mimima
Drama Llama
Stay Gold, Ponyboy
Posts: 5,020
Jun 25, 2014 19:25:50 GMT
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Post by mimima on Jan 10, 2019 17:38:27 GMT
Prayers, my dear. I'm so sorry
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wellway
Prolific Pea
Posts: 8,769
Jun 25, 2014 20:50:09 GMT
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Post by wellway on Jan 10, 2019 18:36:36 GMT
elaine. Please know that you and your family are still in my thoughts. Hoping you find a solution that helps you all.
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used2scrap
Drama Llama
Posts: 6,036
Jan 29, 2016 3:02:55 GMT
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Post by used2scrap on Jan 10, 2019 19:05:55 GMT
Just wanted to let you know that your son, you, your family, and all those struggling with a mental health crisis are in my thoughts. Peace to you as you stay the course as well as possible.
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Post by mellyw on Jan 10, 2019 19:45:43 GMT
I am so sorry, Elaine. I will keep you all in my thoughts.
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Post by quietgirl on Jan 10, 2019 20:24:50 GMT
I'm very sorry. I'll be praying for your son, you and your family.
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J u l e e
Drama Llama
Posts: 6,531
Location: Cincinnati
Jun 28, 2014 2:50:47 GMT
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Post by J u l e e on Jan 10, 2019 20:29:11 GMT
I think about you and Eli every day. (((HUGS)))
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Post by kristi on Jan 10, 2019 22:01:39 GMT
Elaine, I am so sorry for you and your family.
Thinking of you and hoping they find a bed for him while they get his medications figured out.
{HUGS}
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Post by gmcwife1 on Jan 10, 2019 22:22:03 GMT
I'm sorry you are still struggling with this and have not been able to find the right help for your son I know how hard mental illness is and how hard it is to get the help we need
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Montannie
Pearl Clutcher
Posts: 3,486
Location: Big Sky Country
Jun 25, 2014 20:32:35 GMT
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Post by Montannie on Jan 10, 2019 23:22:34 GMT
I am just reading this now. I am so sorry for your current difficulties, Elaine. I hope things are resolved with a placement opening up.
Your poor boy.
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Post by crazy4scraps on Jan 11, 2019 0:46:38 GMT
Still keeping your family in my prayers and hoping you are able to find a better long term solution. Hugs to you all—
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PaperAngel
Drama Llama
Posts: 7,360
Jun 27, 2014 23:04:06 GMT
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Post by PaperAngel on Jan 11, 2019 1:14:34 GMT
(((hugs))) My thoughts & prayers are with you, your son, & family. Your son is fortunate to have you in his corner advocating for him & his mental health needs. Please also take care of yourself. (((hugs)))
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Post by marmargirl on Jan 11, 2019 1:36:12 GMT
Sending love and prayers to your son. I am so sorry for your family’s struggles for something that should be a basic human right. Eli has the right to the best mental health care possible, and the powers-that-be have failed him.
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Post by jeremysgirl on Jan 11, 2019 4:09:27 GMT
Elaine, I just want to hug you. This breaks my heart. And it irritates me so much that your son will most likely be discharged without being ready and a clear plan. It just stinks. All the way around. You are in my prayers.
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TheOtherMeg
Pearl Clutcher
Posts: 2,541
Jun 25, 2014 20:58:14 GMT
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Post by TheOtherMeg on Jan 11, 2019 5:57:03 GMT
Sending hugs and positive vibes to you, Eli, and your family, elaine.
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Post by lesserknownpea on Jan 11, 2019 8:44:18 GMT
This has touched my family also. It’s so heartbreaking and frustrating. In my sister’s case, she was inpatient for 2 weeks, and came out worse and on even more meds than when she went it.
You will be in my prayers.
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Deleted
Posts: 0
May 19, 2024 4:37:06 GMT
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Post by Deleted on Jan 11, 2019 14:31:13 GMT
Sending love today to you and your family.
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scrappinghappy
Pearl Clutcher
“I’m late, I’m late for a very important date. No time to say “Hello.” Goodbye. I’m late...."
Posts: 4,306
Jun 26, 2014 19:30:06 GMT
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Post by scrappinghappy on Jan 12, 2019 0:19:31 GMT
Thinking of you elaine. Hoping Eli is finding a better and calmer place within himself and that you can find a good fit place to help him.
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Post by iamkristinl16 on Jan 12, 2019 0:36:28 GMT
elaine How are you doing? Just wanted you to know that I'm still keeping you and Eli in my thoughts. Thank you for thinking of us and asking. I hate to complain, and it has been rough, so I don’t write much. I continue to spend hours a day talking on the phone looking for a placement, fighting for a Medicaid developmental disability waiver to help cover help in the home, and talking with the people at the state hospital who are working with him. To be honest, I have never cried so much in my life - multiple times per day. Having cancer last year and all the surgeries and chemo was a walk in the park emotionally compared to this. We are taking it day-by-day and trying to prepare for the fact that Eli will most likely be discharged from the state hospital next week, before another bed opens up in a private facility, so we will have him home again before all the meds are worked out. The state hospital is tapering him off of most of the meds he is currently on, and I am somewhat fearful of what will happen with him home and not on any atypical antipsychotics. But, we will take it one day at a time. I am sorry that someone felt the need to label this as political, as it is something that is universal, not limited to political party. If (general) you think you will not be personally affected by the state of mental health care in our country, G-d help you when you find yourself face-to-face with trying to find help for a family member, or if one of your family suffers the consequences of coming in contact with a mentally ill person who is insufficiently treated. The frightening thing to learn is that even with excellent health insurance and a middle class income, the actual beds/places for mentally ill teens simply do not exist. We can’t buy our way into any place for these types of issues - if he was nuerotypical and had substance abuse issues, no problem finding a place - but being both intellectually disabled and having autism means that the beds for the whole state are minuscule. The only way that $$$ would make a difference would be if we were multi-millionaires who could hire our own psychiatrist and half a dozen full-time staff. I am devastated for families who have less resources - health insurance and $$ - than we do. Not that our insurance has made any difference so far. I'm sorry you are still trying to find a place for your son. That has to be so stressful. Unfortunately, the funding for hospitalization and higher level of mental health care has gone away, and so have the beds and treatment facilities. Finding care is difficult no matter the type of insurance, but my experience with clients has been that Medicaid often covers more than private insurance.
