andi
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Jun 30, 2014 15:46:04 GMT
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Post by andi on Aug 16, 2014 18:19:28 GMT
I had one two days after my son was born in 2011. Not another one until 2013. I've had 4 in the last 3 months and just got done with one 5 minutes ago. I went to a neurologist who said they were caused by caffeine and sent me on my way. I just don't think that's it. My caffeine intake has decreased in the last year so why would they start becoming more frequent?
If you've had them, please share your experiences. They are a scary thing!
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Post by KikiPea on Aug 16, 2014 18:36:32 GMT
My DH has. They can be caused by caffeine, lack of sleep, eye stress...
DH's was due to working on a computer all day. He now has glasses to wear when he is working. Keeps his eyes from straining and getting tired.
So, it could be that for you, or maybe even playing on your phone...I'm having an issue that MIGHT be this as well. I'm on my computer and phone a lot. I have a Dr. Appointment in a coupe of weeks, so I will know more then.
I hope you are able to get some relief and find out what's causing them.
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andi
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Jun 30, 2014 15:46:04 GMT
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Post by andi on Aug 16, 2014 18:42:09 GMT
Thank you!
They still freak me out even though I know what it is. The doc told me as long as they lasted less than 30 minutes that I shouldn't worry. I find myself staring at the clock waiting for it to be over!
Hope everything checks out ok for you!
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Deleted
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Oct 10, 2024 6:21:55 GMT
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Post by Deleted on Aug 16, 2014 18:48:35 GMT
I get them. So does my mom and my son. I always wear sunglasses outside, because the bright sunlight can trigger them for me. Also stress. Caffeine doesn't affect mine at all. My son takes an alleve and goes to bed in a dark room -- he also gets headaches after his vision goes wonky.
They come and go; sometimes more than others. I'm just really glad I don't get the headache migraines.
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moodyblue
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Jun 26, 2014 21:07:23 GMT
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Post by moodyblue on Aug 16, 2014 18:52:02 GMT
I've had a few of them. Very weird experience. Mine last 10-20 minutes, and I think all of them have started when I've been working on the computer for a while. Caffeine wouldn't be the issue for me because I don't get much of that other than the bit that's in chocolate.
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sandy1958
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Jun 26, 2014 15:53:31 GMT
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Post by sandy1958 on Aug 16, 2014 18:59:41 GMT
I get ocular migraines also. Sometimes I go for months without them, I've had 3 this week. Going out into bright sunlight and back into the darker home seems to trigger mine more than anything else. But I do get a headache after them now.
I no longer panic when one hits, but I still hate the experience.
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Post by alexa11 on Aug 16, 2014 19:03:30 GMT
I had my first one when I was pregnant with my oldest daughter-31 years ago- very scary. I still have them and am not sure what triggers them- not caffeine though. I did see a neurologist a couple of years ago- diagnosed them as "ocular migraines". Prescribed Topamax- I felt terrible taking it- would rather wait out the flashing "zig zags".
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Post by Sam on Aug 16, 2014 19:08:35 GMT
Yup - and I'm the idiot who went into the opticians when I had my first, begging for an appointment 'RIGHT NOW' because I was GOING BLIND!! I'm not sure what causes mine, I don't have them too often and there never seems to be anything obvious as a trigger. I don't get headaches with them either, but it's such an uncomfortable experience while it happens.
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scrapaddie
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Jul 8, 2014 20:17:31 GMT
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Post by scrapaddie on Aug 16, 2014 19:10:28 GMT
I am guessing I've never had one... What are they like?
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andi
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Jun 30, 2014 15:46:04 GMT
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Post by andi on Aug 16, 2014 19:10:49 GMT
I have a dull pain in my head now. I hate these things!
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andi
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Jun 30, 2014 15:46:04 GMT
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Post by andi on Aug 16, 2014 19:11:59 GMT
Mine feels like I'm looking through a kalidescope. No pain while it's happening.
