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Post by alexa11 on Oct 28, 2019 20:24:09 GMT
Some of you may remember that I had a crazy breakout on my scalp that my dermatologist thought at first might be shingles. He quickly dismissed that and decided that it was bacterial, so I took massive amounts of antibiotics. I ended up at an infectious disease dr because my culture came back as mrsa. He said that any infection that I had was killed long ago and he thought it might be fungal. So 2 weeks ago I started a daily dose of Diflucan-still have a place in my scalp and redness. So back to derm today who could easily tell it was plaque psoriasis since infection is cleared up. Now I have an oil to put on at night to soften the plaque, but a million questions because that's all he said to do. And keep using the steroid liquid after 3 days of the oil.
If you have this how do you keep it at bay? Dr said it was hereditary, but I don't know of anyone who has had it in my family. He said that a medicated shampoo doesn't help. Of course, I've read all kinds of things on the internet. If stress is a factor, then mine will never get better... I can't believe that this can cause so much pain, but it has really messed me up.
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brandy327
Drama Llama
Posts: 6,353 
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Post by brandy327 on Oct 28, 2019 20:34:55 GMT
I'm sorry to hear you have this. I've had it for practically 30 years, being diagnosed in middle school. My dad had it so there definitely is a genetic factor.
People with psoriasis can have patches anywhere, many have it on the elbows and knees. I have it mostly just on my scalp... and I use the steroid solution. I try to use it sparingly because your body can become resistant to it after years of use.
Unfortunately, I haven't found a whole lot that helps. Being out in the sun can help, if the sun can actually get through your hair(mine is extremely thin so the sun helps). But nothing I've ever used has helped much. Stress definitely can make it worse.
I will say to watch carefully for other autoimmune diseases because it's often found that if you have 1, you develop more. Personally, I have 3.
I hope you can find some relief. Thinking of you.
Oh and I do take an immunosuppressant for these autoimmune diseases. Without that med, everything is much worse. But they typically won't put you on those types of meds until you've tried everything else.
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Deleted
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Jun 2, 2024 5:20:35 GMT
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Post by Deleted on Oct 28, 2019 20:42:18 GMT
I would suggest seeing an RA dr and immunologist as well. Both can help with psoriasis.
There is only 1 family member that has it in my family and that person is on the steroid cream. Some diet changes also helped a bit.
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brandy327
Drama Llama
Posts: 6,353
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Post by brandy327 on Oct 28, 2019 20:53:06 GMT
I would suggest seeing an RA dr and immunologist as well. Both can help with psoriasis. There is only 1 family member that has it in my family and that person is on the steroid cream. Some diet changes also helped a bit. Oh! This reminded me!! I see a rheumatologist for my psoriasis arthritis, a dermatologist for my psoriasis, and a gastroenterologist for my liver. And sunnycalimom is right about diet. I find that the more whole foods, less processed foods, helps significantly. |
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Post by dewryce on Oct 28, 2019 21:02:07 GMT
I second the RA advice. Also, people who have psoriasis often also have psoriatic arthritis, read up on those symptoms before you go.
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Post by honeyb on Oct 28, 2019 22:36:23 GMT
My symptoms are minor, but I have had some success with medicated shampoo. The brand I use is called Pentrax.
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peabay
Prolific Pea
Posts: 9,630
Jun 25, 2014 19:50:41 GMT
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Post by peabay on Oct 28, 2019 22:37:52 GMT
I have psoriasis only on my scalp. Have had it for ages. Two things help: 1. prescription shampoo. Wish I could think of the name of it - Keto-something. It's Ketoconazole. (looked it up.)
And 2. not standing in the stream of my shower and having hot water on my scalp for a long time. We have hard water and that really seemed to irritate it. Once the girl who cuts my hair told me to try not to do that, it helped tremendously.
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Post by teacherlisa on Oct 28, 2019 22:48:21 GMT
I have RA, with psoriasis as a secondary symptom. I agree w/ seeing the Rhuemy and also considering psoriatic arthritis. Aside from the medication, the #1 that helped me was to eliminate sugar from my diet. i have had zero patches since quitting sugar.
