Kerri W
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Posts: 3,776
Location: Kentucky
Jun 25, 2014 20:31:44 GMT
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Post by Kerri W on Jul 5, 2014 13:29:15 GMT
This is a subject my sisters and I are talking about. My mother is terrified of living in a "nursing home." She has made her feelings very clear my entire life. My sisters and I agree that it would be a last resort because we want to honor her feelings if there is any possible choice. She also worked at a very nice assisted living facility so she has experienced it from a different perspective as well.
She has a seizure disorder and is not compliant with her meds. She is bipolar and refuses to medicate or see a counselor. I have been very up front with her about knowing her wishes about not going to a nursing home but she can't expect somebody to take her on when she refuses to help herself in any way. When I have gotten tough with her and said she must go to a counselor she does something dramatic to weasel her way out of it. Or she will go and lie/not talk to the counselor. She is a master manipulator.
So I struggle with the fact that I should love my mother unconditionally. And I do love her. But a lot of the time it's difficult to like her. I know how terrified she is of the nursing home...I wouldn't do that to her if I had any options. But I'm also not willing to have her live with me and turn my household into drama, anger, bitterness, depression, lies, etc. My sisters feel the same way and we all feel kind of lost as to what the next step is.
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Deleted
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Jul 4, 2024 6:48:52 GMT
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Post by Deleted on Jul 5, 2014 13:31:56 GMT
My mother believes she needs to go into care already. She has severe depression and thinks she is unsafe without extra care. We do need a different house as a 4 level split is too big for us. When DSO and I get married we are buying a place together and they can go into a condo or townhouse. I hope they get something nice and fairly small.
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momto4kiddos
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Jun 26, 2014 11:45:15 GMT
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Post by momto4kiddos on Jul 5, 2014 14:05:20 GMT
While it's certainly commendable to want to honor your mother's wishes, it sounds like it may be very difficult on the family to do so!
You are finding her difficult while not living with her...so imagine her 24/7! My Mom also worked a nursing home and expresses the same wishes. I'm realistic in the fact that sometimes it's possible, sometimes it's not.
Recently my grandmother was placed in a nursing home. Now on that side of the family, they take care of the ill/elderly at home if at all possible. First Grandma lived with oldest dd (my Aunt), it was difficult and she complained about being there. Aunt becomes ill so she goes to her other dd's. She complained even more being there (but didn't want to be home either.) She made up things, her stories were inconsistent, etc. Then she fell I think twice within a week or two. She was hospitalized and the decision was made not to take her home. She was placed in a nursing home at that point, more because no one was happy with the situation, she was very manipulative and a lot of care.
She's been in the nursing home for a while and honestly she seems to enjoy it. She complains of course, wants to go home. But she's very involved in the activities and if you arrive when there's a good activity she boots you! So it can't be too bad!
Good luck, but keep in mind that you can't always honor their wishes. You have to consider yourself and your family too! One of the things my Aunt went through was her constantly telling her her high school dd was skipping school and other things. She absolutely wasn't and Aunt knew it (one day she was actually with Aunt when reported skipping!) So it can create a lot of things you'd never consider!
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lindas
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Jun 26, 2014 5:46:37 GMT
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Post by lindas on Jul 5, 2014 14:14:16 GMT
I totally understand how you feel. My mom has dementia, if anything happens to my dad she will most likely wind up here with DH and I. Right now it wouldn't be that bad. She's on medication that has made a world of difference but it's still hard to deal with her sometimes.
My dad, on the other hand, has made it clear that he intends to move closer to my brothers if anything happens to mom. Only problem with that is he's 86, it's getting close to the time when he needs to stop driving and both brothers have medical issues that prevent them from offering the care he will need.
i don't look forward to these decisions but the time is coming closer to when they will have to be made.
