgia, Chronic Fatigue Syndrome, recently diagnosed Type 2 diabetic. My doctor thinks I also have IBS.
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lilbit1va
Junior Member
Posts: 55 
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Post by lilbit1va on Oct 5, 2016 2:58:35 GMT
I have type 2 diabetes with neuropathy in my arms and legs, migraine associated vertigo, gout, oseoarthritis and carpal tunnel syndrome in both arms. My balance is severely off and I fall often and I can't even blame it on being drunk. Plus my doctor is working me up for fibromyalgia. Luckily my daughter lives with me and helps out quite a bit, definitely makes me feel safer. I'm grateful for the good days.
Betty
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Post by gorgeouskid on Oct 5, 2016 3:07:51 GMT
I'm another pea with Hashimoto's and rheumatoid arthritis.
The first is a no-brainer and the second I'm still learning to deal with.
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Post by georgiee on Oct 5, 2016 3:11:08 GMT
I have fibromyalgia. My pain changes from day to day. The fog is always there. I fell in the tub three weeks ago. Still in lots of pain. The doctor said recovery could be eight weeks. At least I didn't break anything. Thankfully I have a great husband.
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Post by coffeetalk on Oct 5, 2016 3:20:33 GMT
I have primary progressive MS and am a quadriplegic requiring 24/7 care. I have vision and some cognitive issues also. I am thankful to have a supportive and caring family.
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Post by MsChiff on Oct 5, 2016 3:26:42 GMT
I have Crohn's and RA. The Crohn's doesn't hinder me as long as I closely monitor my diet and don't get any bowel obstructions. The RA changes from day to day as to whether there is any pain and, if so, the amount of pain.
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Post by baslp on Oct 5, 2016 11:13:41 GMT
Hi zztop11-- my DH is a neurosurgeon and has looked at my MRI. At this point I would def. sign up surgery if it could help! Glad to hear that surgery helped you!
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Post by teacherlisa on Oct 5, 2016 13:53:21 GMT
glad to see the response! I am a single empty nester working FT w/ RA. I have had it for 20 years now. I also have good days and bad days of course. I also have supportive family but a girl can not have too many friends, especially people who understand the "never getting better" part. Today my fatigue is strong and I have a lot to do! So glad to "meet" each of you!
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Post by vspindler on Oct 5, 2016 19:37:23 GMT
Hello. I have Endometriosis, Fibromyalgia, Chronic Fatigue Syndrome, recently diagnosed Type 2 diabetic. My doctor thinks I also have IBS. IBS can be part of fibro. Some days I wonder just how badly off I would be if I wasn't consistently taking a med that can supposedly cause constipation. |
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Post by vspindler on Oct 5, 2016 19:37:34 GMT
Hello. I have Endometriosis, Fibromyalgia, Chronic Fatigue Syndrome, recently diagnosed Type 2 diabetic. My doctor thinks I also have IBS. IBS can be part of fibro. Some days I wonder just how badly off I would be if I wasn't consistently taking a med that can supposedly cause constipation. |
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pridemom
Pearl Clutcher
Posts: 2,843
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Post by pridemom on Oct 5, 2016 21:01:07 GMT
I have Juvenile RA, diagnosed at 16, but had since I was small. I am 45, and still work full time. Two of my girls have Hashimoto's (one just diagnosed this week), and my other girl has JIA.
I've been on my current Biologic since April and it has worked miracles for my fatigue.
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Post by Lexica on Oct 5, 2016 21:38:12 GMT
Does anyone else find it interesting that there are many people dealing with two or more independent and unrelated issues? I wonder if just the fact that our bodies have to deal with one issue, especially if it is an autoimmune issue, that we are more vulnerable or susceptible to other health issues?
In addition to my chronic pain from the failed spinal surgery and Fibromyalgia, I have had asthma since childhood and was just told at my last doctor's appointment that I am entering pre-diabetic zone here pretty soon unless I make changes. I have already started and hope to get that back well into the normal range here soon.
The doctor also told me I had moderate kidney damage. I have to say, that shocked me. I have never had any issue with my organs. My lifestyle does not put me at risk for kidney damage, so I am baffled and more than a little concerned. I have never smoked, I don't drink at all now due to possible interactions with pain medications, but even when I did, it was only a couple of glasses of wine when out with friends.
With a father and ex husband that were both alcoholics, I was very cautious just in case I had the tendencies too. I don't drink sodas and limit my coffee and tea intake. I drink a lot of water. Oh, and none of the pain medication that I take lists organ damage as an issue. I don't know what caused it, but I guess that doesn't matter anymore. I just want to know how to reverse it if at all possible and am beginning research on diets and other possible changes that I can make.
