katybee
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Jun 25, 2014 23:25:39 GMT
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Post by katybee on Aug 8, 2015 13:48:07 GMT
I started a thread last week about a nodule they found in my lung and my fears that it is cancer. I saw a pulmonologist on Thursday.... It turns out I actually have multiple nodules... The biggie (1.2 cm) and a bunch if small ones in both lungs. How many? I don't know... He drew a picture and just dotted his pen like there were too many to count.
I will get a PET scan next week.
I know that there is still a chance that they could be benign...but the size of the biggie and the number of other modules also makes it very likely that they are not. They could very well be cancer from somewhere else that has metastasized. I'm trying really hard to stay positive, but I also want to be realistic.
So here I sit this weekend not being able to do anything. All I can think about is the fact that I probably have some kind of stage 4 cancer. My friends and family tell me to "stay positive" but how do I do that? How do I "go on" with my life as if nothing is wrong?
Im also having pain in my back and abdomen that I would usually attribute to IBS-- but know all I can think is cancer. I can't watch TV, I can't sleep (I had horrible dreams last night) and I don't want to be around people who tell me that it's probably nothing...
This is the worst kind of torture...
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AnotherPea
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Jan 4, 2015 1:47:52 GMT
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Post by AnotherPea on Aug 8, 2015 13:58:53 GMT
I think it is impossible to stay positive at this stage of the game and I totally understand your concern. I also think that loved ones have no idea what to say. they WANT a positive outcome and are hoping for the best. But they aren't living it 24/7.
I do think that you can distract yourself at least for a little while here and there. That might give your mind a break.
Later, once you know more and had a chance to breathe, I think you'll be able to focus on positive thinking.
I'm so sorry to hear your news and I will keep you in my prayers.
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Post by Merge on Aug 8, 2015 14:00:01 GMT
I'm so sorry you are going through this. I know Compwalla mentioned on another thread not being afraid to ask for some chemical help - anti-anxiety meds - and I would urge you to step up and ask for those.
Is there a friend or family member who can stay with you this weekend? Take you out and distract you?
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caro
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Post by caro on Aug 8, 2015 14:01:58 GMT
First, I'm sorry, it really is torture to have to wait so long for answers. How do you feel physically?
I don't know how I would get through this wait time because no matter what you do it's always on the back burner.
If you pray, I always get peace through reading scripture and praying. Sometimes it's immediate and sometimes it takes me awhile to get to that point.
Do you have a close friend or DH you can talk too?
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Post by jmurray on Aug 8, 2015 14:04:50 GMT
I'm so sorry. I honestly don't know how I would be able to put that out of my head, and I would probably be frozen to my core until the PET scan. I also don't think so soon after being given this news it is realistic for you to be able to do that. Having said that though, but I would try my hardest to focus on it being the best possible outcome.
The pains you're experiencing could very well be related to IBS, or (if you've had them in the past) they could be increased by the stress you're under right now. I'm sorry I don't have any magical words that will make this disappear for you, but I will be thinking of you and sending positive thoughts your way. Just try to get some rest, even if it's just lying down if you can't sleep. It helps more than you think.
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Post by teepea on Aug 8, 2015 14:30:07 GMT
I wish I had the answers you're looking for. I honestly didn't want to just read and not respond because I can "hear" your pain and worry. The closest I've come to what your experiencing is when my sister was diagnosed with peritoneal cancer that had advanced. Again, tho, I wasn't the one actually getting the diagnosis and not for one minute do I believe I can say I knew what she was feeling or the full depth of her feelings. We were very very close and while we shared most everything how do you explain that kind of fear? she tried to live every moment by being present in that moment. Not focusing on the next round of chemo or the next test result, not putting her life on hold or letting the lousy circumstances control her while hoping for better news. She pushed herself to do that at times,keeping active and busy even when she didn't have the energy to do so. She had the ability to kind of compartmentalize her mind. She would visualize a door that she'd leave all the crappy stuff behind and keep that door locked. Didn't always work but gave her a sense of control for the most part. they may have had bad news for her but she chose how she let it affect her mind. I wish you peace.
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Post by pjaye on Aug 8, 2015 14:38:53 GMT
I'm sorry - that is scary to deal with, especially the not knowing and the waiting to find out is horrible.
The only advice I have is one I have used myself...at this point whatever those lumps are...they already are, they are either benign or malignant. Worrying about it and making yourself sick over it, won't actually change anything at this point. Just go through the process and have whatever tests you have to have and find out what the actual diagnosis is and then deal with it one step at a time. You can't play 'what if" and you can't run any realistic scenarios or make any realistic plans until you actually know something. When you know what it is and if you'll need anything else done only then can you make any proper plans.
