inkedup
Pearl Clutcher
Posts: 4,837
Jun 26, 2014 5:00:26 GMT
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Post by inkedup on Feb 2, 2019 4:10:55 GMT
elaine, I saw your post in the other thread and wanted to send some love your way. I hope your son's placement goes more smoothly than expected, and that it's the beginning of something better for you all.
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Post by lucyg on Feb 2, 2019 4:14:58 GMT
Ditto that!
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trollie
Pearl Clutcher
Posts: 3,580
Jul 2, 2014 22:14:02 GMT
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Post by trollie on Feb 2, 2019 4:17:21 GMT
LOVE!!!!!!!
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Post by Tamhugh on Feb 2, 2019 4:19:15 GMT
What a difficult decision, but know that you are doing what is best for him and for your family. Hugs.
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Post by scrapmaven on Feb 2, 2019 4:21:05 GMT
elaine, I'm sending love, as well. I wish the best for you and your precious Eli.
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Post by bc2ca on Feb 2, 2019 4:24:22 GMT
I hope it gives you some comfort knowing so many of us are thinking about you and your family, hoping for an easy transition.
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Deleted
Posts: 0
Sept 30, 2024 11:43:03 GMT
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Post by Deleted on Feb 2, 2019 4:31:07 GMT
From one Autism mom to another...hugs. lots and lots of hugs
I somewhat get it. I know at some point ds will have to go to a private residential facility. It makes my heart break when I think about it. We are his safe place. Mom (me) is his safety net. It scares me that someone else will care for him. That's my job. But I won't always be here so its better to do it while Im alive to help with the transition.
Hugs and love
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Post by Merge on Feb 2, 2019 4:34:28 GMT
((hugs)) to you, Elaine!
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Post by pierkiss on Feb 2, 2019 4:35:07 GMT
Big hugs Elaine. I sincerely hope his transition to his new placement is as smooth as possible. Hopefully your son loves it there and will thrive in his new environment. This has to be one of the hardest decisions parents have to make for their child.
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quiltz
Drama Llama
Posts: 6,840
Location: CANADA
Jun 29, 2014 16:13:28 GMT
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Post by quiltz on Feb 2, 2019 4:35:41 GMT
Many ((((((hugs)))))) to you & your family. A change is always difficult and when it involves our children, it can be heart-wrenching.
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rodeomom
Pearl Clutcher
Refupee # 380 "I don't have to run fast, I just have to run faster than you."
Posts: 3,670
Location: Chickasaw Nation, Oklahoma
Jun 25, 2014 23:34:38 GMT
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Post by rodeomom on Feb 2, 2019 4:37:09 GMT
{HUGS}
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Post by papercrafteradvocate on Feb 2, 2019 4:40:53 GMT
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
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Post by patin on Feb 2, 2019 4:49:35 GMT
((HUGS)) to all of you. I always appreciate how thoughtful your responses are & you must have agonized over this.
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Post by femalebusiness on Feb 2, 2019 4:49:52 GMT
Keeping you and your husband in my thoughts. 💕
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Post by tentoes on Feb 2, 2019 4:55:32 GMT
Praying for you!
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Post by elaine on Feb 2, 2019 5:02:25 GMT
Thank you for all your kind words everyone. He will be in for 3 months, so at least an end is in sight. They can hopefully find the right meds for him to allow him to contain his aggression. He has the mentality of around a 1st grader in a 17 y.o. body. They won’t let him have any of his stuffed animals that he sleeps with, nor his iPad. I am allowed to bring a comforter for his bed, so went out and got a nice Mickey Mouse one - he loves all things Disney I never in a million years imagined that I’d have a child that I’d have to institutionalize. It really is heartbreaking to the point that I can feel the ache. One minute he raging and beating on me and the next he is playing with his stuffed yogi bear. He flaps when he is excited at movies - he flapped all through the new LEGO movie 2. Tuesday,will be a long day - we will pack the car the night before with his things. We will get him up at 5:45, get him dressed and give him a sedative to hopefully help with the drive, because he won’t want to go. Grab his favorite fast food breakfast on the way down and the start admissions at 8:30 am. We are up next to DC and the hospital is just east of Richmond - so a 2-hour drive. The lack of resources for these kids also frightening - my kids we born at the beginning of the current autism epidemic wave. There are going to be more and more of large teens/young adults with autism who are larger than their parents and we need a way to intervene that works to keep everyone safe. Because we, as a society, are doing less than minimal for what these kids and families need. It is become a growing crisis.
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Post by malibou on Feb 2, 2019 5:22:03 GMT
Wishing you and your family the best possible transition.
The grace with which you go thru life truly remarkable.
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Post by Chips on Feb 2, 2019 5:36:51 GMT
Sending you all lots of love and hugs. Be gentle with yourself and you are stronger than you know.
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Post by refugeepea on Feb 2, 2019 5:39:10 GMT
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Post by refugeepea on Feb 2, 2019 5:44:50 GMT
The lack of resources for these kids also frightening - my kids we born at the beginning of the current autism epidemic wave. There are going to be more and more of large teens/young adults with autism who are larger than their parents and we need a way to intervene that works to keep everyone safe. Because we, as a society, are doing less than minimal for what these kids and families need. It is become a growing crisis. I'm afraid for what will happen with my son too. He's only 10 and my body is beat up. I don't know how many years he's been on a waiver waiting list. I will probably be in the same position in a few years.
