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Post by pierkiss on Jul 30, 2016 20:26:53 GMT
Yes, we did both PGS testing (looking for chromosome issues--this is where we learned the gender), and PGD (looking for my BRCA mutation, so we could choose an embryo that did NOT have my mutation). We ended up with a single embryo that was chromosomally normal, and we transferred her knowing that she DOES have a BRCA mutation. My heart is at peace about that because I know we did everything humanly possible to prevent passing the mutation on. It is either this girl or no biological child for me. Holy shit, we're supposed to be happy about your pregnancy? How fucking selfish of you to implant an embryo that if born, has an 85% chance of getting breast cancer! You might as well chop off her breasts as soon as they are developed. The amount of well-wishers on this thread is disgusting. "It's either this girl or no biological child for me" I think if there is a God, he was trying to tell you that you shouldn't have a biological child. And yet here we go. I wish your DD the best. You, not so much. ETA: oops. My bad. It's an 88% chance. I just read your other thread on this issue. You had all sorts of testing done to "weed out" the embryos with genetic issues. When this was the last embryo left, you said fuck it. You said you will build the family that you want to have. You and your husband and your doctors are so fucking irresponsible. This is on the level of Octomom. It's truly mind-boggling that anyone thinks this is a good idea. But hey, I never thought anyone would vote for Trump either. Holy shit. That is easily the absolute worst thing you have ever said to another person on this board. How fucking hateful and miserable are you in your own life to lash out at a complete stranger like that? In this moment, I think you are one terrible human being.
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RedSquirrelUK
Drama Llama
Posts: 6,921
Location: The UK's beautiful West Country
Aug 2, 2014 13:03:45 GMT
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Post by RedSquirrelUK on Jul 30, 2016 20:31:22 GMT
PNWMom One toxic individual with a warped outlook on human life and well-known history of unnecessary vitriol has responded predictably negatively. She doesn't deserve any explanation or justification, only an add to the ignore feature. I bet she is the single most ignored member of this board. Her post on this thread is probably the most poisonous example that I've read yet. The other 5 pages of responses have been positive, sympathetic and encouraging. Swallow the good soul-food and spit out the poison. :
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Post by pierkiss on Jul 30, 2016 20:33:09 GMT
. [/quote]I'm sure you'll be thrilled to hear that my IVF was unsuccessful and I will never have a biological child.
I have been on 2Peas/refugees for 15 years now and your post was the single most hateful thing I have ever come across. Thanks for that[/quote]
OP, I'm so sorry for your loss. (((Hugs)))
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pridemom
Pearl Clutcher
Posts: 2,843
Jul 12, 2014 21:58:10 GMT
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Post by pridemom on Jul 30, 2016 20:37:14 GMT
I am so sorry. Heartbreaking. Yubon, do you have no self-control at all? Wow.... She never has and she never will. Why does she keep getting passes on her abominable behavior? Would any of you be friends in the real world with this type of person? She has clearly shown year after year that she has no heart and no soul. Yes...she is good to animals. Big effing deal when she treats humans with such disdain. She carefully chooses her words to reach the maximum cutting effect to your heart. . I will never understand why some P's give Yubon passes when she is so horrible in her treatment of people. I truly pity her miserable existence. She claims to be so happy, yet only miserable people lash out and attack others. The older I get, the more I believe all mean girls need a wake up call like Regina gets in Mean Girls. Maybe getting hit by a karma like the bus will make them see how horrible they are, maybe not, but I squeal with glee every time I see it happen.
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TankTop
Pearl Clutcher
Refupea #1,871
Posts: 4,839
Location: On the couch...
Jun 28, 2014 1:52:46 GMT
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Post by TankTop on Jul 30, 2016 20:51:56 GMT
I am so sorry for your loss. Be gentle and easy on yourself. Also, thank you for sharing your story.
Looking forward to celebrating with you soon.
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Post by auntkelly on Jul 30, 2016 20:59:28 GMT
I am so very sorry for your loss.
Thank you for sharing about your BRCA mutation. Your post was very informative.
I'm so sorry you are dealing with this issue.