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Post by lbp on Jul 5, 2014 14:20:41 GMT
We are taking care of my MIL who has vascular dementia. It is very difficult and has put a huge strain on our family and our marriage. She begs, screams and cries every day because she thinks we are going to put her in a nursing home. Ultimately, and in the very near future, that is what is going to happen because it is getting increasingly difficult to try and reason with her. She keeps refusing to wear her oxygen, we have a hard time to get her to bathe and wash her hair, and lately she has taken to "walking" around the property. (5 acres)and while that is ok, twice this week we have caught her in the road. She has zero money so I'm not sure what is going to happen with the nursing home situation.
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scrapngranny
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Only slightly senile
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Jun 25, 2014 23:21:30 GMT
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Post by scrapngranny on Jul 5, 2014 15:21:13 GMT
When my mother passed away my dad asked me to promise to never to put him in a nursing home. I told him that was a promise I couldn't make, there was no way I could know what the future held. Fast forward to almost 20 years later, my dad fell and could no longer walk, he also had some dementia. I had no other choice but to put him in a nursing facility. In the end he took it all much better than I ever thought he would. He was in the facility for 18 months before he passed away. Part of what I learned was not to worry too much about the nursing home thing until the time comes. There are so many variables in life, you have no idea how things will play out. I hope it is not in your mom's future, but there are also other choices, such as group homes. You can only donate best you can. Parents are tougher than children to raise. ![:)](//storage.proboards.com/5645536/images/MNrJDkDuSwqIMVw33MdD.jpg)
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Deleted
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Jul 4, 2024 6:48:52 GMT
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Post by Deleted on Jul 5, 2014 15:32:10 GMT
I think there's a HUGE difference between a nursing home, assisted living, and a retirement community type of place.
When it's time, my mother will go to a facility much like the one my Grandmother lived in and the one my Aunt lives in now.
The one my Grandmother lived in was a really nice place to live and had "levels" of care. There were apartments and a common dining area. The residents could come down to eat or prepare meals in their apartments in their own kitchens. Lots of social activities and anything that wasn't on site was only a short bus ride away.
The next level is still living in your own apartment, but nurses that visited to assist you numerous times a day with stuff like medicine, or getting dressed, or bathing.
The next level is more like a hospital room...not an apartment.
I visited my Grandmother many times in each of the "levels" of where she lived and each level was very nice. My husband and I both said that we hoped to live in such a nice place when we were elderly.
My mother has the finances to live in such a place and although I'm not sure she's chosen a place yet, but she has no desire to live with either my sister or me and I believe she'll live the rest of her days several states away from both her children.
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Kerri W
Pearl Clutcher
Posts: 3,776
Location: Kentucky
Jun 25, 2014 20:31:44 GMT
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Post by Kerri W on Jul 5, 2014 15:38:54 GMT
Parents are tougher than children to raise. ![:)](//storage.proboards.com/5645536/images/MNrJDkDuSwqIMVw33MdD.jpg) Omg I'm going to put this on a tshirt and wear it everyday. Isn't that the truth?! Thank you all for sharing. I have huge compassion and empathy for her, but I also HAVE to have boundaries with her. I'm good at that on a daily basis. I'm not exaggerating when I say she's terrified...that makes it so hard for my heart.
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Post by threegirls on Jul 5, 2014 15:42:34 GMT
We sort of have a plan. My mother recently had a full bath put in on the first floor of her home and turned the dining room into a bedroom. She actually did this for my dad because he was in the hospital and we thought he would come home but he passed away. She does not want to ever go to a nursing home.
Have you looked into senior home care? Maybe having someone stop in every day to assist her with her meds might help the situation. In our area we have a Council on Aging. If you have one, they might be able to give you some resources that would be of help.
Good luck. I understand it's a tough situation. You sound like a wonderful daughter.
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Post by mikklynn on Jul 5, 2014 15:44:38 GMT
kerriw, I am happy to see you know you have to set boundaries.
My situation - my dad has Parkinsons, becoming pretty frail. My mom is starting to have memory issues and just started a medication for that. They live 2 hours from all 5 of their kids. They also live in a large home with 5 acres on a lake, so lots of maintenance.
