zella
Pearl Clutcher
Posts: 3,884
Jul 7, 2014 19:36:30 GMT
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Post by zella on Jul 31, 2014 21:36:32 GMT
Hi there.
I know what you are going through. I also get many aura-only migraines, plus the ones with pain.
Why not ask your doctor about checking for a PDA? And I understand the worry about stroke risk; it concerns me too.
I think that you should see a specialist. I'm not sure there are different meds specifically for preventing migraines that are just aura; and it is a very individual thing, with no med working for everyone, you know?
I'd love to hear updates from you.
Also, what are your specific aura symptoms? There are so many possibilities.
I hope your migraines go away soon.
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Post by meowgal on Jul 31, 2014 21:37:41 GMT
I took topamax for a long time to cut down on the frequency. I actually found that regular massages worked as well for me and with less side effects.
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Post by dawndoll on Jul 31, 2014 21:40:02 GMT
I have Intractable Chronic Migraine. I was diagnosed with Migraine at age 9 and have been on, literally, dozens of preventives. None of which worked. Yes, they suck. I'm amazed that we can put a man on the moon but cannot find a cure. I'm lucky enough not to have the auras, but I never have one headache-free day and can't remember ever having one in my life. Good luck to you. I feel your pain.
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Post by donna on Jul 31, 2014 21:46:43 GMT
I have auras with my migraines. I greatly reduced the [HASH] of migraines by avoiding aspertame and certain types of light. I do not take a preventative med.
I hope you get some help.
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Post by lilacgal on Jul 31, 2014 21:48:35 GMT
Yes, yes they do. Right now, I'm taking magnesium and nadalol to try to prevent them. I've taken various beta blockers and Cymbalta as well. The best thing I did for migraines were Botox injections. It's every three months. It cut my migraines from 5-6 days a week to only 2-3 days a week. I'm trying to get pregnant and my neuro doesn't want me on Botox for that. After child 2, I will be going back to the Botox. It's the only thing that consistently gave me relief.
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sharlag
Drama Llama
I like my artsy with a little bit of fartsy.
Posts: 6,580
Location: Kansas
Jun 26, 2014 12:57:48 GMT
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Post by sharlag on Jul 31, 2014 21:54:29 GMT
What does PDA mean?
I get the visual aura migraines sometimes. I didn't know it was associated with increased stroke risk.
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Post by Dori~Mama~Bear on Jul 31, 2014 22:00:45 GMT
I feel for you... I have migraine problems. I get them really bad to the point they put me to bed. I get the auras so bad that If I sit or stand I lose my balance.
I am not on any prescription meds for them because I am allergic to them. I wish I had something stronger than advil migraine. I used to take excedrin migraine but I took it for so many years they stopped working. My doctor has me on a high dose of the advil migraine and they help make the migraines livable to the point that I can get out of bed as long as I do nothing other than sit. Walking is hard and I can't function like a normal person when I have migraines.
I have found that if I drink my coffee in the mornings I get fewer migraines. but anything can trigger them. The things I have ate or done for years that never triggered them before have triggered them and then some of the things that have triggered them in the past don't trigger them now. It is a never ending battle with them. I do know that bright flashing lights trigger them bad.
I used to be able to play video games with my daughter when she was growing up but the past few years I haven't even been able to watch her play without triggering a migraine.
There are some movies that trigger migraines even if the sound is off. I have had to stop watching movies before because of the special effects triggering a migraine.
So the games I play are nonaction games.
good luck with your migraines.
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suzastampin
Pearl Clutcher
Posts: 2,587
Jun 28, 2014 14:32:59 GMT
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Post by suzastampin on Jul 31, 2014 22:03:02 GMT
I finally have mine under control. Knock wood, I might get a migraine once every couple of months where I had them daily before we found this drug combo. I take 125mg of Amitryptiline and 20mg of Citalopram. I took just the Amitryptiline for a few years and it had worked pretty well for a couple of years. Then it was just a non-stop headache. I couldn't get ahead of them as there was no start or stop. I went to bed with one and woke up with one. Adding the Citalopram has been wonderful.
Migraines are the pits! I hope you are able to find something that will help you.
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zella
Pearl Clutcher
Posts: 3,884
Jul 7, 2014 19:36:30 GMT
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Post by zella on Jul 31, 2014 23:54:00 GMT
Old pea, with the family cardiac history it seems an echo would be a good idea. We have a horrible stroke history in our family: killed paternal grandmother, incapacitated a paternal aunt, dad had several starting at age 60, killed maternal grandfather, maternal grandmother had many. I also have a blood clotting disorder which increases my risk obviously. I'm terrified of having a major stroke, particularly of being horribly incapacitated but not killed by it. I think as more research is done, we will find even more of a connection between stroke and migraine.
Hang in there.
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Post by katiekaty on Aug 1, 2014 1:35:28 GMT
I have suffered with migraines many years. Always had to take meds to alleviate them. My migraines were hemiplegic, auras, optic or auditory or combination. I am grateful to have a preventative that works well. I take Topamax with minimal side effects. I have not heard of PDA associated with migraines or the history of cardiac disease raising the risk of migraines. I have asked my neurologist if the migraines put me at a higher risk for stroke and he says no more than a familial history for stroke or aneurysms would. A personal history of a-fib, atherosclerosis, cardiac disease, etc. would put me at greater risk for stroke than just migraines. I am sure PDA has its own risks but I am not sure how they would relate to migraines. Migraines are caused by constrictions in the cerebral vessels. Strokes are caused by thrombus (clot) blocking cerebral vessels or bleeding from cerebral vessels. With PDA caused strokes, it would probably be a clot based injury to a cerebral vessel-I am sure you would have severe headache-not a migraine. I can see that it would be good to rule out PDA.