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marimoose
Pearl Clutcher
Posts: 3,282
Jul 22, 2014 2:10:14 GMT
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Post by marimoose on Jul 30, 2016 21:10:49 GMT
On the one hand, I don't owe anyone any explanations. On the other hand, though, maybe a drop of education will find it's way into the asshole making the appallingly judge-y statements. I have a BRCA mutation. I found it because I had cancer at 35. I had breast cancer. I consider any cancer that doesn't kill you to be a pretty 'good' cancer, but the cancer *I* got was actually pretty bad. Very fast growing, and without the hormone markers typically found in breast cancers, that helps guide which chemo you can use to kill it (if you need chemo at all). I had to do 20 rounds of 3 different chemos. One of which is nicknamed 'red death', because it makes your body fluids bright reddish orange, and it kills your heart over time (they keep a very close look and there is a specific lifetime limit to how many doses you can get--I made it up to 25%). I had bilateral mastectomies, which showed one large tumor (the one I could feel, that made me go get a mammogram), one smaller one in my armpit, and a 4x5cm field of tiny tumor too numerous to count. Basically, a little grenade waiting to explode. Not the highlight of my life, but I got through it just fine. Other than my ovaries getting killed in the process, I have zero ongoing issues. I allowed cancer to consume my year (2013), but it does not define my life. I am happy. I am healthy. I am living a great life. I have a wonderful husband, a great job. I live in a beautiful city (Seattle); own my own home and am set to retire early at 59 1/2 and travel the world with my husband. I am pretty happy that I exist. With or without my BRCA mutation. I have 2 sisters. One has my BRCA mutation. One has a different BRCA mutation (we won the genetic lottery--extraordinarily uncommon, but both of my parents had BRCA mutations in their families). My sisters have 4 kids between them. They may or may not have passed on this BRCA mutation. Won't know until the kids are tested at age 25. I have one brother. He has not been tested for BRCA mutations. He has three little girls. They may or may not have BRCA mutations. My siblings and I are all happy to be here. My mom has my BRCA mutation. She is 61. She never would have known about this mutation except that I ended up with cancer. She is pretty happy to exist--BRCA mutation or not. Her 6 brothers may or may not have BRCA mutations. Her mother or father have BRCA mutations. My grandmother is 89. No idea if she has a mutation or not (50/50 chance). She is pretty happy to exist. Angelina Jolie has a BRCA1 mutation, just like me. She has biological children. They may have BRCA mutations. There are literally tens of thousands (if not more) of people out there with BRCA mutations. Many will get breast cancer or ovarian cancer. This is why it is important to be tested if you have a strong breast cancer history in your family. If you *know* you have a mutation, you can be monitored more closely. I had cancer. I had bad cancer. I had to have the biggest surgery and the most intense chemo to get through my cancer. But it was OK. It was a bunch of things I had to do to stay healthy, and here I am on the other side. Cancer is scary when you don't know what you are up against. But when you catch it early, breast cancer is extraordinarily treatable most of the time. I am modelling that for my nieces. For my sisters. They saw me handle the entirety of cancer with grace and strength. I worked about half-time during my chemo (I am an RN). I celebrated the women in my family with a henna party to decorate my head after I lost my hair (they had hands/feet done). I showed them that cancer is not as scary as it sounds, and that you *can* get through it. I never vomited. I never called in sick to work (other than the scheduled time off I had for chemo). I didn't let fear rule my life. I went on an Alaskan cruise 3 days after my last chemo. My sister with the BRCA1 mutation chose to have prophylactic mastectomies and ovary removal (she was 39). She was very open with her daughters that this was *her* choice in how to handle her known BRCA mutation. My mother and other sister with a BRCA2 mutation have chosen to do monitoring. They get yearly mammograms, and actually do the monthly self exams we are all supposed to be doing. The mammograms are alternated with a breast MRI, because my family has really dense breasts that aren't seen as well on mammograms as most women. If one of them develops breast cancer, it will be caught early. We are all modelling how to handle BRCA and/or cancer. My nieces are 10, 12 and 12. If and when they find out they have BRCA mutations, and if/when they have breast cancer, they will have a variety of strong women who have given them examples of how to deal with things. They will be strong and they will be OK. They will be prepared. So. For the uninformed, idiotic troll who wished death on my embryo and accused me of all sorts of things: 1. Fuck you. 2. There is no god. Science took away my ovarian function, and