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brandy327
Drama Llama
Posts: 6,353
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Post by brandy327 on Oct 28, 2019 23:10:01 GMT
I have psoriasis only on my scalp. Have had it for ages. Two things help: 1. prescription shampoo. Wish I could think of the name of it - Keto-something. It's Ketoconazole. (looked it up.) And 2. not standing in the stream of my shower and having hot water on my scalp for a long time. We have hard water and that really seemed to irritate it. Once the girl who cuts my hair told me to try not to do that, it helped tremendously. Interesting on hard water aspect. The derm has told me to not take hot showers but just lukewarm... but I've never heard anything about the hard water aspect. I don't usually linger with my head under the water anyway but I'll definitely have to try keeping it even shorter. |
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Post by elaine on Oct 28, 2019 23:23:49 GMT
I have psoriasis only on my scalp. Have had it for ages. Two things help: 1. prescription shampoo. Wish I could think of the name of it - Keto-something. It's Ketoconazole. (looked it up.) And 2. not standing in the stream of my shower and having hot water on my scalp for a long time. We have hard water and that really seemed to irritate it. Once the girl who cuts my hair told me to try not to do that, it helped tremendously. OTC Ketoconazole shampoo is Nizoral. I have seborrhea on my scalp, and around my nose and behind my ears when it is really bad. My dermatologist used to prescribe Nizoral before it became OTC. I’m sure prescription ketoconazole shampoo is a stronger concentration, but it couldn’t hurt to see if the OTC Nizoral helps. |
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Post by alexa11 on Oct 28, 2019 23:29:34 GMT
Thanks for the info. As far as my diet goes, I cut out all "whites" almost 4 years ago. I don't eat any white flour, potatoes, rice, pasta, or bread of any kind. I try to avoid sugar, but of course I get it in salad dressings, etc. I rarely eat anything processed. I do each a ton of eggs and cheese because I try to do dirty keto.
This is all so new to me and it's very upsetting to know that I can never get rid of it permanently.
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Deleted
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Jun 2, 2024 5:20:35 GMT
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Post by Deleted on Oct 28, 2019 23:36:23 GMT
Some of you may remember that I had a crazy breakout on my scalp that my dermatologist thought at first might be shingles. He quickly dismissed that and decided that it was bacterial, so I took massive amounts of antibiotics. I ended up at an infectious disease dr because my culture came back as mrsa. He said that any infection that I had was killed long ago and he thought it might be fungal. So 2 weeks ago I started a daily dose of Diflucan-still have a place in my scalp and redness. So back to derm today who could easily tell it was plaque psoriasis since infection is cleared up. Now I have an oil to put on at night to soften the plaque, but a million questions because that's all he said to do. And keep using the steroid liquid after 3 days of the oil. If you have this how do you keep it at bay? Dr said it was hereditary, but I don't know of anyone who has had it in my family. He said that a medicated shampoo doesn't help. Of course, I've read all kinds of things on the internet. If stress is a factor, then mine will never get better... I can't believe that this can cause so much pain, but it has really messed me up. I've had psoarisis since I was in my late teens.. going on 40 years now. It is an autoimmune issue. Stress will make it worse so I attempt to stay as chillax as possible. Talk to your derm about treating the skin but also, if you get swelling or pain in your joints see a rhuematologist. Psoarisis has a co-disease of psoariatic arthritis. As my rheumy has gotten my arthris under semi control my skin has cleared up too. |
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Post by bc2ca on Oct 29, 2019 1:33:21 GMT
Salt water and sun clear up flares for me. DH didn't believe me until after a Maui vacation.  I initially just had it on my scalp and could control it with topical steriods and medicated shampoo between sun destination vacations. Ten years later it flared on my knees and in the last couple years I've had a couple spots on my back, but the scalp has been clear. For me, there is no question stress triggers an outbreak and I started meditating to help control that. Eliminating dairy and trying to stay away from simple carbs and processed foods have also made a difference for me in controlling and clearing up flares. |
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Post by Delta Dawn on Oct 29, 2019 2:03:09 GMT
My niece has it and she is convinced that by no eating night shade vegetables her psoriasis is much better. I don’t know if this is universally true but it works for her.
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Post by Eddie-n-Harley on Oct 29, 2019 2:37:34 GMT
I have psoriasis only on my scalp. Have had it for ages. Two things help: 1. prescription shampoo. Wish I could think of the name of it - Keto-something. It's Ketoconazole. (looked it up.) And 2. not standing in the stream of my shower and having hot water on my scalp for a long time. We have hard water and that really seemed to irritate it. Once the girl who cuts my hair told me to try not to do that, it helped tremendously. OTC Ketoconazole shampoo is Nizoral. I have seborrhea on my scalp, and around my nose and behind my ears when it is really bad. My dermatologist used to prescribe Nizoral before it became OTC. I’m sure prescription ketoconazole shampoo is a stronger concentration, but it couldn’t hurt to see if the OTC Nizoral helps. On a semi-related note: I think that OTC Nizoral smells terrible, but the prescription ketoconazole shampoo I have (which is a higher %, elaine's right) smells like almost nothing, which is a big plus for me. Also, it does work much better if you follow the directions and plan for a minimum five minutes to let it sit on your scalp. |
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