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Post by theboydbunch on Aug 1, 2014 1:42:18 GMT
I have been taking Topamax on a daily basis as a preventative for migraines. It works. I had them frequently before this. Good luck. Migraines suck!
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violet
Full Member
Posts: 101
Jul 9, 2014 2:39:32 GMT
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Post by violet on Aug 1, 2014 1:45:54 GMT
I agree, migraines suck! My son and I take topamax as a preventative.
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Post by Eddie-n-Harley on Aug 1, 2014 1:49:51 GMT
I don't have aura with my migraines, but I do take 20mg of nortriptyline at night as a preventative. It hasn't really eliminated them completely-- I'm not even sure if I can say it cut down on frequency, although I think I have far fewer classic migraines and more regular headaches these days. Anyhow, I'm mentioning it mostly so you have the name of something else that can be prescribed just in case you want to ask your doctor about it.
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maurchclt
Pearl Clutcher
Posts: 3,646
Jul 4, 2014 16:53:27 GMT
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Post by maurchclt on Aug 1, 2014 1:56:07 GMT
Well I had written a long reply hours ago and it's not here, hmmm. Not going to rewrite it, so many other people have said the same thing. I hope you find some relief, migraines are the worst. I have also been on Topomax for years and my migraines are now under control.
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Post by BuckeyeSandy on Aug 1, 2014 1:59:44 GMT
I have auras with my migraines. I greatly reduced the [HASH] of migraines by avoiding aspertame and certain types of light. I do not take a preventative med. I hope you get some help. UV lighting, including CFLs are triggers for me. Back in the late 1970s I was prescribed Cafergot (Cafergot is the proprietary name of a medication consisting of ergotamine tartrate and caffeine) it was somewhat of a help, but I developed a sensitivity to the Ergotamine. I was on Midrin (combination of acetaminophen, dichloralphenazone, and isometheptene) until it went off the market. There is a report that a different manufacturer is restarting making it because of its effectiveness.
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Post by lattemomof3 on Aug 1, 2014 12:00:12 GMT
This might not be related to your case at all, but DD14 was having migraines about 3 times a month, they'd last 10 hours or more, and she definitely had auras, and also one side of her face and arm would go numb. After tons of research and Dr's, we took her to an ENT, she was also getting strep occasionally. Had her tonsils out in Dec and she hasn't had ONE migraine since!! Craziest thing, but we are knocking wood and very thankful. They aren't even sure why it would help w/ the migraines, possibly if her throat was swollen it could be pushing against a nerve, or she may have had chronic strep throat that somehow led to migraines, or her adenoids may have been so big that sufficient oxygen wasn't getting to her brain. She usually got the migraines in the morning. Hope you find help soon, they really are just awful.
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Post by bdawnb on Aug 1, 2014 13:27:59 GMT
I have been taking Topomax for over ten years and haven't had one migraine in all that time. Before that they had become so bad I was getting the auras over and over in the same day. There were some mild side effects in the beginning such as tingling in my toes and fingers like they had gone to sleep and my taste was off a bit with some foods but that is long over. They also have a generic version now so it is much more affordable.
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Post by lbp on Aug 1, 2014 14:55:45 GMT
I take Inderal twice a day and amitriptyline every night. I still have 2-3 migraines every week but they aren't as vicious as they were without any medication. The side effects are weight gain. UGH! I tried the Topamax and it was a nightmare for me. I had every single side effect of the drug and I never have side effects from anything I take. I have also done Botox and it only helps for about a week. I have already gone through menopause, so they aren't hormonal. I guess I'm just stuck with them.
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Post by dawndoll on Aug 1, 2014 15:26:46 GMT
Like lap, I had serious side effects with Topomax. The worst being pancreatitis which ended me up in the hospital for eleven days. Amongst migraine patients it is often nicknamed Dopomax, because of the way it inhibits speech and causes confusion. I also had the side effects of numb face and hands. Thankfully not everyone has those reactions though and it works wonders for some.
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Post by donna on Aug 1, 2014 23:36:22 GMT
oldpea, you should try switching the lightbulbs back and see if that helps since you have stopped the nutrisweet.
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Deleted
Posts: 0
Oct 7, 2024 8:23:25 GMT
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Post by Deleted on Aug 3, 2014 6:23:52 GMT
I feel for you. I have a brain injury + many complications. I label it "migraine" but it's even worse than that. It's gotten worse again (indicator that I need major surgery once again), but here's my list of meds and do's and don'ts:
I see a neurologist to get checked. I don't have caffeine or fake sugar in my diet. I try to avoid wine and hard cheese. I try to avoid strong smells (like perfume). I try to avoid streaming sunshine. I try to avoid loudness.
I have tried Topamax. It messed me up BADLY and I got off of it within a month. I do take Nortriptyline as a preventive Rx. My newest doctor upped my dosage from 10mg to 40mg. I tried that for 3 months with no improvement, so I went back down to 10mg. I used to take Maxalt when my "migraine" hit. It doesn't work anymore. I have a list of Rx's I've recently tried, with no luck. My main, quick daily Rx is Fiorcet. It works pretty well, although I'm getting "migraines" much too often lately.
I'll report back when I see a new Pain Management doctor on Friday. I'm praying they have an answer for me!
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