science gives me a chance to have a baby anyway. My sister who still has her ovaries is in the process of donating eggs so I can do another round of IVF. This is a very positive, honest, so very honest sharing of your life. i feel I learned so much. It is impressive how you choose to live your life and should serve as an example to others, so many others, who need this kind of positive encouragement, myself included. I was smiling.... until i got to the end and now I feel I need to apologize for the asshole(s) who spoke to you through checken shit posts on a message board. No one deserves that EVER. I hope that you know that the bulk of us are not that type of person and I choose to believe that or I would never return to this board. I wish only the best for you and your growing family. Yes, I hope that your child will maybe by a twist of luck not get the mutation carried to her but if she does - she is going to have the best team surrounding her. You prove that you cannot live your life in fear of the unknown. None of us are promised tomorrows and for all we know a giant meteor could wipe our planet out but we don't dwell on those what-ifs. We live to live, happy most of the time. What else is there? THANK YOU for all your inspiring honest words. AND the scum of the earth people are the reason we have that perfect block choice.
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Deleted
Posts: 0
Nov 24, 2024 23:57:19 GMT
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Post by Deleted on Jul 30, 2016 21:12:12 GMT
Alyca, I am so sorry for your loss. It sounds like you have a wonderful, loving family surrounding you and that is, imo, the #1 most important thing in life. I will be praying that your sister's egg donation will be successful. We need more people and families like you and yours in this world. Sending you much love. xoxo
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Post by PNWMom on Jul 30, 2016 21:20:47 GMT
This is a very positive, honest, so very honest sharing of your life. i feel I learned so much. It is impressive how you choose to live your life and should serve as an example to others, so many others, who need this kind of positive encouragement, myself included. I was smiling.... until i got to the end and now I feel I need to apologize for the asshole(s) who spoke to you through checken shit posts on a message board. No one deserves that EVER. I hope that you know that the bulk of us are not that type of person and I choose to believe that or I would never return to this board. I wish only the best for you and your growing family. Yes, I hope that your child will maybe by a twist of luck not get the mutation carried to her but if she does - she is going to have the best team surrounding her. You prove that you cannot live your life in fear of the unknown. None of us are promised tomorrows and for all we know a giant meteor could wipe our planet out but we don't dwell on those what-ifs. We live to live, happy most of the time. What else is there? THANK YOU for all your inspiring honest words. AND the scum of the earth people are the reason we have that perfect block choice. Thanks, marimoose I do recall reading on this very message board that the world was supposed to end yesterday, anyway... I do now know how to block someone on this board, so yay for learning new skills! I will admit that I totally burst into tears and had a few minutes of drama after reading that ridiculous post, but you all have reminded me that there are a full 6 pages of supportive people acting like actual human beings, so I am over it. I know that the decisions we are making are after long discussions with geneticists (including Mary Claire King, who discovered the BRCA mutation in the first place and lives locally to me), oncologists, counselors and medical ethicists. I am utterly at peace with our decision to use whatever healthy embryos we end up with.
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zztop11
Pearl Clutcher
Posts: 2,541
Oct 10, 2014 0:54:51 GMT
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Post by zztop11 on Jul 30, 2016 21:26:09 GMT
Holy shit, we're supposed to be happy about your pregnancy? How fucking selfish of you to implant an embryo that if born, has an 85% chance of getting breast cancer! You might as well chop off her breasts as soon as they are developed. The amount of well-wishers on this thread is disgusting. "It's either this girl or no biological child for me" I think if there is a God, he was trying to tell you that you shouldn't have a biological child. And yet here we go. I wish your DD the best. You, not so much. ETA: oops. My bad. It's an 88% chance. I just read your other thread on this issue. You had all sorts of testing done to "weed out" the embryos with genetic issues. When this was the last embryo left, you said fuck it. You said you will build the family that you want to have. You and your husband and your doctors are so fucking irresponsible. This is on the level of Octomom. It's truly mind-boggling that anyone thinks this is a good idea. But hey, I never thought anyone would vote for Trump either. Man, you are an epic bitch!