We have NO plan. It really freaks me out.
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Post by fruitysuet on Jul 5, 2014 15:46:59 GMT
I am an only child so any responsibilty and decisions for my parents will be mine alone. They already have set up power of attorney so I would be responsible for their financial transactions if they lose the ability in the future. However I am not especially close to my parents and my mum has recently fallen out with me so at the moment things are even more strained. I keep communication open by making sure that my children keep up their weekly visits to them.
My mum had to look after my dad's mum for a fairly long time and resented it 100% as there was no help from my dad (at work) or his siblings. She has always made it quite clear that she would not want me to have to look after her in my own home. This is going to sound terrible, but that suits me. She can be loving but she is very selfish and emotionally draining to be with. My dad I think I could easily accommodate in my home as he has become very docile after 50 years of being married to my mum!
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melissa
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Posts: 3,912
Jun 25, 2014 20:45:00 GMT
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Post by melissa on Jul 5, 2014 15:47:23 GMT
It is so very difficult.
The only other options aside from the assisted living/nursing home spectrum of care are adult day care and/or hiring an aide. In the end, that's what was done for my grandmother. My dad and his sister arranged for full time live in assistance for her. It was fortunate that she did not require a high or even moderate level of medical assistance so they were able to hire someone independently
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Post by psoccer on Jul 5, 2014 15:48:15 GMT
My mom wishes to remain at home. My dad has dementia, but he also has very low blood pressure and his legs will buckle. They currently have someone coming to the house daily to help get my dad dressed and walk with him. My dad has said he would go to a care home. As his disease progresses, he may have to be removed from the house, if he becomes violent. My brother wants them both out of the house, into a care home, and the house sold. This stresses my mom to no end. They have a large house, but it is clean, and my mom loves working in the yard. I know if anything happened to my FIL, my MIL would then go to a care home. They do have insurance for outside help, so I hope her sons would agree to let her live in the house until they run out of that money. It makes me think, and talk to, my children of what to do with me as I get older.
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Post by sugarmama on Jul 5, 2014 15:50:30 GMT
I look at that as something that needs to be eased into. First you have in home care, whether it's someone to do light housework, cooking or whatever they need help with. Home health care nursing is also an option for people on lots of medication or with other special needs. My grandmother had meals on wheels and home health care, so someone other than family was able to "see" her daily. After that, she moved in with a daughter for a while, then was moved to a nursing home. It was a huge adjustment, but eventually she was fine. We moved her to a new and much better facility that is very close to where she lived and to her family. I think she is in a very nice place--it I am ever in one, I hope it's as nice as this one. She is 95 and has been there 10 years! I truly believe that were it not for putting her in a nursing home, she would not be alive today. Getting her meds on a regular schedule and having the correct dietary needs met is huge with most elderly patients.
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Post by traceys on Jul 5, 2014 16:15:25 GMT
We had a plan, but like many it sort of fell apart in the implementation.
My dad had dementia, and I brought him and my mother from South Carolina to Kentucky to live with me (this was home for them too...they went south after retirement.) But I was still working at that time and my dad's dementia got really bad really fast. Mom was healthy, but not strong enough to control him and he would get very belligerent and scare her. He ran off from my house more tag once at night and I had to get the police to help me look for him. It didn't take long to realize that it just wasn't safe for us to try to keep him at home. The last straw came when he tried to run out of the house while I was at work and fell down my pretty steep driveway....Someone called me and I came rushing home to police cars and a crowd gathered at the bottom of the driveway, him bleeding profusely (he was on blood thinners) and accusing my mom of keeping him a prisoner and trying to kill him......I talked him into letting me take him to get checked out by the doctor and he never came home again. After they treated him, he was transferred to a really nice VA facility in Hazard, Ky. I felt horrible about it and still have moments of guilt, but there was just nothing else that could be done.
Mom is now living in her own apartment...she tried to stay with me for awhile, but really wanted her own place. She is healthy and active. I know she doesn't ever want to go into a nursing home, but she has said after what we went through with dad, for my sister and me to do what we thought best if she were not in a position to decide.