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Post by refugeepea on Jan 12, 2019 2:20:14 GMT
elaine I'm so sorry you are going through this and I probably will in a few years with my son. ((hugs)).
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Post by Spongemom Scrappants on Jan 12, 2019 2:47:52 GMT
We are taking it day-by-day and trying to prepare for the fact that Eli will most likely be discharged from the state hospital next week, before another bed opens up in a private facility, so we will have him home again before all the meds are worked out. The state hospital is tapering him off of most of the meds he is currently on, and I am somewhat fearful of what will happen with him home and not on any atypical antipsychotics. But, we will take it one day at a time. As the days unfold, I hope some avenue of help opens for Eli. Please keep us posted. We care.
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Post by bc2ca on Jan 12, 2019 2:54:14 GMT
Thinking about you and your family tonight, elaine.
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J u l e e
Drama Llama
Posts: 6,531
Location: Cincinnati
Jun 28, 2014 2:50:47 GMT
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Post by J u l e e on Jan 12, 2019 13:31:53 GMT
Praying for Eli this morning. And wrapping you in a big hug, sister. You're in my thoughts throughout the day.
Please be extra good to yourself and take care of your health too.
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wellway
Prolific Pea
Posts: 8,769
Jun 25, 2014 20:50:09 GMT
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Post by wellway on Jan 13, 2019 11:30:06 GMT
You are all still in my thoughts. Hope a corner is turned very soon.
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Post by gar on Jan 13, 2019 11:44:40 GMT
Hoping you can find some good answers soon.
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AmeliaBloomer
Drama Llama
Posts: 6,842
Location: USA
Jun 26, 2014 5:01:45 GMT
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Post by AmeliaBloomer on Jan 13, 2019 14:03:23 GMT
Ack. This is the second important thread I just read, both missed because my “attendance” here has been spotty lately. It’s so deflating to read to the very end and learn everything is still uncertain...and you are absolutely right about the fundamental policy cause of this epidemic of uncertainty and roadblocks. Thinking of you and Eli - and your husband and other son - and hoping for a good treatment outcome. Please remember to eat. And try to sleep! Easier said than done, I know. God G-o-d speed.
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Post by elaine on Jan 13, 2019 14:30:02 GMT
Thanks again, everyone. Believe it or not, we are still working on finding him a bed in an appropriate facility. I continue to talk with many people of the phone on the weekdays - only Eli yesterday and later today.
He is off most of his meds and sounds somewhat manic when I talk to him each day - but his violent outbursts have been fewer there. He continues to go to school there. He may actually have classes there tomorrow, unlike here where all the schools will have a snow day tomorrow.
The only glimmer of good news is that they are reviewing our application for a DD Medicaid Waiver again for a new slot. We’ve been on the waiting list for 6 years now and with my cancer and his increased violence, we all were certain that we would finally get one this year. Unfortunately, we found out around Thanksgiving that we were turned down again. I am in the process of appealing that decision - but they don’t make it easy and give you absolutely no information about why you were turned down. All of us working with Eli are hoping that the appeal will be unnecessary and that we will finally get a slot. That will provide the funds to have someone come regularly to our home to work with Eli and to provide us with occasional respite.
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Post by LavenderLayoutLady on Jan 13, 2019 15:14:25 GMT
Thank you for checking in, elaine . I hope the waiver comes through this time. Just know you and Eli are in our thoughts every day. (((Hugs)))
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Post by 16joy on Jan 13, 2019 16:15:26 GMT
I truly hope Eli receives the help he needs and can return to you in a much better place. I also hope you can get yourself in a good place because I'm sure you're sick with worry, tired and trying to recover from your Cancer. You truly have so much you're trying to juggle. Should you find a placement in Atlanta I would be happy to visit your son if you wanted. I pray for health and peace for your family.
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TankTop
Pearl Clutcher
Refupea #1,871
Posts: 4,775
Location: On the couch...
Jun 28, 2014 1:52:46 GMT
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Post by TankTop on Jan 13, 2019 16:40:49 GMT
Huge hugs to you Elaine.
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Jili
Pearl Clutcher
SLPea
Posts: 4,363
Jun 26, 2014 1:26:48 GMT
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Post by Jili on Jan 13, 2019 16:47:13 GMT
Elaine, somehow I have missed this thread. I’m not sure how. I’m horrified and so sad that you have been going through this to try to get some appropriate help for your son. I am thinking about all of you and hoping for the outcome that would be best for him and for your family.
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