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Post by SabrinaM on Jul 30, 2016 21:26:54 GMT
Also, I feel like I need to apologize to ~Lauren~ . In the past, I have gotten her and Yubon mixed up in my head and I now see that there is actually a glaring difference between them (one is an outspoken woman with strong opinions; one is....... an offensive word I don't actually feel comfortable typing). Sorry, Lauren.....it won't happen again =) Cee You Next Tuesday is the word you're looking for. We're all thinking it.
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zztop11
Pearl Clutcher
Posts: 2,541
Oct 10, 2014 0:54:51 GMT
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Post by zztop11 on Jul 30, 2016 21:35:23 GMT
My sister turned me on to this site years ago. She's a lurker but I've been giving my thoughts and opinions on several occasions. I really do not like getting involved when an ignorant person makes an ignorant comment but I just could not let this one pass. Yukon ~ are you for real? You think that a person should not exist or be given the potential for life because they have a breast cancer gene mutation. I can only contribute this to your ignorance. People can have wonderful, full lives without their boobs. If they do get breast cancer, it is not the death sentence of years past. How do I know? I know because I have the gene mutation, along with my mother, cousins, two sisters and one daughter. To think that I would not have had a beautiful daughter because she might get breast cancer is unfathomable. I had breast cancer at the age of 32, when she was 1-1/2. At the time my husband was scared to death that he would loose me and have to raise our precious daughter by himself. But I lived. Lived to teach middle school for 30 years. Lived to help my younger sisters get through having their breast cancer and bilateral mastectomies. Lived to be a part of a family "club" that made my family so close, people comment about how we get along so well. I wouldn't be as strong a woman that I am if I didn't have this. I've helped other woman get through their cancer. I'll show my great fake boobs to anyone so they can see that life doesn't end because someone has a gene mutation. How dare you think so little of yourself and of others to think that you could not live with this! I know one thing. I'm glad you're not in my family. You never would have made it!
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zztop11
Pearl Clutcher
Posts: 2,541
Oct 10, 2014 0:54:51 GMT
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Post by zztop11 on Jul 30, 2016 21:36:40 GMT
My sister turned me on to this site years ago. She's a lurker but I've been giving my thoughts and opinions on several occasions. I really do not like getting involved when an ignorant person makes an ignorant comment but I just could not let this one pass. Yukon ~ are you for real? You think that a person should not exist or be given the potential for life because they have a breast cancer gene mutation. I can only contribute this to your ignorance. People can have wonderful, full lives without their boobs. If they do get breast cancer, it is not the death sentence of years past. How do I know? I know because I have the gene mutation, along with my mother, cousins, two sisters and one daughter. To think that I would not have had a beautiful daughter because she might get breast cancer is unfathomable. I had breast cancer at the age of 32, when she was 1-1/2. At the time my husband was scared to death that he would loose me and have to raise our precious daughter by himself. But I lived. Lived to teach middle school for 30 years. Lived to help my younger sisters get through having their breast cancer and bilateral mastectomies. Lived to be a part of a family "club" that made my family so close, people comment about how we get along so well. I wouldn't be as strong a woman that I am if I didn't have this. I've helped other woman get through their cancer. I'll show my great fake boobs to anyone so they can see that life doesn't end because someone has a gene mutation. How dare you think so little of yourself and of others to think that you could not live with this! I know one thing. I'm glad you're not in my family. You never would have made it! The above post is to YUBON, not Yukon.
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Post by quinmm14 on Jul 30, 2016 21:39:34 GMT
I'm sorry for your loss.
I don't think I've ever read such a graceful, thoughtful response to such a hateful, despicable post here before now. As hurtful as that was to you, I'm impressed with the way you responded.
Hugs to you.
