shawallapea
Full Member
Posts: 108
Jun 28, 2014 21:28:33 GMT
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Post by shawallapea on Mar 26, 2017 17:50:49 GMT
I have the option for several courses of action for my female trouble. I have a fibroid (not tiny, not huge), heavy, HEAVY monthly bleeding, in between bleeding and severe cramping, intestinal and other physical manifestations. I have one OBGYN that will do either an IUD (with Progesterone) or a Novasure. She did not submit for approval of a hysterectomy. I have another OBGYN that submitted for the hysterectomy and it was approved. I don't want to be invasive with my body but my everyday life is altered by what is going on. I have very little sick time accrued because I have to use 2 days per month because my bleeding and pain is so bad. I want a resolution. I'd just really like feedback about YOUR experience with any of the above. I am not wanting more children. I have had two C-sections so I do have a few extra risk factors. Just curious as to what you'd personally recommend. The pea collective has never steered me wrong  |
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Post by monklady123 on Mar 26, 2017 18:08:26 GMT
A hysterectomy was one of THE best things that ever happened to me. Totally. No regrets ever.
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theshyone
Pearl Clutcher
Posts: 3,458 
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Post by theshyone on Mar 26, 2017 18:13:27 GMT
Ten years ago I had to chose between the ablation or a hysterectomy. Due to my age and work issues it was decidedly to get the ablation. It worked wonders no period for ten years, except when I was on high blood thinner doses. Now I'm starting to have issues, and it's hard to determine what's going on. I just kind of wish I had had the hysterectomy and been done with it.
Good luck.
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Post by leannec on Mar 26, 2017 18:14:17 GMT
I've had two c-sections and a hysto ... My periods, in my 40's, were turning into crime scenes and the cramps were terrible  They hysto was the best decision for me  I absolutely LOVE not having a period  |
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shawallapea
Full Member
Posts: 108
Jun 28, 2014 21:28:33 GMT
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Post by shawallapea on Mar 26, 2017 18:19:58 GMT
Hysterectomy 3, Novasure none lol. I've read some information about how blood can be trapped between the scar tissue left behind by the Novasure and the remaining endometrial lining. Sounds awful to me.
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melissa
Pearl Clutcher
Posts: 3,912
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Post by melissa on Mar 26, 2017 18:37:55 GMT
Here's the question to ask that I don't see covered above. Your bleeding appears to be from a fibroid. You also have pain. Can the fibroid be resected hysteroscopically? That is another option and it is not covered by the ablation alone. Some of your symptoms will definitely be cured by an ablation, no question. Only your docs would have a good grasp on this because they've examined you and seen the imaging studies.
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shawallapea
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Posts: 108
Jun 28, 2014 21:28:33 GMT
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Post by shawallapea on Mar 26, 2017 18:41:10 GMT
Melissa, neither have talked about resecting the fibroid.
Out of curiosity, what kind of potential negative side effects could be reasonably possible with a hysterectomy? |
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carhoch
Pearl Clutcher
Be yourself everybody else is already taken
Posts: 3,115
Location: We’re RV’s so It change all the time .
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Post by carhoch on Mar 26, 2017 18:43:51 GMT
I had a hysterectomy with the Davinci robotics method and 2 weeks later I was in New Orleans on vacation it was awesome, they did four little incision I had very little discomfort if your insurance cover it ,go for it .
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Post by donna on Mar 26, 2017 18:49:47 GMT
shawallapea I had a hysterectomy due to fibroids in 2009. I had a c-section in 1990 and had adhesions between my bladder and uterus due to the c-section. My bladder was damaged during the hysterectomy and I developed a fistula which took several surgeries over the next year to fix. Even with that awful complication, I have never regretted the hysterectomy because my life was horrible during my periods. Other things to consider is the increase risk of prolapse of the bladder and intestine due to the absence of your uterus. I highly recommend a site called hystersisters to find out info. I always think it is important to be educated about what can happen with a procedure.
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Post by darkangel090260 on Mar 26, 2017 18:53:59 GMT
It has taken 2 years for my IUD to stop my cycles. When i first got it in i had a 3-4 month cycle never stopped. Been trying to get hysterectomy but no one will do it since there is no medical need.