I had a lump last year and that's exactly how I got through it, whenever I was letting my brain run away with the me, I'd just deliberately stop and shut it down and think "this worrying won't change anything, when I know, then I'll think about it and deal with it" That may or may not be possible for you, but it helped me and it's worth a shot. When you have those thoughts just think "I'll deal with that next week when I get the results, not thinking about it now"
I think the 'stay positive' is just something people say when they don't know what else to say and they think it's helpful...but I don't think it is for most people. "stay neutral" is more realistic, try not to talk yourself into an overly positive or overly negative scenario, try to go on each day thinking "when I have a diagnosis, then I'll think about this more and take it one step at a time".
As a nurse I've seen so many different scenarios play out, things that looked really bad turn out not to be, things that seemed OK turned out worse, unexpected results, etc. Until any one person has gone through the tests and until there is a definite diagnosis there is no way to know what is going to happen. You'll be in my thoughts for the best possible outcome.
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Post by Zee on Aug 8, 2015 14:41:44 GMT
I'm so sorry for what you're going through. I wouldn't be able to relax either. I would call the doctor and ask got some xanax or something similar (anti-anxiety meds). Don't hesitate to ask. Your situation certainly warrants it.
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Post by elaine on Aug 8, 2015 14:45:54 GMT
(((Hugs)))
I second the suggestion to ask for anti-anxiety meds short term to get through this.
If you can, you might want to try things to distract yourself for periods of time, like going to the movies or watching one at home. Each time your mind tries to sidetrack you, tell yourself you can think about it after the movie, but you want to pay attention until then.
I'm so sorry that it is realistically such a tough time for you right now.
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purplebee
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Jun 27, 2014 20:37:34 GMT
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Post by purplebee on Aug 8, 2015 14:49:56 GMT
I understand exactly how you feel, though I have not had to deal with a situation like this for myself, it was for a dear friend. I am the worst person in the world about "what it's," regardless of the severity of the event. I second asking for some pharmaceutical help, ask your doctor, he can help.
In the meantime, I'm praying for you. Hugs.....
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Nicole in TX
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Jun 26, 2014 2:00:21 GMT
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Post by Nicole in TX on Aug 8, 2015 14:59:35 GMT
Your feelings are perfectly legit, so don't feel bad for feeling bad. Ativan is wonderful to take the edge of off of things. I took it during chemo as the steroids drove me out of my mind. As far as staying positive: 1) Don't waste the good days now for what 'might come' later. Suppose your time on Earth is indeed limited; what are you going to do with THIS day, RIGHT NOW? Carpe diem! 2) Be grateful. Start whispering a prayer of thanksgiving. See how many things you can be thankful for and see how long you can go listing them off. Sending you a prayer and a hug. They really do have you waiting a long time to find out. There are millions of people who have survived cancer. IF it is cancer, you could very well be one more to add to the list! ![:)](//storage.proboards.com/5645536/images/MNrJDkDuSwqIMVw33MdD.jpg)
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Post by tomocus on Aug 8, 2015 15:02:44 GMT
I understand how scary this must be for you. I am keeping you in my prayers for peace and a good medical outcome.I u
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RedSquirrelUK
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Aug 2, 2014 13:03:45 GMT
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Post by RedSquirrelUK on Aug 8, 2015 15:08:59 GMT
Oh Katy, I'm so sorry! Yes, the not knowing and the what-ifs are indeed one of the worst kinds of torture but I'll tell you this. The first day of being told this kind of thing without a resolution is the worst. After that your brain will calm itself down, your mind will numb itself and you'll cope better until you have answers. What you're feeling now is traumatic shock. For me, the go-to remedies when given potentially shocking news are homeopathic arnica and Bach Rescue Remedy. They don't interact with any medication and they don't leave any side effects. They just turn the emotional pain volume down.
Huge hugs. Keep us in the picture?
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TXMary
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Jun 26, 2014 17:25:06 GMT
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Post by TXMary on Aug 8, 2015 15:13:02 GMT
I'm so sorry you are having to deal with this. I have had cancer, so I do understand the thoughts and the fears in your mind right now. This is absolutely the hardest part...the not knowing. It took a month to diagnose my breast cancer and it was the longest month of my life. Please be gentle with yourself right now. I also strongly agree with the advice to call your doctor and get some anti-anxiety meds. I took Xanax. I didn't want to and I fought them all the way, but I needed them and I am glad that my breast surgeon finally convinced me to take them. There is nothing to be ashamed of to need help getting through these days.