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Post by LavenderLayoutLady on Jul 30, 2016 21:41:23 GMT
On the one hand, I don't owe anyone any explanations. On the other hand, though, maybe a drop of education will find it's way into the asshole making the appallingly judge-y statements. I have a BRCA mutation. I found it because I had cancer at 35. I had breast cancer. I consider any cancer that doesn't kill you to be a pretty 'good' cancer, but the cancer *I* got was actually pretty bad. Very fast growing, and without the hormone markers typically found in breast cancers, that helps guide which chemo you can use to kill it (if you need chemo at all). I had to do 20 rounds of 3 different chemos. One of which is nicknamed 'red death', because it makes your body fluids bright reddish orange, and it kills your heart over time (they keep a very close look and there is a specific lifetime limit to how many doses you can get--I made it up to 25%). I had bilateral mastectomies, which showed one large tumor (the one I could feel, that made me go get a mammogram), one smaller one in my armpit, and a 4x5cm field of tiny tumor too numerous to count. Basically, a little grenade waiting to explode. Not the highlight of my life, but I got through it just fine. Other than my ovaries getting killed in the process, I have zero ongoing issues. I allowed cancer to consume my year (2013), but it does not define my life. I am happy. I am healthy. I am living a great life. I have a wonderful husband, a great job. I live in a beautiful city (Seattle); own my own home and am set to retire early at 59 1/2 and travel the world with my husband. I am pretty happy that I exist. With or without my BRCA mutation. I have 2 sisters. One has my BRCA mutation. One has a different BRCA mutation (we won the genetic lottery--extraordinarily uncommon, but both of my parents had BRCA mutations in their families). My sisters have 4 kids between them. They may or may not have passed on this BRCA mutation. Won't know until the kids are tested at age 25. I have one brother. He has not been tested for BRCA mutations. He has three little girls. They may or may not have BRCA mutations. My siblings and I are all happy to be here. My mom has my BRCA mutation. She is 61. She never would have known about this mutation except that I ended up with cancer. She is pretty happy to exist--BRCA mutation or not. Her 6 brothers may or may not have BRCA mutations. Her mother or father have BRCA mutations. My grandmother is 89. No idea if she has a mutation or not (50/50 chance). She is pretty happy to exist. Angelina Jolie has a BRCA1 mutation, just like me. She has biological children. They may have BRCA mutations. There are literally tens of thousands (if not more) of people out there with BRCA mutations. Many will get breast cancer or ovarian cancer. This is why it is important to be tested if you have a strong breast cancer history in your family. If you *know* you have a mutation, you can be monitored more closely. I had cancer. I had bad cancer. I had to have the biggest surgery and the most intense chemo to get through my cancer. But it was OK. It was a bunch of things I had to do to stay healthy, and here I am on the other side. Cancer is scary when you don't know what you are up against. But when you catch it early, breast cancer is extraordinarily treatable most of the time. I am modelling that for my nieces. For my sisters. They saw me handle the entirety of cancer with grace and strength. I worked about half-time during my chemo (I am an RN). I celebrated the women in my family with a henna party to decorate my head after I lost my hair (they had hands/feet done). I showed them that cancer is not as scary as it sounds, and that you *can* get through it. I never vomited. I never called in sick to work (other than the scheduled time off I had for chemo). I didn't let fear rule my life. I went on an Alaskan cruise 3 days after my last chemo. My sister with the BRCA1 mutation chose to have prophylactic mastectomies and ovary removal (she was 39). She was very open with her daughters that this was *her* choice in how to handle her known BRCA mutation. My mother and other sister with a BRCA2 mutation have chosen to do monitoring. They get yearly mammograms, and actually do the monthly self exams we are all supposed to be doing. The mammograms are alternated with a breast MRI, because my family has really dense breasts that aren't seen as well on mammograms as most women. If one of them develops breast cancer, it will be caught early. We are all modelling how to handle BRCA and/or cancer. My nieces are 10, 12 and 12. If and when they find out they have BRCA mutations, and if/when they have breast cancer, they will have a variety of strong women who have given them examples of how to deal with things. They will be strong and they will be OK. They will be prepared. So. For the uninformed, idiotic troll who wished death on my embryo and accused me of all sorts of things: 1. Fuck you. 2. There is no god. Science took away my ovarian function, and science gives me a chance to have a baby anyway. My sister who still has her ovaries is in the process of donating eggs so I can do another round of IVF. Standing ovation!! Well said! Your strength and grace shine through.