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moodyblue
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Post by moodyblue on Aug 16, 2014 19:14:21 GMT
Mine feels like I'm looking through a kalidescope. No pain while it's happening. Yep, very much like a moving kaleidoscope, and you can see the flashing zigzags even when you close your eyes, so there is no escaping it. No headache at the time, but very weird to have your vision affected like that.
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Post by turangaleela on Aug 16, 2014 19:14:50 GMT
I had one of these while pregnant with my youngest kid. My brother and family were visiting from out of state, and I spent the day lying down in my darkened bedroom. Not cool. For me it was just blindness in one eye, but I was terrified (I'd had a brain tumor removed a few years before that made me paranoid about this kind of thing).
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Deleted
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Oct 10, 2024 6:21:55 GMT
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Post by Deleted on Aug 16, 2014 19:16:58 GMT
Mine are like having a moving purple kaleidoscope in the middle of my vision, but I can still see. My son's vision shimmers and blurs and he has trouble seeing anything.
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Post by kryssy on Aug 16, 2014 19:18:44 GMT
I like to throw this out there whenever someone has migraines that focus on the eyes, just because if I can keep one person from going through what I did, it's worth it.
I had what I thought were migraines for over three years. They presented like typical migraines: started with halos around lights, then the pain would start in about 20-30 minutes, usually centralized behind one eye or the other. My vision in that eye would cloud over, and the only way to get relief was sleeping in a darkened room. I also thought they were brought on by eye strain.
The migraines got progressively more frequent, from a few a month to 4-5 a week. Finally I had one that did NOT go away with sleep, and ended up lasting over four days. I finally got the correct diagnosis in the ER -- acute angle closure glaucoma. The pain behind my eye was eye pressure that had severely elevated (when it was tested in the ER, it was over 80, and normal eye pressure is under 20...)
I could have lost the sight in my left eye that day, but I was lucky -- I regained about 80% of it. I had to go through three different surgeries on that eye to try to alleviate the pressure, but it finally worked, and I'm down to yearly check-ups. But the damage to both eyes, from having it go undiagnosed, is extensive.
All this to say: if you have any doubt or concerns, see an ophthalmologist. And have him look specifically for acute angle closure glaucoma -- just testing your eye pressure won't do any good if you're not having an episode (it will present as normal). He should look for scarring behind the eye, evidence that your 'migraines' are originating there.
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Post by kryssy on Aug 16, 2014 19:20:43 GMT
However, if there's no pain associated with the visual disturbances, I would guess it's not glaucoma...
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Post by lindah on Aug 16, 2014 19:29:49 GMT
I found that stress & hormones triggered mine. Since I have gotten to an older age & retired, I don't get the headaches anymore but do still get a visual aura occasionally. They are quite bothersome. Hope you feel better soon!
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pridemom
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Jul 12, 2014 21:58:10 GMT
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Post by pridemom on Aug 16, 2014 19:53:35 GMT
I had one two days after my son was born in 2011. Not another one until 2013. I've had 4 in the last 3 months and just got done with one 5 minutes ago. I went to a neurologist who said they were caused by caffeine and sent me on my way. I just don't think that's it. My caffeine intake has decreased in the last year so why would they start becoming more frequent? If you've had them, please share your experiences. They are a scary thing! Same thing happened to me. First migraine aura was when my third child was three days old. Next on was ten months later when my period returned. Mine are usually linked to hormones, especially estrogen. I took BC pills for three weeks and had a migraine so bad my arm and face went numb. Caffeine isn't an issue with mine. Caffeine actually helps. Mine were diagnosed by eye doctor because I thought my eyes were having problems.
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Post by hjs on Aug 16, 2014 20:32:24 GMT
I have had a few ocular migraines. No pain, just the zig zag vision that obscured my vision to the point I couldn't read or look at anything close up. Generally would lie down in a dark room until it passed, which was typically about 20 - 30 minutes. However, I have not had one for quite a few years now. Reading others posts about these possibly being hormonally related makes me wonder if menopause is the reason for that. I hadn't really put that together before. Seeing how people suffer with painful migraines made me grateful that I *only* had the visual type.
