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Post by Dixie Lou on Oct 6, 2015 0:15:07 GMT
I can't imagine what you are going through. I'm saying prayers for your Phoebe. Wish I could do more.
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Post by shescrafty on Oct 6, 2015 0:27:54 GMT
I can't imagine what you are going through. I'm saying prayers for your Phoebe. Wish I could do more.[/ The peas just being here for me to vent is actually a great support because I can go back and reread at night when I can't sleep
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Post by marie on Oct 6, 2015 0:50:12 GMT
Continued prayers and positive thoughts for you and Phoebe.
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ModChick
Drama Llama
True North Strong and Free
Posts: 5,062
Jun 26, 2014 23:57:06 GMT
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Post by ModChick on Oct 6, 2015 1:18:42 GMT
Still praying for Phoebe and all of you.
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Post by CarolT on Oct 6, 2015 3:33:48 GMT
Like many of the Peas, I think of Phoebe all the time. We're all pulling for you and your family.
Please let your mom or someone else spell you a little bit, even if it's just to go home for a few hours to shower and have a meal with your 14 year old and your husband.
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Post by DinCA on Oct 6, 2015 6:00:30 GMT
No new lesions is good news. Hoping that good news is all you get from here on out.
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scrappert
Prolific Pea
RefuPea #2956
Posts: 7,787
Location: Milwaukee, WI area
Jul 11, 2014 21:20:09 GMT
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Post by scrappert on Oct 6, 2015 13:06:16 GMT
Can't imagine what you and your family are going through. All I can send is continued prayers.
and cyber hugs!
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Post by SabrinaM on Oct 6, 2015 14:12:43 GMT
Checking in on you today and hopeful for a bit of rest for you and Phoebe!
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Post by dreamer on Oct 6, 2015 14:16:26 GMT
Sending healing prayers for your little one.
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Post by ktdoesntscrap on Oct 6, 2015 14:24:19 GMT
Thinking of Phoebe and you all!
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Post by katieanna on Oct 6, 2015 14:24:52 GMT
Just wanted to let you know that Phoebe, you and your family are in my prayers. I'm sorry to read the update but there's always hope that those numbers will improve. May the Lord be with you and your family and may He enfold your little Phoebe in his protective, healing embrace. May God bless!
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oh yvonne
Prolific Pea
Posts: 8,003
Jun 26, 2014 0:45:23 GMT
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Post by oh yvonne on Oct 6, 2015 15:48:03 GMT
my heart breaks for you. My thoughts, my prayers are with sweet Phoebe and you all. How can this be happening? So not fair. So not fair.
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Post by twinks on Oct 6, 2015 17:33:35 GMT
Phoebe, you and your family are constantly in my thoughts and prayers.
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Post by krcrafts on Oct 6, 2015 19:19:18 GMT
Thinking of you.
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Deleted
Posts: 0
May 17, 2024 2:06:38 GMT
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Post by Deleted on Oct 10, 2015 11:59:18 GMT
Just wondering how things are going for Phoebe, you and your family today.
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caro
Drama Llama
Refupea 1130
Posts: 5,222
Jun 26, 2014 14:10:36 GMT
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Post by caro on Oct 10, 2015 13:36:22 GMT
I'm wondering too.
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gloryjoy
Pearl Clutcher
Posts: 3,332
Jun 26, 2014 12:35:32 GMT
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Post by gloryjoy on Oct 10, 2015 13:46:57 GMT
I am so very sorry for what your sweet Phoebe is going through, and for your family as well.
Praying for all of you.
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Post by SweetieBugs on Oct 10, 2015 14:42:38 GMT
Thinking of you, Phoebe and your whole family and wanting you to know that there are lots of people keeping you all in their prayers.
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gramma
Pearl Clutcher
Posts: 2,903
Location: Sacramento, Ca
Aug 29, 2014 3:09:48 GMT
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Post by gramma on Oct 10, 2015 16:05:07 GMT
I simply cannot imagine the stress and anxiety you are under. I've dealt with ill parents, a medically fragile spouse and adult kids with their ups and downs. But this, this would break me I think. You and your Phoebe are warriors. Just know that many of us are carrying you in our hearts every day.