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AmeliaBloomer
Drama Llama
Posts: 6,842
Location: USA
Jun 26, 2014 5:01:45 GMT
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Post by AmeliaBloomer on Jul 30, 2016 21:41:56 GMT
Thank you for your post explaining not only your history but your attitude about prevention and facing what life throws at you. Your sisters and nieces, of course, are lucky to have you as an example, but today we all benefited from it. You basically turned the other cheek by sharing your wisdom with us. I'm not sure I could have done that.
I'm so sorry for your loss. Good luck with the next round. Let us know how it goes.
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Post by femalebusiness on Jul 30, 2016 21:42:02 GMT
Holy shit, we're supposed to be happy about your pregnancy? How fucking selfish of you to implant an embryo that if born, has an 85% chance of getting breast cancer! You might as well chop off her breasts as soon as they are developed. The amount of well-wishers on this thread is disgusting. "It's either this girl or no biological child for me" I think if there is a God, he was trying to tell you that you shouldn't have a biological child. And yet here we go. I wish your DD the best. You, not so much. ETA: oops. My bad. It's an 88% chance. I just read your other thread on this issue. You had all sorts of testing done to "weed out" the embryos with genetic issues. When this was the last embryo left, you said fuck it. You said you will build the family that you want to have. You and your husband and your doctors are so fucking irresponsible. This is on the level of Octomom. It's truly mind-boggling that anyone thinks this is a good idea. But hey, I never thought anyone would vote for Trump either. I said on another thread that there are a handful of profoundly disturbed people who post on this board. You my dear are one of them.
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Post by anniefb on Jul 30, 2016 21:42:28 GMT
PNWMom I was so sorry to hear your update. Sending positive thoughts for the egg donation process.
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Post by Basket1lady on Jul 30, 2016 21:49:46 GMT
I'm so sorry for your loss.
And I for one was thrilled to hear that you used that imperfect egg. Every life has value. No one would say that you don't have the right to your life, and you have the gene. And technology moves fast. No one knows what kind of cure there may be 30 years from now.
I pray that the next round is successful and you get the family of your dreams.
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Post by christine58 on Jul 30, 2016 21:51:28 GMT
of positive encouragement, myself included. I was smiling.... until i got to the end and now I feel I need to apologize for the asshole(s) who spoke to you through checken shit posts on a message board. No one deserves that EVER. I hope that you know that the bulk of us are not that type of person a It was only one asshole...Yubon
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marimoose
Pearl Clutcher
Posts: 3,282
Jul 22, 2014 2:10:14 GMT
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Post by marimoose on Jul 30, 2016 21:52:32 GMT
This is a very positive, honest, so very honest sharing of your life. i feel I learned so much. It is impressive how you choose to live your life and should serve as an example to others, so many others, who need this kind of positive encouragement, myself included. I was smiling.... until i got to the end and now I feel I need to apologize for the asshole(s) who spoke to you through checken shit posts on a message board. No one deserves that EVER. I hope that you know that the bulk of us are not that type of person and I choose to believe that or I would never return to this board. I wish only the best for you and your growing family. Yes, I hope that your child will maybe by a twist of luck not get the mutation carried to her but if she does - she is going to have the best team surrounding her. You prove that you cannot live your life in fear of the unknown. None of us are promised tomorrows and for all we know a giant meteor could wipe our planet out but we don't dwell on those what-ifs. We live to live, happy most of the time. What else is there? THANK YOU for all your inspiring honest words. AND the scum of the earth people are the reason we have that perfect block choice. Thanks, marimoose I do recall reading on this very message board that the world was supposed to end yesterday, anyway... I do now know how to block someone on this board, so yay for learning new skills! I will admit that I totally burst into tears and had a few minutes of drama after reading that ridiculous post, but you all have reminded me that there are a full 6 pages of supportive people acting like actual human beings, so I am over it. I know that the decisions we are making are after long discussions with geneticists (including Mary Claire King, who discovered the BRCA mutation in the first place and lives locally to me), oncologists, counselors and medical ethicists. I am utterly at peace with our decision to use whatever healthy embryos we end up with.And at the end of the day, THIS is the only thing that matters. I can't wait until the day you are able to introduce your little bundle of sunshine to all of us no matter how you may achieve that goal.
