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Post by saralovesducks on Oct 20, 2015 16:57:26 GMT
So glad to see you are keeping your spirits high and that feisty personality of yours! Hope you get to go home soon.
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FurryP
Drama Llama
To pea or not to pea...
Posts: 6,976
Site Supporter
Jun 26, 2014 19:58:26 GMT
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Post by FurryP on Oct 20, 2015 22:55:21 GMT
Prayers for this to be over soon. Good to read you are in generally good spirits. Prayers for those that love you, too.
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Post by merry on Oct 21, 2015 12:37:21 GMT
I hope the day you get released you have beautiful fall scenery waiting you! Since you are a crafty person, have you had anyone bring in a cross-stitch project for you to do? Stitching is such good mental therapy and there are so many cute holiday projects out there. Can you get UPS packages delivered to your hospital room? I think I would get a lot of use out of my Amazon prime if stuck away from home. You managed to make us smile even when talking about your hair loss! You are awesome and your spirit shows through! Leukemia doesn't stand a chance! Hugs!
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oaksong
Drama Llama
Posts: 6,164
Location: LA Suburbia
Site Supporter
Jun 27, 2014 6:24:29 GMT
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Post by oaksong on Oct 21, 2015 13:22:46 GMT
Hang in there! You have a great attitude. Thanks for keeping us up to date. Hugs...
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Post by aggiebonfire00 on Oct 21, 2015 18:52:21 GMT
I'd be excited about not having to shave my legs too! I love your sense of humor in the midst of this! You are awesome! I have been thinking of you and praying for you daily. If you want us to flood your hotel with cards to decorate your walls, let us know! I can make one to include a paperclip! Sending you big hugs!!!
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Post by meganliane on Oct 22, 2015 3:14:01 GMT
Thanks for popping in and letting us know how you are! I am with you and the no shaving (just like aggiebonfire00). I also sometimes wish I could shave my head - or even go short but I have naturally curly hair and I don't want to go back to my fro days like kindergarten - I have a feeling I would not look like Keri Russell in Felicity - more like Ronald McDonald. I bet it feels weird to have your head shaved but just think how quick showers will be I am glad you are finding the humor in it and picking yourself up. There will always be bad days but picking yourself back up is the most important part! I will continue to keep you in my prayers.
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Post by DinCA on Oct 22, 2015 3:36:55 GMT
I hope you're able to leave the hospital soon! We miss you around here!
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Post by marie on Oct 22, 2015 3:41:36 GMT
I've been thinking of you and it was good to see your update. Continued prayers and positive thoughts coming your way.
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Post by abr79 on Oct 27, 2015 19:50:10 GMT
Hey all! Thought I'd give you another update. I've officially entered the "I'm. Effing. DONE. " stage of all this. Tomorrow will be a month that I've been here. My white blood count is taking it's sweet ass time getting to the levels it needs to be at for me to go home.
On top.of that, this past week has been hellacious. My allergies started acting up (its so dry in here) and also riled up my sinusitis. My spleen still.hurts. Then I started getting a headache (from the allergies, PMS, and just.not sleeping or eating well). Unfortunately, my liver is angry because.of all the chemo and other medicines so.i can't have Tylenol. And I can't have ibuprofen because my platelets are too low. They keep trying to offer hydrocodone...which actually makes headaches worse since it's an opiate. I was ready to throw my IV pole at the next person who offered it. The only things that provide temporary relief is having a steam in the bathroom, a shower or some Pepsi.
Oh, and to top it all.off, my period started on Sunday. And because of those damn low platelets, it's one of the worst periods I've had since having my son.
The bed sucks - it's one of those high tech ones that inflate and deflate off an on to help bed ridden people not get bed sores. Genius, right? Oh, but you can't stop.it for people who are mobile and need to freaking sleep without sinking.into the bed frame every 5 minutes.
I hate complaining. And made.it a good 3 weeks without doing so. But dammit...I'm done and I want out of here. The oncologist keeps telling me any day but I'm starting to think she's just saying that.
Hopefully my.next update will.contain good news and will be posted from my bed at home!!!
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AmandaA
Pearl Clutcher
Posts: 3,502
Aug 28, 2015 22:31:17 GMT
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Post by AmandaA on Oct 27, 2015 20:02:49 GMT
Don't blame you one bit for being over it!
About the bed- can they not accommodate you with a regular hospital bed? I am sure those are pricy enough that not every room in the hospital has one. Maybe if you could explain to a charge nurse or unit manager (or even the md) that lack of sleep is part of the headache problem, they might be willing to swap out the bed? A good nights sleep would be good for your body in so many ways.
Hang in there! You have made it so far!