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Post by jojam on Aug 16, 2014 21:33:55 GMT
I used to have them quite frequently, 'regular' migraines, too. I'm on a preventative, and I'm on the pill all the time now to prevent getting my period (even on the preventative, I was still getting migraines when I had my period.) No more migraines, and no more ocular migraines.
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Post by mightyme on Aug 16, 2014 21:38:26 GMT
why are you calling them migraines if their is no pain? I thought maybe you were referring to the pain behind the eye. I have gotten that 3 times this week. The only thing that works is imitrex. DH gets tunnel vision when he stops caffeine.
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Post by peasapie on Aug 16, 2014 21:43:34 GMT
I get cluster migraines. I'll get several over a period of several days, all in the inner corner of my eyes. Then I dint get them for several months, and eventually they start again. Top amaz isn't very helpful, since they're cyclical. Inhaling oxygen sometimes breaks the cycle foe me. I take for a plus 3 Advil to help manage them during the cycles.
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purplebee
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Post by purplebee on Aug 16, 2014 21:45:40 GMT
I get them too, more frequently while going through menopause, but occasionally now. Can't figure out a trigger, but if I sense any kind of visual disturbance before the aura becomes full-blown, a coke/cup of tea/coffee and a couple of advil will help make the resulting headache bearable.
I too freaked out the first time I had the aura, thought I was having a stroke, and went to the doctor. I get about 22 minutes of visual stuff, first a "hole" in my vision, then the flickering, fragmented backwards-C-shaped aura. Headache after the aura dispels. They are unpleasant, but I am thankful that I don't have severe migraines like some folks. Oh and sometimes I get a migraine hangover, can't think straight or sometimes my speech is a bit impaired. It's all a chemical thing in your brain, not fun at all.
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Deleted
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Oct 10, 2024 6:21:55 GMT
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Post by Deleted on Aug 16, 2014 21:49:10 GMT
Yes. Mine are hormonal mainly. They are annoying but not as bad as full blown puking migraines. Ugh. I never had migraines until I turned 40.
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blueviolet
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Jun 30, 2014 1:49:40 GMT
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Post by blueviolet on Aug 16, 2014 22:32:46 GMT
why are you calling them migraines if their is no pain? Because they are called Ocular Migraines. I've had one, it happened when I was driving and had to pull over into a parking lot until I could see clearly again. It was a very strange prismatic flashing zigzag circle the grew over my field of vision, and was present even with my eyes closed. I was worried that it was something really serious, but I googled it when I got home and found out that it's nothing to worry about. Thankfully, there was no pain involved. It's been several years since my episode and it's never happened again. So strange!
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Post by tinafb on Aug 16, 2014 22:37:42 GMT
I've had them when I've had to take a specific antibiotic. I guess it's some kind of allergic reaction. The last time, I thought I was having a stroke or something! I won't take that antibiotic anymore.
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Post by tuva42 on Aug 16, 2014 22:38:27 GMT
Mine happen when I am not taking good care of myself. If I eat junk food, don't exercise, stay up to late, things like that, I end up with an ocular migraine. Lasts about 20-30 minutes, but leaves me feeling a little washed out afterwards.
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pridemom
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Jul 12, 2014 21:58:10 GMT
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Post by pridemom on Aug 16, 2014 22:39:17 GMT
why are you calling them migraines if their is no pain? I thought maybe you were referring to the pain behind the eye. I have gotten that 3 times this week. The only thing that works is imitrex. DH gets tunnel vision when he stops caffeine. There are several types of migraines www.headaches.org/educational_modules/completeguide/migraine2.html
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moodyblue
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Post by moodyblue on Aug 16, 2014 22:51:00 GMT
I think people are confusing ocular migraines with the visual aura that can precede a migraine headache - NOT the same thing. I don't get a headache with these, either during or after the kaleidoscope vision effects. These are a different kind of migraine.
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Post by lumo on Aug 17, 2014 0:30:38 GMT
I get an actual headache (migraine?) in my eyeball...well, right behind it. I had one yesterday, in fact. It's the WORST. I have no auras or anything like that, just sheer pain like someone stabbing me in the eye. It sucks.
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