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Post by iamkristinl16 on Aug 10, 2020 23:53:00 GMT
I'm sending love and virtual hugs as well.
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Post by Skellinton on Aug 10, 2020 23:54:43 GMT
Sending so much love to Ava, you and the rest of her family,
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Post by gillyp on Aug 11, 2020 0:22:48 GMT
I’m sorry; I’d not heard of the syndrome before. Sending much strength and I hope the meeting gives lot more hope than you might be currently feeling.
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Post by Really Red on Aug 11, 2020 0:25:38 GMT
Oh my goodness! Not the update I was hoping for. Many many hugs.
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Post by quinmm14 on Aug 11, 2020 0:31:22 GMT
Saying prayers for baby Ava, her family and for you.
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RosieKat
Drama Llama
PeaJect #12
Posts: 5,377
Jun 25, 2014 19:28:04 GMT
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Post by RosieKat on Aug 11, 2020 0:31:28 GMT
I am sure that's beyond scary and overwhelming. Knowing what's wrong can be so helpful, though, in getting her early help and interventions as she gets older. And I know you and her parents will love her beyond measure! I also know that it just hurts to be unable to actively help. Love and prayers for you all.
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Post by Delta Dawn on Aug 11, 2020 0:39:20 GMT
I think I have a cousin with that. Well my cousin’s daughter has it.
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Post by lucyg on Aug 11, 2020 0:41:15 GMT
My gosh, I am so sorry to hear about the diagnosis. Wishing that sweet little thing very well and same to all of you.
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peasquared
Drama Llama
Posts: 5,438
Jul 6, 2014 23:59:59 GMT
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Post by peasquared on Aug 11, 2020 0:44:42 GMT
My heart is hurting for all of you! I'm sending up lots of prayers for your sweet DGD and all of you. And lots of love! We are here for you! HUGE (((HUGS)))
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Post by bc2ca on Aug 11, 2020 0:45:10 GMT
This is so heartbreaking to read. Sending you and your whole family hugs as you absorb all the medical information and make decisions going forward.
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Post by sunnyd on Aug 11, 2020 0:52:05 GMT
I'm so sorry for the diagnosis!! If I remember correctly, there is a pea who's son has CHARGE syndrome. Sending lots of love to your family and your dear granddaughter!
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Post by Eddie-n-Harley on Aug 11, 2020 1:09:16 GMT
When I googled to learn more about Ava's diagnosis, I came across the website for the Charge Syndrome Foundation. They have a page for people encountering a new diagnosis. I hope it's not overstepping for me to link that up for you-- I thought it might be helpful to have some place (any place) to start... I am sure you and your family are feeling overwhelmed and I although I don't know anything about the Foundation, it looked like it may have some good resources, like an outreach coordinator who can help link your DS and DIL to professionals in their area, and other ways to get support. Lots of hugs to you and your family; you are all in my thoughts.
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Jili
Pearl Clutcher
SLPea
Posts: 4,363
Jun 26, 2014 1:26:48 GMT
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Post by Jili on Aug 11, 2020 1:11:04 GMT
I’m sorry. CHARGE is a challenging diagnosis. We do have a Pea who has a (now) adult son with this. I don’t think she’s here anymore, though some of us may follow her on IG.
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Post by epeanymous on Aug 11, 2020 1:16:12 GMT
Continuing to think of you and Ava and her parents.
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purplebee
Drama Llama
Posts: 6,726
Jun 27, 2014 20:37:34 GMT
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Post by purplebee on Aug 11, 2020 1:28:53 GMT
Keeping baby Ava and family in my prayers. Hugs...
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Post by mikklynn on Aug 11, 2020 1:36:33 GMT
I could not be more sorry. GIANT hugs, dear Pea.
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Post by dizzycheermom on Aug 11, 2020 2:03:45 GMT
Lots of love and prayers for Baby Ava and all those touched by her!
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pudgygroundhog
Pearl Clutcher
Posts: 4,643
Location: The Grand Canyon
Jun 25, 2014 20:18:39 GMT
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Post by pudgygroundhog on Aug 11, 2020 2:12:54 GMT
Sending lots of love and hugs your way. ❤️
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Post by Spongemom Scrappants on Aug 11, 2020 2:15:28 GMT
How frightening to get a diagnosis such as that. We’re all sending you all the support and warm hugs we can to help you as you go through this.
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Post by idahopea on Aug 11, 2020 2:17:44 GMT
Thinking of all of you!
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mimima
Drama Llama
Stay Gold, Ponyboy
Posts: 5,017
Jun 25, 2014 19:25:50 GMT
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Post by mimima on Aug 11, 2020 2:37:34 GMT
Oh, huge hugs
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Post by malibou on Aug 11, 2020 2:41:02 GMT
Keeping you all in my thoughts with extra special ones for the parents as the process her diagnosis. Continuing to wish for the best medical teams to help her get stable.
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Post by jlynnbarth on Aug 11, 2020 2:48:53 GMT
Prayers and hugs for all of you.
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hutchfan
Drama Llama
Posts: 6,099
Jul 6, 2016 16:42:12 GMT
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Post by hutchfan on Aug 11, 2020 2:48:56 GMT
Saving prayers for baby Ava. Sending hugs, please know that I am praying for you all.
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Post by alexa11 on Aug 11, 2020 2:51:20 GMT
I'm so sorry -keeping your family in my prayers.
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oaksong
Drama Llama
Posts: 6,164
Location: LA Suburbia
Site Supporter
Jun 27, 2014 6:24:29 GMT
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Post by oaksong on Aug 11, 2020 2:52:44 GMT
Sending love and prayers your way during this incredibly difficult process.
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kate
Drama Llama
Posts: 5,513
Location: The city that doesn't sleep
Site Supporter
Jun 26, 2014 3:30:05 GMT
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Post by kate on Aug 11, 2020 2:53:13 GMT
Congratulations on your sweet DGD! Praying for strength and courage for all of you.
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teddyw
Drama Llama
Posts: 6,820
Jun 29, 2014 1:56:04 GMT
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Post by teddyw on Aug 11, 2020 2:59:48 GMT
Prayers for your family and new granddaughter during a very difficult time.
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Post by Linda on Aug 11, 2020 3:08:22 GMT
((((Hugs))) and prayers. It's better to know than not to know but it's still scary
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Post by mnmloveli on Aug 11, 2020 3:09:58 GMT
Sending prayers for strength for all. My heart breaks for you 💔
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