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Post by elaine on Jul 30, 2016 22:15:49 GMT
PNWMom, (((hugs))) I am so sorry for your loss and your struggles.
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Post by femalebusiness on Jul 30, 2016 22:27:39 GMT
PNWMom I'm so sorry you are going through this.
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GiantsFan
Prolific Pea
Posts: 8,508
Site Supporter
Jun 27, 2014 14:44:56 GMT
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Post by GiantsFan on Jul 30, 2016 22:53:27 GMT
PNWMom - so sorry for your loss. Responses like one on this thread is exactly why I a few peas blocked.
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Post by dewryce on Jul 30, 2016 23:45:18 GMT
PNWMom, I'm so sorry the transfer didn't work (((hugs))). How wonderful that your sister will do that for you, I wish you much success! We are about to transfer our last frozen embryos to a surrogate at the end of August, and if it doesn't work I will not be using my eggs in the future. If you ever need to talk please feel free to peamail me. Best wishes!
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flute4peace
Drama Llama
Posts: 6,757
Jul 3, 2014 14:38:35 GMT
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Post by flute4peace on Jul 30, 2016 23:54:21 GMT
Sending you prayers and support. I have some friends with two beautiful little boys from donor eggs. There is hope!
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Post by PNWMom on Jul 30, 2016 23:54:42 GMT
PNWMom , I'm so sorry the transfer didn't work (((hugs))). How wonderful that your sister will do that for you, I wish you much success! We are about to transfer our last frozen embryos to a surrogate at the end of August, and if it doesn't work I will not be using my eggs in the future. If you ever need to talk please feel free to peamail me. Best wishes! Thanks, dewryce My sister (the one who is donating eggs) was actually a gestational surrogate twice (their eggs & sperm/her uterus) for twins and a singleton. She had an amazing experience the first time and an overall pretty good one the second time, and keeps in good contact with the parents (the twins live out of the country--they actually flew her over for a few weeks a couple years ago, and she regularly skypes with them). The youngest surrobaby now lives a city away from her and she is a trusted friend and occasional babysitter. It is a pretty incredible experience all around. Best of luck to you moving forward with your baby making!
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seaexplore
Prolific Pea
Posts: 8,878
Apr 25, 2015 23:57:30 GMT
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Post by seaexplore on Jul 30, 2016 23:56:31 GMT
On the one hand, I don't owe anyone any explanations. On the other hand, though, maybe a drop of education will find it's way into the asshole making the appallingly judge-y statements. I have a BRCA mutation. I found it because I had cancer at 35. I had breast cancer. I consider any cancer that doesn't kill you to be a pretty 'good' cancer, but the cancer *I* got was actually pretty bad. Very fast growing, and without the hormone markers typically found in breast cancers, that helps guide which chemo you can use to kill it (if you need chemo at all). I had to do 20 rounds of 3 different chemos. One of which is nicknamed 'red death', because it makes your body fluids bright reddish orange, and it kills your heart over time (they keep a very close look and there is a specific lifetime limit to how many doses you can get--I made it up to 25%). I had bilateral mastectomies, which showed one large tumor (the one I could feel, that made me go get a mammogram), one smaller one in my armpit, and a 4x5cm field of tiny tumor too numerous to count. Basically, a little grenade waiting to explode. Not the highlight of my life, but I got through it just fine. Other than my ovaries getting killed in the process, I have zero ongoing issues. I allowed cancer to consume my year (2013), but it does not define my life. I am happy. I am healthy. I am living a great life. I have a wonderful husband, a great job. I live in a beautiful city (Seattle); own my own home and am set to retire early at 59 1/2 and travel the world with my husband. I am pretty happy that I exist. With or without my BRCA mutation. I have 2 sisters. One has my BRCA mutation. One has a different BRCA mutation (we won the genetic lottery--extraordinarily uncommon, but both of my parents had