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msliz
Drama Llama
The Procrastinator
Posts: 6,419
Jun 26, 2014 21:32:34 GMT
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Post by msliz on Oct 10, 2015 16:22:52 GMT
Your beautiful Phoebe is in my prayers .
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Post by kiwigirl on Oct 10, 2015 23:38:23 GMT
Shescrafty, I think of you and Phoebe every day and have everything crossed that she will be home again soon xXx
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Post by shescrafty on Oct 11, 2015 14:05:38 GMT
Update 10/11 it looks more and more like the only thing that will save Phoebe is a bone marrow transplant. Each day there is another new complication and treatments with new side effects. My friends are organizing donor drives around Maryland to try and get more Asian people on the bone marrow donor registry. Although the match does not have to be Asian, it is most likely that if a match is to be found it will be among the Asian community. It is so hard to get one piece of bad news after another.
I know I have asked for people to get tested (looking mostly for donors ages 18-44) but if any of you are wanting to help and set up a donor drive in your area you can contact the Be the Match organization and get one started. My friends are doing them around Maryland, but anywhere someone can hold one is fantastic. If you are so inclined please send me a PM and I will get you the email and website for the organization. I know it is a long shot. 1/3 of kids don't make it to transplant, 1/3 make it and don't survive the transplant, and 1/3 live. The odds are not in our favor but we need to do whatever we can to get the odds up as much as we can. Thank you again for the support you have shown us so far. It is appreciated.
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Deleted
Posts: 0
May 17, 2024 2:06:38 GMT
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Post by Deleted on Oct 11, 2015 14:13:16 GMT
I am so very sorry you keep receiving bad news. Praying that a bone marrow match is found asap. Praying for your strength. Praying that Phoebe can be strong and no more set backs occur.
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Post by gryroagain on Oct 11, 2015 14:22:07 GMT
Oh gosh, those odds are tough. But someone is the 1/3 and it will be Phoebe. I think of you all every day. Stay strong Mama.
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Post by gryroagain on Oct 11, 2015 14:34:44 GMT
If you go to the link it is easy to sign up to get information to host an event, I did, I am in Korea actually and while it may not help Phoebe in the US to host an event, the rate of organ and tissue/marrow donation is really low here so getting the word out is important and having a "personal" connection prompted me to sign up. Peas, fill out the form and let's see how many we can get registered and make the donor rolls swell! Peas can do a lot when they put their minds to it- now is the time!
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Post by Linda on Oct 11, 2015 14:43:41 GMT
continued prayers
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Post by gar on Oct 11, 2015 14:43:35 GMT
Not that it will help Phoebe but I am on the UK register....I so hope that you find that one person she needs.
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wellway
Prolific Pea
Posts: 8,768
Jun 25, 2014 20:50:09 GMT
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Post by wellway on Oct 11, 2015 14:51:18 GMT
I am sorry to read this update.
Are your doctors checking overseas organisations for matches too? I don't know about the logistics of it all but I read a story lately where the donor was in Germany and the child was in the UK. Just mentioning it in case it's of any use.
((Hugs))
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Post by pattipea on Oct 11, 2015 14:57:22 GMT
shescrafty - Don't lose hope. Remember, when the sun goes down, the stars come out. Remain strong and stay focused. Know that Phoebe, you and your family, and the entire medical team are in the thoughts and prayers of so many. You told us what a fighter Phoebe is - she can do this!! (((HUGS)))
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Post by shescrafty on Oct 11, 2015 15:03:09 GMT
I am sorry to read this update. Are your doctors checking overseas organisations for matches too? I don't know about the logistics of it all but I read a story lately where the donor was in Germany and the child was in the UK. Just mentioning it in case it's of any use. ((Hugs)) I have asked about that to check the korean registry as well and they are looking into it. We re trying to get her help any way we can!
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