It's really hard to think positive under these conditions and it's almost impossible to keep your mind off it. I don't have any easy answers. I just wanted you to know that there is life after a cancer diagnosis if that's what it is and I'll be praying for peace for you and hoping that it's all benign. (((hugs)))
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Post by gar on Aug 8, 2015 15:14:53 GMT
I don't know if its possible not to worry given what you fear. Maybe from could try some meditation to calm yourself a little inside....perhaps you tube would be a place to look. People say its a wonderful thing to do, if you can.
But I sympathise - I'd be very scared too ((hugs)) no doubt about that.
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eastcoastpea
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Post by eastcoastpea on Aug 8, 2015 15:18:12 GMT
Hugs to you, Katybee. I know that the waiting is hard because you don't have a definite diagnosis, treatment plan and something to focus on yet. You are in my thoughts. I hope you hear that your nodules are easily removed and not cancer.
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Post by kckckc on Aug 8, 2015 15:34:30 GMT
I don't really have any advice - just wanted to say that I am thinking of you and sending positive thoughts your way.
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Post by lisacharlotte on Aug 8, 2015 15:55:09 GMT
I am so sorry that you are going thru this and the waiting is the worst. I have been in your position and it's sometimes overwhelming trying NOT to think about it. I agree with the "Think Neutral" that pjaye mentions above. You don't know what you don't know. Find a way to stop the thoughts from running through your mind. It could be something as simple as getting up and changing your environment, walking around the block. But I found people were better at this for me since I usually had to concentrate on what they are saying. My BFF has terminal metastasized lung cancer. it' been 18 months since her diagnosis and it's not always easy but we have made a promise that we will make the most of the time she has because we all have an end point and none of us knows when ours is. Carpe Diem is definitely the way to go.
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Post by penguin on Aug 8, 2015 15:59:45 GMT
I can't add to the advice that has already been given, but I want to say that you will be in my prayers. Sending hugs.
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craftykitten
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Jun 26, 2014 7:39:32 GMT
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Post by craftykitten on Aug 8, 2015 16:02:17 GMT
Oh, I'm so sorry.
I have had cancer myself, and I know how hard the waiting is.
I second the poster above who said - whatever those lumps will be, they already are. Worrying about it is not going to change anything. But although that is so easy to say, it can be hard to do.
I actually found my family were not much help during the waiting period. Telling me to 'stay positive' used to drive me insane. And then my mum came and stayed with me like I wasn't allowed to be alone...whereas actually I just wanted to carry on mostly normal.
For me, I found it helped to keep busy (my house was never so clean!) and to keep doing things rather than sitting and letting my mind wander. Do something physical to get tired, so that you can sleep. Focus on each moment, right now - is this good? Yes. Then enjoy it. Do you have a hobby? I scrapbooked, crocheted and painted. Creating something with my hands is very therapeutic for me. The only way that I can STOP thinking about something is to replace that thought with something else.
Tomorrow will be what it is and you are a strong and amazing woman. You can do this. I'll keep you in my thoughts.
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Post by k8smom on Aug 8, 2015 16:18:52 GMT
I'm sorry you are going through this, I can't imagine how scary this must be for you. I just want to remind you how many amazing, wonderful, miraculous things medical science can do today and tell you to try your best to trust in that right now. I've had a few people very close to me diagnosed with stage 4 cancer come out healthy on the other end of treatment in very dire situations, nothing less than miraculous. And I do think mindset, specifically positive thinking, has a lot to do with it. You won't be able to ever put your fear all the way out of your head, but you can nudge it out of the forefront.
As far as how to clear your mind of negative thoughts, it takes conscious effort but you can do it. The first step is to acknowledge all of that jumbling around in your head, visualize it. Then visualize swiping it away, like windshield wipers. I know it sounds silly, but it really works. Try to replace the bad thoughts with a clear mind and then take a moment to focus on something around you, a cloud in the sky, a sound, etc. You can intentionally switch the channels in your head.
Hugs to you.
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Post by scrapmaven on Aug 8, 2015 16:22:10 GMT
At this point you're going through a scary time and I think a call to the doctor to get some anti-anxiety meds is a good idea. This is big and something to take the edge off might be necessary. I'm thinking good thoughts for the best outcome, especially a benign one.
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Deleted
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Jun 16, 2024 9:29:10 GMT
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Post by Deleted on Aug 8, 2015 16:25:38 GMT
Write , scribble, doodle, then crumble it up , toss it a pan and burn it.
Tossing and burning relieves a lot of anxiety.