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Post by freecharlie on Mar 26, 2017 20:19:59 GMT
I have the mirena IUD and haven't had a period since getting pregnant with my youngest. It has been 13 years. Nothing better than not having a period.
If a hysterectomy is an option, it might be a good one. For the IUD you have to get a new one every 5 years and who knows if it will be covered by insurance the next time you need one. A hysto is a one time deal.
If you don't mind the surgery and there aren't any other complications, I think I would go that route.
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Post by 950nancy on Mar 26, 2017 20:25:19 GMT
My fibroid was the size of a cantaloupe. I had a hysterectomy because was bleeding all of time. Best decision ever.
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Post by Eddie-n-Harley on Mar 26, 2017 20:41:51 GMT
I have not had any of the procedures you're mentioning.
What struck me is this talk of "submitting" for approval for a hysterectomy, and I'm not sure if that means you're in the US and had it submitted to insurance, or if you're in the UK/Canada/other socialized medicine country where you submitted because it just takes that long to get the okay to have the procedure.
Either way, you might ask either or both of those doctors about whether, should you choose the IUD or other less invasive path, you are likely to need the hysterectomy anyhow.
Personally, if there was a chance I would need the hysterectomy anyhow, I might opt for it now while I had an approval rather than waiting and having to get reapproved later. Especially if you're in the US, because I feel a little like insurance policies will kind of be in flux the next few years.
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Post by monklady123 on Mar 26, 2017 21:01:38 GMT
Melissa, neither have talked about resecting the fibroid.
Out of curiosity, what kind of potential negative side effects could be reasonably possible with a hysterectomy? My doctor told me that many -- I kind of think she said "most", but don't quote me because it was a long time ago -- complications are caused by women who feel great and try to do too much too soon. Externally you may be feeling good but there's a lot that needs to heal internally also. I never had any problems after the surgery but then again I was happy to follow her advice. As for side effects afterwards...well it does put your body into menopause immediately. But depending on your age you might have been in peri-menopause anyway, so it might not be a huge shock. Personally I had a few hot flashes at night but very quickly that passed and I never had any other side effects. I had both ovaries out also, and can't take hormone replacement because I've had breast cancer. But I feel great and have no health problems, at least none caused by lack of uterus/ovaries. Best decision ever. |
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Post by bessieb on Mar 26, 2017 21:12:43 GMT
I really don't know the right answer - I have heard of great success stories for mirena and ablation but they have made the last 3 years of my life a total misery. Mirena made no difference at all - still crime scene every month and my 12 year old is now terrified of her periods starting as she thinks the same will happen to her! The ablation made a little difference , less bleeding but the pain- have never had pain like it- I am physically sick with it and it radiates into tops of my legs like sciatica. All I can do is take max dose pain killers and curl up for 10 days. They have now finally decided to do a hysterectomy and I am on the waiting list , but this winters bed crises has added months to the waiting list, so maybe July if there is a cancellation or the autumn. So if I had a choice it would be hysterectomy! Hope your decision is the right one for you.
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shawallapea
Full Member
Posts: 108
Jun 28, 2014 21:28:33 GMT
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Post by shawallapea on Mar 26, 2017 21:13:29 GMT
I am surely in perimenopause now.
As for "submitting" I am indeed in the US and it was to my insurance company. I certainly would prefer to leave my ovaries in place. I don't think I have any reason to have them removed unless they get in there and decide it's necessary.
And a fibroid as big as a cantaloupe??? You poor thing! Mine is apparently on the small side. However, my uterus and lower back ache all the time and when I am having my period it is downright unbearable. I can't imagine one that big!
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Post by monklady123 on Mar 26, 2017 21:17:12 GMT
I am surely in perimenopause now. As for "submitting" I am indeed in the US and it was to my insurance company. I certainly would prefer to leave my ovaries in place. I don't think I have any reason to have them removed unless they get in there and decide it's necessary. And a fibroid as big as a cantaloupe??? You poor thing! Mine is apparently on the small side. However, my uterus and lower back ache all the time and when I am having my period it is downright unbearable. I can't imagine one that big! I had my ovaries out because it was one less thing to worry about in terms of cancer. And ovarian cancer is pretty sneaky and is often found only when it's progressed pretty far. So I just figured let's get all that out. |
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