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Post by kellyv on Oct 27, 2015 20:10:27 GMT
abr79oh, girl! i hit like just after getting to the 'i'm effing done part' thinking that you were outta there! i definitely don't like what you are going through. i don't have any words other than we are praying for you and cheering you on from the sidelines. prayers for platelets, as it were, because i can't think that there would be anything better for you at this point than being in your own home and your own bed. hang on, hang on tight.
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Post by elegantsufficiency on Oct 27, 2015 21:03:26 GMT
wishing you a bucketload of strength and patience to get you home sooner rather than later!
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Post by DinCA on Oct 28, 2015 4:11:07 GMT
I don't blame you! I give you a heck of a lock of credit for making it a month before being "effing done"! Maybe it's because you're feeling better? Let's hope your restlessness is because your white blood count is finally starting to return to an acceptable level!
Hang in there! You're too feisty not to beat this! Big hugs!!!
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Post by verabmueller on Oct 28, 2015 12:49:21 GMT
I'm new to the forum so first up, hi everyone. And abr79, I definitely missed you over at the SC message boards! My heart breaks for you with what you are going through at this time. I want to send you my love and best wishes and pray for your quick recovery xo
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Post by Flibbertigibbet on Oct 28, 2015 13:01:43 GMT
You have every right to complain. Hang in there. Before you know it you will be heading home. Sending you healing thoughts and prayers!
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Post by acd on Oct 28, 2015 15:53:37 GMT
I'm with DinCA - Your feistiness is back! That must mean your body is in fight mode. Vent away, honey! That's what we're here for!
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Post by southerngirl on Oct 28, 2015 18:48:46 GMT
You have been in my prayers. I hope the end of your hospital stay is just around the corner and that you'll be home again very soon!
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Post by katemac on Oct 28, 2015 19:01:46 GMT
I hope you get out of there soon!! I think it would make anyone crazy! Thinking of you, hoping for good news!
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Post by mrsshampoo on Oct 28, 2015 20:17:36 GMT
Thinking of you...
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nylene
Drama Llama
Posts: 6,472
Jun 28, 2014 14:59:59 GMT
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Post by nylene on Oct 28, 2015 20:27:42 GMT
Sending virtual hugs and wishes for some good sleep. Thinking about you often.
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AmandaA
Pearl Clutcher
Posts: 3,502
Aug 28, 2015 22:31:17 GMT
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Post by AmandaA on Oct 31, 2015 16:01:38 GMT
abr79How are you feeling? Hoping seeing you more on the boards the past few days is a good sign!
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Post by acd on Nov 2, 2015 18:07:55 GMT
Thinking of you and hoping you're home.
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Post by abr79 on Nov 2, 2015 18:48:56 GMT
Hi all! No, unfortunately, I am not home yet. And, truthfully, I have entered the really angry stage about it. There's absolutely nothing I can do to help my white cells get to where they need to be. Nothing. Except "stay positive!" While I appreciate people trying to help me see the bright side, I'm kind of over it. I just want to go home.
However, on the bright side (uuuggghhh), my spleen feels better. So, yay?
That's all I got today.
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Post by aggiebonfire00 on Nov 2, 2015 20:17:46 GMT
UGH! abr79, I am so sorry to hear that your white cells are being assholes and keeping you from getting out of there. I would totally be angry too! I'm glad to see you posting today. That's a positive for me! Thanks for checking in and I'll be praying for you. And those asshole white cells!
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Post by elegantsufficiency on Nov 2, 2015 22:42:58 GMT
I'm kind of over it. I just want to go home. So frustrating for you to have to wait this one out for even longer - you sound so fed up with it all. Sending a(nother) bucketload of patience and instructing those white cells to get themselves sorted out immediately in the sternest English Schoolmistress voice I can muster!
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Post by anniefb on Nov 2, 2015 22:57:55 GMT
Ugh so sorry to hear your white blood cells aren't cooperating ;( I'd be angry as well! Sending you lots of positive thoughts and prayers that you'll be home real soon.
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Post by flashysoupcan on Nov 3, 2015 1:58:19 GMT
Well, that's a bummer. We need to find you a white cell weeble wobble punching bag for your room.
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Post by marie on Nov 3, 2015 2:25:25 GMT
Thinking of you! Continued prayers that your white blood cells cooperate and that you are home soon!
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oaksong
Drama Llama
Posts: 6,164
Location: LA Suburbia
Site Supporter
Jun 27, 2014 6:24:29 GMT
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Post by oaksong on Nov 3, 2015 2:33:52 GMT
Sorry to hear you're still in the hospital. I don't blame you for being angry. Stay strong! Ill be thinking positive thoughts for you.
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Post by katemac on Nov 3, 2015 2:44:19 GMT
Hugs! Was hoping you were home by now! Sending positive thoughts!!
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