Or buy a chicken. Can't be unhappy if you own chicken!
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katybee
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Jun 25, 2014 23:25:39 GMT
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Post by katybee on Aug 8, 2015 16:41:36 GMT
I will definitely be calling my regular doctor this week to get some pills… I do so enjoy Ativan.
I'm doing better now than I was this morning. I've been watching a funny TV show and that has helped take my mind off of it. I'm also very gassy, LOL, which helps me think my abdominal pains are IBS and not some horrible cancer. It also helps to remind myself that I have convinced myself I've had cancer on more than one occasion. A few years ago I was dealing with the same abdominal cramps – and had many tests including a CT scan and an ultrasound. That is when I got my diagnosis of IBS-- but I was convinced it was cancer. One time, I also convinced myself I had HIV. Now I can look back and laugh at that…
I just wish I didn't have a CT scan that showed so many nodules in my lungs.
Oh well… Back to my funny TV show… Thanks for all of the good wishes and advice.
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Post by emelle64 on Aug 8, 2015 16:53:18 GMT
I'm so sorry you're going through this. I went through a similar waiting time in the winter and it was so hard. After 5 nights of nearly no sleep, I was offered sleeping pills and those things really helped me get through the very worst days. I found that trying to cope with the waiting with very little sleep was just too much. On days following a good nights sleep I felt so much better able to cope. The other thing that my doctor said to me is to stay off the internet (in terms of googling). She said that if she wasn't sure what was going on, I wasn't going to find out by googling and it would just freak me out. For the most part I took that advice.
I would echo this. Although, now in retrospect, visions of my mother standing outside the bathroom door do make me laugh.
Hang in there. I will be praying for you.
Emelle
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maurchclt
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Jul 4, 2014 16:53:27 GMT
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Post by maurchclt on Aug 8, 2015 16:53:49 GMT
Sending you hugs, good wishes and positive vibes. Love that you are watching funny TV shows, great way to pass the time.
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Post by scrapnatya on Aug 8, 2015 17:48:17 GMT
I'm sending you lots of healing light and energy.
My advice:
Start saying some mantras. Thank you for my healthy lungs and body. Thank you for healing my lungs. Thank you for taking this anxiety from me. It does not serve me.
Try to relax by doing some youtube meditations. Xanax also could help to relax you. Use visualization to send golden healing light throughout your body.
I'm sorry you are dealing with this. I'm sure it is very scary.
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Post by flanz on Aug 8, 2015 22:28:59 GMT
I'm sending positive thoughts and prayers your way. Wish I could do more...
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moodyblue
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Post by moodyblue on Aug 8, 2015 23:10:17 GMT
I can empathize. I know I've been told a couple times that "it" might be cancer, and when I had atypical gall bladder symptoms the doctor made a comment about my issues not being typical and being concerned about liver or pancreas being the problem. At 3 am after hearing that I had myself dead in six months. My husband talked me down from that by being calm and telling me not to worry about what hadn't happened yet. (It WAS gall bladder - one huge stone that stretched my gall bladder over to the left side.)
I think pJaye had great advice above.
I'll be thinking of you. Please let us know when you can and know that we are all here pulling for you!
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happymomma
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Aug 6, 2014 23:57:56 GMT
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Post by happymomma on Aug 8, 2015 23:38:36 GMT
First, I am sorry you are in this position. I do believe that the waiting is the hardest part for me, whenever I am waiting for news of some sort. I can imagine your fear and that of course you are nervous. Hugs and prayers sent to you during this wait and after. Now, as far as the not being able to think of anything else, I completely understand! I would like to share with you something that my husband and I learned in marriage counseling this past winter. It is called Mindfullness, or Mindful Meditation. It is a way to block out intrusive thoughts. I sure wish I had learned about it years ago. The counselor actually taught this to us for my husband's benefit but I am so glad I was right there to learn as well. I have used it plenty lately, as I am trying to fall asleep at night especially. We are divorcing and when I try to go to sleep at night all I can do is replay things in my mind, or think of how to 'solve' a problem which really has no solution. That can be maddening and makes it nearly impossible to fall asleep. When the light bulb went on in my mind to use Mindfullness at night, I couldn't believe I hadn't thought of it earlier. I have tried silent meditation in the past but cannot 'clear' my mind. This way gives me something to be thinking about, so my mind is occupied but focused on the breathing, sounds, etc. I have found a link for you, but feel free to look around for others that you feel will work for you. www.youtube.com/watch?v=8v45WSuAeYIBest wishes to you, both with your test results and hanging in there until you receive them.
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