My daughter is 17 as well and I'm at a loss of what to do with her for multiple other reasons. How do you convince an extremely smart girl to continue her education when her maturity level is a ten year old with giant anxiety issues?
Sorry to add this to your thread. You know I understand. I'm amazed that you're hanging in there! Especially with your cancer.
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gramma
Pearl Clutcher
Posts: 3,039
Location: Sacramento, Ca
Aug 29, 2014 3:09:48 GMT
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Post by gramma on Feb 2, 2019 5:48:48 GMT
Thank you for all your kind words everyone. He will be in for 3 months, so at least an end is in sight. They can hopefully find the right meds for him to allow him to contain his aggression. He has the mentality of around a 1st grader in a 17 y.o. body. They won’t let him have any of his stuffed animals that he sleeps with, nor his iPad. I am allowed to bring a comforter for his bed, so went out and got a nice Mickey Mouse one - he loves all things Disney I never in a million years imagined that I’d have a child that I’d have to institutionalize. It really is heartbreaking to the point that I can feel the ache. One minute he raging and beating on me and the next he is playing with his stuffed yogi bear. He flaps when he is excited at movies - he flapped all through the new LEGO movie 2. Tuesday,will be a long day - we will pack the car the night before with his things. We will get him up at 5:45, get him dressed and give him a sedative to hopefully help with the drive, because he won’t want to go. Grab his favorite fast food breakfast on the way down and the start admissions at 8:30 am. We are up next to DC and the hospital is just east of Richmond - so a 2-hour drive. The lack of resources for these kids also frightening - my kids we born at the beginning of the current autism epidemic wave. There are going to be more and more of large teens/young adults with autism who are larger than their parents and we need a way to intervene that works to keep everyone safe. Because we, as a society, are doing less than minimal for what these kids and families need. It is become a growing crisis. I am so sorry you are having to make this decision. I work for a company that provides support services for the developmentally disabled. The most rewarding job I've ever had. I wish that more states had services like this - - - stepagency.com/
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Post by Legacy Girl on Feb 2, 2019 5:49:35 GMT
My prayers and warmest thoughts are with you and your family, Elaine.
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inkedup
Pearl Clutcher
Posts: 4,837
Jun 26, 2014 5:00:26 GMT
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Post by inkedup on Feb 2, 2019 5:51:14 GMT
The lack of resources for these kids also frightening - my kids we born at the beginning of the current autism epidemic wave. There are going to be more and more of large teens/young adults with autism who are larger than their parents and we need a way to intervene that works to keep everyone safe. Because we, as a society, are doing less than minimal for what these kids and families need. It is become a growing crisis. I'm afraid for what will happen with my son too. He's only 10 and my body is beat up. I don't know how many years he's been on a waiver waiting list. I will probably be in the same position in a few years.
My daughter is 17 as well and I'm at a loss of what to do with her for multiple other reasons. How do you convince an extremely smart girl to continue her education when her maturity level is a ten year old with giant anxiety issues?
Sorry to add this to your thread. You know I understand. I'm amazed that you're hanging in there! Especially with your cancer.
Love and hugs to you, too, refugeepea . I hate how hard it is for families like yours.
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Deleted
Posts: 0
Sept 30, 2024 11:43:03 GMT
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Post by Deleted on Feb 2, 2019 6:56:34 GMT
elaine: Hugs to you and your family. I hope that you garner the strength for this whole new period in your son's life. It takes a lot to do what's best for your child, even if it tears our heart up. Please remember to take care of yourself. xo
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Deleted
Posts: 0
Sept 30, 2024 11:43:03 GMT
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Post by Deleted on Feb 2, 2019 7:00:22 GMT
Adding another set of arms for the hug elaine.
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Post by gillyp on Feb 2, 2019 8:29:26 GMT
Another one adding to the hugs here for you elaine and also refugeepea. What a hard decision. The three months will fly in and I hope you will all move forward from it with renewed hope.
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Post by gar on Feb 2, 2019 8:56:29 GMT
Thinking of you and your family ((hugs))
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Post by lesserknownpea on Feb 2, 2019 9:04:15 GMT
I hope the meds get figured out and he returns calmer to home in time.
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cycworker
Pearl Clutcher
Posts: 4,387
Jun 26, 2014 0:42:38 GMT
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Post by cycworker on Feb 2, 2019 9:10:39 GMT
Sending love & prayers, elaine. I can't imagine how difficult the situation must be.
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PLurker
Prolific Pea
Posts: 9,790
Location: Behind the Cheddar Curtain
Jun 28, 2014 3:48:49 GMT
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Post by PLurker on Feb 2, 2019 9:28:33 GMT
elaine the best of luck with a tough, heart wrenching situation. If I don't say it enough, know my heart and thoughts are with you often. Although I don't know you IRL your online presence is enough for me to know what a good soul you are. You deserve the best. hugs.
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