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Deleted
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Jul 4, 2024 6:48:52 GMT
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Post by Deleted on Jul 5, 2014 16:15:53 GMT
My parents are, unfortunately, gone and no matter what we would want to do, DH's sisters would override us in the care of his parents (but they live close and we do not, so we defer to them anyway). However, my parents never asked me to make such a difficult promise and I won't ask that of DD. My only request was that she find the best and most appropriate facility if I require care at some point.
In that same vein, we are planning to purchase a long term care policy to assist with any costs. Be aware, however, if you are considering one, you have to get it while you are healthy. Even as a diabetic, I have some strict health standards that I have to meet and if I were to require insulin, I would no longer qualify (I wouldn't lose coverage, I just couldn't purchase it)
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purplebee
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Jun 27, 2014 20:37:34 GMT
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Post by purplebee on Jul 5, 2014 16:38:36 GMT
Thank the good Lord that my 89 year old Mom is still very alert and in relatively good health, good enough to live by herself with my siblings close in case of emergency. I live in AR, she is on LI, so I depend on my sibs to care for her when needed. And I am so thankful for them. But when it became apparent that Mom could no longer negotiate the stairs to the bedrooms/only bathroom on the second floor, she remodeled a closed in porch into a nice bedroom for herself and also added a bathroom with a handicap walk in shower. She knows she is forbidden to venture down into the basement where washer/dryer are, but Sis takes care of her laundry. This has allowed her to remain independent with some help when needed. Sis works from Mom's house 2x a week which is great. All of this is totally dependent upon her staying well. We have discussed options with her in case of a decline in her health, and she is receptive to the possibility of an assisted living or even a nh situation if necessary. All the legal stuff, power of atty., etc. is in place and all four of her adult children are in agreement, which totally makes life easier for all of us. My only regret is that I am too far away to see her more than a few times a year. KerriW it sounds like you are thinking hard about the future, and if you have a plan in place, it will be easier to implement it when necessary. I hope things work out for you and your family. Stories like yours make me so grateful for the blessings of my Mother's good health.
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MsKnit
Pearl Clutcher
RefuPea #1406
Posts: 2,648
Jun 26, 2014 19:06:42 GMT
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Post by MsKnit on Jul 5, 2014 18:42:30 GMT
Due to circumstances. It's all on my sister.
I love my mother. But, her actions and hatefulness has forced me to wash my hands of her.
Every once in a while, the guilt sets in. And, I wonder how I will feel after the fact. But, I know that she is not healthy for me.
Sometimes I feel completely selfish. While at the same time, I know my health has to come first.
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scrappinmama
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Jun 26, 2014 12:54:09 GMT
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Post by scrappinmama on Jul 5, 2014 18:50:24 GMT
My mother lived with me after my dad passed away. She would have continued to live with us, but my dh's job relocated us to another state. After much discussion, we felt that it was in everyone's best interest if my mom stayed behind. We didn't think that a life long Californian would handle being moved to a cold climate. So she is in a senior apartment building. I have brothers and a sister who live close to her, but I'm sure they would not take her in once she can't take care of herself. I do worry about it. But I also realize that she couldn't move here with me.
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Post by my2apps2 on Jul 5, 2014 19:02:03 GMT
What I want to do is tell my mom she is on her own. Or let my sister handle her when she gets to that point in her life, but I won't be able to. My mom and I have a weird relationship, I am (and always have been) the "grown up" in our relationship. As a matter of fact, I am currently raising my youngest brother because my parents couldn't stop being evicted or keep their lights on or food in the house. So I am a bit jaded about caring for her when she is elderly. I do know that I am passionate about the elderly (I'm a CNA and worked on a dementia ward for three years...I love those people.) so there is no way I could let her go without the best care, but the bitter part of me wants to wash my hands of it. OP, you have to do what is right for you. Your situation is unique in that your mom seems to have issues that even professionals have trouble dealing with...my hat is off to you for trying to do the right thing by your mom! Caring for aging parents isn't easy, or fun...and it's even harder when they come with a set of issues that are difficult. ![:(](//storage.proboards.com/5645536/images/mYSUyHtG9Jrcmm_ydVcK.jpg)
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Post by myboysnme on Jul 5, 2014 19:02:59 GMT
Only my mom is left and she has at this point, the financial resources to provide for her care. Her plan when her husband passes away is to move near me, so I will have better access to oversee her care.