Back to my original thought here, does anyone else find it strange that so many of us have two or more unrelated health issues? Any insight as to why? Or is this a pretty common thing and I just wasn't aware of it?SaveSave
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Post by MsChiff on Oct 14, 2016 3:24:59 GMT
Back to my original thought here, does anyone else find it strange that so many of us have two or more unrelated health issues? Any insight as to why? Or is this a pretty common thing and I just wasn't aware of it? SaveSaveOnce you get an autoimmune disease, you are more likely to get another. SaveSave |
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Post by wallyagain on Oct 14, 2016 3:38:02 GMT
I have limb-girdle muscular dystrophy and relapsing-remitting multiple sclerosis. I have done injections for the MS since 2000, and it has kept pretty stable.
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Post by scrappintoee on Oct 14, 2016 11:25:45 GMT
((( Hugs )))) to all of you! It's always nice to be able to share with other peAps who understand. teacherlisa ---sorry you're struggling with RA. I have a few friends that have it, and I wonder if I might, also. I DEFINITELY have good ole osteoarthritis, but I'm wondering if I have RA or Fibromyalgia also. I've been to several doctors, and have a WONDERFUL physical therapist! But I'm going to see a rheumatologist soon. Since doing A LOT of reading about fibromyalgia and finding out about all the BOWEL issues that can go along with it; I'm pretty sure that's what I have. But no matter what the "rheumy" or other docs tell me, all I know is my pain is SO bad sometimes, it's almost unbelievable. Then today, I was fine! OMG, I haven't felt this great in WEEKS! The thing that's making me weepy and sad lately is when my hands (especially my THUMBS!!) hurt SO badly; I can't even open a package of cheese. I can handle a LOT of my pain, but not being able to simply open things has realllllly gotten me down!  ------------------------------------------------------------------------------------ here is a recent thread about those of us with chronic PAIN.... 2peasrefugees.boards.net/thread/47551/where-pain-peas----------------------------------------------------------------------------------- by the way----Hellllllo, @bergdorfblonde .....how are you doing? Lexica ---Thank you for posting that ADORABLE giraffe !!! terri --I've done a LOT of reading about all kinds of diseases that cause pain and extreme fatigue; but never heard of what you have....(( hugs )) Lexica --interesting question; I've noticed that, too. I'll give more of my thoughts later when I'm not so tired. pridemom---can you tell me the name of the biologic you're taking? |
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Post by Tammiem2pnc1 on Oct 14, 2016 11:40:18 GMT
I have RA, been dealing with it for years, though it seemed to spike in intensity the past year or so. The doctor seems to think I have other things going on, but hasn't been quite able to form a diagnosis on exactly what. I have good days and bad days, but even the good days are painful. I babysit 2 little ones 5 days a week and homeschool our 2 boys. Some days, I just wish for some down time. I don't sleep well at night so am constantly tired during the day and would love nothing more than a nice long nap!
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Post by scrappintoee on Oct 14, 2016 11:49:40 GMT
tammiem2cn1 .....WOW! Taking care of those young kiddos AND home schooling !?!?
I feel like I shouldn't complain at ALL now.....hee hee....I cannot IMAGINE doing all of that with RA and
horrible fatigue ((( hugs )))
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Post by scrappintoee on Oct 14, 2016 11:52:07 GMT
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smartypants71
Drama Llama
Posts: 5,701
Location: Houston, TX
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Post by smartypants71 on Oct 14, 2016 13:09:38 GMT
I have Type 1 diabetes. I wear an insulin pump and a CGM so things are all good in the 'hood even though it can be physically and mentally exhausting at times. Today is a good day |
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Post by disneypal on Oct 14, 2016 13:34:22 GMT
As a result of an injury, I have lymphedema in my legs. My lymph nodes don't drain properly which causes extreme swelling. It is particularly bad in my left leg. There isn't a cure but there is treatment, although you have to repeat the treatment over and over and over and wear very tight compression garments that are very uncomfortable and make me feel like Frankenstein. As a result, my feet (especially the left one) are so swollen that regular shoes and socks to do fit me. I have to buy special sock and shoes, which are extremely hard to fine and the shoes actually look like Frankenstein's shoes, making me feel more and more like the fabled beast.
I can't (or rather don't) ever wear shorts and I have to find wide legged pants (which isn't easy either) because regular pant legs will not fit around my swollen legs. It is frustrating for me when a friend or co-worker will say "whew, look how swollen my right foot is" and you can barely tell a difference between the two. I know it is miserable for them but I would give anything to have my foot as swollen as theirs because their foot still looks normal. My left leg is about 4 times the size of a normal leg - I'm so jealous of people that get to wear cute shoes and show of their pedicures and I'm stuck with these mutant legs that I try my best to hide. They throb constantly and ache at night.
When someone sees them, they will say, just elevate your legs but they don't understand that elevating your legs won't drain your lymph nodes and won't take away swelling like that.
I'm grateful I have legs, and grateful I can walk, I just wish my legs were normal.
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