BRCA mutations in their families). My sisters have 4 kids between them. They may or may not have passed on this BRCA mutation. Won't know until the kids are tested at age 25. I have one brother. He has not been tested for BRCA mutations. He has three little girls. They may or may not have BRCA mutations. My siblings and I are all happy to be here. My mom has my BRCA mutation. She is 61. She never would have known about this mutation except that I ended up with cancer. She is pretty happy to exist--BRCA mutation or not. Her 6 brothers may or may not have BRCA mutations. Her mother or father have BRCA mutations. My grandmother is 89. No idea if she has a mutation or not (50/50 chance). She is pretty happy to exist. Angelina Jolie has a BRCA1 mutation, just like me. She has biological children. They may have BRCA mutations. There are literally tens of thousands (if not more) of people out there with BRCA mutations. Many will get breast cancer or ovarian cancer. This is why it is important to be tested if you have a strong breast cancer history in your family. If you *know* you have a mutation, you can be monitored more closely. I had cancer. I had bad cancer. I had to have the biggest surgery and the most intense chemo to get through my cancer. But it was OK. It was a bunch of things I had to do to stay healthy, and here I am on the other side. Cancer is scary when you don't know what you are up against. But when you catch it early, breast cancer is extraordinarily treatable most of the time. I am modelling that for my nieces. For my sisters. They saw me handle the entirety of cancer with grace and strength. I worked about half-time during my chemo (I am an RN). I celebrated the women in my family with a henna party to decorate my head after I lost my hair (they had hands/feet done). I showed them that cancer is not as scary as it sounds, and that you *can* get through it. I never vomited. I never called in sick to work (other than the scheduled time off I had for chemo). I didn't let fear rule my life. I went on an Alaskan cruise 3 days after my last chemo. My sister with the BRCA1 mutation chose to have prophylactic mastectomies and ovary removal (she was 39). She was very open with her daughters that this was *her* choice in how to handle her known BRCA mutation. My mother and other sister with a BRCA2 mutation have chosen to do monitoring. They get yearly mammograms, and actually do the monthly self exams we are all supposed to be doing. The mammograms are alternated with a breast MRI, because my family has really dense breasts that aren't seen as well on mammograms as most women. If one of them develops breast cancer, it will be caught early. We are all modelling how to handle BRCA and/or cancer. My nieces are 10, 12 and 12. If and when they find out they have BRCA mutations, and if/when they have breast cancer, they will have a variety of strong women who have given them examples of how to deal with things. They will be strong and they will be OK. They will be prepared. So. For the uninformed, idiotic troll who wished death on my embryo and accused me of all sorts of things: 1. Fuck you. 2. There is no god. Science took away my ovarian function, and science gives me a chance to have a baby anyway. My sister who still has her ovaries is in the process of donating eggs so I can do another round of IVF. I just have to say I love you. You are strong. Keep going! My mom is a breast cancer survivor. They did not check her for the mutation since there is not a strong family history of it (none in fact that we know of). Hers was HER2 positive and she had a horrific 18 months dealing with it at 66 years old. She's on the mend and living life. Her experience has taught her not to take anything for granted. I think she came out stronger than ever on the other side of it. You have also come out stronger for having been thru this. Good luck with the donor eggs. I hope you get your dream family.
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Post by secondlife on Jul 31, 2016 0:09:16 GMT
You're more gracious than I would have been - I truly wish your family all the best. Tagging admin just to make sure a certain portion of this thread is seen.
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Deleted
Posts: 0
Nov 24, 2024 23:57:19 GMT
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Post by Deleted on Jul 31, 2016 0:31:17 GMT
I am so sorry for your loss and pain. I'm keeping you in my prayers!
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