I will see about assisted living until she can't manage. Her dad lived in assisted living until he was 99; he only went to a nursing home for a month before he passed away.
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quiltz
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Jun 29, 2014 16:13:28 GMT
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Post by quiltz on Jul 5, 2014 19:10:23 GMT
In my case, both of my parent are dead.
Now, it is my turn to look out for myself.
There is only one place where I would like to go. A BFF is a nurse in a hospital. She has mentioned that it does have a waiting list, so I am to go CCAC and fill out the paper work and hopefully by the time I will need care, I will be closer to the top of the list.
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Post by OSUBuckeyeFan on Jul 5, 2014 20:42:57 GMT
Let me tell you....right now, my DH's almost 91 yr old mother lives with us...she'll be 91 in 4 days. She's got Alzheimers. It's AWFUL. She can walk, talk, get herself dressed and wipe her own butt but she has NO short-term memory. Constantly has to be told things over and over again. And gets MAD at you if you talk loudly because she's in complete denial that she has a hearing problem. Then if you get short with her for being asked repeatedly 500 times a day if the dog was fed...she cops an attitude!! It's frustrating to say the least. DH really saw how BAD his mother is when he was laid off from December to May. Yet neither he nor his brother will even THINK of putting their precious mother in a nursing home or an assisted living facility....save for her Alzheimers...she's perfectly healthy. I take more pills than she does (for my thyroid, allergies and a BP med to protect the increased bloodflow to my remaining kidney)!!!!
It doesn't matter HOW MANY TIMES we tell her that we've fed the dog, she cannot remember. We've told her this for two years now...and every day it's the same thing. Then she'll sneak the dog some of her food...or a cookie. Our dog is a small boston terrier/jack russell mix & weighs 22lbs...well thanks to her overfeeding him, he's got a heart murmur which could lead to CHF if he remains overweight and we've TOLD her...DO NOT FEED THE DOG!! YOU ARE GONNA KILL HIM and then I"'LL be stuck dealing with a heartbroken 10 yr old boy because of a batshit crazy MIL!!!! This woman has causes SO many issues in our marriage......so OP, if you are married...please take into consideration your spouse and children when making the decision.....if I had it to do over again...there is NO WAY IN HELL I would have agreed to allow MIL to live with us!!!!
Like you, I believe my MIL has some kind of undiagnosed psychiatric illness. NO ONE would ever take her to get her on meds. MIL's brother says that MIL has never been 'right'. My sister-in-law has told me of how their mother behaved when their father was alive and it sounds like this woman is bipolar but was never put on meds and believe me...seeing what I've seen these last 15 years...I believe it!! Last fall when she would have violent outbursts when called on the carpet for her behavior, she would hit things, yell, scream and once tried to hit my son! This was witnessed by my brother-in-law. I should also mention that they have a sister, who just turned 68 and she pretty much does NOTHING to help out with their mother. I told DH...look, either YOU and your brother take her to the doctor or I AM OUT OF HERE!!! I did some research and her Dr put her on a low dose of zyprexa..it did help and also cymbalta. The zyprexa stopped the violent outbursts.
Reading your OP....if you don't think you can handle her....and neither can your sisters...then you don't have much of a choice. You can't bring someone like her into your home...so she's gotta go into an assisted living facility at first....they aren't all bad.
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Post by miominmio on Jul 5, 2014 20:59:09 GMT
DH and I agree that none of our parents will move in with us. DH parents are in their seventies and live 150 yards from us, my mom is 65 and lives 50 yards from us, so we will be able to help them without taking them in. If they get dementia, they will have to live in a facility, and we will visit daily (it's less than a mile from where we live). My grandmother cared for my grandfather, and she wore herself out completely (he tried to light fires at night). My mom doesn't expect us to let her live with us, she loves us too much to expect us to do that, but my MIL would try to demand it. If FIL dies first, she can live with her other son (who lives 1,5 miles away) and who is still single and emotionally dependent on his mother. We will help, but not let them live here.
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Post by traceys on Jul 5, 2014 21:30:12 GMT
One other thing I would add, that you need to consider in planning, is the financial aspect. I am not well versed in this, but nursing home care is expensive and Medicare does not cover it except under limited circumstances. If you have one parent, long term care will clean them out and then go to Medicaid to cover expenses, but it's more dicey in cases like mine, where my mom still needed an income.
My dad's care was almost $4,000 per month. Which we paid entirely. It took his social security plus his retirement benefit, but we were lucky we could do it. However, that left my mom only her social security to live on. She and my dad had both worked hard all their lives to build a comfortable retirement, and she went from basically being able to travel and do what she wanted to literally watching every dime. Their house was sold, and my sister and I both helped, but it's a really hard thing to deal with. Regular insurance will not cover it...you have to have long term care. The cost is definitely a huge part of the equation.
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Post by SunnySmile on Jul 5, 2014 21:52:25 GMT
We are coming up on these decisions soon. My mom has given up after her last fall and now uses a walker. I say given up because she could still do a lot of things for herself, but doesn't do any of them. She sits in a chair all day watching tv. My dad is getting run into the ground, and he is resentful of it. I live over 7 hours away, so I am not there for the day to day stuff, but I know before too many years, the assisted living thing is going to come about. Both my parents are 71. They have enough assets that it could be paid for I think. In my own situation with DH, that is not a given. We don't make a lot and the 401k is not fat. I have diabetes, so could probably not even get long term care insurance.
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maurchclt
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Posts: 3,631
Jul 4, 2014 16:53:27 GMT
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Post by maurchclt on Jul 5, 2014 22:21:12 GMT
If you have a parent that was in the military there IS money available for them and and then their spouses. I know it was a Godsend when my folks went into Assisted Living. And I have to say how fortunate we were and how easy my dad made it for us. he was the one who said he couldn't keep up with the condo anymore nor help my mom, who'd had a stroke. It was like he read our minds. My mom was NOT happy about the move. but he convinced her it was the only way, he never wanted to be a burden on us, his children. Eventually my mom realized that, hey, they make my bed every day, they clean my room, they do my laundry, they give me 3 meals, this isn't bad. All I can say for anyone going thru this... good luck.
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Post by ntsf on Jul 5, 2014 22:28:34 GMT
my dad bought long term insurance...but is going strong at 87 in his own place. he lives in a condo..so is accessible living. my in laws live alone at 93, and 87 and they are both healthy..so I expect everyone will live at home til the end. we live 800 miles away so we won't be taking them in.
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Post by stampinbetsy on Jul 5, 2014 22:49:22 GMT
We need to get a plan. My mom is convinced we are going to send her off to a nursing home (I think she's kidding . . .).
DH's mom says they're staying in their house until they die. I don't think they have that much money. But I have no idea what kind of financial arrangements they might have made. I did notice the last time I was at their house that there was one of the Vial of Life things on their fridge with MIL's name on it. So maybe there's something going on with her that I don't know about yet. Or maybe she's just trying to be cautious. I think they would do great in a retirement community that has continuity of care (ie. independent, assisted, and healthcare).
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Post by M~ on Jul 5, 2014 23:28:38 GMT
Well, this is what we did for our grandmother. She's 99 and change and we promised to never put her in a nursing home. We have a housekeeper during the day and we have a "rotation schedule" in place for weekday nights and weekends. I gotta tell you--it's rough. Thank goodness her mind is as clear as a bell. That helps a lot.
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